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Improving lives. The work, health and disability Green Paper

October 2016

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Employment rates amongst disabled people reveal one of the most significant inequalities in the UK today: less than half (48%) of disabled people are in employment compared to 80% of the non-disabled population. Despite a record-breaking labour market, 4.6 million disabled people and people with long-term health conditions are out of work leaving individuals, and some large parts of communities, disconnected from the benefits that work brings. People who are unemployed have higher rates of mortality and a lower quality of life. This green paper sets out the nature of the problem and why change is needed by employers, the welfare system, health and care providers, and all of us. Proposed solutions are set out  and views requested. (Consultation now closed)

04101608 10/16 

Community based rehabilitation for people with disabilities in low and middle income countries : a systematic review

IEMMI, Valentina
et al
September 2015

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This Campbell Collaboration systematic review assesses the effectiveness and cost-effectiveness of community-based rehabilitation (CBR) for people with physical and mental disabilities in low- and middle-income countries, and/or their family, their carers, and their community. This review identified 15 studies that assessed the impact of community-based rehabilitation on the lives of people with disabilities and their carers in low- and middle-income countries. The studies included in the review used different types of community-based rehabilitation interventions and targeted different types of physical (stroke, arthritis, chronic obstructive pulmonary disease) and mental disabilities (schizophrenia, dementia, intellectual impairment). The authors conclude that the evidence on the effectiveness of CBR for people with disabilities in low- and middle-income countries suggests that CBR may be effective in improving the clinical outcomes and enhancing functioning and quality of life of the person with disabilities and his/her carer and recommend future studies will need to adopt better study designs, will need to focus on broader clients group, and to include economic evaluations

Campbell Systematic Reviews 2015:15

Participation and quality of life outcomes among individuals with earthquake-related physical disability: A systematic review

NUNNERLEY, Joanne
DUNN, Jennifer
McPHERSON, Kathryn
et al
May 2015

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A literature review to evaluate quality of life and participation outcomes of individuals with earthquake-related physical injury. A systematic review was performed searching MEDLINE, Embase, PsychINFO, CINAHL and AMED electronic databases from 1966 to January 2014. Studies that measured quality of life or participation outcomes among individuals who acquired a physical disability as a result of an earthquake injury were included, with no limits on research design. The search yielded 961 potentially relevant articles after removal of duplicates. Of these, only 8 articles met the inclusion criteria. Seven papers were reviewed from the following 5 earthquakes: 2001 Gujarat earthquake, India; 2008 Wenchuan earthquake, China (also known as the Sichuan earthquake); 2005 Kashmir earthquake, Pakistan (27); 2009 Padang earthquake, Indonesia; 2010 Port-au-Prince earthquake.

Journal of Rehabilitation Medicine, vol.47, no.5, 2015, 385-393

10.2340/16501977-1965

The ScoPeO tool : measuring the impact of our interventions : quality of life, safety and social and family protection

HANDICAP INTERNATIONAL
2015

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This advocacy briefing paper presents information about Handicap International’s ScoPeO tool which is a data collection tool to help measure outcomes of development initiatives on the quality of life (QOL) of beneficiaries who have accessed our projects and those of our partners. This brief highlights the need to measure quality of life and provides an overview of how ScoPeO works along with a case study from Rwanda. It outlines how humanitarian and development actors can measure impact and suggests ways to measure progress

Advocacy briefing paper

A home-based rehabilitation intervention for people living with HIV and disability in a resource-poor community, KwaZulu-Natal : study protocol for a randomized controlled trial

COBBING, Saul
HANASS-HANCOCK, Jill
MYEZWA, Hellen
2015

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In this paper, the researchers develop a needs-based home-based rehabilitation programme for people living with HIV in order to improve their quality of life and functional ability. The study aims to  provide rehabilitation professionals and researchers with evidence that can be utilised to improve existing rehabilitation interventions for people living with HIV.

