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At risk of exclusion from CRPD and SDGs implementation: Inequality and persons with deafblindness. Initial global report on situation and rights of persons with deafblindness

JENSEN, Rune
et al
September 2018

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Representing between 0.2% to 2% of the population, persons with deafblindness are a very diverse yet hidden group and are, overall, more likely to be poor and unemployed, and with lower educational outcomes. Because deafblindness is less well-known and often misunderstood, people struggle to obtain the right support, and are often excluded from both development and disability programmes. This initial global report on the situation of persons with deafblindness seeks to start a dialogue between international disability rights and development stakeholders, and is based on research undertaken by the World Federation of the Deafblind (WFDB) combining the largest population-based analysis of persons with deafblindness conducted to date (disaggregation of 22 population-based surveys from low, middle and high-income countries), an academic literature review, two surveys conducted among members and partners of WFDB and Sense International. Women and men with deafblindness from across the world took part in the Helen Keller World Conference in June 2018, and were consulted to confirm the findings and elaborate on the recommendations for this report.

 

Data and discussion are presented on people with deafblindess and: inequality; poverty; work; education; health; participation on political and public life; and social life. Datasets are included. 

 

Are national voluntary reviews promoting awareness and inclusion? : Perceptions survey on civil society and stakeholder engagement in voluntary national reviews and the implementation of the 2030 Agenda

COSTA, Naiara
LONG, Graham
LUXTON, Louise
May 2017

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"For the second year, Together 2030 has carried out a survey to collect evidence on stakeholder awareness of, and participation in, national planning and review around the 2030 Agenda. In 2017, the survey was conducted in partnership with the Newcastle University. The survey received 461 responses from a range of stakeholders, including national, regional and global organisations. This perceptions survey asked 20 questions in total (though not all questions were directed to all respondents). It was issued in three languages: English, Spanish and French, and was shared broadly with civil society and stakeholder mailing lists and via social media from March 3 to March 24 2017."

This report addresses two key questions about people’s participation in the 2030 agenda for sustainable development:

  • How extensive is stakeholder awareness of, and participation in, the process of country Voluntary National Reviews which are a central component of the High Level Political Forum
  • How aware and engaged is civil society and stakeholders across the world in national level planning and review of the SDGs?

This report presents statistical, survey-based evidence that helps to address these two questions. 

Old age, disability and mental health : data issues for a post-2015 framework

SAMMAN, Emma
RODRIGUEZ-TAKEUCHI, L. K
May 2013

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"This Background Note focuses on inequalities associated with old age, disability and mental health. It argues that these should be considered salient sources of group-based difference, given the numbers of people affected, their marginalisation and vulnerability, and their relative neglect in international agreements to date. This note identifies a lack of data as a particular concern, but one that can be addressed through revisions to standard household surveys. To this end, the paper discusses the available data and their limitations, constraints to better data collection and efforts needed to adjust key international survey instruments -the World Bank’s Core Welfare Indicator Questionnaire (CWIQ) and Living Standards and Measurement Survey (LSMS), Macro International’s Demographic and Health Survey (DHS) and the UNICEF Multiple Indicator Cluster Survey (MICS)- to collect reliable data on these issues. It sets out technical adjustments that would enable these surveys to broaden their coverage, collect richer information and improve their identification of these three groups. It concludes by commenting on how measures to address the inequalities that affect these groups could be incorporated within a new post-2015 framework agreement"
ODI Background note

A million voices : the world we want|A sustainable future with dignity for all

UNDG MILLENNIUM DEVELOPMENT GOALS TASK FORCE
2013

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"This report by the United Nations Development Group (UNDG) collects the perspectives on the 'world we want' from over 1 million people around the globe. For almost one year, people have engaged energetically in 88 national consultations, 11 thematic dialogues, and through the MY World global survey...The findings of this global conversation contain important messages for governments as they seek to agree on a new development agenda that can build on the successes of the Millennium Development Goals (MDGs)"

My world

UNITED NATIONS DEVELOPMENT PROGRAM (UNDP)
et al

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"My World is a global survey for citizens led by the United Nations and partners. It aims to capture people's voices, priorities and views; so that global leaders can be informed as they begin the process of defining the new development agenda for the world"

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