HIV/AIDS communication

HIV/AIDS raises many communication challenges as it touches on all aspects of life. Issues range from personal identity and sexuality to understanding of morality and disease to the social problems of stigma and discrimination. The pandemic has also seen courageous and creative responses from people living with HIV/AIDS, and those living with its social impact. So it's no accident that the communication approaches and thinking that have been developed to tackle HIV/AIDS hold lessons for us all.

This list of key resources was compiled for the Exchange Lunchtime Discussion on HIV/AIDS Communication. Source welcomes details of additional resources and accounts of how they are useful - please send these to sourceassistant@hi-uk.org.

Selected resources

Books, reports, etc

A new weave of power, people & politics : the action guide for advocacy and citizen participation

VENEKLASEN, Lisa
MILLER, Valerie
March 2007

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This comprehensive action guide provides an approach for building people’s participation and collective power that goes beyond influencing policy and politics to transforming public decision-making. It offers easily adaptable 'modules' for NGOs trainers, activists, grass-roots organisations, who wish to develop ideas around advocacy. One of the strengths is that it focuses on peoples participation and explores ideas relating to power and politics in citizen-centred advocacy. It emphasises power and constituency-building discussed through the lens of gender/race/class and is based upon the concrete experiences of social change worldwide
It also offers facilitators tips, sample exercises and easily adaptable handouts, along with core information to support anyone through the learning process. Based on long-term experience of a range of practitioners, the guide provides well-tested methods for promoting citizen participation and practical ways of realising a rights-based approach.
The contents, chapters 1, 3, 5, 10 and 13 can be accessed electronically

Communications framework for HIV/AIDS : a new direction

JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
1999

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This framework, the product of a participatory research project on the use of communications for HIV prevention, finds conventional communications that focus on behaviour change limited in their scope and effectiveness. It questions the relationship between knowledge and behaviour, and the stress in ‘behaviour change’ communication on individual change. For sustainable change, the influence of a number of domains of social context need to be addressed, including: political and policy frameworks, gender, socio-economic status, spirituality and religion, and culture. It builds on these domains to create broad regional strategies for communications in Asia, Africa and Latin America and the Caribbean. Its suggestions for future national strategies combine interpersonal communication and mass media in key areas of HIV/AIDS prevention and care. It stipulates that participatory processes are central to designing and operationalising national strategies

Intellectual property rights and access to ARV medicines : civil society resistance in the global south|Brazil, Colombia, China, India, Thailand

REIS, Renata
TERTO, Veriano Jr
PIMENTA, Maria Cristina Pimenta
Eds
2009

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This book looks at "...the recent history and the many struggles related to advocacy for access to [antiretroviral] medicines of engaged civil society. Through the experiences of five middle-income countries - Brazil, China, Colombia, India, and Thailand." It presents "...the perspective of local civil society organisations about the national impact of intellectual property protection and access to medications. "These five countries were chosen due to their accumulated experience in this field, their capacity to produce generic medication, their activist efforts, and the exchange of ideas and information that already exists between them"

Media and HIV/AIDS in East and Southern Africa : a resource book

BOAFO, ST Kwame
ARNALDO, Carlos A
Eds
2000

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This publication intends to generate interest, awareness, knowledge and understanding among media practitioners of the prevalence of HIV/AIDS in African countries and its immense social, demographic and economic impact. It also aims to stimulate efforts to integrate preventive information on HIV/AIDS into the mass media in African countries

National partnership platforms on HIV and TB : a toolkit to strengthen civil society information, dialogue and advocacy

RAMAKANT, Bobby
et al
2009

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This toolkit aims to share the learning on national partnership programmes (NPP) so far, The examples, case studies, challenges and processes described are therefore a ‘work-in-progress’ rather than perfectly presented material. The toolkit also provides examples of successful initiatives using the NPP approach. A NPP is based on the principle that information is power, providing tools for information sharing, networking and dialogue. NPPs facilitate the process of consensus building, developing an informed common advocacy agenda and implementing effective country level advocacy on HIV and TB

CD-ROMs

Journal articles

Sexual-health communication across and within cultures : the clown project, Guatemala

