"Cerebral palsy is the most common cause of physical disability in children worldwide, and yet in most low resource settings there are few services available to support children with cerebral palsy or their families. Research is required to understand the effectiveness of community and/or home based programmes to address this gap. This 2-year study aimed to evaluate a participatory caregiver training programme called ‘Getting to know cerebral palsy’ in Ghana. The training programme consisted of a monthly half-day support group with training, and a home visit, delivered across eight sites in Ghana over 10 months. A total of 76 families and children were included at baseline and 64 families followed up one year later at endline. Children were aged between 18months and 12 years with a mean of 3.8 years and a range of severity of cerebral palsy. Nearly all (97%) the caregivers were female and the father was absent in 51% of families. The study was a pre-post intervention design using mixed methods to evaluate the impact. A baseline and endline quantitative survey was conducted to assess caregiver quality of life (QoL) and knowledge about cerebral palsy and child feeding, health, and nutrition outcomes. Qualitative data was collected to explore the impact and experiences of the training programme in more depth".
This report presents the findings of a study in 15 rural villages to obtain information on the roles of older people in HIV/AIDS affected households and to identify potential interventions to meet their financial, psychosocial and other support needs. Research methods included case studies, in-depth interviews and focus groups with older carers of children in Cambodia to understand their problems and to explore their support needs. The findings demonstrated that the HIV/AIDS epidemic has led to significant changes in the responsibilities and needs of older people and that older people in HIV/AIDS affected households are vulnerable to extreme poverty, and at times, destitution. The report concludes with recommendations for possible local response interventions to address the needs of older people impacted by HIV/AIDS
Source e-bulletin on Disability and Inclusion