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Disability measurement and the Washington Group on Disability Statistics : NGO training agenda

WASHINGTON GROUP ON DISABILITY STATISTICS
June 2017

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Four videos are provided which are live recording of an Introductory training for Non-Government Organisations on disability measurement

Session 1 Video: Overview of Disability Measurement and the Washington Group Short Set (1h 35m)

Session 2 Video: Collecting Disability Data (1h 42m)

Session 3 Video: The Importance & Feasibility of Disaggregation by Disability Status (57m)

Session 4 Video: The WG/UNICEF Module on Child Functioning (1h 14m)

 

A new way to measure child functioning

UNICEF
WASHINGTON GROUP
May 2017

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"In recognizing the need for a set of questions that would produce internationally comparable data on children, the Washington Group formed a subgroup in 2009 that is chaired by the National Statistical Office of Italy (ISTAT). UNICEF joined the subgroup in 2011.

The first main activity of the subgroup was the development of a short set of questions to reflect current thinking on child functioning for inclusion in censuses and surveys. The new module uses the ICF-CY as the conceptual framework and relies on a functional approach to measuring disability.

The Washington Group/UNICEF Module on Child Functioning, finalized in 2016, covers children between 2 and 17 years of age and assesses functional difficulties in different domains including hearing, vision, communication/comprehension, learning, mobility and emotions. To better reflect the degree of functional difficulty, each area is assessed against a rating scale. The purpose is to identify the subpopulation of children who are at greater risk than other children of the same age or who are experiencing limited participation in an unaccommodating environment. The set of questions is intended for use in national household surveys and censuses"

The module is being translated into multiple languages. Supporting documentation, including a concept note, tabulation plan, templates for reporting, guidelines for interviewers and training materials are also available.

Education and disability - UIS fact sheet no.40

UNESCO INSTITUTE FOR STATISTICS
February 2017

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"The Washington Group on Disability Statistics has developed questions for household surveys that allow the collection and analysis of internationally comparable data on persons with disabilities. This fact sheet presents attendance rates and completion rates disaggregated by disability status based on data from Demographic and Health Surveys that applied the questions recommended by the Washington Group. The findings of the analysis by the UNESCO Institute for Statistics (UIS) confirm that persons with disabilities are more likely to be out of school or to leave school before completing primary or secondary education. The fact sheet also summarises plans by the UIS for future data analysis and activities in standard setting to strengthen the evidence base for monitoring of SDG 4 and the design of education policy"

Key To Inclusion: New tool to measure child functioning

UNICEF
March 2016

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A video highlighting the critical importance of collecting data on child functioning, its feasibility and its powerful results. It addresses a new series of questions put together by UNICEF/Washington Group on Disability Statistics that go beyond labels and diagnoses to explore children’s actual experiences and the difficulties that they encounter in performing daily activities.

And every child is entitled to equal opportunity to realize their full potential. So say the Convention on the Rights of the Child and the Convention on the Rights of Persons with Disabilities.

But the hard truth is that millions of children with disabilities are deprived of opportunity.

Global Out-of-School Children initiative operational manual

UNICEF
UNESCO INSTITUE FOR STATISTICS
May 2015

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The Out-of-School Children Initiative (OOSCI) aims to support countries in their study and analysis of out-of-school children and children who are at risk of dropping out by using innovative statistical methods to develop comprehensive profiles of excluded children, linking these profiles to the barriers that lead to exclusion, and identifying, promoting and implementing sound policies that address exclusion often from a multi-sectoral perspective. The manual aims to provide concise and powerful tools for achieving this goal. 

OOSCI studies are intended to stimulate policy changes and enable governments to target their strategies for reaching out-of-school children. By using a systematic approach to identifying out-of-school children and analysing the associated issues, the studies can guide education sector reforms that will help bring all children into school.

 

 

The Telengana disability study : India

INTERNATIONAL CENTRE FOR EVIDENCE IN DISABILITY (ICED)
December 2014

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This report presents the findings of a study that developed and tested a best-practice population-based survey methodology to estimate the prevalence of disability in children and adults in India, and compared the extent to which people with and without disabilities access key mainstream services and opportunities including health, education and livelihoods in Telengana State, India

The Telengana disability study : summary report

INTERNATIONAL CENTRE FOR EVIDENCE IN DISABILITY (ICED)
December 2014

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This report presents a summary of the findings of a study that developed and tested a best-practice population-based survey methodology to estimate the prevalence of disability in children and adults in India, and compared the extent to which people with and without disabilities access key mainstream services and opportunities including health, education and livelihoods in Telengana State, India

The north west Cameroon disability study

INTERNATIONAL CENTRE FOR EVIDENCE IN DISABILITY (ICED)
December 2014

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This report presents the findings of a study that developed and tested a best-practice population-based survey methodology to estimate the prevalence of disability in children and adults in Cameroon, and compared the extent to which people with and without disabilities access key mainstream services and opportunities including health, education and livelihoods in north west Cameroon