The paper outlines a randomised control trial to test the programme, to be conducted at a public hospital in KwaZulu-Natal, South Africa. The trial will assess the participants’ quality of life, perceived level of disability, functional ability and endurance

Trials 16:491

Measuring quality of life, safety, and social and family participation of project beneficiaries : the ScoPeO tool

BRUS, Aude
et al
July 2014

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"This guide presents ScoPeO, a tool for measuring changes in living conditions as perceived by beneficiaries once a project is implemented. More specifically, the method serves to evaluate quality of life, perception of safety and participation in society and family life in two phases: before or at the start of the project (baseline survey) and at the end of the project (endline survey). Thus, this guide presents concepts related to quality of life and similar notions, the key phases in the process and provides the tools needed to conduct a study on quality of life. This guide is designed for all Handicap International professionals, and in particular the project managers, operational coordinators and technical coordinators in charge of developing, implementing, monitoring and evaluating projects. Handicap International partners may also find this guide useful"

Use of subjective and objective criteria to categorise visual disability

KAJLA, Garima
ROHATGI, Jolly
DHALIWAL, Upreet
May 2014

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This article presents research into the use of  subjective (quality of life) as well as objective criteria to classify visual disability. When both subjective and objective criteria were used, instead of just the commonly accepted objective criteria, visual disability could be  objectively reclassified

Indian Journal of Ophthalmology, Vol. 62, Issue 4

Position paper on deaf education in Rwanda

RWANDA NATIONAL UNION OF THE DEAF (RNUD)
January 2013

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As part of the Rwanda National Union of the Deaf (RNUD)'s advocacy strategy to improve the quality of life for Deaf communities in Rwanda, this position paper provides detailed information and concrete solutions and ideas for the way forward

Impact of rehabilitation services on quality of life of persons with disabilities in Cambodia

SIT, Song
et al
January 2013

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This study aimed "to assess the quality of life (QoL) of person with disability (PWD) before and after receiving rehabilitation services and/or Community Based Rehabilitation (CBR) services from Veterans International Cambodia (VIC) and to determine factors associated with the improvement of the QoL of PWD other than the rehabilitation services and/or CBR services. A cross-sectional study was conducted amongst PWDs from three physical rehabilitation centers in Cambodia. ComQoL-A5 was used to measure the QoL of adults with disabilities (age18 years and above) and KIDSCREEN-27 for children with disabilities aged from 10 to 18 years-old...The QoL of PWDs was significantly improved after receiving rehabilitation services. Within each stratum of disability, improvement was observed when comparing before and after scores. However, no significant differences across different types of disability were seen. Gender, age, education and income were found to be significantly associated with the improvement of QoL of adults with disabilities. The services offered by the Veterans International significantly improve the QoL of PWDs"
The user has given permission for the uploaded document to be reproduced and made publicly available on the Source website

Incheon strategy to "make the right real" for the persons with disabilities in Asia and the Pacific

UNITED NATIONS ECONOMIC AND SOCIAL COMMISSION FOR ASIA AND THE PACIFIC (ESCAP)
November 2012

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"This report presents information about 'The Incheon Strategy' which provides the Asian and Pacific region, and the world, with the first set of regionally agreed disability-inclusive development goals. Developed over more than two years of consultations with governments and civil society stakeholders, the Incheon Strategy comprises 10 goals, 27 targets and 62 indicators. The Incheon Strategy builds on the Convention on the Rights of Persons with Disabilities and the Biwako Millennium Framework for Action and Biwako Plus Five towards an Inclusive, Barrier-free and Rights-based Society for Persons with Disabilities in Asia and the Pacific. The Incheon Strategy will enable the Asian and Pacific region to track progress towards improving the quality of life, and the fulfillment of the rights, of the region’s 650 million persons with disabilities, most of whom live in poverty"
ST/ESCAP/2648

