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Social relationships, mental health and wellbeing in physical disability: a systematic review

TOUGH, Hannah
SIEGRIST, Johannes
FEKETE, Christine
May 2017

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The aim of this study is to systematically review quantitative studies exploring associations of social relationships with mental health and wellbeing in persons with physical disabilities. The objective is to summarise a complex and heterogeneous body of empirical research on the association of different social relationship constructs with mental health and wellbeing in physical disability and to highlight conceptual and methodological deficiencies in the field of research. The literature search included original articles published in English between January 1, 1995 and May 31, 2016. Data was extracted on study and participants’ characteristics, independent and dependent variables, used measures and effects sizes of associations between social relationships and mental health or wellbeing. A narrative review was performed to synthesise findings along the constructs social support, social networks, negative social interactions, family functioning and relationship quality.  Of the 63 included studies, 47 were cross-sectional and 16 longitudinal.

BMC Public Health (2017) 17:414 

DOI 10.1186/s12889-017-4308-6

Community based rehabilitation for people with disabilities in low and middle income countries : a systematic review

IEMMI, Valentina
et al
September 2015

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This Campbell Collaboration systematic review assesses the effectiveness and cost-effectiveness of community-based rehabilitation (CBR) for people with physical and mental disabilities in low- and middle-income countries, and/or their family, their carers, and their community. This review identified 15 studies that assessed the impact of community-based rehabilitation on the lives of people with disabilities and their carers in low- and middle-income countries. The studies included in the review used different types of community-based rehabilitation interventions and targeted different types of physical (stroke, arthritis, chronic obstructive pulmonary disease) and mental disabilities (schizophrenia, dementia, intellectual impairment). The authors conclude that the evidence on the effectiveness of CBR for people with disabilities in low- and middle-income countries suggests that CBR may be effective in improving the clinical outcomes and enhancing functioning and quality of life of the person with disabilities and his/her carer and recommend future studies will need to adopt better study designs, will need to focus on broader clients group, and to include economic evaluations

Campbell Systematic Reviews 2015:15

Capturing the difference we make. Community-based rehabilitation indicators manual

WORLD HEALTH ORGANIZATION
2015

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"WHO and the International Disability and Development Consortium (IDDC) have worked together to develop the indicators presented in this manual that capture the difference CBR makes in the lives of people with disabilities in the communities where it is implemented. This manual presents these (base and supplementary) indicators and provides simple guidance on collecting the data needed to inform them. The indicators have been developed to show the difference between people living with a disability and their families and those without disabilities in relation to the information reported in the indicators. This comparability provides valuable information to CBR managers, donors and government agencies alike, which can be used to guide decision-making, support advocacy and improve accountability. Further, the ability of the indicators to provide a comparison of the populations of persons with disability to persons without disability aligns with the United Nations Convention on the Rights of Persons with Disabilities (CRPD), which states that persons with disability have equal rights to those without disabilities." 

The Malawi key informant child disability project

TATARYN, Myroslava
et al
August 2014

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“The aim of this study was to use the KIM to estimate the prevalence of moderate/severe physical, sensory and intellectual impairments and epilepsy among children in two districts (Ntcheu and Thyolo) in Malawi. The Key Informant Method (KIM) is a novel method for generating these data. KIM focuses on training community volunteers to identify local children who may have disabilities, who are then screened by medical professionals and referred on for appropriate health and rehabilitation interventions. Consequently, the method offers an alternative to population-based surveys of disability in children, which can be costly and time consuming”

The Malawi key informant child disability project : summary report

TATARYN, Myroslava
et al
August 2014

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This report provides a summary of research project conducted by the International Centre for Evidence in Disability at the London School of Hygiene and Tropical Medicine and the University of Malawi. The study used the Key Informant Method (KIM) to estimate the prevalence of moderate/severe physical, sensory and intellectual impairments and epilepsy among children in two districts (Ntcheu and Thyolo) in Malawi. This report presents summary of the study’s background information, aims and objectives, key findings, conclusions and recommendations

The key informant child disability project in Bangladesh and Pakistan

MACTAGGART, Islay
MURTHY, GVS
2013

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The Key Informant Method (KIM) has previously been tested by CBM, LSHTM and others, and found to be a valid method for the identification of children with severe visual impairment and blindness in Bangladesh, using community volunteers in the place of a door-to-door survey. This report outlines a study that set out to expand this and test whether voluntary, community-level Key Informants (KIs) could be trained to effectively identify children with moderate or severe physical impairments, sensory impairments (visual and hearing) or epilepsy in Bangadesh and Pakistan, and if so whether this process could be used to assess prevalence and plan appropriate referral services for children meeting these criteria

Impact of community-based rehabilitation on persons with different disabilities

DEEPAK, Sunil
et al
2013

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“There are some barriers that persons with different kinds of impairments commonly face, and there are also some impairment-specific barriers. Disaggregated data are needed to assess the impact of different CBR activities on different groups of persons with disabilities. This article assesses the impact of CBR on key variables linked to the five domains of the CBR Matrix, on 4 groups of persons with disabilities - visual, hearing and speech, physical and intellectual disabilities. A questionnaire survey was carried out involving 2,332 persons with disabilities, in a random stratified sample of villages covered by a CBR programme, in 9 sub-districts of Karnataka state (India) and in a control area”

