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Disability and HIV

UNAIDS
August 2017

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This report highlights existing key evidence on the relationship between disability and HIV. It discusses the concrete steps needed for a person-centred, disability-inclusive HIV response that allows for increased participation of people with disabilities and integrates rehabilitation within the continuum of HIV care. Globally, it is estimated that 1 billion people (15% of the world’s population) have a disability. Of those aged over 15 years, approximately 110–190 million (2.2–3.8%) experience significant disabilities. Disability is increasing in prevalence due to ageing populations, trauma, accidents and the increase in chronic health conditions, including HIV. Persistent discrimination against and exclusion of people with disabilities, in particular women and girls with disabilities, increases their vulnerability, including their risk of HIV infection.
 

Applied research on disability in Africa : general mapping

INTERNATIONAL FOUNDATION OF APPLIED DISABILITY RESEARCH (FIRAH)
2014

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“The goal of this literary review is to report on existing knowledge about applied research on the African continent, regarding the living conditions of people with disabilities, poverty, violence and sexual abuse especially regarding children and women with disabilities, community-based rehabilitation and employment”

HIV-related disability in HIV hyper-endemic countries : a scoping review

HANASS-HANCOCK, Jill
et al
September 2013

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This article presents the results of the first scoping review to examine the extent, nature and range of disability among people living with HIV in HIV hyper-endemic countries. The studies indicate that people living with HIV experience a variety of disabilities. Impairments in body structure/function comprise the majority of data, with particular focus on mental function. Data on activity limitations and participation restriction were limited, however, they were recorded. They indicate severe impact on people’s life and possible adherence. The review argues that the time has come to elevate the focus holistically on health and life-related consequences of living with HIV and to integrate disability into the discussions and approaches to HIV care

World Journal of Aids, Vol 3, No 3

HIV/AIDS and Disability Organizations in South Africa

Poul Rohleder
Leslie Swartz
Arne Henning Eide
Nora Groce
Marguerite Schneider
January 2010

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Despite the seriousness of the HIV epidemic globally, and in South Africa in particular, little is known about how HIV/AIDS affects disabled people. One important and little explored area is the role that organisations that represent disabled people or that work on behalf of disabled people, are playing in addressing the HIV/AIDS epidemic among the disabled people they represent or serve. This paper presents the findings of a nationwide survey of disability organisations in South Africa. The purpose of this study was to explore the role of disability organisations in addressing the HIV epidemic among disabled people in South Africa. The findings suggest that while organisations recognise the importance of providing HIV education, and many have taken steps to do so, disabled people are largely excluded from general HIV prevention messages. Disabled people also have significant difficulties in accessing general health care, relevant for HIV testing and treatment. In a country trying to manage serious social problems with limited resources, this paper highlights the need for increased cooperation and collaboration between relevant parties in order to facilitate the changes necessary for disabled people to access needed health information and care.

Disability in national strategic plans on HIV and AIDS : a review on the national response to the interrelations of disability and HIV in eastern and southern Africa|Final report

GRANT, Kitty
STRODE, Ann
HANNASS-HANCOCK, Jill
December 2009

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This report examines national AIDS and HIV strategic plans (NSPs) in eastern and southern Africa and includes findings, discussions and best practice examples on the integration of disability throughout the countries. "Generally, the findings of the report show that less than 50% of the countries in Eastern and Southern Africa recognise disability as an issue of concern, or specifically recognise the vulnerability of people with disabilities to HIV and AIDS within their NSPs. Furthermore, it found that even where countries have recognised disability as an issue, there is limited specific guidance within the NSP on HIV-related service provision to meet the needs of people with disabilities. Only one country, South Africa, showed extensive integration of disability into the various focus areas of its NSP." The report concludes with recommendations and provides detailed appendices of national reports for each country surveyed

South African national HIV prevalence, incidence, behavior and communication survey 2008 : turning a tide among teenagers ?

SHISANA, O
et al
2009

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"South Africa has the largest burden of HIV/AIDS and is currently implementing the largest antiretroviral treatment (ART) programme in the world. It is therefore fitting that South Africa is the first in the world to conduct three repeated national HIV population-based surveys to help monitor our response as a nation to the HIV/AIDS epidemic. This report is the third in a time series of population-based HIV seroprevalence surveys which started in 2002 and were repeated in 2005 and again in 2008"

Growing pains : how poverty and AIDS are challenging childhood

SWIFT, Anthony
MAHER, Stan
2008

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This report looks at projects and programmes that aim to respond to the needs of very young children in southern and eastern Africa whose lives have been affected by both poverty and HIV. What is highlighted in the interventions that are examined is the effort of human beings in caring and supporting people and sharing resources

Tell me more : children's rights and sexuality in the context of HIV/AIDS in Africa

THOMSEN, Sarah C
2007

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This report explores the strategies that children have developed for dealing with sexuality and relationships in the face of HIV and AIDS; and provides stakeholders with a coherent rights and youth-oriented knowledge base for the development of a sexual and reproductive health agenda for advocacy. It gives an overview of sexual rights with a focus on children’s rights, including their access to sexual and reproductive health information, as endorsed by relevant international conventions and policies. It also looks at the concept of sexuality and the sexual development of children. The report includes a summary of children’s reflections on issues of sexuality and their coping mechanisms for preventing the transmission of HIV and AIDS. Based on these findings, the report makes recommendations for effective responses that would support children’s existing coping mechanisms and enhance their ability to protect themselves

