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A new way to measure child functioning

May 2017

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"In recognizing the need for a set of questions that would produce internationally comparable data on children, the Washington Group formed a subgroup in 2009 that is chaired by the National Statistical Office of Italy (ISTAT). UNICEF joined the subgroup in 2011.

The first main activity of the subgroup was the development of a short set of questions to reflect current thinking on child functioning for inclusion in censuses and surveys. The new module uses the ICF-CY as the conceptual framework and relies on a functional approach to measuring disability.

The Washington Group/UNICEF Module on Child Functioning, finalized in 2016, covers children between 2 and 17 years of age and assesses functional difficulties in different domains including hearing, vision, communication/comprehension, learning, mobility and emotions. To better reflect the degree of functional difficulty, each area is assessed against a rating scale. The purpose is to identify the subpopulation of children who are at greater risk than other children of the same age or who are experiencing limited participation in an unaccommodating environment. The set of questions is intended for use in national household surveys and censuses"

The module is being translated into multiple languages. Supporting documentation, including a concept note, tabulation plan, templates for reporting, guidelines for interviewers and training materials are also available.

Disability in the EU SDGs indicators: Ensuring that no one is left behind

March 2017

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The European Disability Forum (EDF) presents this position paper in response to the draft report of EUROSTAT on the European Union (EU) – Sustainable Development Goals (SDGs) indicators circulated on 21st March to civil society organisations. The 2030 Agenda adopted by the United Nations in New York has 11 references to persons with disabilities and the SDGs have 19 references, including the technical ask to disaggregate data by disability.

However, EUROSTAT has overlooked persons with disabilities in its latest indicators draft. Now there is an opportunity to ensure this gap is filled and for the EU to include disability related indicators in line with the 2030 Agenda and the UN Convention on the Rights of persons with disabilities (UN CRPD).

The European Commission (EC) has a legal obligation under the UN Convention on the Rights of Persons with Disabilities (UNCRPD) to promote, protect, and ensure the full enjoyment of human rights by persons with disabilities. The EC is also legally bound to ensure that persons with disabilities enjoy full equality under the law. EUROSTAT has also the technical capacity to measure the inclusion of persons with disabilities in its approach to the SDGs, and in this paper we outline why and how this could be done. Here are four guiding recommendations: 

  • The systematic disaggregation of data by disability
  • The insertion of the SDGs disability indicators in the EU SDGs indicators
  • The provision of leadership from the EU in the application of the obligations under the UN CRPD in the context of the SDGs 
  • The participation of persons with disabilities throughout the process

DFID data disaggregation action plan - Better data for better lives

January 2017

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This action plan sets out the steps that the UK Department for International Development (DFID) will take to promote, provide and make use of their own development and humanitarian programme data which can be disaggregated on the basis of sex, age, disability status and geography (in the short term). It also has the objective to build the culture within DFID on disaggregated data, and to work with others to change the international development system on disaggregated data. A review is scheduled for 2020. Working with partners, influencing, capacity building and management information, research, analysis and reporting are outlined. Trailblazer country programmes with Bangladesh, Nepal, Zimbabwe and Rwanda are reported.

National Mechanisms for Reporting and Follow-up : A practical guide to effective state engagement with international human rights mechanisms

United Nations High Commissioner for Refugees (UNHCR)
December 2016

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This Guide seeks to provide practical advice on the critical elements that States need to consider when establishing or strengthening their national mechanism for reporting and follow-up, and illustrates this advice with examples of State practice. It is based on the more comprehensive Study of State Engagement with International Human Rights Mechanisms (HR/PUB/16/1/Add.1), which contains more detailed information on these practices

Studies and research at Handicap International : promoting ethical data management

BRUS, Aude
September 2015

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This guide explains the importance of ethical data collection and management. Using Handicap International’s decades experience implementing projects and programmes globally, the report highlights the impact of data collection and the importance of implementing ethical approaches in a variety of situations where data is being collected. It aims to raise the awareness of Handicap International’s operational and technical staff and their partners to the ethical questions to be considered when managing data (preparation, collection, processing, analysis and sharing of information). It reaffirms the ethical principles underpinning the organisation’s actions and concludes with eight ethical recommendations that are applicable to studies and/or research in our intervention settings

