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Using the Washington Group Questions in humanitarian action (learning toolkit on disability data collection)

January 2019

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Humanity & Inclusion has created a learning toolkit to improve the collection of quality data on persons with disabilities and improve its use by humanitarian organisations.

 

Until now, existing guidance on the Washington Group Questions (WGQs) has been specific to national data collection efforts on persons with disabilities. To address the lack of guidance for humanitarian actors, Humanity & Inclusion (HI) is launching a learning toolkit on collecting data in humanitarian action, which includes an e-learning, a training pack for enumerators and various supporting resources that can all be found on the HI website.

 

Gathering evidence on the use of the WGQs in humanitarian action:

To respond to the need to collect, analyse and use data on persons with disabilities in humanitarian action, HI has been implementing a project, funded by the UK Department for International Development, to test and assess the use of the WGQs in humanitarian action. An action-research was carried out with over 30 humanitarian partners in Jordan, the Democratic Republic of Congo and the Philippines, with the evidence used to develop learning materials.

 

Development of a learning toolkit for humanitarian actors:

In addition to the findings of the action-research, HI gathered inputs from over 30 humanitarian organisations working in 22 countries to inform the design of the learning toolkit. Specific focus was given to the development of open source materials that would be accessible with screen readers, on mobile phones, and in hard to reach locations. The content was then informed by selected subject matter experts in inclusive humanitarian action and data collection.

 

What is included in the toolkit?

An e-learning on Collecting Data for the Inclusion of Persons with Disabilities in Humanitarian Action – The Application of the WGQs providing an entry point for humanitarian actors who would like to understand how to plan for and use the WGQs.

A Training Pack for enumerators giving guidance, session plans and activities to deliver training on using the WGQs (developed in collaboration with RedR UK).

Supporting resources providing practical guidance on the application of the WGQs in humanitarian contexts.

 

Who is this for?

The toolkit is tailored to a full range of humanitarian actors who would like to understand how to use the WGQs in their own work and organisations. The content has also been designed to provide technical guidance for programme and technical staff: with a practical focus on different topics relevant for the use of the WGQs –from the human rights based approach that underpins them, to their planning, use and the analysis of the data produced.

 

Where is the Toolkit available?

The e-learning is available now on disasterready.com and on Kayaconnect.org (accessible for mobile phones and tablets). Organisations interested in hosting the e-learning are welcome to contact the project team members. Toolkit resources and more information about the project are available for download in the project webpage.

Disability data collection: A summary review of the use of the Washington Group Questions by development and humanitarian actors

QUIGLEY, Nolan
et al
October 2018

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The Washington Group Questions on Disability are rapidly emerging as the preferred data collection methodology by the global community for national data collection efforts on disability. However, more and more development and humanitarian actors are now using the methodology in their own data collection efforts. This is beyond the original purpose of the questions, which was to generate usable data for governments. Leonard Cheshire and Humanity & Inclusion, two international charities focussed on disability and inclusion, have worked together to share learnings of recent research studies. These studies aim to understand how the Washington Group Questions (WGQ) have been used by development and humanitarian actors and the impact of using the methodology. This summary report outlines the key findings, analysis and conclusions about the application of the Washington Group Questions in a range of contexts. The report concludes with a number of recommendations for different stakeholders.

2030 Agenda for sustainable development: Selected SDG indicators disaggregated by disability status

WASHINGTON GROUP ON DISABILITY STATISTICS
October 2018

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In light of the importance of disability data collection and the disaggregation of Sustainable Development Goal (SDG) outcome indicators by disability status, the Washington Group on Disability Statistics (WG) undertook an exercise to review, among WG member countries, the extent to which data on SDG indicators currently available can be disaggregated by disability status. Requests for disaggregated SDG data for 13 selected indicators were sent to 146 member countries. 48 countries responded and 39 provided data. Response data is tabulated and discussed.

Measuring the prevalence of violence against women with disabilities

VAUGHAN, Cathy
et al
February 2018

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This short report summarises discussions during a meeting concerning what is known about violence against women with disabilities and the evidence gaps, with a focus on Asia and the Pacific. It includes a brief overview of the current situation and suggested ways forward for researchers, the kNOwVAWdata initiative and other regional and global initiatives to measure prevalence of violence against women with disabilities, and for relevant regional and national institutions

Smarter, greener, more inclusive? Indicators to support the Europe 2020 strategy. 2017 edition

EUROSTAT
July 2017

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The focus of this publication is on showing progress of the EU and its Member States towards the goals and targets defined in the Europe 2020 strategy. The analysis of long-term trends, as described by the strategy’s headline indicators, is accompanied by additional contextual information, which improves understanding of the driving forces behind the developments that these indicators show. The current edition builds upon and updates the previous releases. The publication provides analyses based on the most recent statistics in the five thematic areas of employment, R&D and innovation, climate change and energy, education, and poverty and social exclusion. Each area is analysed in a dedicated chapter. An executive summary outlines the main statistical trends observed in the indicators. Additional country profiles describe the progress of each Member State towards its national Europe 2020 targets

