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Guardianship for young adults with disabilities as a violation of the purpose of the individuals with disabilities education improvement act

KANTER, Arlene S
2015

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“The Individuals with Disabilities Education Improvement Act (IDEIA) was originally enacted in 1975 as the Education for All Handicapped Children’s Act. The purpose of the IDEIA is to “provide a free appropriate public education” to children with disabilities and to prepare them for further education, employment, and full participation in society. Under the IDEIA, all students are required to have a transition plan to facilitate their movement from high school to life after school. Although the transition planning process does not require parents to become guardians for their children with disabilities, many parents throughout the United States believe that becoming their adult child’s guardian is the next step in the transition process as their child reaches the age of majority. As a legal procedure, guardianship cedes decision-making authority from the young adult child to the parent just at the time in the young person’s life when he or she should be supported to exercise decision-making authority so as to live the most independent life possible. Further, schools, parents, and courts often fail to consider less restrictive alternatives to guardianship, such as supported decision-making, for those young adults who may need help in decision-making. Supported decision making has gained international attention recently due to the adoption of the UN Convention on the Rights of People with Disabilities, which calls for support for people with disabilities rather than substituted decision-making, which is included in most guardianship laws. This article presents the view that guardianship as part of the transition planning process for young adults with intellectual and developmental disabilities undermines the language and purpose of the IDEIA.”

 

Journal of International Aging Law & Policy, Vol. 8

Bridging aging and developmental disabilities service networks : challenges and best practices

FACTOR, Alan
HELLER, Tamar
JANICKI, Matthew
March 2012

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This reports aims to provide the "best practices guide to encourage the ‘bridging’ of the aging and developmental disabilities service networks that are both in need of including managed long-term, integrated care for people who are dually eligible for Medicaid and Medicare, and rebalancing initiatives that promote community living"

Web accessibility policy making : an international perspective

G3ICT
THE CENTRE FOR INTERNET AND SOCIETY
January 2012

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This report reviews of a number of countries policies on web accessibility to share good practice. The internet and ICT have become increasingly accessible with the introduction of electronic screen readers, close-captions video viewers and personally tailored assistive technology readers. Despite this, the authors maintain that there are still 1 billion disabled people who could have better access to the internet and ICT and there is great potential for improvement

Sexual violence victimization against men with disabilities

MITRA, Monika
MOURADIAN, Vera E
DIAMOND, Marci
October 2011

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This article presents information supporting that men with disabilities are at a heightened risk for lifetime and current sexual violence. The article documents the prevalence of lifetime and past-year sexual violence victimization among a representative sample of men with disabilities in Massachusetts and compares its prevalence among men with disabilities to that of men without disabilities and women with and without disabilities
American Journal of Preventive Medicine, Vol 41, No 5

Forging new collaborations : a guide for rape crisis, domestic violence, and disability organizations

SMITH, Nancy
HARRELL, Sandra
April 2011

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"This report is based upon Vera’s work with and observations of those collaborations from 2006 through 2010, as well as in-depth interviews with representatives from 10 of the groups and an extensive literature review on effective collaboration. It is designed for policy makers, practitioners, and first-responders interested in using collaboration to address violence against people with disabilities. It offers concrete recommendations for how to build effective collaboration between victim services and disability organizations, practical strategies for overcoming common obstacles, and steps to begin the collaboration process"
Note: Available in both pdf and word format

Reproductive health justice for women with disabilities

ALVARES, Lisa
et al
April 2011

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"This paper highlights the added discrimination that women with disabilities often face in the context of their disparate access to health care, especially in the areas of reproductive health services and sexual health education, and offers recommendations for a twenty-first century response to the vast health care gaps that impact this population"
Barbara Faye Waxman Fiduccia Papers on Women and Girls with Disabilities

Gender and disability : a first look at rehabilitation syllabi and a call to action

LEWIS, Allen N
BRUBAKER, Sarah Jane
ARMSTRONG, Amy J
2009

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"This study provides an overview of recent scholarship in the area of gender and disability, as well as findings from an evaluation of syllabi from five core courses in graduate rehabilitation education programs. Findings from this exploratory study revealed a need for more attention toward integration of the topic of gender and disability into rehabilitation education courses. Study results showed that in only one out of three courses where there would be a reasonable expectation to see such topics was the content actually addressed. Specific recommendations for enhancing attention to gender issues within rehabilitation education courses are offered"
Review of Disability Studies: An International Journal, Volume 5, Issue 2

Inclusive information and communication technologies for people with disabilities

