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How Koalaa is aiming to create sustainable access to prosthetics globally

MARSHALL, Niall (Koalaa)
September 2023

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A short talk given in the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

 

The start up, development and potential progress of a technology company manufacturing upper limb prosthetics is outlined. Pilot projects were set up and that in Sierra Leone is briefly described. It began with developing a network, listening to users comments, redeveloping the product and representing it to users. The challenges of the next step into larger scale manufactuing and supply, following positive outcomes from pilot projects round the world, are outlined. 

Strengthening government systems to empower children via early access to AT

SEGHERS, Fre (Clinton Health Access Initiative (CHAI))
September 2023

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A short talk in the Disability Innovation Summit: Inclusive Interactions conference held by GDI hub on 13 Sep 2023

Work required to shape markets for assistive technology for young children is explored including assessing numbers and types of disability, regulations, and community leaders involvement

The impact of corruption on the rights of persons with disabilities

ATLAS ALLIANCE
September 2023

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Corruption and discrimination go hand in hand. In 2021, Transparency International and the Equal Rights Trust published a report highlighting how corruption and discrimination reinforce each other, leaving marginalized groups with little room to access public services, exercise their human rights, and live their lives with dignity. In this seminar organized by Norad, CMI/U4 and the Atlas Alliance collectively, researchers and DPO representatives discuss research findings and the situation as lived experience for persons with disabilities.

Global Report on Children with Developmental Disabilities: from the margins to the mainstream

WORLD HEALTH ORGANISATION (WHO)
UNITED NATIONS CHILDREN'S FUND (UNICEF)
September 2023

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This WHO-UNICEF Global Report is a call for action to intentionally include children and young people with developmental disabilities in renewed global and country level efforts to enable transformations towards the SDGs.  It proposes priority actions to accelerate individual-, family-, community-, and society-level changes to achieve inclusion and health equity. The report makes the case for greater investment and accountability to build inclusive and responsive multisectoral care systems for children and young people with developmental disabilities. Using findings from research and practice and guided by the tenets of international human rights conventions, the report provides key insights into the state of knowledge, policy, programming, and public monitoring in respect of developmental disabilities.

The global birth prevalence of clubfoot: a systematic review and meta-analysis

SMYTHE, Tracey
ROTENBURG, Sarah
LAVY, Chris
August 2023

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Estimates of the birth prevalence of clubfoot in low and middle income settings range from 0.5 to 2 per 1000 births. However, there is currently no estimate of global birth prevalence of clubfoot.

A systematic review of studies was carried out reporting the birth prevalence of clubfoot across all countries and regions worldwide in the last 10 years. Africa Wide Information, EMBASE, CINAHL, Global Health, LILACS and Medline databases were searched for relevant studies from January 1st 2012 to February 9th 2023. Pooled prevalence estimates were calculated using the inverse variance method, and a random effects model was applied to account for heterogeneity between studies.

 

eClinicalMedicine,  Vol 63 September, 2023

DOI:https://doi.org/10.1016/j.eclinm.2023.102178

Mainstreaming Disability Inclusive Disaster Risk Reduction (DIDDR) in Community Based Inclusive Development: A Situation Analysis

GRECH, Shaun
July 2023

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Two publications, developed with the University of Cape Town, aim to provide development practitioners and organisations with the tools they need to ensure that a disability inclusive approach to disaster risk reduction can be integrated into all community development programmes.

A situation analysis reviews the situation and outlines the extent to which DIDRR is infused within CBID. The study points out the barriers in place and highlights the opportunities available to facilitate the process of mainstreaming DIDRR, which means building DIDRR into the core of community development programmes as opposed to these disciplines operating in separate spheres. This mainstreaming will not only ensure greater preparedness for disasters, but also protection of the gains made in community development programmes.

A major outcome of this study is a new set of guidelines for practice on the mainstreaming of DIDRR in community development: Mainstreaming DIDRR in CBID – Guidance for Planning and Practice

Mainstreaming Disability Inclusive Disaster Risk Reduction (DIDRR) in Community Development: Guidance for Planning and Practice.

