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Guatemala National Disability Study ENDIS 2016 Report

DONICIO Carlos
GRECH Shaun
Islay MACTAGGART
Jonathan NABER
Dr Ana Rafaela SALAZAR DE BARRIOS
Gonna ROTA,
Sarah POLLACK
April 2017

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The Guatemala National Disability Study (ENDIS 2016) was undertaken to address a need for up to date reliable data on disability in Guatemala.

Through a population based survey:

* To estimate the national disability prevalence among adults and children in Guatemala, and to provide regional estimates for 5 broad regions

* To disaggregate the prevalence of disability in Guatemala by age, sex, type of functional limitation and socio-economic status

* To explore the impact of disability on: poverty, quality of life, participation, health and opportunities to go to school and to work amongst children and adults respectively

Through a qualitative study:

* To explore cultural, ideological, and social interpretations and responses to disability; provide insight into the disability and poverty relationship; and examine social, political, and economic dimensions operating within this relationship.

Disability and the global South (DGS) 2015, Vol. 2 No. 3

DISABILITY AND THE GLOBAL SOUTH
2015

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This journal presents six articles in this collection about disability in several countries. Articles include research on typhoon Haiyan in the Philippines, analysis of policy that aims to reduce the mental health treatment gap in Africa, research on inclusive education in Kenya and others

Disability & the global South (DGS), Vol. 2 No. 3

The right to vote of persons with disabilities in Chile : Law no 20.183 as a factor of progress for inclusive democracy

REYES, Maria Soledad Cisternas
March 2013

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"This article describes the process of adoption of Law 20.183 of 2007, which recognises the right of persons with disabilities to have support in the act of voting. The process began with a lawsuit which inspired legal research conducted at the national level. A project of civil society advocacy was subsequently developed and implemented to promote the right to vote of persons with disabilities. The process resulted in a legislative initiative and culminated in the adoption of the 2007 Constitutional Act on voting and elections which recognized the right to support in the act of voting for persons with disabilities"
IDA Human Rights Publication Series, Issue 1, The Right to Vote and to Stand for Election

Assessment of election access barriers in Guatemala

SERPE, Lauren
November 2012

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This research report presents the lessons learned from various activities to improve the inclusion of persons with disabilities in the electoral process and future programming needs in Guatemala. Three research activities captured the different perspectives of those working on or affected by inclusion issues: a survey of 250 electoral authorities; six focus groups consisting of persons with disabilities and those who work with persons with disabilities; and six in-depth interviews with leaders of disabled persons organizations (DPOs) with whom IFES had worked during the previous electoral cycle

Defining the barriers to political participation for individuals with disabilities

HALL, Thad E
ALVAREZ, R. Michael
May 2012

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This report examines the barriers to political participation that can exist for individuals with disabilities. Such studies can be difficult because there are few studies that examine both disability status and political variables such as party identification and ideology. No studies directly ask about whether a person’s disability status directly interferes with the various aspects of political participation, such as getting news about candidates or navigating the polling place in order to vote. The analyses that follow utilize data from several surveys, including the Current Population Survey, the 2008 Study of the Performance of American Elections, and the 2008 Cooperative Congressional Election Study
Working Paper #001

Electoral participation of electors with disabilities : Canadian practices in a comparative context

PRINCE, Michael J
March 2012

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"This report addresses three main research questions: What barriers do people with disabilities, physical and/or mental, face when trying to vote? What reforms have countries and, in the case of Canada, provinces introduced since 2000 to reduce or eliminate barriers to voting for people with disabilities? More specifically, what services, supports and laws or standards have governments introduced to ensure better access to voting by electors with disabilities The specific focus of this report is on the right to vote, rather than on the right to freely associate as an activist or to run as a candidate and to hold elected office. Five national jurisdictions are reviewed in this report, specifically Australia, Canada, the United Kingdom, the United States and New Zealand. On Canada, attention is given to developments and practices at the federal, and provincial and territorial levels of government"

"I want to be a citizen just like any other" : barriers to political participation for people with disabilities in Peru

BARRIGA, Shantha Rau
et al
2012

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"This report documents legal, physical, communication and attitudinal barriers experienced by people with different disabilities in exercising their right to political participation just like others in society. It also examines how restrictions on legal capacity impact the ability of people with intellectual and psychosocial disabilities in particular to enjoy a range of rights, including the right to own or inherit property, be employed or legally represent their children"
Note: This report is available in pdf, word and easy-read formats

Inclusive democracies require voting rights for people with disabilities

NEIER, Aryeh
November 2011

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This blog post presents the story of a woman with Down Syndrome who initially was prevented from voting in Peruvian elections because of her intellectual disability but successfully won her right to vote. The article concludes by encouraging inclusive policies that support the participation of people with disabilities in political life
Note: This post is part of a blog series that reflects on The Open Society Foundations work to advance the rights of persons with disabilities around the world

Ensuring the enfranchisement of people with disabilities

WARD, Andrew
BAKER, Paul M A
MOON, Nathan W
October 2008

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"In a representational democracy, the process of selecting people to represent the electorate is critical. To accomplish this goal, it is crucial that elections be fair and accurate reflections of the decisions of the voters. However, a significant and relatively unacknowledged constituency, people with disabilities, faces a variety of barriers to full participation in the U.S. electoral democracy. Recent research has provided evidence that how people with disabilities vote is just as important as the physical barriers they face when casting their votes. This article presents an overview of the literature addressing issues that affect how people with disabilities vote, with an especial focus on the role of election officials as both facilitators and inhibitors of voting by people with disabilities"
Journal of Disability Policy Studies, Vol 20, No 2