DOI: 10.2785/760192

The Sustainable Development Goals 2017

United Nations Secretariat, Department for Economic and Social Affairs (UNDESA)
July 2017

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The Sustainable Development Goals Report 2017 reviews progress made towards the 17 Goals in the second year of implementation of the 2030 Agenda for Sustainable Development. The report is based on the latest available data. It highlights both gains and challenges as the international community moves towards full realization of the ambitions and principles espoused in the 2030 Agenda. While considerable progress has been made over the past decade across all areas of development, the pace of progress observed in previous years is insufficient to fully meet the Sustainable Development Goals (SDGs) and targets by 2030. Progress has not always been equitable. Advancements have been uneven across regions, between the sexes, and among people of different ages, wealth and locales, including urban and rural dwellers. 

 

The improvement of data on difficulties faced by children with disabilities, with the introduction of a new module on child functioning for use in censuses and surveys, is noted. This tool was introduced in 2016 by the United Nations Children's Fund (UNICEF) and its partners. Social protection coverage and people with disabilities is also mentionned.

Guatemala National Disability Study ENDIS 2016 Report

DONICIO Carlos
GRECH Shaun
Islay MACTAGGART
Jonathan NABER
Dr Ana Rafaela SALAZAR DE BARRIOS
Gonna ROTA,
Sarah POLLACK
April 2017

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The Guatemala National Disability Study (ENDIS 2016) was undertaken to address a need for up to date reliable data on disability in Guatemala.

Through a population based survey:

* To estimate the national disability prevalence among adults and children in Guatemala, and to provide regional estimates for 5 broad regions

* To disaggregate the prevalence of disability in Guatemala by age, sex, type of functional limitation and socio-economic status

* To explore the impact of disability on: poverty, quality of life, participation, health and opportunities to go to school and to work amongst children and adults respectively

Through a qualitative study:

* To explore cultural, ideological, and social interpretations and responses to disability; provide insight into the disability and poverty relationship; and examine social, political, and economic dimensions operating within this relationship.

Society at a Glance 2016 : OECD Social Indicators

OECD
November 2016

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Society at a Glance 2016 aims to address the growing demand for quantitative evidence on the social situation, its trends, and its possible drivers across OECD countries. One objective is to assess and compare social outcomes that are currently the focus of policy debates. Another is to provide an overview of societal responses, and how effective policy actions have been in furthering social development. This edition of Society at a Glance discusses policy actions in response to the situation of youth Neither in Employment, Education, nor Training (NEET). Indicators on youth are therefore a particular focus

DOI: http://dx.doi.org/10.1787/9789264261488-en

Washington Group presentation

LOEB, Mitchell
2015

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A brief history of the Washington Group on Disability Statistics and their development of standard questions for the collection of statistics on disability worldwide is presented. A short set of 6 questions was originally developed and an extended set of 30-35 was finalised in 2009. Two modules have been developed in partnership with UNICEF for children: one for 2-4 year olds and one for 5-17 year olds.  A module concerned with inclusive education has also been developed

Short set of questions on disability: presentation

LOEB, Mitchell
2015

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An introduction to the set of 6 questions devised by the Washington Group on Disability Statistics to collect statistics on disability is given. The short set of questions was designed primarily for a census. It has one question for each of 6 domains of functioning: vision, hearing, mobility, communication, self care and cognition. There are 4 categories (no difficulty-cannot do). The questions were validated by testing in various countries. 

Sightsavers disability disaggregation project : India mid-term review report

JOLLEY, Emma
THIVILLIER, Pauline
September 2015

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‘This Mid Term Review (MTR) report contains information on the first six months (July – March) of the disability disaggregation pilot project taking place in Bhopal, India. The report includes information on the processes in place at the different locations to collect data disaggregated by disability and initial results. It also captures attitude, knowledge and experiences of programme managers, decision makers and data collectors around disability, their challenges, and the experiences of Sightsavers’ implementing staff’

Disability at a glance 2015: Strengthening employment prospects for persons with disabilities in Asia and the Pacific

UN ECONOMIC AND SOCIAL COMMISSION FOR ASIA AND THE PACIFIC (ESCAP), Social Development Division
2015

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This report, the fifth edition in the Disability at a Glance series, focuses on barriers to the employment of persons with disabilities in the Asia-Pacific region, and offers solutions to strengthen their employment prospects. It offers a regional overview of disability legislation, policies and practices, as well as relevant country-specific information with a particular emphasis on the employment of persons with disabilities. The information is drawn from a targeted disability survey carried out in 2015 by the ESCAP secretariat, and research undertaken by other organizations and scholars.

