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The Sphere standards and the Coronavirus response

SPHERE
2020

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Sphere reviewed emerging practices in the Coronavirus outbreak response and released a 4-page document guiding you through the relevant parts of the Sphere Handbook. The document outlines the underlying principles and the importance of community engagement, as well as a detailed review of the relevant technical guidance in the WASH and Health chapter

WHO consolidated guideline on self-care interventions for health: sexual and reproductive health and rights

WORLD HEALTH ORGANISATION (WHO)
2019

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SELF-CARE is the ability of individuals, families and communities to promote health, prevent disease, maintain health, and to cope with illness and disability with or without the support of a health-care provider. 

The purpose of this guidance is to develop a peoplecentred, evidence-based normative guideline that will support individuals, communities and countries with quality health services and self-care interventions, based on PHC (Primary Health Care) strategies, comprehensive essential service packages and people-centredness. The specific objectives of this guideline are to provide:

• evidence-based recommendations on key public health self-care interventions, including for advancing sexual and reproductive health and rights (SRHR), with a focus on vulnerable populations and settings with limited capacity and resources in the health system

• good practice statements on key programmatic, operational and service-delivery issues that need to be addressed to promote and increase safe and equitable access, uptake and use of self-care interventions, including for advancing SRHR.

Seeing the invisible: Sexuality-related knowledge, attitudes and behavior of children and youth with disabilities in China

SHANGHAI INSITITUTE OF PLANNED PARENTHOOD RESEARCH (SIPPR)
UNESCO
HUMANITY & INCLUSION (HI)
2019

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Young people with disabilities have the same right to Sexual and Reproductive Health (SRH) as their peers without disabilities, but their needs and rights are often overlooked. This study examines the SRH status of young people with disabilities in China. In particular, the study explored the sexuality-related knowledge, attitudes and behaviour of young people with disabilities as well as their access to sexuality-related information, education and services. The findings of the study are intended to provide evidence to support decision-making by government agencies, educators, development workers and other relevant stakeholders regarding developing and implementing disability-inclusive SRH and sexuality education policies and programmes for young people in China.

The study, using quantitative and qualitative methods, was conducted in 2015 among unmarried young persons aged 12 to 24 living with visual, hearing, physical and intellectual disabilities, in both urban and rural areas. The analysis was based on data collected through 707 completed valid questionnaires, 20 group interviews and 35 individual interviews with young people with disabilities, and individual interviews with 60 parents and teachers, along with one case study.

Emergency planning (for carers)

ENABLE SCOTLAND
January 2017

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Emergency planning is relevant to all carers, irrespective of the age of the carer, the age of the person they care for or the health needs or disability the cared-for person has.

The emergency planning toolkit will helps a carer create an emergency plan. Answering ‘Who, What Why, Where and When’, enables planning for any unforeseen circumstances.

Working through the toolkit, requires a carer to consider all eventualities and possible solutions. Relevant family, friends and professionals should be involved in this process.

Once a carer has worked through the toolkit they should have enough information to complete the emergency plan

10th anniversary of the adoption of Convention on the Rights of Persons with Disabilities (CRPD) - UNDESA

UNDESA
December 2016

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This page was set-up on UNDESA webpage to commemorate the 10th anniversary of the Convention. It adresses the following issues:

- Background
- Events to commemorate CRPD+10 around the world
- Highlights of the 10 years since the adoption of the CRPD
- Main CRPD page
- CRPD 10 Anniversary Note (UN CRPD Secretariat, DSPD/DESA)
- Celebrating 10 Years of the Convention on the Rights of Persons with Disabilities (OHCHR)
- Call for submissions on inclusive development for persons with disabilities and the realization of their human rights

Report of the Special Rapporteur on the rights of persons with disabilities (theme: access to rights-based support for persons with disabilities)

DEVANDAS, Catalina
December 2016

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In her report, the Special Rapporteur provides an overview of the activities undertaken in 2016, as well as a thematic study on access to support by persons with disabilities. The study includes guidance for States on how to ensure the provision of different forms of rights-based support and assistance for persons with disabilities, in consultation with them. In preparing the study, the Special Rapporteur convened a regional expert consultation in Addis Ababa in September 2016 and analysed the responses to a questionnaire sent to Member States, national human rights institutions, agencies of the United Nations system, civil society organisations and persons with disabilities and their representative organisations. As at 5 December 2016, she had received 114 responses. 

Report of the Special Rapporteur on the rights of persons with disabilities (theme: the right of persons with disabilities to participate in decision-making)

DEVANDAS-AGUILAR, Catalina
January 2016

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In the preparation of this study, a questionnaire was sent to Member States, national human rights institutions, agencies of the United Nations system, civil society organizations, and persons with disabilities and their representative organisations. As at 22 December 2015, 144 responses were received. The report covers the participation of persons with disabilities in political and public life (right to vote and be elected, right to access public service and right to participate in the conduct of public affairs). The report also covers participation of persons with disabilities in public decision making (importance of effective and meaningful participation, ensuring the participation of representative organisations of persons with disabilities, promoting consultation and the active involvement of persons with disabilities, and key areas for participation). Recommendations are presented.