Disabilities among refugees and conflict-affected populations

WOMEN'S COMMISSION FOR REFUGEE WOMEN AND CHILDREN
June 2008

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"This report is the culmination of a six-month project...to address the rights and needs of displaced persons with disabilities, with a particular focus on women (including older women), children and youth. Based on field research in five refugee situations, as well as global desk research, the Women’s Commission sought to map existing services for displaced persons with disabilities, identify gaps and good practices and make recommendations on how to improve services, protection and participation for displaced persons with disabilities"

Listen to our stories : words, pictures, and songs by young people with disabilities

HILLYER, Linda
2008

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Listen to Our Stories highlights poetry, essays, interviews, songs, journal writing, letters, and pictures that tell the personal stories of young people with disabilities. The contributors are young girls and boys aged 5 to 21, from varied backgrounds, different talents and a range of disabilities. This website may be useful to anyone interested in personal life stories and experiences, written or told by children and young adults with disabilities

Resources on youth reproductive health and HIV/AIDS

Interagency Youth Working Group [IYWG]
2007

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A global resource providing materials designed for working with young people (aged 10 - 24) in developing countries. The website includes; training materials, research tools, guidance on key programme areas and best practice, a database of recent resources and websites for youth. IYWG is a network of 10 NGOs, donors and cooperating agencies. The website is supported by the US Agency for International Development and the content is overseen by Family Health International

CSO capacity for policy engagement : lessons learned from the CSPP consultations in Africa, Asia and Latin America

CHOWDHURY, Naved
FINLAY-NOTMAN, Chelsie
HOVLAND, Ignie
August 2006

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This paper explore the views of Southern civil society organisations (CSOs) on the issues of evidence-based policy engagement and came out of the Civil Society Partnerships Programme (CSPP). "During its first phase the CSPP conducted a series of consultative seminars and workshops in Africa, Asia and Latin America. The aim was to provide a forum for representatives from policy research institutions and non-governmental organisations (NGOs), as well as other stakeholders, to come together. Participants discussed the opportunities and challenges for CSOs when using evidence to inform policy, presented lessons and best practice in this area, shared experiences about ongoing activities and identified opportunities for collaborative work"

The participation scale : measuring a key concept in public health v4.1

VAN BRAKEL, Wim H.
et al
February 2006

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This is a report of a study, carried out in Nepal, India and Brazil, to develop a scale to measure (social) participation for use in rehabilitation, stigma reduction and social integration programmes. The report concludes that the Participation Scale is reliable and valid to measure client-perceived participation in people affected by leprosy or disability

Risk factors for participation restriction in leprosy and development of a screening tool to identify individuals at risk

NICHOLLS, PG
et al
December 2005

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This paper explores risk factors for participation restrictions experienced by people affected by leprosy. The objective was to develop a screening tool to identify individuals at risk. An initial round of qualitative fieldwork in eight centres in Nepal, India and Brazil identified 35 potential risk factors for participation restriction. This was further assessed through quantitative fieldwork in six centres in India and Brazil. In all, 264 individuals receiving leprosy treatment or rehabilitation services made a retrospective assessment of their status at time of diagnosis. Their level of participation restriction was assessed using the Participation Scale, and regression analysis identified risk factors for participation restriction. Four consolidated items were identified as the basis for a simple screening tool to identify individuals at risk: physical impact of leprosy, an emotional response to the diagnosis, female gender and having little or no education. Such a tool may form the basis for a screening and referral procedure to identify newly diagnosed individuals at risk of participation restrictions and the need of actions that may prevent such restrictions
Leprosy Review, Vol 76, Issue 4

Saving lives : including people with disabilities in emergency planning

NATIONAL COUNCIL ON DISABILITY
April 2005

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This report provides an overview of the steps US federal government should take to include people with disabilities in emergency preparedness, disaster relief and homeland security program.  Key recommendations are provided and offer examples of community efforts to take account of the needs of people with disabilities

 

Note: This report is also available in alternative formats on the National Council on Disability's (NCD) website: http://www.ncd.gov/

Estrategia nacional para la sociedad de la información

INSTITUTO DOMINICANO DE LAS TELECOMUNICACIONES (INDOTEL)
UNITED NATIONS DEVELOPMENT PROGRAMME (UNDP)
WORLD BANK
2004

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The National Strategy for the Information Society of the of the Dominican Republic (e-Dominicana) is a joint effort of the Dominican society, led by the Dominican Institute of the Telecommunications, with the support of the United Nations Development Programme (UNDP) and the World Bank. For its formulation the different actors from the government, the private sector and civil society were consulted. The e-Dominican Strategy aims to promote human development, to construct competitive advantages and to offer Dominican people better opportunities, through the use, appropriation and development of the ICTs

Community-based strategies for breastfeeding promotion and support in developing countries

WORLD HEALTH ORGANIZATION (WHO)
2003

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This review examines the role of communities and community-based resource persons in providing support for appropriate feeding practices and access to skilled support when mothers need it. This document is based on a literature review and an analysis of three projects in Madagascar, Honduras and India. It assesses the impact of interventions, the mechanisms through which behaviours can be changed, and the factors that are necessary to maximise and sustain the benefits of interventions

Background papers : analysis of evaluation reports of six CBR projects

CAMARA, Tambo
DEEPAK, Sunil
October 2002

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This report presents an analysis of evaluation reports from six CBR projects in six countries through a number of standard key elements. The key elements used for reviewing the different evaluation reports have been grouped together in four categories: national policy & legislation; referral services; general aspects of CBR; and, participation. This resource is useful for anyone interested in CBR evaluations
Reviewing CBR, International Consultation

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