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Impact of parenting a child with cerebral palsy on the quality of life of parents: A systematic review of literature

RAMANANDI, Vivek
et al
2019

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This article reviews the literature on the effects of parenting children with cerebral palsy, and summarises the related factors. A systematic search of online databases was conducted and, based on the reference lists of selected articles, further studies were identified. Thirty-six articles that met the inclusion criteria were analysed.

 

Disability, CBR and Inclusive Development, Vol 30, No 1 (2019)

Psychosocial disability in the Middle East

BOLTON. Laura
May 2018

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A K4 helpdesk report, commissioned by DFID (UK), provides a rapid review of literature to provide best estimates of psychosocial disability in specific countries in the Middle East.

Topics discussed include:

Prevalence and different forms of mental health conditions and psychosocial disability

Factors influencing prevalence

Differences across demographics

Provision for those with psychosocial disabilities

The burden of mental disorders in the eastern Mediterranean region, 1990-2013

CHARARA, Raghid
et al
January 2017

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The Eastern Mediterranean Region (EMR) is witnessing an increase in chronic disorders, including mental illness. With ongoing unrest, this is expected to rise. This is the first study to quantify the burden of mental disorders in the EMR. Data was used from the Global Burden of Disease study (GBD) 2013. DALYs (disability-adjusted life years) allow assessment of both premature mortality (years of life lost–YLLs) and nonfatal outcomes (years lived with disability–YLDs). DALYs are computed by adding YLLs and YLDs for each age-sex-country group.

 

https://doi.org/10.1371/journal.pone.0169575

Improving lives. The work, health and disability Green Paper

October 2016

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Employment rates amongst disabled people reveal one of the most significant inequalities in the UK today: less than half (48%) of disabled people are in employment compared to 80% of the non-disabled population. Despite a record-breaking labour market, 4.6 million disabled people and people with long-term health conditions are out of work leaving individuals, and some large parts of communities, disconnected from the benefits that work brings. People who are unemployed have higher rates of mortality and a lower quality of life. This green paper sets out the nature of the problem and why change is needed by employers, the welfare system, health and care providers, and all of us. Proposed solutions are set out  and views requested. (Consultation now closed)

04101608 10/16 

Participation and quality of life outcomes among individuals with earthquake-related physical disability: A systematic review

NUNNERLEY, Joanne
DUNN, Jennifer
McPHERSON, Kathryn
et al
May 2015

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A literature review to evaluate quality of life and participation outcomes of individuals with earthquake-related physical injury. A systematic review was performed searching MEDLINE, Embase, PsychINFO, CINAHL and AMED electronic databases from 1966 to January 2014. Studies that measured quality of life or participation outcomes among individuals who acquired a physical disability as a result of an earthquake injury were included, with no limits on research design. The search yielded 961 potentially relevant articles after removal of duplicates. Of these, only 8 articles met the inclusion criteria. Seven papers were reviewed from the following 5 earthquakes: 2001 Gujarat earthquake, India; 2008 Wenchuan earthquake, China (also known as the Sichuan earthquake); 2005 Kashmir earthquake, Pakistan (27); 2009 Padang earthquake, Indonesia; 2010 Port-au-Prince earthquake.

Journal of Rehabilitation Medicine, vol.47, no.5, 2015, 385-393

10.2340/16501977-1965

A home-based rehabilitation intervention for people living with HIV and disability in a resource-poor community, KwaZulu-Natal : study protocol for a randomized controlled trial

COBBING, Saul
HANASS-HANCOCK, Jill
MYEZWA, Hellen
2015

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In this paper, the researchers develop a needs-based home-based rehabilitation programme for people living with HIV in order to improve their quality of life and functional ability. The study aims to  provide rehabilitation professionals and researchers with evidence that can be utilised to improve existing rehabilitation interventions for people living with HIV.

The paper outlines a randomised control trial to test the programme, to be conducted at a public hospital in KwaZulu-Natal, South Africa. The trial will assess the participants’ quality of life, perceived level of disability, functional ability and endurance

Trials 16:491

Use of subjective and objective criteria to categorise visual disability

KAJLA, Garima
ROHATGI, Jolly
DHALIWAL, Upreet
May 2014

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This article presents research into the use of  subjective (quality of life) as well as objective criteria to classify visual disability. When both subjective and objective criteria were used, instead of just the commonly accepted objective criteria, visual disability could be  objectively reclassified

Indian Journal of Ophthalmology, Vol. 62, Issue 4

Impact of rehabilitation services on quality of life of persons with disabilities in Cambodia

SIT, Song
et al
January 2013

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This study aimed "to assess the quality of life (QoL) of person with disability (PWD) before and after receiving rehabilitation services and/or Community Based Rehabilitation (CBR) services from Veterans International Cambodia (VIC) and to determine factors associated with the improvement of the QoL of PWD other than the rehabilitation services and/or CBR services. A cross-sectional study was conducted amongst PWDs from three physical rehabilitation centers in Cambodia. ComQoL-A5 was used to measure the QoL of adults with disabilities (age18 years and above) and KIDSCREEN-27 for children with disabilities aged from 10 to 18 years-old...The QoL of PWDs was significantly improved after receiving rehabilitation services. Within each stratum of disability, improvement was observed when comparing before and after scores. However, no significant differences across different types of disability were seen. Gender, age, education and income were found to be significantly associated with the improvement of QoL of adults with disabilities. The services offered by the Veterans International significantly improve the QoL of PWDs"
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Insights on ageing : a survey report