Thematic study on the right of persons with disabilities to live independently and be included in the community : Report of the Office of the United Nations High Commissioner for Human Rights

OFFICE OF THE UNITED NATIONS HIGH COMMISSIONER FOR HUMAN RIGHTS (UN OHCHR)
December 2014

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"The present study, developed under Human Rights Council resolution 25/20, is focused on the right to live independently and be included in the community, and the enjoyment, protection and promotion of that right as a substantive means for the realization of other rights, as a condition for avoiding institutionalization and segregation in health and social settings, and as a prerequisite to provide for the full development of the capabilities of persons with disabilities and their meaningful participation in, and contribution to, society"

Human development report 2013|The rise of the south : human progress in a diverse world

MALIK, Khalid
et al
2013

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This report "examines the profound shift in global dynamics driven by the fast-rising new powers of the developing world and its long-term implications for human development....The report identifies four specific areas of focus for sustaining development momentum: enhancing equity, including on the gender dimension; enabling greater voice and participation of citizens, including youth; confronting environmental pressures; and managing demographic change

Community-based rehabilitation : CBR Guidelines|Social component

WORLD HEALTH ORGANIZATION (WHO)
et al
2010

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This component of the CBR Guidelines focuses on social component. It describes "the role of the CBR is to work with all relevant stakeholders to ensure the full participation of people with disabilities in the social life of their families and communities. CBR programmes can provide support and assistance to people with disabilities to enable them to access social opportunities, and can challenge stigma and discrimination to bring about positive social change." The guideline outlines key concepts, and then presents the core concepts, examples and areas of suggested activities in each of the following five elements: Personal Assistance; Relationships, marriage and family; Culture and arts; Recreation, leisure and sport; Justice. This guideline is useful for anyone interested in social component of CBR

Community-based rehabilitation : CBR guidelines|Supplementary booklet

WORLD HEALTH ORGANIZATION (WHO)
et al
2010

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"These community-based rehabilitation (CBR) guidelines are applicable to all disability groups. However, the need was identified for a supplementary booklet to highlight a number of issues which CBR programmes have historically overlooked, i.e. mental health problems, HIV/AIDS, leprosy and humanitarian crises...CBR is a strategy for community-based inclusive development which takes into account the principles of the Convention on the Rights of Persons with Disabilities, e.g. non-discrimination and the need to include all people with disabilities in development initiatives. Therefore, it is important that CBR programmes take steps to address issues which they have traditionally excluded, such as mental health problems, HIV/AIDS, leprosy and humanitarian crises. While these four issues have been chosen for inclusion in this booklet, CBR programmes are encouraged to think broadly about other issues (e.g. CBR and children, CBR and ageing) that are particularly relevant in their communities and which may be included in future editions of the guidelines"

CBR : a strategy for rehabilitation, equalization of opportunities, poverty reduction and social inclusion of people with disabilities - joint position paper 2004

WORLD HEALTH ORGANIZATION (WHO)
International Labour Organization (ILO)
United Nations Educational, Scientific and Cultural Organization (UNESCO)
et al
2004

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In 1994 the ILO, WHO and UNESCO published the first version of this joint position paper. Since then progress has been made in several fields. Nevertheless many disabled people are still not reached or included in the fields of rehabilitation, employment or education - particularly disabled women, people with mental health problems or HIV/AIDS and poor disabled people.
This paper underlines that community-based rehabilitation is a strategy promoting multi-sectoral collaboration to reach different community groups. CBR has to be based on the principles of equal opportunities, participation and human rights.

Mental health in emergencies : mental and social aspects of health of populations exposed to extreme stressors

WORLD HEALTH ORGANIZATION (WHO). Department of Mental Health and Substance Abuse
2003

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A large number of people are exposed to extreme stressors that are a risk factor for mental health and social problems. This report describes principles and strategies that can be applied in resource poor settings where there are people who have been exposed to extreme stressors, such as refugees, internally displaced persons, disaster survivors and populations exposed to terrorism, genocide or war

Communities facing the HIV/AIDS challenge : from crisis to opportunity, from community vulnerability to community resilience

HSU, Lee-Nah
DU GUERNAY, Jacques
MARCO, Marissa
July 2002

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Rural households are managing as best they can in a rapidly changing and often threatening world which makes them vulnerable to the risk of HIV infection and ill equipped to cope with the effects of AIDS. Their chances of managing can be improved if they function in a supportive environment. However, in many cases this supportive environment does not exist and communities have to build their own resilience if they are to prove effective allies for rural households. Despite the difficulties of such a task, as shown in this paper, it is feasible. Certain conditions have to be met and pitfalls avoided in order to set up processes leading to sustainability and benefit all households as stakeholders. Such awareness is important for the communities themselves, but also for those providing outside assistance in order to trigger the building of community resilience and sustainability for all households, including in HIV/AIDS prevention and mitigation. This paper also reviews from a South East Asian perspective some of the lessons to be drawn from the global and African experiences and highlights some of the specificities and challenges of the region

Positive development : setting up self-help groups and advocating for change. A manual for people living with HIV

MAASDORP, Aubrey
LONG, Siân
BEHRMAN, Nina [ed]
1998

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This manual has been written for people working in groups. It aims to offer suggestions and ideas to people and organisations who are beginning new groups, or planning to do so and who have limited experience of running a group. It will also be useful for trainers and facilitators who have been running groups for some time or who are helping others set up their own groups. It has developed from experiences of people living with HIV who have been working together in groups around the world. It is practical in focus and written in accessible language, with checklists, examples and tips throughout. Part 1 looks at why we set up groups and the benefits of group working. Part 2 looks at the practicalities of setting up groups, organising meetings and keeping the group going. Part 3 looks at some skills and activities for developing and maintaining positive group dynamics. Part 4 explains how to develop a project step-by-step, from planning to evaluation. Part 5 offers advice on finding sources of funding, Part 6 deals with disclosure issues, and Part 7 looks at advocacy and campaigning at all levels

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