AusAID development for all strategy : mid-term review

KELLY, Linda
WAPLING, Lorraine
October 2012

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This report presents the findings and outcomes of the mid-term review (MTR) of the AusAUD Development for All Strategy which was launched in November 2008 and covers a period of five years from 2009 to 2014, with specific funding allocated against the Strategy from 2010. The strategy’s intention is to strengthen the effectiveness of Australia's aid program by ensuring that people with disability contribute to and benefit from the program
"The report is structured around four sections. This background section introduces the Strategy and the history and rationale of AusAID focus on disability-inclusive development. The second section outlines the methodology and approach for the MTR. The third and major section presents the findings of the review against the five outcome areas of the Strategy with a short discussion following each presentation of findings. The final section concludes the discussion overall and outlines the recommendations arising from the MTR"

Measuring outcomes for people with disability

NATIONAL DISABILITY SERVICES (NDS)
October 2012

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“This paper aims to investigate how disability service providers can best measure outcomes for the people with disability they assist. It is intended to help identify options for developing current practice and determine NDS members’ need for tools, resources and other forms of support. The paper’s evidentiary base is partly informed by a NDS member survey conducted in April 2012 and the findings from this will be used to inform NDS’s future work in this area. Services are strongly encouraged to develop the capacity to track outcomes for people they support. Demonstrating positive outcomes will be a key attribute for organisations operating under a National Disability Insurance Scheme”

"Out of the shadows" : a qualitative study of parents’ and professionals’ attitudes and beliefs about children with communication disability in Uganda and how best to help them

MCGEOWN, Julia
September 2012

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"Communication forms the basis of human life and the complex ways with which humans can communicate and interact with each other sets us apart from all other species. However, not all humans are able to communicate effectively due to a range of communication impairments. The overall aim of this study is to generate solutions and recommendations to remove any barriers preventing these children from communicating effectively and potentially to improve their quality of life"
Dissertation submitted in part fulfilment of the requirements for a Masters degree at the Centre for International Health and Development (CIHD) at University College London (UCL) Institute of Child Health (ICH)
The user has given permission for the uploaded document to be reproduced and made publicly available on the Source website

The provision of wheeled mobility and positioning devices

GARTON, Francesca
URSEAU, Isabelle
July 2012

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This policy brief provides an overview of Handicap International’s 2012 policy paper on the provision of wheeled mobility and positioning devices (WP&MD) for people with disabilities
PP Brief No 9
Note: this policy should be read in conjunction with Handicap International’s rehabilitation policy paper which provides a broad framework for understanding the organization’s work on rehabilitation, including WP & MD

Impact of CBR : impact of community-based rehabilitation programme in Karnataka India

BIGGERI, Mario
et al
2012

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"The main goal of the research was to understand and measure the overall role and impact of CBR in improving the quality of life of persons with different types of impairments, as well as different demographic, social and economic backgrounds. We therefore investigated the effectiveness of CBR programmes in improving the control that persons with disabilities have over their daily lives, their participation in different aspects of community life (i.e. combating stigma and prejudice) and their access to various services over the five domains of the CBR matrix (health, education, livelihood, social and empowerment)"

Rehabilitation services unit annual report 2010

URSEAU, Isabelle
Ed
2011

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This 2010 annual report, produced by Handicap International’s rehabilitation services unit, illustrates the activities of the unit, the programmes and the key strategies and approaches for improving access to rehabilitation services. It would be useful to those who work with rehabilitation services in the field of disability and development

Insights on ageing : a survey report

WILLIAMS, Jennifer
2011

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This report presents the results of a survey administered in 32 countries which highlight the situation of older people around the world today. The information presented in the survey report provides insights into what older people around the world think about ageing and what they would like to see their governments do to make living in older age better. This resource is useful for people interested in the global situation of older people

Evaluating the impact of rehabilitation in the lives of people with disabilities and their families in low and middle income countries : a review of tools

LONDON SCHOOL OF HYGIENE & TROPICAL MEDECINE (LSHTM)
CHRISTOFFEL BLINDEMISSION (CBM)
August 2010

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“As there are many tools available for evaluating impact in the international literature, CBM commissioned this review in order to obtain clear guidance on how research can be carried across their programmes in order to generate high quality and reliable evidence on the impact of their programmes in the lives of people with disabilities and their families”

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