Another way to learn : case studies

UNITED NATIONS EDUCATIONAL, SCIENTIFIC AND CULTURAL ORGANIZATION
2007

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These case studies come from an initiative that supports non-formal education projects in Africa, South Asia, the Caribbean and Latin America. The long-term goal of these projects is to develop sustainable livelihoods for low-income, low-literate populations by addressing vulnerability to HIV and AIDS and drug misuse, a lack of education and social exclusion. Central to all of these projects are the creative and innovative methods used to communicate in a meaningful way, engage people and encourage their participation. The projects all focus on capacity building, empowerment, and creating learning opportunities. A DVD has been produced to accompany this publication

Paediatric ARV roll-out in South Africa

HORIZONS PROGRAM
CAPE TOWN UNIVERSITY
2005

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The Horizons Program of the Population Council and the University of Cape Town are conducting a study to identify successful programme strategies in paediatric HIV treatment in South Africa and to determine priority knowledge gaps to be addressed by operations research. This report summarises key findings from the initial consultative workshop of expert practitioners and stake-holders, focusing on the status of providing antiretroviral therapy to children in South Africa and strategies to expand and improve services. It includes providing services to under six year olds

The impact of antiretroviral treatment on AIDS mortality : a study focusing on educators in South African public schools

REHLE, Thomas
SHISANA, Olive
2005

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This study attempts to estimate the impact of antiretroviral treatment on AIDS mortality over the next ten years, focusing on educators in South African public schools. Recently, African governments have scaled up ART initiatives, but the full potential of wider access to treatment is still unknown. The results of this study show that given that ART only delays death, AIDS mortality rate will increase over time among treated people. Further, as HIV-positive people will survive longer, an expansion of ART programmes will result on higher HIV prevalence. These findings have crucial implications for the education sector. The paper calls for new government policies aimed at increasing the number of students preparing to become teachers and raising the retirement age of educators

The development, implementation and evaluation of interventions for the care of orphans and vulnerable children in Botswana, South Africa and Zimbabwe : a literature review of evidence-based interventions for home-based child-centred development

STREBEL, Anna
2004

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This short paper gives a literature review of many programmes aimed at supporting orphans and vulnerable groups in the southern Africa region. It is not an in-depth survey, but provides a compact and accessible guide to the many different community initiatives that have been undertaken. It finishes with a short section on the lessons to be learned from care programmes

Persons with disability : study commissioned by the Corporate Planning Unit of the City of Joburg as a component of the human development agenda

WHITEHEAD, Melissa
2004

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The aim of this research is to highlight problems with, and identify gaps in, the human development agenda as they relate to persons with disability in the City of Johannesburg. The research report also gives an overview of the methodologies applied.
The report is useful for organisations and persons who want to learn more about the situation of disabled persons in Johannesburg. Also it is of interest for researchers and organisations that are developing research methodology and policy

Reproductive health services in KwaZulu Natal Province, South Africa : a situation analysis study focusing on HIV/AIDS services

SEARLE, Catherine
et al
July 2003

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Summary of a study in KwaZulu Natal that used situation analysis methodology, first used in reproductive health research to cover important HIV & AIDS-related issues, including: the availability and quality of voluntary counselling and testing services; the extent of integration of family planning, antenatal care, and sexually transmitted infection services with HIV prevention; and the extent of condom promotion and other HIV prevention strategies

A sensitisation programme for volunteers offering psychosocial support to vulnerable children affected by HIV/AIDS, violence and poverty|Participants' manual

KILLIAN, Beverley
January 2003

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This manual sets out an holistic approach to the psychosocial needs of children, focussing not just on those affected by HIV and AIDS but all living in impoverished communities. Helpfully, the activities in the manual are separated out into specific days and give a clear and concise explanation of the expected outcomes of each intervention

Children, HIV/AIDS and communication in South Africa : a literature review

FOX Susan
OYOSI Salome
PARKER Warren
May 2002

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This literature review covers key issues relating to children aged 3-12 and HIV/AIDS, including discrimination, grief, children's rights, and knowledge and understanding of HIV/AIDS. The impact on the child, family and community is discussed in detail, particularly in terms of the psycho-social impact of bereavement and how this impacts on the child at different stages in its development. Various community programmes within southern Africa are highlighted, which support children to develop life skills. The influence, role and practice of the media in working with and reaching children is addressed, and case studies of South African media projects such as Soul Buddyz and Takalani Sesame are provided

South African health review 2001

HEALTH SYSTEMS TRUST (HST)
March 2002

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This is a comprehensive, authoritative and independent review of the South African health system. It is published annually and this year's edition is is made up of 17 chapters grouped into four themes: listening to voices, equity, information for health, accountability and transformation. The review acts as a barometer for assessing the transformation processes and their impact on provision of equitable health care to all in South Africa

Mainstreaming HIV/AIDS : looking beyond awareness

WILKINS, Marissa
VASANI, Dolar
2002

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The social and environmental circumstances that lead vulnerable people to have unprotected sex, exposing them to infections, have to be resolved through addressing the causes of poverty, gender discrimination, and the use of sex as a commodity. This book addresses the impact of HIV without prejudice, by taking a human rights stance. It is useful for trainers, programme planners, policy-makers and CBR programmes

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