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Seeing the invisible: Sexuality-related knowledge, attitudes and behavior of children and youth with disabilities in China

SHANGHAI INSITITUTE OF PLANNED PARENTHOOD RESEARCH (SIPPR)
UNESCO
HUMANITY & INCLUSION (HI)
2019

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Young people with disabilities have the same right to Sexual and Reproductive Health (SRH) as their peers without disabilities, but their needs and rights are often overlooked. This study examines the SRH status of young people with disabilities in China. In particular, the study explored the sexuality-related knowledge, attitudes and behaviour of young people with disabilities as well as their access to sexuality-related information, education and services. The findings of the study are intended to provide evidence to support decision-making by government agencies, educators, development workers and other relevant stakeholders regarding developing and implementing disability-inclusive SRH and sexuality education policies and programmes for young people in China.

The study, using quantitative and qualitative methods, was conducted in 2015 among unmarried young persons aged 12 to 24 living with visual, hearing, physical and intellectual disabilities, in both urban and rural areas. The analysis was based on data collected through 707 completed valid questionnaires, 20 group interviews and 35 individual interviews with young people with disabilities, and individual interviews with 60 parents and teachers, along with one case study.

Contextual factors around the sexual abuse of people with disability in East Africa

WADDELL, Mary Ann
May 2015

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This literature review on the issue of sexual violence against people in East Africa aims to identify applied research. It contains a synthesis of the knowledge contained in the best selected research, reading notes and an annotated bibliography. The synthesis provides an objective summary of the of the state of the knowledge concerning the sexual abuse of people with disabilities in East Africa

 

Note: report is available in both word and pdf formats from links above

A deeper silence : the unheard experiences of women with disabilities : sexual and reproductive health and violence against women in Kiribati, Solomon Islands and Tonga

SPRATT, Joanna
March 2013

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"This report contains information gained in situation analyses exploring the SRH needs of women with disabilities in three Pacific Island countries: Kiribati, Solomon Islands and Tonga. This work was carried out over a four-month period spread out between October 2010 and September 2011. UNFPA undertook these situation analyses to gain greater understanding of the opportunities and needs experiencedby women with disabilities in relation to their ability to realize their sexual and reproductive rights"

Zimbabwe sexual and reproductive health sign language dictionary

THE HIV AND AIDS MANAGEMENT AND SUPPORT ORGANIZATION (THAMASO-ZIMBABWE)
DISABILITY AND HIV AND AIDS TRUST(DHAT)
2012

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"The Dictionary includes an illustrated guide to signing and signing for individual letters, along with illustrations and descriptions for common words and for those new HIV/SRHR signs that have been developed, making it an invaluable reference for both those with hearing impairments and those without hearing challenges. The dictionary is suitable for use in educational institutions (schools, colleges and universities) as well as in health institutions such as hospitals, clinics and VCT centres. Counsellors and all staff working directly and indirectly in the HIV and SRHR sectors will find the dictionary most useful"

Reproductive health justice for women with disabilities

ALVARES, Lisa
et al
April 2011

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"This paper highlights the added discrimination that women with disabilities often face in the context of their disparate access to health care, especially in the areas of reproductive health services and sexual health education, and offers recommendations for a twenty-first century response to the vast health care gaps that impact this population"
Barbara Faye Waxman Fiduccia Papers on Women and Girls with Disabilities

Sexuality education for individuals with autism spectrum disorders : critical issues and decision making guidelines

TRAVERS, Jason
TINCANI, Matt
June 2010

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"This paper presents one position in support of sexuality education for children and adolescents with ASD (autism spectrum disorders). The nature of human sexuality is discussed to provide a context for the rights of individuals with ASD to learn about their sexuality. Further justification for providing sexuality education in terms of the unique characteristics of this population is offered in conjunction with potential consequences of failing to provide sexuality education. Lastly, information regarding a decision-making process for sexuality education curriculum is presented, including the responsibilities of families and professionals providing sexuality education"
Education and Training in Autism and Developmental Disabilities, 45(2)

PleasureABLE : sexual device manual for persons with disabilities

NAPHTALI, Kate
MACHATTIE, Edith
2009

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"This manual was created as a practical resource for persons with disabilities and health care clinicians who work with these clients. It includes research, clinical expertise, and product information to aid with dialogue surrounding sexual and reproductive issues and disabilities. The information presented here is not prescriptive, and the specific products not recommended per se, but are meant to provide examples and illustrations of some of the potential options that can be introduced into the sexual practices of the individual or be used as an adjunct in the discussions of sexuality and disability by the health care clinician. The devices included are a sampling of what is available (in Canada) in 2009"

Talking about sex and relationships : the views of young people with learning disabilities

CHANGE
2009

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"This report talks about the Sex and Relationships project. This was a 3-year project that took place at CHANGE, a leading national organisation led by disabled people that is based in Leeds, in England, that fights for the rights of people with learning disabilities...The project found out about the views and experiences of young people with learning disabilities about sex and relationships"

HIV/AIDS and disability : an exploration of organizations' responses to HIV/AIDS as it affects people with disabilities

ROHLEDER, Poul Andrew
2008

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This dissertation in clinical psychology explores the extent to which South African schools and organisations that work with persons with disabilities deal with issues of HIV and AIDS. The study indicates that although HIV education takes place, issues relating to HIV and AIDS are handled with much anxiety. The results reveal that in some cases HIV education is used to control and oppress disabled people’s sexual expression, instead of empowering them to have fulfilling sexual lives. Issues regarding sexual abuse and rape are also discussed. The dissertation ends with recommendations regarding further research on disabled people’s experiences and the need to address the silence around issues such as rape and abuse. This resource would be useful for people looking for in-depth information on disability and HIV in general (chapters 2 and 3), and with a focus on South Africa in particular (chapters 5 to 7). Moreover, it would be useful to people interested in the psychological aspects of working in the field of HIV (chapter 4)