GRECH, Shaun
July 2023

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Two new publications, developed with the University of Cape Town, aim to provide development practitioners and organisations with the tools they need to ensure that a disability inclusive approach to disaster risk reduction can be integrated into all community development programmes. A situation analysis reviews the situation and outlines the extent to which DIDRR is infused within CBID. 

A major outcome of this study is a new set of guidelines for practice on the mainstreaming of DIDRR in community development: Mainstreaming DIDRR in CBID – Guidance for Planning and Practice. In twenty action points, the guide provides pointers for practitioners on how community-based initiatives can become more informed about disasters and start mainstreaming DIDRR. It aims to stimulate reflection at multiple stages, from project planning to implementation and monitoring, to ensure DIDRR becomes an integral part of community-based programmes, in an effective, sensitive and responsive way.

The guidelines are available to download either as one document or as 20 separate action points.

 

 

 

Feeding and Disability Resource Bank

USAID Advancing Nutrition
November 2022

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The Feeding and Disability Resource Bank, compiled by USAID Advancing Nutrition, is a repository of materials that help nutrition and disability program managers, government leaders, and donor agency staff design and implement effective nutrition programs for children with disabilities. According to the United Nations Convention on the Rights of Persons with Disabilities (CRPD), children with disabilities can be defined as those who have, “long-term physical, mental, intellectual, or sensory impairments, and who may experience barriers that may hinder their full and effective participation in society on an equal basis with others.”

Training in Assistive Products (TAP)

WORLD HEALTH ORGANISATION (WHO)
November 2022

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WHO’s online Training in Assistive Products (TAP) is designed to prepare primary health and other personnel to fulfil an assistive technology role. This may include identifying people who may benefit from assistive technology; providing simple assistive products such as magnifiers and dressing aids; or referral for more complex products and other services. Appropriate to a broad range of contexts, TAP is targeted at primary health care and community workforce, as well as those providing services to people who need assistive products within other sectors. 

TAP is a practical tool to support countries to respond to the recommendations in the Global Report on Assistive Technology.

TAP includes a range of assistive products to support cognition, communication, vision, hearing, self-care, and mobility from WHO’s Priority Assistive Products List. TAP has a modular structure; personnel may select the modules that match their role and the needs of the local population. For each assistive product, an introductory and product-specific module will together cover key learning content to support the acquisition of skills to safely and effectively provide that product, through a four-step process: select, fit, use and follow up.

A Massive Open Online Course (MOOC) of the first TAP module, Introduction to Assistive Products, will run for a two-week period until 10 - 24 November 2022

 

Global Report on Assistive Technology

WORLD HEALTH ORGANISATION (WHO)
UNITED NATIONS CHILDREN'S FUND (UNICEF)
May 2022

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The WHO-UNICEF Global Report on Assistive Technology (AT) reveals that more than 2.5 billion people need one or more assistive products, such as wheelchairs, hearing aids, or apps that support communication and cognition. Yet nearly one billion of them are denied access, particularly in low- and middle-income countries, where access can be as low as 3% of the need for these life-changing products.

The Global Report provides the best available evidence about the barriers currently preventing access, how access can be improved, and how enabling environments and AT can enable persons with disabilities to enjoy their human rights while generating a tremendous return on investment for governments. The report also makes 10 key recommendations for concrete actions that will improve access to AT, for everyone, that needs them. 

Access to assistive technology for children with disabilities is often the first step for childhood development, access to education, participation in sports and civic life, and getting ready for employment like their peers. Children with disabilities have additional challenges due to their growth, which requires frequent adjustments or replacements of their assistive products.

Global disability financing in the context of Covid-19

Development Initiatives
March 2022

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The main objective of this analysis is to track global financing towards disability in near real time, which is an extension of our work on real-time data on aid before and during Covid-19 and financial tracking on disability investments. The current analysis assesses changes in global disability aid financing in the context of Covid-19 between 2019 and the third quarter (Q3) of 2021. The review uses data from the International Aid Transparency Initiative (IATI) and considers full calendar years for 2019 and 2020 and three quarters in the year 2021.

