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Seeing the invisible: Sexuality-related knowledge, attitudes and behavior of children and youth with disabilities in China

SHANGHAI INSITITUTE OF PLANNED PARENTHOOD RESEARCH (SIPPR)
UNESCO
HUMANITY & INCLUSION (HI)
2019

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Young people with disabilities have the same right to Sexual and Reproductive Health (SRH) as their peers without disabilities, but their needs and rights are often overlooked. This study examines the SRH status of young people with disabilities in China. In particular, the study explored the sexuality-related knowledge, attitudes and behaviour of young people with disabilities as well as their access to sexuality-related information, education and services. The findings of the study are intended to provide evidence to support decision-making by government agencies, educators, development workers and other relevant stakeholders regarding developing and implementing disability-inclusive SRH and sexuality education policies and programmes for young people in China.

The study, using quantitative and qualitative methods, was conducted in 2015 among unmarried young persons aged 12 to 24 living with visual, hearing, physical and intellectual disabilities, in both urban and rural areas. The analysis was based on data collected through 707 completed valid questionnaires, 20 group interviews and 35 individual interviews with young people with disabilities, and individual interviews with 60 parents and teachers, along with one case study.

African Journal of Disability Vol 7 (2018) - Special collection: Disability and inclusion in Africa - The role of assistive technology

2018

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This journal provides

  • Nine original research articles on a variety of topics including the cost of raising a child with autism, experiences of care givers to stroke survivors, dyslexic's learning experiences, communication rehabilitation, disability and food security, hearing children of deaf parents and rehabilitation of stroke survivors. 
  • Three review articles: Intellectual disability rights and inclusive citizenship in South Africa: What can a scoping review tell us?; The benefits of hydrotherapy to patients with spinal cord injuries; Simple ideas that work: Celebrating development in persons with profound intellectual and multiple disabilities.
  • There is an opinion paper entitled - Deafening silence on a vital issue: The World Health Organization has ignored the sexuality of persons with disabilities
  •  There is a case study - Lessons from the pilot of a mobile application to map assistive technology suppliers in Africa

‘Black on the inside’: albino subjectivity in the African novel

LIPENGA, Ken Junior
NGMIRA, Emmanuel
2018

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The last decade has seen increased attention to the treatment of people with albinism in several African countries, particularly the peril they find themselves in due to stigma and superstition. As a way of countering these misconceptions, there has been educative activism from legal, medical as well as religious perspectives. In this paper, we draw upon a different discourse- literary representation- arguing that in selected African novels, the authors employ a variety of strategies that counter harmful stereotypes about albinism, and in the process act as literary interventions that enable an appreciation of the person behind the skin condition. Drawing from insights in Literary Disability Studies, the discussion examines the representation of albinism in four African novels: Petina Gappah’s The Book of Memory (2015), Meg Vandermerwe’s Zebra Crossing (2013), Unathi Magubeni’s Nwelezelanga: The Star Child (2016), and Jenny Robson’s Because Pula Means Rain (2000), and highlights the way albinism is presented as bodily condition that intersects with other experiences on the continent, including indigenous epistemologies, gender, sexuality and family relationships. 

 

Disability and the Global South, 2018, Vol.5, No. 2, 1472-1487

Everybody Matters: Good practices for inclusion of people with disabilities in sexual and reproductive health and rights programmes

Van SLOBBE, Caroline
November 2017

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This publication provides introductory chapters from two activists who work to create better opportunities for people with disabilities in Nigeria and India. Subsequently, the challenges that organisations worldwide have encountered whilst improving the access to and knowledge of sexual and reproductive health and rights for people with disabilities are presented. Ways in which they managed to find solutions and the results achieved are reviewed. Some cases show the importance of a more personal approach whilst others emphasise the advantage of changing systems and policies. Different regions, types of disabilities and various SRHR-topics are reflected in these stories. All cases provide lessons learnt that contribute to a set of recommendations for improved responses. The closing chapter highlights the challenges, solutions, and ambitions that are presented and lead up to a concise overview of recommendations.  

