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The temporalities of supported decision-making by people with cognitive disability

WIESEL, Ilan
SMITH, Elizabeth
BIGBY, Christine
THEN, Shih-Ning
DOUGLAS, Jacinta
CARNEY, Terry
2020

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In many societies, people with cognitive disability have been pre- sumed to lack reasoned decision-making capacity. Consequently, substituted decision-making laws and practices have traditionally authorised some people such as parents, guardians or medical professionals, to make decisions on their behalf. Several countries are now moving towards an alternative supported decision-making paradigm whereby people with different cognitive abilities are supported to make decisions that reflect as much as possible their ‘will, preferences and rights’. In this paper we examine how geo- graphical thinking about temporalities might illuminate some of the legal, ethical and practical complexities of supported decision- making. The paper draws on qualitative data from interviews with people with intellectual disabilities or acquired brain injury, and those who support them in making decisions. We examine how temporal scales and boundaries shape the determination of decision-making capacity; how decision-makers’ ‘will and preferences’ are interpreted by supporters; and how the labour of support for decision-making is organised. We argue that further geographical engagement with supported decision-making can help significantly advance this important disability rights agenda.

Support by migrants to their elderly parents in rural Cambodia and Thailand : a comparative study

ZIMMER, Zachary
et al
2007

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Internal migration in South East Asia raises questions about strains upon traditional systems of support for older adults. While remittances to parents’ households play a role in rural household economies, uncertainty remains regarding whether and under what circumstances children interact with their elderly parents. This paper focuses on the adult children of older persons living in rural Cambodia and Thailand and examines the determinants of personal visits, monetary remittances and more general forms of household support. Analyses considers ways in which geographically distant children support parents, the extent to which characteristics of parents, children and households enhance or detract from these inter-generational interactions, and how determinants of inter-generational interaction vary between the two countries. Comparisons between countries of conditions and characteristics of families provide insights into how social, economic, and cultural forces motivate provision of support to aging parents

Vietnamese cultural approach to HIV/AIDS prevention, support and care : in selected areas of Ho Chi Minh City and Quang Ninh Province

UNITED NATIONS EDUCATIONAL, SCIENTIFIC AND CULTURAL ORGANISATION (UNESCO)
THE JOINT UNITED NATIONS PROGRAM ON HIV/AIDS (UNAIDS)
2003

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This study explores the positive and negative impact of Vietnamese cultural factors on HIV transmission, as well as support and care. The study concludes with recommendations for interventions including revising strategy around communication interventions, promoting wider participation in HIV and AIDS prevention and care activities, and improving coordination among agencies and organisations involved in HIV and AIDS interventions and research

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