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At risk of exclusion from CRPD and SDGs implementation: Inequality and persons with deafblindness. Initial global report on situation and rights of persons with deafblindness

JENSEN, Rune
et al
September 2018

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Representing between 0.2% to 2% of the population, persons with deafblindness are a very diverse yet hidden group and are, overall, more likely to be poor and unemployed, and with lower educational outcomes. Because deafblindness is less well-known and often misunderstood, people struggle to obtain the right support, and are often excluded from both development and disability programmes. This initial global report on the situation of persons with deafblindness seeks to start a dialogue between international disability rights and development stakeholders, and is based on research undertaken by the World Federation of the Deafblind (WFDB) combining the largest population-based analysis of persons with deafblindness conducted to date (disaggregation of 22 population-based surveys from low, middle and high-income countries), an academic literature review, two surveys conducted among members and partners of WFDB and Sense International. Women and men with deafblindness from across the world took part in the Helen Keller World Conference in June 2018, and were consulted to confirm the findings and elaborate on the recommendations for this report.

 

Data and discussion are presented on people with deafblindess and: inequality; poverty; work; education; health; participation on political and public life; and social life. Datasets are included. 

 

Gender and disability intersectionality in practice: Women and girls with disabilities addressing discrimination and violence in Africa.

ADAMS, Lisa
et al
March 2018

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This new Making It Work report presents 9 good practices successfully addressing the prevention and response to violence and discrimination against women and girls with disabilities in Africa. It also contains key advocacy recommendations that can be used for disability and/or gender advocates in order to further promote the rights of women and girls with disabilities.

The practices were:

  • Gender-Based Violence prevention through a grassroots initiative led by women with disabilities (Rwanda)
  • Protecting urban refugee women and girls with disabilities from abuse and discrimination in Kenya
  • Advancing the access of deafblind women and girls to Sexual and Reproductive Health (Malawi)
  • Enhancing access to justice for GenderBased Violence survivors with intellectual challenges through integrated legal and psychosocial support service provision (Kenya)
  • Developing knowledge and empowerment through the Gender and Disability Inclusive Development Community of Practice (Cameroon)
  • Promoting a safer, Gender-Based Violence free environment for women and girls with disabilities in Lilongwe, Malawi
  • Restoring the dignity of women and girls with disabilities in the Plateau State of Nigeria
  • Forging a district community where women and girls with disabilities live dignified and empowered lives (Uganda)
  • Emerging Practice: Fostering peace and respect by bringing women and girls with disabilities concerns into a women’s organization (Kenya)

CRPD Course (with an emphasis on how users and survivors of psychiatry can use the CRPD to advance our human rights)

Tina Minkowitz
March 2017

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The Convention on the Rights of Persons with Disabilities is a watershed in the human rights of users and survivors of psychiatry. This course is offered with an emphasis on how users and survivors of psychiatry can use the CRPD to advance human rights of persons with disabilities.

 

The Convention of course guarantees the rights of all persons with disabilities, in all their diversity.  Major constituencies organized at the international level included the World Network of Users and Survivors of Psychiatry, World Federation of the Deaf, World Blind Union, World Federation of the Deafblind, Inclusion International (persons with intellectual disabilities and their families), International Federation of Hard of Hearing Persons, and Disabled Peoples’ International (cross-disability).  They organized all disabled people’s organizations and allies into the International Disability Caucus, and aimed for the Convention to be equally relevant to all persons with disabilities irrespective of the type of disability or geographical location.  Every constituency finds what it needs in the text, and the Convention can be approached from a number of different starting points to uncover its potential.

 

The course is taught by Tina Minkowitz, Esq., a human rights lawyer and survivor of psychiatry who was instrumental in developing the relevant provisions.  She represented the World Network of Users and Survivors of Psychiatry (WNUSP) in the drafting and negotiation of the CRPD, and subsequently founded the Center for the Human Rights of Users and Survivors of Psychiatry (CHRUSP).

Advancing the access of deafblind women and girls to sexual and reproductive health

VISUAL HEARING IMPAIRMENT MEMBERSHIP ASSOCIATION (VIHEMA)
2017

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Activities to promote the access of deafblind women and girls to sexual and reproductive health are reported via brief descriptions of what happened, what changed and what worked. Activites included: training the deafblind women in their rights;training relatives of deafblind women, giving advice on general care, as well as highlighting the importance of supporting their sexual and reproductive health choices and promoting family planning; tackling the issue of the forced sterilization; awareness raising via newspapers and radio and improving livelihoods.