The publication consists mainly of two parts. In Part 1, Chapter 1 discusses key employment trends shaping the experiences of persons with disabilities in Asia and the Pacific. Chapter 2 considers the major barriers that persons with disabilities face as they seek to find decent work in the open labour market. Chapter 3 explores a number of strategies used by governments and in the private sector to promote greater access to employment for persons with disabilities. Finally, Chapter 4 lays out a series of action points governments should consider in their efforts to remove the numerous employment barriers faced by many millions of disabled people. In Part 2, country snapshots provide the latest demographic, socioeconomic and employment-specific data from 58 countries in 5 ESCAP subregions .

Living conditions among people with disabilities in Mozambique : a national representative study

EIDE, Arne H
KAMALERI, Yusman
January 2009

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"This report provided results of a study of living conditions among people with functional limitation in Mozambique. Two comparative studies of different indicators of living conditions were carried out. These studies include: (i) a comparative study of households with and without family member(s) with functional limitation and (ii) a comparative study of individuals with and without functional limitation. In addition, a detailed study that specifically addresses the situation of individuals with functional limitation was also conducted"
SINTEF A9348

Living conditions among people with activity limitations in Zambia : a national representative study

EIDE, Arne H
LOEB, ME
September 2006

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This report presents the findings of a study about the livelihoods of people with disability in Zambia using both individual data and data from household surveys with and without people with disabilities. The report, one of a series of regional research reports to establish baseline data on living conditions among people in Southern Africa, looks at the fields of health, employment, education, living conditions and services for people with disabilities

First national study of disability in Chile

NATIONAL FUND FOR DISABILITY
May 2005

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Using the international classification of disability (ICF), this report presents information about the "prevalence of disability in its different types and degrees, and the extent in which this condition affects individuals in various aspects of their lives." The reports covers variables such as health conditions and socioeconomic and sociodemographic characteristics. This report is useful to anyone interested in disability in Chile

Measuring welfare for small but vulnerable groups : poverty and disability in Uganda

HOOGEVEEN, Johannes G
2004

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When vulnerable groups such as disabled people are surveyed, representative welfare estimates from non-purposive sample surveys becomes an issue. This paper takes the example of Uganda and describes the connections between disability, poverty, wellbeing and social welfare. This is possibly the first time that statistically representative information on income poverty amongst disabled people has been generated for a developing country

Disability pensions and social security reform : analysis of the Latin American experience

GRUSHKA, Carlos O
DEMARCO, Gustavo
2003

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This paper describes the disability pension arrangements prevailing in ten Latin American countries that reformed their pension systems. The analysis is limited to the topic of disability pensions, without attempting to evaluate other aspects such as accessibility.
Comparisons reveal that a wide variety of options for disability systems are possible. In the following sections general issues in the design of the disability-pension systems are identified

International norms and standards relating to disability

UNITED NATIONS
2003

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This resource provides concise analytical information on international norms and standards concerning persons with disabilities that have been adopted under the auspices of the United Nations system or other inter-governmental bodies and organisations. It is a reference tool that contains information resources on the international and regional normative standards to promote the rights of persons with disabilities in society within a broad human rights framework, encompassing the full range of human rights from civil and political to economic, social and cultural rights and the different mechanisms by which these norms and standards have been adopted in to local laws.
Further, this resource is a practical guide to putting into practice rights on behalf of persons with disabilities. It also provides an educational tool designed to help identify effective measures to promote, protect and integrate the rights of persons with disabilities into all areas of national legislation, policies and programmes and to promote increased awareness of internationally accepted norms on: the equalisation of opportunities for persons with disabilities; the full and effective integration of persons with disabilities in social life and development; and standards to protect and promote the rights of persons with disabilities. It will be useful for: governments; national and international policy makers; inter-governmental, international and non-governmental organisations; researchers in the area of disability rights; civil society organisations concerned with disability issues and the global disability community

Disability census questions, the perspective of developing countries

MBOGONI, Margaret
2002

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This paper reviews questions used in developing countries to identify persons with disabilities on the one hand, and the estimates of disability prevalence obtained by the different types of questions on the other. The paper also reviews census questions on disability used in the 1990 census round for differences in concepts and type of question used. It also reviews available questions used in the 2000 round of censuses and compares the approach used in national studies to the one in the United Nations Principles and recommendations for population and housing censuses

Language and cultural issues in surveys of the European Union : a short description and an example of fundamental problems and practical solutions

OYEN, H VAN
et al
2002

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Social statistics are a difficult task when comparing countries that are using different languages and have different social systems. The experience from the European Union shows that there are ways around this problem: but the different countries have to agree first on a conceptual framework, standard instruments and common methods of analysis. The example of the European Union describes a possible use of these tools

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