SAVDIE, Anthony
CHETLEY, Andrew
June 2009

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This paper puts forward an argument in favour of careful and critical analysis of culture in formulating communication strategies with and for specific groups, based on experience drawn from the Clown Project in Guatemala and other countries in Central America. The Clown Project uses labour-intensive face-to-face street theatre and dialogue, participatory workshops, and symbolic communication such as print-based material to reach those most vulnerable to the spread and impact of HIV and AIDS . The analysis takes into account relations of power within and between vulnerable groups, examining the centre-periphery dynamic between classes, genders, ethnicities, age groups, and other social identities. Both appropriately supported insider perspectives and appropriately processed outsider knowledge are recommended, along with ways of bridging science and the field, theory and practice

Websites

Eldis : the gateway to development information

ELDIS

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ELDIS is a gateway to information on development issues, providing free and easy access to a wide range of high quality online resources. It provides summaries and links to online documents. It also offers a directory of websites, databases, library catalogues and email discussion lists, and an email news service that can bring the latest research to your mail-box. Its resource guides offer easy access to information on a wide range of subjects

Journalists against AIDS (JAAIDS) Nigeria

JOURNALISTS AGAINST AIDS (JAAIDS) Nigeria

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This website provides information and resources for journalists reporting on HIV/AIDS in Nigeria. Includes a wide range of articles on issues around reporting and on HIV communications, and an extensive list of links to HIV/AIDS and media websites and resources

KC team : speak your world

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This website has health and development stories from Key Correspondents (KC) as well as tips about writing and posting stories. The KC Team is a vibrant network of more than 250 citizen journalists, from all walks of life, based in over 50 countries. They write about health and development issues affecting them and their communities and in doing so, ‘speak their world’. A large number are people living with HIV, TB or other health conditions. Together they help document local realities and give a voice to the voiceless. The aims of the KC Team are to: * Train and empower community voices by developing writing skills, critical analysis of information and advocacy reporting; * Increase people’s awareness of local/international HIV/AIDS/TB and other health issues by publishing KC articles through a range of multimedia platforms and supporting KCs with media outreach; * Enable grassroots involvement in national strategies on HIV/TB and health by documenting issues, producing policy briefs and publicising recommendations from KC stories; and * Document and publish local issues locally and globally through KC reporting of global, regional and national conferences and events. To become a Key Correspondent, register on the website

The Communication Initiative

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The Communication Initiative (CI) is a partnership of development organisations seeking to support advances in the effectiveness and scale of communication interventions for positive international development. The CI strategy includes provision of real-time information on communication and development experiences and thinking, facilitating horizontal linkages between people engaged in communication action, peer commentary on programmes and strategies and taking opportunities to promote strategic thinking on communication and development issues and problems. Themed sites within this website relate to: avian flu; HIV & AIDS; democracy & governance; early childhood development; health communication; ICT policies and studies; ICT for development; natural resource management; polio; and community radio and edutainment in Africa

Organisations

NAM Publications

UK

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77a Tradescant Road,
London,
SW8 1XJ

NAM exists to support the fight against AIDS with independent, accurate, accessible and comprehensive information. It produces extensive information on treatments,directories of contacts and organisations working in the HIV field, as well as international resources database which is searchable in 6 languages. There is also a searchable database of HIV clinics available in the UK. NAM is the UK's leading specialist HIV / AIDS information provider with international publications including the European AIDS Directory and AIDS organisations worldwide - accessible online at http://www.aidsmap.com. Now NAM works with the International HIV / AIDS Alliance to provide additional international support

Panos Institute

UK

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9 White Lion St
London N1 9PD

Panos believes people will only be lifted out of poverty if they have a greater say in their own development. Panos works with the media to produce informative articles and radio programmes and to stimulate public debate within developing countries on issues like HIV/AIDs, unjust trade rules and climate change

The International Community of Women Living with HIV/AIDS (ICW)

UK

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2C Leroy House
436 Essex Road
London N1 3QP

An organisation run for and by HIV positive women that exists to promote the voices and improve the situation of HIV positive women throughout the world. It aims to raise the awareness of HIV positive women's issues and promote affective action to address them; reduce the isolation of HIV positive women and overcome the stigma of HIV/AIDS; promote the rights of HIV positive women globally; and empower HIV positive women to address and promote changes in issues of importance to HIV positive women's lives