Good practice examples include:

A shift in SRH programming (Nepal)

Breaking Barriers with performance art (Kenya)

Her Body, Her Rights (Ethiopia)

People with disabilities leading the way (Israel Family Planning Association)

Best Wishes for safe motherhood (Nepal)

It’s my body! (Bangladesh)

Calling a spade a spade (Netherlands)

Four joining forces (Colombia)

Change agents with a disability (Zimbabwe)

Tito’s privacy and rights (Argentina)

Sign language for service providers (Kenya)

Disability and sexuality: claiming sexual and reproductive rights.

REPRODUCTIVE HEALTH MATTERS
July 2017

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The journal issue Reproductive Health Matters, vol.25, no.50, May 2017 features disability and sexuality.

 

Research article titles are:

  • Disability is not asexuality: the childbearing experiences and aspirations of women with disability in Zimbabwe
  • Exploring misinformation of family planning practices and methods among deaf people in Ghana
  • “We do not dare to love”: women with disabilities’ sexual and reproductive health and rights in rural Cambodia
  • A qualitative study to explore the barriers and enablers for young people with disabilities to access sexual and reproductive health services in Senegal
  • “Freedom to go where I want”: improving access to sexual and reproductive health for women with disabilities in the Philippines
  • The sexual and reproductive rights and benefit derived from sexual and reproductive health services of people with physical disabilities in South Africa: beliefs of non-disabled people
  • Female genital mutilation as sexual disability: perceptions of women and their spouses in Akure, Ondo State, Nigeria. 

Applied research on disability in Africa : general mapping

INTERNATIONAL FOUNDATION OF APPLIED DISABILITY RESEARCH (FIRAH)
2014

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“The goal of this literary review is to report on existing knowledge about applied research on the African continent, regarding the living conditions of people with disabilities, poverty, violence and sexual abuse especially regarding children and women with disabilities, community-based rehabilitation and employment”

The sexual and reproductive rights of women and girls with disabilities

FROHMADER, Carolyn
ORTOLEVA, Stephanie
July 2013

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"This Briefing Paper examines the sexual and reproductive rights of women and girls with disabilities in the context of the future development agenda Beyond 2014 and Post 2015"
Issues Paper
ICPD Human Rights Conference on Sexual and Reproductive Health The Hague, Netherlands
7-11 July 2013

Social relationships, sexuality and reproductive rights & persons with disabilities : international workshop report

DEEPAK, Sunil
et al
March 2013

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"This report presents an analysis and an overview of main issues in relation to social relationships, sexuality and reproductive rights that emerged from the different presentations and discussions during the workshop. Most of the discussions and presentations focused on difficulties, barriers and challenges. There were a few positive examples of activities that answer those challenges and overcome those barriers. There were also some ideas of what can be or should be done in this area" “"Going beyond the taboo areas in CBR" workshop, part 1
Agra, India
29 November 2012

Violence and abuse towards persons with disabilities : international workshop report

DEEPAK, Sunil
et al
2013

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This second part of a community-based rehabilitation workshop report focuses on issues of violence, abuse and sexual abuse towards persons with disabilities. This report presents the information exchanged through formal presentations, personal testimonies, film clips, sharing of experiences and discussions around the workshop theme. The report highlights the main findings and presents five key recommendations
"Going beyond the taboo areas in CBR" workshop, part 2
Agra, India
30 November 2012

Sexual violence victimization against men with disabilities

MITRA, Monika
MOURADIAN, Vera E
DIAMOND, Marci
October 2011

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This article presents information supporting that men with disabilities are at a heightened risk for lifetime and current sexual violence. The article documents the prevalence of lifetime and past-year sexual violence victimization among a representative sample of men with disabilities in Massachusetts and compares its prevalence among men with disabilities to that of men without disabilities and women with and without disabilities
American Journal of Preventive Medicine, Vol 41, No 5