SIMPSON, Jennifer
2009

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"Information and Communications Technology (ICT) has the potential both to enhance access for people with disabilities and to contribute to creating barriers. What we now call the digital divide actually began long before the introduction of computers - barriers have existed and still exist today with telephones, television, the Internet and other information technology. It is important to remember that people with disabilities have many different accessibility needs and that there are different ways to make technology accessible and that new accessibility needs emerge as technology changes. This paper looks at the state of accessibility policy in the U.S. in several technology infrastructures that may provide some lessons and directions for increasing inclusive information and communication technologies worldwide"
Disability Studies Quarterly, Vol 29, No1

Listen to our stories : words, pictures, and songs by young people with disabilities

HILLYER, Linda
2008

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Listen to Our Stories highlights poetry, essays, interviews, songs, journal writing, letters, and pictures that tell the personal stories of young people with disabilities. The contributors are young girls and boys aged 5 to 21, from varied backgrounds, different talents and a range of disabilities. This website may be useful to anyone interested in personal life stories and experiences, written or told by children and young adults with disabilities

Disability, gender and intimate partner violence : relationships from the behavioral risk factor surveillance system

SMITH, Diane L
December 2007

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"Research on women with disabilities has found that the most common perpetrators of violence were current or former intimate partners. This article examines intimate partner sexual and physical abuse experienced by women with disabilities compared to women without disabilities and men with and without disabilities through chi square analysis and regression analysis using data from the 2005 Behavioral Risk Factor Surveillance System (BRFSS). Results show that women with disabilities experienced almost twice the rate of all forms of abuse compared to the other populations. Variables increasing the likelihood of abuse include being female, disabled, not employed, uncoupled and younger age. Implications for future research, screening and intervention for rehabilitation professionals are discussed"
Sexuality and Disability, Vol. 26, Issue 1

Partners in policymaking coordinator's handbook supplement : integrating online learning

MINNESOTA GOVERNER'S COUNCIL ON DEVELOPMENTAL DISABILITIES
July 2007

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This guide aims to facilitate the use of online courses and complement an online curriculum for individuals using the tools in classrooms or face-to-face group sessions. This comprehensive resource helps users of e-learning materials retain more information, explore particular topics in more depth, and demonstrate a higher level of competency. This resource would be useful for anyone with an interest in teaching aids, and disability and development

Transition and post-school outcomes for youth with disabilities : closing the gaps to post-secondary ed and employment

NATIONAL COUNCIL ON DISABILITY
SOCIAL SECURITY ADMINISTRATION
November 2000

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"This report presents an analysis of research on the status of transition, post-secondary education, and employment outcomes for primarily 14 to 22 year old youth and young adults with disabilities over the past 25 years. Next it identifies what has worked, and what should work in light of unmet needs and unserved populations. Finally, the report presents recommendations for national, state, and local community action"

First steps : stories on inclusion in early childhood education

UNITED NATIONS EDUCATIONAL, SCIENTIFIC AND CULTURAL ORGANIZATION (UNESCO)
September 1997

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Early childhood intervention is a strategy that can promote inclusive education leading to a deeper understanding by the general public on disability. Targeted at early development programmes and interventions to include disabled children

Having a daughter with a disability : is it different for girls?

FROSCHL, Merle
et al
October 1990

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This article provides advice to parents on how to support their daughters with disabilities to become independent and successful, and explores the difficulties that parents may encounter in finding the right balance between too much and too little protection of their daughters with disabilities. The authors discuss the differences in education for boys and girls, and the gender role expectations by society that young women with disabilities may encounter. Although the article was written for mainly a North American audience, it highlights many issues that may be of interest to anyone working with girls and young women with disabilities or with an interest in gender and disability issues
NICHCY News Digest, No. 14

National Rehabilitation Information Centre (NARIC)

NATIONAL REHABILITATION INFORMATION CENTRE (NARIC)

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Hosts three databases that can be searched by subject. These are: the NARIC Knowledgebase containing 2800 organisations, agencies, publications and internet resources; REHABDATA an extensive database of disability and rehabilitation literature abstracts spanning more than 50 years of research; and the NIDRR program directory listing 400 disability and rehabilitation research projects across the US. Visitors can search each database by author, keywords, publisher or year of publication, or can browse through pre-selected material on key topics. Although of the literature referenced originates in the USA, the topic 'International Rehabilitation' is a good starting point to identify journal articles and reports relevant to the developing country context. Full text documents are not available, though NARIC does offer a document retrieval service for certain journal articles referenced in REHABDATA. The cost for this service is US$0.05 per page for copying plus shipping and handling

Freewheel mobility

FREEWHEEL MOBILITY

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Freewheel mobility provides vehicles and specialized driving equipment for persons with disabilities. The website provides information to assist consumers in the process of selecting dealers to meet their transportation needs. This resource is useful to people interested in vehicles and specialized driving equipment for persons with disabilities

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