Sexual and Reproductive Health and Rights for All: Disability Inclusion from Theory to Practice Women’s Integrated Sexual Health 2 Action Project (WISH2ACTION)

BERGER, Gisela
ARESU, Alessandra
NEWNHAM, Jane
March 2022

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The overall objective of this Guideline is to support project and programme developers, Sexual and Reproductive Health (SRH) public and private service providers, and advocates to design, implement, monitor, and evaluate inclusive SRH programmes. Realising SRHR for all requires a comprehensive, multi-sectoral, and coordinated approach, involving a range of actors and actions. The Guideline is designed to be a resource on the human rights standards and key principles required to achieve disability inclusion, with more specific guidance available for actors working at different levels of SRH service programming and service delivery. This Guideline is intended primarily to support SRHR actors and practitioners who are active at the local level. The chapters provide relevant background information and refer to selected national and international data. It contains practical recommendations to support implementation and advocacy activities, accompanied by a list of the most relevant resources available on the subject

Global Disability Summit 2022 - Oslo, Norway

GLOBAL DISABILITY SUMMIT
February 2022

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The International Disability Alliance (IDA), the Government of Norway, and the Government of Ghana hosted the second Global Disability Summit on 16 and 17 February 2022 (GDS22). Due to the COVID-19 pandemic, and to ensure inclusive participation at the Summit, the event was held on a digital platform.

The first Global Disability Summit (GDS18), held in 2018 in London, generated an unprecedented level of focus on and commitment to disability-inclusive development. 171 national governments, multilateral agencies, donors, foundations, private sector, and civil society organisations made 968 individual commitments. More than 300 governments and organisations signed the GDS18 Charter for Change, encouraging the focused implementation of the UN Convention on the Rights of Persons with Disabilities (CRPD).

The Global Disability Summit 2022 (GDS22) in was built on the results achieved at the first Summit, to further accelerate much-needed progress towards the fulfillment of the rights of persons with disabilities worldwide.

The Summit led to concrete commitments that brought genuine change for persons with disabilities. GDS22 gathered a total of 1413 commitments on disability inclusion.

People with disabilities want equality through access and participation. To obtain lasting change at the country level, we seek collaboration with States, multilateral organisations, and civil society. We seek action and we seek the voices of persons with disabilities themselves.

Global Disability Youth Summit and a Civil Society Forum. was also held under the auspices of the GDS22.

 

The Chair's summary, recordings of GDS22, commitments made and the program are available.

Global Disability Youth Summit 2022

GLOBAL DISABILITY SUMMIT
February 2022

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IDA, UNICEF, and the Atlas Alliance, represented by Youth Mental Health Norway, co-hosted a Youth Summit on 14 February 2022 to ensure the inclusion of youth in the Global Disability Summit. 

All planning and decision making around the Summit were led by youth with disabilities, including through the design of a novel format to ensure the participation of youth from around the globe, from local to global.

 

The Summit showcased the innovations of organizations led by youth with disabilities. Youth with disabilities at the local, regional and global levels have created groups and activities, both online and offline, fostering a sense of community, even during the COVID-19 period. Through the Summit, the youth focused on topics that they have identified to be particularly important in this regard, such as participation of youth in OPDs and youth mainstream organizations, inclusive education, deinstitutionalization and community inclusion, access to employment, climate change, new technologies, humanitarian action, access to inclusive healthcare including sexual reproductive health and mental health, among others.

 

A working group consisting of co-hosts and selected partners was responsible for developing a Youth Charter for Change - summing up and challenging the commitments

 

Intersectionality Resource Guide and Toolkit. An intersectional approach to leave no one behind

UN WOMEN
UN PRPD
2022

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The Resource Guide and Toolkit has been developed to help both organizations and individual practitioners and experts to address intersectionality in policies and in programmes. It may be used by individuals or teams to assess their own knowledge, attitudes, and practice, at a programme level as a supplement to existing design, adaptation, and assessment processes or at policy level to better understand and address the different and intersecting effects of policy on marginalised persons.