Adolescence and disability

SOURCE INTERNATIONAL INFORMATION SUPPORT CENTRE
2011

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This Key list highlights essential information resources on adolescence and disability.
Adolescence is a time of great emotional and psychological change, of emerging sexuality and important life choices about employment and education. During this period of transition adolescents, especially those with disabilities, may be vulnerable in society; their rights have not been always been recognised. Disability programmes tend to focus on young children or adults, and may risk excluding adolescents, negatively affecting their opportunities to develop their abilities and to participate in community life. Factors in disabled adolescents' development and socialisation include the attitude and behaviour of parents, family members and peers, and social and community values. Issues highlighted in this Key list include rights, education, employment, sexuality and relationships

HEARD’s disability and HIV library

HEALTH ECONOMICS AND HIV/AIDS RESEARCH DIVISION (HEARD)
June 2010

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This bibliography contains papers, reports and articles relating to the issue of HIV and AIDS and disability. "These papers reveal findings in relation to the impact of HIV/AIDS on people with disabilities, the disabling effects of HIV/AIDS, sexuality and disability, the attitude and stigma towards disability and interventions in different countries"

Sexuality education for individuals with autism spectrum disorders : critical issues and decision making guidelines

TRAVERS, Jason
TINCANI, Matt
June 2010

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"This paper presents one position in support of sexuality education for children and adolescents with ASD (autism spectrum disorders). The nature of human sexuality is discussed to provide a context for the rights of individuals with ASD to learn about their sexuality. Further justification for providing sexuality education in terms of the unique characteristics of this population is offered in conjunction with potential consequences of failing to provide sexuality education. Lastly, information regarding a decision-making process for sexuality education curriculum is presented, including the responsibilities of families and professionals providing sexuality education"
Education and Training in Autism and Developmental Disabilities, 45(2)

Fact sheet : youth with disabilities

UNITED NATIONS PROGRAMME ON YOUTH
2010

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This fact sheet presents general information about youth with disabilities worldwide. It highlights the following specific topics: prevalence, poverty, family situation, education, transition into working life and financial independence, employment, sex and relationship, acceptance and the Convention on the Rights of Persons with Disability (CRPD). This factsheet is useful for people interested in youth with disabilities

A custom distorted : beliefs about sexual abuse involving teenagers with intellectual disability at a rural setting in South Africa

PHASHA, N
MYAKA, Lucy
2009

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This paper is based upon the findings of a study that took place in a rural setting in KwaZulu-Natal, South Africa. It describes the social problem of sexual abuse of teenagers with intellectual disabilities by analyzing the roots of common misconceptions of intellectual disability, which render these teenagers vulnerable to sexual abuse. This paper is useful for anyone interested in learning more about disability and misconceptions of disability in Africa

PleasureABLE : sexual device manual for persons with disabilities

NAPHTALI, Kate
MACHATTIE, Edith
2009

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"This manual was created as a practical resource for persons with disabilities and health care clinicians who work with these clients. It includes research, clinical expertise, and product information to aid with dialogue surrounding sexual and reproductive issues and disabilities. The information presented here is not prescriptive, and the specific products not recommended per se, but are meant to provide examples and illustrations of some of the potential options that can be introduced into the sexual practices of the individual or be used as an adjunct in the discussions of sexuality and disability by the health care clinician. The devices included are a sampling of what is available (in Canada) in 2009"

Talking about sex and relationships : the views of young people with learning disabilities

CHANGE
2009

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"This report talks about the Sex and Relationships project. This was a 3-year project that took place at CHANGE, a leading national organisation led by disabled people that is based in Leeds, in England, that fights for the rights of people with learning disabilities...The project found out about the views and experiences of young people with learning disabilities about sex and relationships"

The reproductive rights of adolescents : a tool for health and empowerment

CENTER FOR REPRODUCTIVE RIGHTS
September 2008

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This briefing paper outlines the general framework of adolescents’ reproductive and sexual rights. It addresses core concerns for adolescents rights and discusses governments’ legal duties to address those concerns. The areas of focus are sexuality education; access to confidential health care; child marriage and lack of educational opportunity; sexual violence; and female genital mutilation. The promotion of adolescent health and autonomy are considered primary goals for advocates and lawmakers

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