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Perceived needs related to social participation of people with leprosy-related disabilities and other people with disabilities in Cambodia : a qualitative study

HEEREN, Marie-Julie J
KY, Lai
VAN BRAKEL, Wim H
January 2014

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The objective of this study was to describe the similarities and differences in perceived needs related to social participation of persons with leprosy-related disabilities and other persons with disabilities in Cambodia, and to suggest key interventions to promote participation in the community. A cross-sectional study was completed by conducting a pilot-tested, face-to-face semi-structured interviews, with open and closed questions, and focus group discussions to investigate the perceived needs related to social and economic participation in the community. The study found that both groups of people with disabilities have similar needs to improve participation in social and economic life, and the authors suggest that it is best to form multi-disability self-help groups to empower all the affected people and help fight poverty

Disability, CBR & Inclusive Development Journal, Vol 25, No 3

Guidelines to reduce stigma : guide 4|Counseling to reduce stigma

AUGUSTINE, Valsa
et al
2011

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"This guide is part of a series of four Guides to reduce stigma. The guides are for all managers, health and social workers and service staff who have to deal with stigma in leprosy and other health conditions. These Guides provide evidence-based and best-practice information from different disciplines, and recommendations for field workers on how to reduce stigma against and among affected persons and in the community...The fourth guide explains the use of counselling at a basic level in dealing with stigma. It provides an explanation on different techniques and approaches for counselling persons affected by stigma"

Participation scale

VAN BRAKEL, W. H
April 2010

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This resource provides a manual and related scale to measure (social) participation for use in rehabilitation, stigma reduction and social integration programmes
Note: Contact the author or ILEP for further information

Cost-effectiveness of interventions to prevent disability in leprosy : a systematic review

VAN VEEN, N. H
et al
2009

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"Prevention of disability (POD) is one of the key objectives of leprosy programmes. Recently, coverage and access have been identified as the priority issues in POD. Assessing the cost-effectiveness of POD interventions is highly relevant to understanding the barriers and opportunities to achieving universal coverage and access with limited resources. The purpose of this study was to systematically review the quality of existing cost-effectiveness evidence and discuss implications for future research and strategies to prevent disability in leprosy and other disabling conditions"
PLoS One, Vol 4, Issue 2

The quality of life, mental health, and perceived stigma of leprosy patients in Bangladesh

TSUTSUMI, Atsuro
et al
March 2007

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"The present study aims to determine the quality of life (QOL) and general mental health of leprosy patients compared with the general population, and evaluate contributing factors such as socio-economic characteristics and perceived stigma. A total of 189 patients (160 outpatients, 29 inpatients) and 200 controls without leprosy or other chronic diseases were selected from Dhaka district, Bangladesh, using stratified random sampling"
Social Science Medicine Journal, Vol 64, Issue 12

Impact of socio-economic rehabilitation on leprosy stigma in Northern Nigeria : findings of a retrospective study

EBENSO, Bassey
et al
2007

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"This study explored the perceptions of people affected by leprosy regarding impact of socio-economic rehabilitation (SER) on stigma-reduction. The study combined a quantitative questionnaire (the P-scale) with semi-structured interviews of 20 individual SER participants, five focus group discussions and 10 key informant interviews…The authors speculate that through the pathway of improvements in economic and living conditions, SER is beginning to influence the process of social interaction, resulting in postive attitudinal change towards SER participants. The subjective opinions of interviewees suggest that improved self-esteem, positive family and community support for SER participants and increasing participation in community activities are indications of stigma-reduction"
Asia Pacific Disability Rehabilitation Journal, Vol 18, No 2

ILEP learning guide four : how to prevent disability in leprosy

CROSS, Hugh
MAHATO, Margaret
2006

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"This book is for all health workers who may have to help people who have nerve damage to their eyes, hands and feet. It will help them to encourage patients to develop a lifetime habit of caring for nerve-damaged parts. The content of this book complements the recommendations in the Operational Guidelines of the World Health Organization"
Note: This resource is available to download in three parts

Self care : a catalyst for community development

CROSS, Hugh
CHOUDHURY, Ramesh
2005

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[Authors' abstract]: This paper presents salient findings from an evaluation of a programme designed to address the issue of leprosy related stigma in southern Nepal. The programme under the acronym STEP (Stigma Elimination Programme) adopted an approach that was dependent on the empowerment of people affected by leprosy. Empowerment was facilitated, primarily through selfcare group association. The premise was that, as people became increasingly self confident, as an effect of self-care, their focus could be shifted from the pursuit of personal goals to activities that could be undertaken for the benefit of their communities. As the self-care groups evolved, all 10 groups adopted a community development agenda. This paper outlines the projects that the groups planned and initiated and describes the method used to validate their efforts. It also gives results of surveys conducted to assess the impact of the programme on stigma, activity limitation and impairment

Surgical reconstruction and rehabilitation in leprosy and other neuropathies

SCHWARZ, R. J.
BRANDSMA, J. W.
Eds
2004

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"This book is designed for those with some training in reconstructive surgery for peripheral neuropathies, but who have not been exposed to all of the procedures presently available...In this field it is absolutely essential that the surgeon works closely with a therapist able to educate the patient following reconstructive surgical procedures. As such the book is also designed for therapists, with chapters covering the principles and techniques of pre- and postoperative therapy for neuropathic limbs. The book also contains sections on orthopaedic appliances and prosthesis, but only in sufficient detail to allow the surgeon to have a reasonable understanding of how to choose an appropriate orthosis/ prosthesis and what can be expected of the same"

An intensive self care training programme reduces admissions for the treatment of plantar ulcers

CROSS, Hugh
NEWCOMBE, Lesley
September 2001

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"This paper describes, in detail, an intensive 14 day Self Care Training Programme that is conducted at Lalgadh Leprosy Services Centre in Nepal. An evaluation of the programme was undertaken in which hospital admission for infected plantar ulceration was the outcome measure. This paper presents an overview of the issues related to impairment, a description of the Self Care Training Programme, an analysis of the evaluation results and a discussion of the findings"
Leprosy Review, Vol 72, Issue 3

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