 

Disability, CBR and Inclusive Development, Vol. 24, No. 4

Impact of CBR : impact of community-based rehabilitation programme in Karnataka India

BIGGERI, Mario
et al
2012

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"The main goal of the research was to understand and measure the overall role and impact of CBR in improving the quality of life of persons with different types of impairments, as well as different demographic, social and economic backgrounds. We therefore investigated the effectiveness of CBR programmes in improving the control that persons with disabilities have over their daily lives, their participation in different aspects of community life (i.e. combating stigma and prejudice) and their access to various services over the five domains of the CBR matrix (health, education, livelihood, social and empowerment)"

Making it work guideline

GUY, Michael
September 2011

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Making it Work is a methodology for researching and documenting good practices on key disability issues, and then using this evidence to carry out effective advocacy in line with the principles of the Convention for the Rights of Persons with Disabilities .The methodology is straight-forward: it can be used to develop projects on any disability issue, in any country, at any level, by all types of organizations. Indeed many organizations throughout the world are now using this approach and sharing their good practice research and recommendations online. This guideline sets out a step-by-step approach for implementing such projects

Measuring the effectiveness of community based rehabilitation services in children with developmental delays in the Dominican Republic

BEKKER, Geertruida
2011

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The paper first presents the development of the Development Quotient (DQ) instrument, which was based on the Portage Guide to Early Education (PGEE). It distinguishes between the effects of the Community Based Rehabilitation service (CBRS) delivery over time and the natural learning taking place in a child with disability (CwD) over the same period. The paper then describes the impact of a CBR programme in Santiago based on changes in DQ as measured in a study of 300 children with disabilities

Social health insurance for improving access to care for disabled and elderly people in developing countries

OKEBUKOLA, Peter Oluseyi
OGUNSAKIN, Jimlas O
August 2009

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“The elderly and the disabled like most disadvantaged groups, often have to pay higher premiums for health insurance than the general population. This condition usually leads to low health insurance coverage for these groups of people and may affect their ability to access healthcare, in view of the fact that they are not the most economically productive group of the general population. This review seeks to explore the possible role of social health insurance in solving this problem”

Understanding and interpreting disability as measured using the WG short set of questions

WASHINGTON GROUP ON DISABILITY STATISTICS (WG)
2009

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This report presents information about understanding and interpreting disability as measured using the Washington group (WG)’s short set of questions. The six questions are for use in censuses and surveys according to the Fundamental Principles of Official Statistics and are consistent with the International Classification of Functioning (ICF). The questions produce internationally comparable data on disability by identifying the majority of persons in the population who are at greater risk than the general population of experiencing limited or restricted participation in society. The questions cover six functional domains or basic actions: seeing, hearing, walking, cognition, self-care, and communication. This resource is useful to anyone interested in measuring disability

Living conditions among people with disabilities in Mozambique : a national representative study

EIDE, Arne H
KAMALERI, Yusman
January 2009

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"This report provided results of a study of living conditions among people with functional limitation in Mozambique. Two comparative studies of different indicators of living conditions were carried out. These studies include: (i) a comparative study of households with and without family member(s) with functional limitation and (ii) a comparative study of individuals with and without functional limitation. In addition, a detailed study that specifically addresses the situation of individuals with functional limitation was also conducted"
SINTEF A9348

Community based rehabilitation programmes : monitoring and evaluation in order to measure results

CORNIELJE, Huib
VELEMA, Johan P
FINKENFLUGEL, Harry
March 2008

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This paper aims to help develop "methodologies that will help to measure results of Community Based Rehabilitation programmes...The article places considerable importance on management information systems and monitoring, since it is believed that evaluation will greatly benefit from both the existence of baseline data as well as a well-developed and well-implemented information system. The present article emphasises the need for participatory processes in the development of baseline data and information systems. Four key areas for measuring CBR are highlighted: people, power, public society and partnerships. Finally, a tool is presented in order to evaluate (or monitoring and evaluation) systematically"
Leprosy Review, Vol 79, No 1

Evaluating functional & economic outcomes of the mental health development model in North Karnataka, India

MISHRA, Subrat Kumar
et al
2008

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“Poverty and mental illness compound one another, creating an environment of despair for some of the most vulnerable people in low and middle-income countries. Mental health intervention programmes in resource-poor settings such as rural Northern India must understand and address the economic burden of mental illness, in addition to clinical and functional outcomes. The BasicNeeds [BN]- Nav Bharat Jagruti Kendra [NBJK] intervention programme, located in rural Northern India, aims to improve quality of life for people with mental disorders and their families, through treatment, livelihoods and capacity building interventions based on the Mental Health and Development Model. This prospective evaluation assessed economic outcomes of 138 people with mental disorders involved in the BN-NBJK programme over a period of two years”

Conceptualizing disability and education in the South : challenges for research

SINGAL, Nidhi
December 2007

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This discussion paper introduces the challenges for designing research methodology for the Disability, Education and Poverty project. The paper explores the relationships between poverty and disability, highlighting disability is a cause and consequence of poverty, and discusses three central challenges for conceptualising the research project
RECOUP Working Paper 10

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