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Guatemala National Disability Study ENDIS 2016 Report

DONICIO Carlos
GRECH Shaun
Islay MACTAGGART
Jonathan NABER
Dr Ana Rafaela SALAZAR DE BARRIOS
Gonna ROTA,
Sarah POLLACK
April 2017

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The Guatemala National Disability Study (ENDIS 2016) was undertaken to address a need for up to date reliable data on disability in Guatemala.

Through a population based survey:

* To estimate the national disability prevalence among adults and children in Guatemala, and to provide regional estimates for 5 broad regions

* To disaggregate the prevalence of disability in Guatemala by age, sex, type of functional limitation and socio-economic status

* To explore the impact of disability on: poverty, quality of life, participation, health and opportunities to go to school and to work amongst children and adults respectively

Through a qualitative study:

* To explore cultural, ideological, and social interpretations and responses to disability; provide insight into the disability and poverty relationship; and examine social, political, and economic dimensions operating within this relationship.

Mental health and human rights : Report of the United Nations High Commissioner for Human Rights

OFFICE OF THE HIGH COMMISIONER FOR HUMAN RIGHTS
January 2017

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"The present report, mandated by the Human Rights Council in resolution 32/18, identifies some of the major challenges faced by users of mental health services, persons with mental health conditions and persons with psychosocial disabilities. These include stigma and discrimination, violations of economic, social and other rights and the denial of autonomy and legal capacity.

In the report, the High Commissioner recommends a number of policy shifts, which would support the full realisation of the human rights of those populations, such as the systematic inclusion of human rights in policy and the recognition of the individual’s autonomy, agency and dignity. Such changes cover measures to improve the quality of mental health service delivery, to put an end to involuntary treatment and institutionalisation and to create a legal and policy environment that is conducive to the realisation of the human rights of persons with mental health conditions and psychosocial disabilities"

A/HRC/34/32

Human Rights Council, Thirty-fourth session, 27 February-24 March 2017

Ensuring that no one is left behind. High-level political forum (HLPF) 2016 position paper by Persons with Disabilities.

INTERNATIONAL DISABILITY ALLIANCE (IDA)
2016

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This position paper states that "only by utilising the UN Convention on the Rights of Persons with Disabilities (CRPD) as a guiding framework in implementing the SDGs, will it be ensured that exclusion and inequality are not created or perpetuated". Proposals are made and background presented on the topics of: the unfinished work of the MDGs; realising, through an enabling environment, the full potential of persons with disabilities; working together to protect our planet; and reaching the farthest behind first

For every child, a fair chance : the promise of equity

UNITED NATIONS CHILDREN’S FUND (UNICEF)
November 2015

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“UNICEF’s commitment to equity – giving a fair chance in life to every child, everywhere, especially the most disadvantaged – is built on the conviction that it is right in principle and evidence that it is right in practice. This report makes the case for closing persistent gaps in equity…” The report identifies a number of persistent gaps in equity for children, ranging from health to nutrition, to social inclusion. The report concludes by making recommendations to close gaps in equity worldwide as well as projecting progress in achieving equity by 2030

The revised UNESCO charter of physical education, physical activity and sport

UNITED NATIONS EDUCATIONAL, SCIENTIFIC AND CULTURAL ORGANIZATION (UNESCO)
November 2015

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"The International Charter of Physical Education, Physical Activity and Sport  is a rights-based reference that orients and supports policy- and decision-making in sport. Based on the universal spirit of the original Charter, and integrating the significant evolutions in the field of sport since 1978, the revised Charter introduces universal principles such as gender equality, non-discrimination and social inclusion in and through sport. It also highlights the benefits of physical activity, the sustainability of sport, the inclusion of persons with disabilities and the protection of children"

The road to dignity by 2030 : ending poverty, transforming all lives and protecting the planet : synthesis report of the Secretary-General on the post-2015 agenda

UNITED NATIONS (UN)
December 2014

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This synthesis report of the UN Secretary General was written to guide negotiations for a new global agenda centred on people and the planet, and underpinned by human rights, supporting States’ discussions going forward. The extensive document presents information in short numbered paragraphs, within six sections: 1) A universal call to action; 2) A synthesis “taking stock of the negotiations on the post-2015 agenda and reviewing lessons from pursuit of the MDGs; 3) Framing the agenda; 4) Mobilising the means to Implement our agenda; 5) Delivering our agenda; 6) Conclusion: together in a universal compact. It highlights the need to “finish the job,” both to help people now and as a launch pad for the new agenda