The north west Cameroon disability study : summary report

INTERNATIONAL CENTRE FOR EVIDENCE IN DISABILITY (ICED)
December 2014

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This report presents a summary of the findings of a study that developed and tested a best-practice population-based survey methodology to estimate the prevalence of disability in children and adults in Cameroon, and compared the extent to which people with and without disabilities access key mainstream services and opportunities including health, education and livelihoods in north west Cameroon

Building the evidence base in disability : research summary

INTERNATIONAL CENTRE FOR EVIDENCE IN DISABILITY (ICED)
December 2014

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This research summary of presents the aims, methods and key findings from two disability studies in Cameroon and India. The studies developed a comprehensive population-based survey methodology that is compatible with the International Classification of Functioning (ICF), and explored the inter-relationship between the components of this framework

The state of the world's children 2014 in numbers : every child counts

UNITED NATIONS CHILDREN’S FUND (UNICEF)
January 2014

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This report highlights the critical role data and monitoring play in realising children’s rights. It presents an updated compendium of statistics and data (which has been produced thirty years after the initial report) relating to the position of children throughout the world but particularly within the Global South. The data indicators cover a vast range: from demography, health and education, to rate of progression, child mortality, and disparities by household wealth. It emphasises that credible data, disseminated effectively and used correctly, make change possible to target interventions that help right the wrong of exclusion by identifying needs, supporting advocacy, gauging progress and holding duty bearers to account

The key informant child disability project in Bangladesh and Pakistan

MACTAGGART, Islay
MURTHY, GVS
2013

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The Key Informant Method (KIM) has previously been tested by CBM, LSHTM and others, and found to be a valid method for the identification of children with severe visual impairment and blindness in Bangladesh, using community volunteers in the place of a door-to-door survey. This report outlines a study that set out to expand this and test whether voluntary, community-level Key Informants (KIs) could be trained to effectively identify children with moderate or severe physical impairments, sensory impairments (visual and hearing) or epilepsy in Bangadesh and Pakistan, and if so whether this process could be used to assess prevalence and plan appropriate referral services for children meeting these criteria

Disability at a glance 2012 : strengthening the evidence base in Asia and the Pacific

UN ECONOMIC AND SOCIAL COMMISSION FOR ASIA AND THE PACIFIC (ESCAP), Social Development Division
October 2012

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This report series aims to provide a regional overview of disability policies and practices, as well as relevant country data and information. This fourth edition highlights the complexity of interpreting disability data and stresses the urgent need to work towards a greater common understanding of disability, related data and data collection practices. The report consists of an introduction, two analytical chapters and subregional and country snapshots. The progress in data collection efforts is reflected in the number of country snapshots included in the current edition (52 countries and areas). The data are drawn from national Government sources, based on bilateral communication between national disability focal points and ESCAP, as well as the 2011 ESCAP Disability Survey. This report is useful for policymakers, statisticians and representatives of organizations of, and for, persons with disabilities in Asia and the Pacific
ST/ESCAP/2642

World report on disability

WORLD HEALTH ORGANIZATION
WORLD BANK
2011

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This report "reviews evidence about the situation of people with disabilities around the world. Following chapters on understanding disability and measuring disability, the report contains topic-specific chapters on health; rehabilitation; assistance and support; enabling environments; education; and employment. Within each chapter, there is a discussion of the barriers confronted, and case studies showing how countries have succeeded in addressing these by promoting good practice. In its final chapter, the report offers nine concrete recommendations for policy and practice which if put in place could lead to real improvements in the lives of people with disability"

Disability at a glance 2010 : a profile of 36 countries and areas in Asia and the Pacific

UN ECONOMIC AND SOCIAL COMMISSION FOR ASIA AND THE PACIFIC (ESCAP)
2010

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This document provides disability information and statistics for 36 countries within the Asia and Pacific regions focusing upon the population of persons living with disabilities. The contextual definition of disability is outlined in each of these countries, as well as national policy, programmes and institutional mechanisms that exist on disability issues. This would be useful document for people who are interested in disability information in Asian and Pacific countries
ST/ESCAP/2583

HIV and childhood disability : a case-controlled study at a paediatric antiretroviral therapy centre in Lilongwe, Malawi

DEVENDRA, A
et al
December 2003

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This article presents a case-controlled study that estimated the prevalence of disabilities in HIV-infected and HIV-uninfected children in Lilongwe, Malawi, examines types of disability and associated clinical and socio-demographic factors and identifies needs, opportunities and barriers for rehabilitation in Malawi. This study reveals the magnitude of disability among HIV-infected children and the large unmet need for rehabilitation services. It recommends that this expanding issue is investigated further to provide an evidence base for holistic care for disabled children living with HIV

PLoS ONE, Vol 8, No 12

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