Sexuality in subjects with intellectual disability : an educational intervention proposal for parents and counsellors in developing countries

KATZ, Gregorio
LAZCANO PONCE, Eduardo
2008

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This article provides information to assist in the development of sexuality in individuals with intellectual disability and to foster their social integration. The article highlights priorities to consider when developing educational interventions for promoting sexual health. This resource is useful to people interested in sexuality in individuals with intellectual disability
Salud pública de México, vol 50, suppl.2

Sex and relationships for people with learning disabilities : a challenge for parents and professionals

GARBUTT, Ruth
2008

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"This paper considers some of the issues around sex and relationships for people with learning disabilities. It is essentially a discussion paper, highlighting previous research, and information about the rights of people with learning disabilities to have sex and relationships. It particularly focuses on concerns for parents and some implications for professional practice that have arisen from a research project that is trying to find out more about the issues. The main messages coming from parents within the research project is that there is a need for clear, concise information about sex and relationships for young people with learning disabilities and there is also a need for professionals to give parents more support"
Mental Health and Learning Disabilities Research and Practice Journal, 5

The deaf peers' education manual : a training manual, developed by the Kenyan Peer Education Network, with interactive-based activities for basic understanding of sexual health, HIV and AIDS

June 2007

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The purpose of this manual is to provide deaf youth and adults, teachers, parents and guardians with a tool for addressing basic health awareness within an independent framework utilising optimal communication. The activities are participatory and interactive, and are designed with and by deaf Kenyans fluent in Sign Language (SL), and acknowledge the use of other SL variations within the various deaf groups. The three main issues addressed cover sexual education, relationships and hygiene. The manual is designed to blend with the school curriculums/co-curriculum activities, plus other issues that affect students while in school. It also befits other settings such as seminars and workshops, and can be used to tackle a specific subject. It is appropriate for varied ages, communities, cultures, religions, and literacy levels

Promotion of a disability perspective into Uganda's national HIV/AIDS response

KANYESIGYE, Juliet
ANGURIA, Joseph
MBABAZI, Enid
February 2007

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This report presents findings of a survey conducted in Uganda into the knowledge, attitudes and behaviour of people with disabilities regarding HIV and AIDS and sexual and reproductive health (SRH) issues, as well as the knowledge and attitudes of SRH and HIV and AIDS service providers to disability. The study provides baseline information for a NUDIPU SRH, HIV and AIDS project, against which progress and achievements can be mesured, and makes recommendations for national and district level responses. It would be interesting to those working in the field of disability in Uganda

The sexual heath needs of young people with learning disabilities

FRASER, Shirley
SIM, Judith
2007

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This briefing paper summarises the key findings from an evidence review on the sexual health and wellbeing of young people with learning disabilities. The review assimilates various forms of evidence, including the voices of young people themselves and emerging findings from practice. It also identifies a number of potential future actions that will help ensure that sexual health services and sex and relationships education are better able to meet the needs of young people with learning disabilities, as well as those of their parents and the professionals that support them

Responding to HIV & AIDS : Islamic resources and Muslim participation in Asia

ABDUS SABUR, M.
CHARNLEY, Simone
October 2006

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The paper then details some of the unique challenges encountered in combating the epidemic from an Islamic perspective, and how these dilemmas can be negotiated and rectified through the core values espoused by Islam in the Qur’an and Prophetic teachings. An illustration of how an Islamic perspective is being utilised to respond to HIV & AIDS is then provided through an outline of the work of the Asian Muslim Action Network (AMAN). It concludes with recommendations for future action in the area of faith-based responses to HIV & AIDS

Do children need education about sexuality and reproductive health?

2006

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TGPSH/TACAIDS produced this brochure for parents to explain the importance of education in reproductive health. Children have many questions about sexuality and the sources of their information may not be accurate, therefore reproductive health education should start early before young people become sexually active. The main aims of such education is to provide accurate information about sexuality, to help young people develop their own values and to help them develop responsible relationships and interpersonal skills. Information is provided on physical, emotional and social changes which happen to growing children. Schools can provide information and help to develop values at a time when children are open for guidance. Although reproductive health and sexuality are difficult topics for many parents, schools need support from parents too

Impact of sex and HIV education programs on sexual behaviors of youth in developing and developed countries

KIRBY, Douglas
LARIS, B A
ROLLERI, Lori
2005

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This paper discusses findings from a review of 83 evaluations of sex and HIV education programmes. The analysis found substantial positive impact on sexual behaviours in more than two-thirds of the evaluations and identified 17 characteristics of the most effective curricula used in the programmes evaluated. More information on this review is available, including links to data sheets on each of the 83 evaluations. [Publisher's abstract, amended]

Sexuality and relationships education for people with down syndrome

WOOD, Mandy
2004

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"This article describes why Sexuality and Relationships Education (SRE) as part of the school curriculum is especially important for individuals with Down syndrome and how parents and professionals can work together to ensure that it is delivered effectively"
Down Syndrome News and Update 4(2)

The role of education in promoting sexual and reproductive health

WARWICK, Ian
AGGLETON, Peter
June 2002

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This good practice guide explores the challenges facing practitioners and policy-makers in resource-constrained countries who are trying to develop educational initiatives aimed at promoting the sexual and reproductive health of young people. This resource sets out good practice guidelines for work in school settings, out-of-school contexts and in higher education. These guidelines are illustrated by examples of innovative practice from across the world

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