Investing in information for development module

Food and Agriculture Organization of the United Nations (FAO)

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This module of the FAO's IMARK toolkit addresses the needs of managers to build their skills and awareness around managing information in their organisation. It aims to help managers develop and implement strategies, policies, structures and procedures for effective management of information. The module reviews current trends in access to and dissemination of information, and how new technologies (ICTs) affect and enhance information activities in organisations

Organising local documentation services for the water and sanitation sector : guidelines


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Guidelines for the development of local documentation centres which can be maintained with minimum effort, and provide useful information on water and sanitation to colleagues and the local community without the help of professional librarians or documentalists. Concentrates on the basic tasks needed to set up and operate a small documentation centre at the local level. This second edition has been revised to take account of the developments in information and communication technologies (ICTs) which have revolutionised information provision during the past ten years. The revised guidelines continue to cover manual systems, but also include more detailed guidance on computer applications and access to the Internet

ICT for development : contributing to the Millennium Development Goals. Lessons learned from seventeen infoDev projects

et al
November 2003

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Showcasing the lessons learned from 17 infoDev Projects, this book aims to create an explicitly available resource that offers descriptions of selected ICT for Development (ICT4D) projects and their impact on poverty. The book first presents case studies of a cross-section of projects funded by the infoDev core programme, then follows with a comprehensive study and analysis of the impact and limits of those projects

Healthlink Worldwide subject and keywords list


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This list of controlled vocabulary, or keywords, has been developed by Healthlink Worldwide for use when searching their databases. The terms used reflect various aspects of primary health care and disability issues in developing countries

Health and environment library modules


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This package consists of two components: key documents from international agencies on environmental health and water and sanitation issues; and a set of tools to manage this information, including a list of bibliographical references, and an electronic version of this material accessble in CARDBOX, as text files, or in a MICRO-ISIS compatible format.
Contents: Introduction (WHO/EHG/97.2/INT) -- Environmental health : general issues WHO/EHG/97.2/GEN) -- Environmental epidemiology (WHO/EHG/97.2/EPI) -- Ionizing radiation (WHO/EHG/97.2/ION) -- Annex (WHO/EHG/97.2/annex) -- Food safety (WHO/EHG/97.2/FOOD, 2nd rev. ed.) -- Vector control (WHO/EHG/97.2/VEC, 2nd rev. ed.) -- Water quality, water supply and sanitation (WHO/EHG/97.2/WAT, 2nd rev. ed.)

Documentation made easy : a library manual for nongovernmental organizations specializing in appropriate technology and rural development


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This is the work of a practitioner who is well acquainted with her subject, and who gives those in charge of documentation in development associations many examples and tools as well as a general filing layout for the small libraries of grassroots organisations. The manual is aimed primarily at readers with no previous experience in librarianship and documentation

How to evaluate an Internet-based information source | BIOME evaluation guidelines


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This section of the BIOME evaluation guidelines provides a step-by-step guide to evaluating information on the Internet. The steps are: follow any links to find out as much as you can about a resource; analyse the URL; examine the information within the resource; consider the accessibility, design and layout, and ease of use of the source; obtain any additional information; and compare the resource to other similar materials. Includes an explanation of what to look for within each step, and the key questions you are trying to answer. There are also some additional hints on evaluating mailing lists and Newsgroups, databases, and FTP archives. These guidelines were produced for a UK-based information service called BIOME which provides access to Internet resources in the health and life sciences, aimed at students, researchers, academics and practitioners. The guidelines are well-written and accessbile, but might require some adaptation to developing country information services or resource centres

Open Source Initiative OSI


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Open Source Initiative (OSI) is a non-profit organisation that promotes open source software. Even if source code of software is disclosed, it is not considered open source unless the software is provided with a software license which fulfils the Open Source Definition established by OSI. This website contains the Open Source Definition, list of OSI approved licenses, Frequently Asked Questions (FAQs) on open source software, and other information on OSI


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