WILLIAMS, Jennifer
2011

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This report presents the results of a survey administered in 32 countries which highlight the situation of older people around the world today. The information presented in the survey report provides insights into what older people around the world think about ageing and what they would like to see their governments do to make living in older age better. This resource is useful for people interested in the global situation of older people

Living conditions among people with disabilities in Mozambique : a national representative study

EIDE, Arne H
KAMALERI, Yusman
January 2009

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"This report provided results of a study of living conditions among people with functional limitation in Mozambique. Two comparative studies of different indicators of living conditions were carried out. These studies include: (i) a comparative study of households with and without family member(s) with functional limitation and (ii) a comparative study of individuals with and without functional limitation. In addition, a detailed study that specifically addresses the situation of individuals with functional limitation was also conducted"
SINTEF A9348

Institutional care for older people in developing countries : the case of Buenos Aires, Argentina

SHERLOCK-LLOYD, Peter
REDONDO, Nelida
2009

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"This paper examines the quality of care provided by old age homes in developing countries. It draws attention to the growing demand for such services and the emergence of a largely unregulated private sector. The paper reviews the findings of a survey of 101 private old age homes conducted in Buenos Aires, Argentina during 2004 and 2005. This reveals that the quality of care leaves much to be desired, and that the rights, autonomy and dignity of older people are often neglected. Particular issues of concern are the repressive managerial structures (including the use of restraints and medication), questionable processes of admission, and limited support for dependent residents. The paper calls for long term care to be given a higher policy profile in developing countries than is currently the case"
Journal of Population Ageing, Vol 2, No 1-2

Evaluating functional & economic outcomes of the mental health development model in North Karnataka, India

MISHRA, Subrat Kumar
et al
2008

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“Poverty and mental illness compound one another, creating an environment of despair for some of the most vulnerable people in low and middle-income countries. Mental health intervention programmes in resource-poor settings such as rural Northern India must understand and address the economic burden of mental illness, in addition to clinical and functional outcomes. The BasicNeeds [BN]- Nav Bharat Jagruti Kendra [NBJK] intervention programme, located in rural Northern India, aims to improve quality of life for people with mental disorders and their families, through treatment, livelihoods and capacity building interventions based on the Mental Health and Development Model. This prospective evaluation assessed economic outcomes of 138 people with mental disorders involved in the BN-NBJK programme over a period of two years”

Cost-effectiveness analysis in health. A practical approach (2nd edition)

MUENNIG, Peter
BOUNTHAVONG, Mark
2008

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Cost-effectiveness analysis is used to evaluate medical interventions worldwide, in both developed and developing countries. This book provides process-specific instruction in a concise, structured format to provide a robust working knowledge of common methods and techniques. Each chapter includes real-world examples and tips that highlight key information. Calculations concerning disability life adjusted years are covered. The third edition contains new discussion on meta-analysis and advanced modelling techniques and a long worked example.

The quality of life, mental health, and perceived stigma of leprosy patients in Bangladesh

TSUTSUMI, Atsuro
et al
March 2007

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"The present study aims to determine the quality of life (QOL) and general mental health of leprosy patients compared with the general population, and evaluate contributing factors such as socio-economic characteristics and perceived stigma. A total of 189 patients (160 outpatients, 29 inpatients) and 200 controls without leprosy or other chronic diseases were selected from Dhaka district, Bangladesh, using stratified random sampling"
Social Science Medicine Journal, Vol 64, Issue 12

Ruined lives : segregation from society in Argentina's psychiatric asylums|A report on human rights and mental health in Argentina

MENTAL DISABILITY RIGHTS INTERNATIONAL (MDRI)
CENTER FOR LEGAL AND SOCIAL STUDIES (CELS)
2007

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This resource documents human rights abuses against almost 25,000 people detained in Argentina's psychiatric institutions. It argues that large-scale institutionalisation and the accompanying abuses are due, to decades of investment in segregated institutions rather than developing necessary community-based mental health care services and support

Living conditions among people with activity limitations in Zambia : a national representative study

EIDE, Arne H
LOEB, ME
September 2006

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This report presents the findings of a study about the livelihoods of people with disability in Zambia using both individual data and data from household surveys with and without people with disabilities. The report, one of a series of regional research reports to establish baseline data on living conditions among people in Southern Africa, looks at the fields of health, employment, education, living conditions and services for people with disabilities

Behind the barrier : human rights violations as a result of Israel's separation barrier

LEIN, Yehezkel
March 2003

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A position paper focusing on the human rights violations that will occur if Israel continues to route the separation barrier through the West Bank. It outlines how the barrier will further restrict Palestinian movement, pushing more Palestinian families into poverty either because they will not be able to reach their fields or market their produce, or because they will not be able to reach their jobs. It also outlines the likely problems that Palestinians will have with regard to access to medical treatment and education

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