A/69/700

The state of the world’s children 2013 : children with disabilities

THE UNITED NATIONS CHILDREN’S FUND (UNICEF)
May 2013

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This report examines "the barriers from inaccessible buildings to dismissive attitudes, from invisibility in official statistics to vicious discrimination - that deprive children with disabilities of their rights and keep them from participating fully in society. The report also lays out some of the key elements of inclusive societies that respect and protect the rights of all children, regardless of disability, and progress in helping all children to flourish and make their contribution to the world"

Community-based rehabilitation : CBR guidelines|Health component

WORLD HEALTH ORGANIZATION (WHO)
et al
2010

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This component of the CBR Guidelines focuses on health and how to make it inclusive. It describes "the role of CBR is to work closely with the health sector to ensure that the needs of people with disabilities and their family members are addressed in the areas of health promotion, prevention, medical care, rehabilitation and assistive devices. CBR also needs to work with individuals and their families to facilitate their access to health services and to work with other sectors to ensure that all aspects of health are addressed"
It outlines key concepts and then presents the core concepts, examples and areas of suggested activities in each of the following five elements: Health promotion; Prevention; Medical care; Rehabilitation; and Assistive devices. This guideline is useful for anyone interested in health component of CBR

Community-based rehabilitation : CBR guidelines

WORLD HEALTH ORGANIZATION (WHO)
et al
2010

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These guidelines provide an overview of key CBR concepts, indentify goals and outcomes that CBR programmes should be working towards, and provide suggested activities to achieve these goals. The guidelines are presented in seven separate booklets: Introductory booklet, Health component, Education component, Livelihood component, Social component, Empowerment component and Supplementary booklet. This resource is useful for people interested in inclusive community-based development for people with disabilities
Note: Links are provided to the CBR Matrix and MP3 audio files

Research for people's health : a researcher's encounter at the Second People's Health Assembly

PEOPLE'S HEALTH MOVEMENT
2005

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This bilingual booklet describes a "research encounter" which brought together researchers from all over the world committed to people's health problems. The purpose was to reflect and debate the problems and inequities related to research on health. The booklet describes the themes that were raised, the ideas that emerged, and challenges. It includes a 'declaration' with recommendations for governments, researchers and training institutions

Mental health in emergencies : mental and social aspects of health of populations exposed to extreme stressors

WORLD HEALTH ORGANIZATION (WHO). Department of Mental Health and Substance Abuse
2003

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A large number of people are exposed to extreme stressors that are a risk factor for mental health and social problems. This report describes principles and strategies that can be applied in resource poor settings where there are people who have been exposed to extreme stressors, such as refugees, internally displaced persons, disaster survivors and populations exposed to terrorism, genocide or war

Update on the UNGASS declaration of committment on HIV/AIDS

INTERNATIONAL COUNCIL OF AIDS SERVICE ORGANIZATIONS (ICASO)
June 2002

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from the introduction: 'This Update contains information on how the Declaration [of Commitment on HIV/AIDS, adopted by the UN in June 2001] has been promoted by NGOs at the local and national level; by the central and regional secretariats of ICASO; and by the Joint United Nations Programme on HIV/AIDS (UNAIDS).' Describes a proposal to appoint UN Special Envoys to promote the declaration and reports on the development of indicators to aid the monitoring and evaluation of the implementation of the Declaration

International classification of functioning, disability and health (ICF)

WORLD HEALTH ORGANIZATION (WHO)
2001

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ICF is a classification of health and health related domains that describe body functions and structures, activities and participation. The domains are classified from body, individual and societal perspectives. Since an individual's functioning and disability occurs in a context, ICF also includes a list of environmental factors

AIDS and culture (UNESCO portal)

UNESCO

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This is a joint UNESCO and UNAIDS initiative that draws on anthropological perspectives. This initiative has led to a number of specific country studies, and a range of methodological manuals coming out of this work, and a roundtable meeting on an anthropological approach to stigma. These and many more resources are available through this portal

The body : the complete HIV/AIDS resource

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This website has information relating to diagnosis, treatment and living with HIV. While it is largely US focused, there is a section on HIV around the world, which is divided into geographic regions and provides; statistics, an overview, and information about specific populations

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Source e-bulletin on Disability and Inclusion

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