This Resource Guide and Toolkit emerged from an identified need to use an intersectional approach that included people with disabilities in all their diversity in the development, implementation and evaluation of policies, programmes, advocacy and inter-governmental processes. However, the authors and collaborators realised that an effective intersectionality resource needed to go beyond a focus on specific intersecting identities, such as disability and gender, as this would still exclude those who are most marginalised

Study on the evolution of the Children and Armed Conflict mandate 1996-2021

GAMBA, Virginia
January 2022

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This is the first study that comprehensively analyses the challenges, opportunities, and successes in delivering the United Nations children and armed conflict mandate since its inception in 1996. The study presents a short evolution of a unique United Nations instrument that was initially mandated by the General Assembly and subsequently enhanced through 13 Security Council resolutions. Understanding the way in which the mandate grew and how it has been implemented over the years will hopefully assist Member States and the public at large to renew their commitment to the protection of children in armed conflict and the prevention of grave violations. This study explores three time periods in the delivery of the mandate. Moreover, the study explores, among other issues, the background on the establishment of the mandate, its evolution over the past 25 years and the reflections generated by this experience, including through an analysis of the trends of grave violations against children, the modalities in monitoring and reporting and in pursuing engagement with listed and non-listed parties, the efforts made in prevention and the importance of partnerships. When possible, the study also brings to life the experiences of child survivors and child protection experts on the ground, who, after all, are the backbone of the mandate. Lastly, the study attempts to highlight some collective recommendations in the form of a way forward to illuminate the next 25 years in the pursuit of better protection of children in situations of armed conflict worldwide

Estimating need and coverage for five priority assistive products: a systematic review of global population-based research

DANEMAYER, Jamie
BOGGS, Dorothy
DELGADO RAMOS, Vinicius
SMITH, Emma M
KULAR, Ariana
BHOT, William
RAMOS-BARAJAS, Felipe
POLACK, Sarah
HOLLOWAY, Catherine
January 2022

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Assistive technology (AT) includes assistive products (APs) and related services that can improve health and well-being, enable increased independence and foster participation for people with functional difficulties, including older adults and people with impairments or chronic health conditions. This paper uses the umbrella term ‘functional difficulty’ (FD) to refer to all of these groups. This systematic review was undertaken to identify studies presenting population-based estimates of need and coverage for five APs (hearing aids, limb prostheses, wheelchairs, glasses and personal digital assistants) grouped by four functional domains (hearing, mobility, vision and cognition).

 

BMJ Glob Health. 2022; 7(1): e007662

doi: 10.1136/bmjgh-2021-007662

ICT Directory for Inclusive Education

Humanity and Inclusion
et al
December 2021

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•The ICT Directory for Inclusive Education presents Information and Communication Technologies (ICTs) that have the potential to foster the education of children with disabilities in inclusive schools.
•The ICTs are presented according to the type of difficulties they can address. These difficulties, which are defined in the Washington Group questionnaire, can affect a student’s participation in the classroom:
-Visual impairment
-Hearing impairment
-Communication difficulties
-Difficulty remembering/concentrating/learning
-Difficulty moving upper limbs
 

Engagement with Organizations of Persons with Disabilities. Learning about meaningful engagement in public health emergencies, including COVID-19

UNITED NATIONS CHILDREN'S FUND (UNICEF)
December 2021

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This report was produced under a United Nations Partnership on the Rights of Persons with Disabilities (UNPRPD) project to support countries in designing and implementing disability-inclusive response and recovery planning for COVID-19. Throughout this project, UNICEF documented examples of good practice and learnings from partnerships with organizations of people with disabilities (OPDs) in public health emergencies, including COVID-19. The objectives of this initiative were to gain a better understanding of the factors that facilitate effective partnerships between humanitarian actors and local, regional, and national OPDs, and the challenges to be addressed.

This report presents the findings from a ‘deep dive’ undertaken by UNICEF East Asia and the Pacific Regional Office to consider the experiences in Cambodia, Indonesia, the Lao People’s Democratic Republic, Malaysia, Myanmar, the Philippines and the Pacific. The target audience for this report includes OPDs and humanitarian actors at global, regional, and country levels.

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