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The role of indigenous and external knowledge in development interventions with disabled people in Burkina Faso: the implications of engaging with lived experiences

BEZZINA, Lara
2018

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This paper explores the significance of engaging with the lived experiences of disabled people in countries like Burkina Faso in order to implement long-lasting and beneficial development. It looks at the way disability was conceived of in pre-colonial times and how knowledge imported from the colonisers conflicted with, and continues to influence today, indigenous knowledge in Burkina Faso. Although Burkina Faso obtained its independence from European colonisers over fifty years ago, disability as a terrain for intervention continues to be colonised by international non-governmental organisations (INGOs) that frame their approaches in western models, which are not necessarily applicable in countries like Burkina Faso. In a context where the predominant view of disability is that of disabled people being an economic burden, many disabled people in Burkina Faso feel the need to prove themselves as economically independent; and yet development agencies often do not engage with disabled people’s voices when designing and implementing development programmes. This paper argues that there is a need to engage with disabled people’s lived experiences and knowledges through processes such as participatory video which create spaces where marginalised people’s voices can be heard and listened to by the development agencies that influence disabled people’s lives.

 

Disability and the Global South, 2018, Vol.5, No. 2, 1488-1507

Community based rehabilitation for people with disabilities in low and middle income countries : a systematic review

IEMMI, Valentina
et al
September 2015

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This Campbell Collaboration systematic review assesses the effectiveness and cost-effectiveness of community-based rehabilitation (CBR) for people with physical and mental disabilities in low- and middle-income countries, and/or their family, their carers, and their community. This review identified 15 studies that assessed the impact of community-based rehabilitation on the lives of people with disabilities and their carers in low- and middle-income countries. The studies included in the review used different types of community-based rehabilitation interventions and targeted different types of physical (stroke, arthritis, chronic obstructive pulmonary disease) and mental disabilities (schizophrenia, dementia, intellectual impairment). The authors conclude that the evidence on the effectiveness of CBR for people with disabilities in low- and middle-income countries suggests that CBR may be effective in improving the clinical outcomes and enhancing functioning and quality of life of the person with disabilities and his/her carer and recommend future studies will need to adopt better study designs, will need to focus on broader clients group, and to include economic evaluations

Campbell Systematic Reviews 2015:15

Developing human rights based indicators to support country monitoring of rehabilitation services and programmes for people with disabilities : a study protocol

SKEMPES, Dimitrios
BICKENBACH, Jerome
September 2015

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This paper seeks to develop a study protocol that can assess and improve the provision of rehabilitation services for people with disabilities across the world. The research targets a knowledge gap that exists whereby there are no indicators to reliable identify the performance of rehabilitation systems and monitoring technologies. The paper provides a detailed analysis of the issue before outlining and justifying a choice of methods for data collection and analysis, and the likely impact and use of the study results

BMC International Health and Human Rights, 15:25

Understanding the interaction of competence standards and reasonable adjustments

HEWLETT, Katherine
NIGHTINGALE, Christine
STEVENS, Tony
July 2015

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“Higher education institutions (HEIs) have responsibility for developing non-discriminatory competence standards, and designing a study programme to address these competence standards. HEIs also have the responsibility to ensure that assessment methods address the competence standards. Adjustments to ways that competence standards are assessed may be required so that disabled students are not put at a disadvantage in demonstrating their achievement. This guidance aims to support HEIs meet these institutional and legal responsibilities, and promote disability equality” by providing information and examples on key areas. The guidance will be of use to all staff involved in developing and assessing competence standards

A home-based rehabilitation intervention for people living with HIV and disability in a resource-poor community, KwaZulu-Natal : study protocol for a randomized controlled trial

COBBING, Saul
HANASS-HANCOCK, Jill
MYEZWA, Hellen
2015

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In this paper, the researchers develop a needs-based home-based rehabilitation programme for people living with HIV in order to improve their quality of life and functional ability. The study aims to  provide rehabilitation professionals and researchers with evidence that can be utilised to improve existing rehabilitation interventions for people living with HIV.

The paper outlines a randomised control trial to test the programme, to be conducted at a public hospital in KwaZulu-Natal, South Africa. The trial will assess the participants’ quality of life, perceived level of disability, functional ability and endurance

Trials 16:491

Two stage child disability study among children 2 to 9 years : Bhutan 2010 - 2011

THE NATIONAL STATISTICS BUREAU (NSB), Government of Bhutan
Ministry of Education (MoE)
Ministry of Health (MoH)
2012

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“This report highlights the salient findings of the two-stage child disability study among children aged 2-9 years conducted in 2011. The first stage was a screen to identify children with conditions making them more likely to be living with a disability. The second stage was a detailed assessment to accurately determine their disability status. This two-stage procedure is designed to reduce the costs of administering a detailed assessment to many children who are highly unlikely to have a disability”

Evaluating the impact of rehabilitation in the lives of people with disabilities and their families in low and middle income countries : a review of tools

LONDON SCHOOL OF HYGIENE & TROPICAL MEDECINE (LSHTM)
CHRISTOFFEL BLINDEMISSION (CBM)
August 2010

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“As there are many tools available for evaluating impact in the international literature, CBM commissioned this review in order to obtain clear guidance on how research can be carried across their programmes in order to generate high quality and reliable evidence on the impact of their programmes in the lives of people with disabilities and their families”

Human subject regulations decision charts

OFFICE FOR HUMAN RESEARCH PROTECTIONS (OHRP)
September 2004

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These graphic aids are a guide to help decide if a research activity involving human subjects needs to be reviewed by an institutional review board (IRB) under the requirements of the US Department of Health and Human Services. The charts specify the following: whether an activity is research that must be reviewed by an IRB, whether the review may be performed by expedited procedures, and whether informed consent or its documentation may be waived. This document is useful for institutional review boards (IRBs), investigators, and others who are conducting research with human subjects

Designing HIV/AIDS intervention studies : an operations research handbook

FISHER, Andrew A
FOREIT, James R
et al
May 2002

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This handbook is designed to help HIV/AIDS researchers develop and write a detailed operations research proposal. The organisation of the handbook follows that of a research proposal, starting with identifying, defining and justifying a research problem, ending with how to prepare a budget. Chapters in between cover research objectives, study design, data tabulation, data analysis and dissemination and utilisation of research findings

Guidelines and principles for the development of disability statistics

UNITED NATIONS
2001

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This publication is aimed at assisting national statistical offices and other producers of disability statistics to improve the collection, compilation and dissemination of disability data. The document addresses methodological issues in the area of disability by providing guidelines and principles related to data collection, through surveys and censuses and also on the compilation, dissemination and usage of data on disability.

Adaptech

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This website is sponsored by the Adaptech Research Network, which consists of teams of academics, students and consumers. They conduct research on computer technology utilised by disabled students in Canadian colleges and universities. This website chronicles their work and shares their findings. Useful for anyone with an interest in assistive technologies and disability

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