 

 

Applied research on disability in Africa : the Maghreb and West Africa report

BENKIRANE, Wassila
ZOUHAIRI, Abdellah
2014

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“This literature review concerns the achievements of a project which started in 2014 and will last three years. The aim of this project is the dissemination and promotion of applied research results and disability to researchers and field stakeholders of the African continent (particularly to Disabled People Organizations), in order to increase knowledge on the situation of people with disabilities and the recommendations made to improve their social participation… The mapping of applied research in West African countries shows the exclusion related to the environment, which lacks the school, health, and sports infrastructure required to promote their [people with disabilities] rights. We will mainly deal with the issue of exclusion and its multidimensional aspect in West Africa, as well as the institutional efforts to set up development plans for people with disabilities in these regions”

Report on the open ears to learn project implemented in Western Province

ZAMBIA NATIONAL ASSOCIATION OF THE HEARING IMPAIRED (ZNAHI)
2010

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This is a report of the Open Ears to Learn project, which was implemented to include hearing impaired children in mainstream schools by increasing their learning participation. The children were identified by screening them for hearing loss and subsequently providing them with hearing aids and making appropriate referrals to special schools where necessary. Children known to have a sight impairment were included in the screening. The project, which was implemented in Mongu , Senaga and Kaoma districts of Western Province in Zambia, also included sensitisation for teachers on the needs of hearing impaired children

Family friendly! Working with deaf children and their communities worldwide

WILSON, Kirsty
MILES, Susie
KAPLAN, Ian
February 2008

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This comprehensive resource focuses on the important role that parents and families can play in the lives of their deaf child within the larger community. It is written as a guidebook for parents or anyone who wants to learn more about parental involvement in the support of deaf children, but specifically for service providers

How do people who are deafblind communicate?

SENSE
2008

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This resource outlines various means of communication with deaf-blind individuals. It also outlines the challenges facing people with hearing and vision impairments, and the various assistive technolgy available

CHARGE and multi-sensory impairment

SENSE
2008

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This factsheet describes multi-sensory impairment and what it means for individuals with CHARGE. It provides details about functional deafblindness and early intervention, developmental delays, the need for monitoring and support available. This factsheet is useful for people interested in CHARGE and multisensory impairment

Disability and deafness in East Asia : social and educational responses from antiquity to recent times. A bibliography of European-language materials with introduction and some annotation

MILES, M
August 2007

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This extensive bibliography includes over 900 articles, chapters and books relating to the social and educational responses to disability, deafness and mental health issues in China, Korea and Japan from antiquity to present day. It would be useful for anyone interested in disability studies, research and disability and development

How to guide a deafblind person

SENSE
January 2007

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This resource is intended to ease communication with deaf-blind people and offer clarity on how to guide them safely. It also explains the difference between guiding a deaf-blind person and guiding a blind person

Screening and assessments

THAWANI, Vimal
2006

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This factsheet describes how to identify and diagnose deafblindness with specific reference to the Indian context. Information is provided on how to develop an appropriate programme for children in rural settings and how to create awareness among the community about deafblindness. This resource would be helpful for professionals who are working with people with sensory impairments and those working towards including deafblindness issues in mainstream development action

Communicating

SHEVDE, Sampada
2006

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In this factsheet, communication is defined and verbal and non-verbal methods are explored. Communication strategies for working with children who are deafblind are highlighted including teaching methods, expressive communication, receptive communication and communication interaction. This practical resource would be useful for anyone wishing to improve their communication with people with sensory impairments

Helping my child

KASHYAP, Sunanda
2006

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This factsheet provides practical advice for parents and carers about how to help deafblind children to learn everyday activities, such as eating, grooming, dressing, bathing, mobility, positioning and play

Playing with my child

SHEVDE, Sampada
2006

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This factsheet explores the importance of play for children with deafblindness, covering various types of play, such as sensorimotor, physical, symbolic and games. Information is provided regarding suggested timing of play activities, positioning for play activities, properties of toys and details of activities that can be used as play. This resource is particularly useful for parents and carers of deafblind children

Schemes and concessions

SENSE INTERNATIONAL INDIA
2006

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This factsheet provides useful information about schemes and concessions for people with disabilities in India. It includes details about various disability policies and rights in India, as well as emphasising the importance of establishing networks for people with deafblindness. This information is particularly helpful to people with disabilities, their family members, their carers and professionals in India

Holistic and interactive communication methods

LAHTINEN, Riitta
2005

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This research article examines the strategies and theoretical models of the function of language for improving communication for acquired deafblind people, their family members and interpreters. Different methods and techniques are examined to improve the quality of communication. This resource would be useful for professionals working with people with sensory impairments at community level

Roles and functions of the deafblind interpreter - an overview

HASSINEN, Leena
2005

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This article describes the roles and functions of the deafblind interpreter, as divided into three core elements including language transmission, guiding, and transmitting visual information. This is a useful training tool for deafblind interpreters and for people wishing to improve their communication skills for working with people with sensory impairments

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