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HIV & disability in West Africa: A combined analysis of 4 studies conducted in Burkina Faso, Niger, Guinea Bissau and Cape Verde (2019) - VIH & Handicap en Afrique de l’Ouest : Une analyse combinée de 4 études conduites au Burkina Faso, Niger, Guinée Bis

DE BEAUDRAP, Pierre
2019

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This paper includes four studies which seek to better understand the situation by HIV-related situation of disabled men and women living in West Africa. 
Using epidemiological investigation, qualitative interviews and collections of testimonies, these studies offer insight into the vulnerability of people with disabilities in the area of ​​sexual health
 

The need for a rehabilitation model to address the disparities of public healthcare for people living with HIV in South Africa

CHETTY, Verusia
HANASS-HANCOCK, Jill
June 2015

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This article advocates for the development and implementation of a model of care to guide rehabilitation of people living with HIV in South Africa. The paper begins by presenting the emerging evidence of rehabilitation in the context of HIV, and goes on to identify appropriate steps to develop a model of care based on this that would be applicable to South Africa

African Journal of Disability 4(1), Art. #137

A home-based rehabilitation intervention for people living with HIV and disability in a resource-poor community, KwaZulu-Natal : study protocol for a randomized controlled trial

COBBING, Saul
HANASS-HANCOCK, Jill
MYEZWA, Hellen
2015

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In this paper, the researchers develop a needs-based home-based rehabilitation programme for people living with HIV in order to improve their quality of life and functional ability. The study aims to  provide rehabilitation professionals and researchers with evidence that can be utilised to improve existing rehabilitation interventions for people living with HIV.

The paper outlines a randomised control trial to test the programme, to be conducted at a public hospital in KwaZulu-Natal, South Africa. The trial will assess the participants’ quality of life, perceived level of disability, functional ability and endurance

Trials 16:491

Data availability on men's involvement in families in sub-Saharan Africa to inform family-centred programmes for children affected by HIV and AIDS

HOSEGOOD, Victoria
MADHAVAN, Sangeetha
June 2010

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This article describes the availability of data about men and families, in particular fathers, in sub-Saharan African surveys and longitudinal population cohorts. To date, there has been limited research to examine men's role in providing emotional and material support and protection for children and families affected by HIV and AIDS, however increasing interest in family-oriented interventions around HIV and AIDS mean that such information needs to be collected

Family-based HIV prevention and intervention services for youth living in poverty-affected contexts : the CHAMP model of collaborative, evidence-informed programme development

BHANA, Arvin
et al
June 2010

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The Collaborative HIV Prevention and Adolescent Mental Health Program (CHAMP) is a family-focused, evidence-based intervention that has been tested in low-income contexts in the US, Caribbean and South Africa. This paper gives a description of the theoretical and empirical bases of the development and implementation of CHAMP in the US and South Africa

HIV, disability and rehabilitation : considerations for policy and practise

HEALTH ECONOMICS AND HIV/AIDS RESEARCH DIVISION (HEARD)
January 2010

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This issue brief considers the links between HIV and disability - that people with disabilities are among the key populations at high risk to exposure to HIV, and that people living with HIV may develop impairments and disabilities as a result of the disease. It anticipates an increased demand for rehabilitation services in Eastern and Southern Africa, given the improved access to HIV treatments and high prevalence of people living with HIV in the region, and warns that many in areas services are already stretched and resource-poor, so may struggle to cope with greater demand. The brief focuses on: issues regarding the definition of disability; implications for rehabilitation services; and considerations for disability grants

Capacity building in network organisations : experiences from and practical guidelines for HIV and other networks

SLUIJS-DOYLE, José
November 2009

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This report assesses seven capacities of organisations of people living with HIV and other HIV network organisations to see what makes a well-functioning network. These capacities are: involvement and accountability; partnership alliances; leadership; knowledge and skills; internal communication; impact, outputs and external communication; and management and finance. The report looks at four network organisations in Eastern and Southern Africa, with secondary research drawn from networks in Bangladesh, Nepal and India. The findings and recommendations cannot be applied universally to capacity strengthening in all network organisations, but need to be adapted to the context of each particular group

"I washed and fed my mother before going to school" : understanding the psychosocial well-being of children providing chronic care for adults affected by HIV/AIDS in Western Kenya

SKOVDAL, Morten
OGUTU, Vincent O
August 2009

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This paper presents three case studies of young people each of whom is a primary caregiver for a relative living with HIV. They are drawn from a study in Western Kenya of how well children cope with the challenges of chronic care and the psycho-social impact it has on them

Inspiring futures : learning from memory work in Africa

DUNN, Alison
HAMMOND WARD, Sarah
2009

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This learning paper looks at the experiences of applying memory work as part of broader strategies to mitigate the impact of HIV and AIDS in five African countries. It explores how six NGOs in sub-Saharan Africa established memory work as a key component of their community-based HIV programmes and draws on the experience of people living with HIV and AIDS, children and young people who participated in the initiative, partner organisations' own learning and analysis and the end of project evaluation report

School-centred HIV and AIDS care and support in Southern Africa : technical consulation report

BOLER, Tania
JOHNSSON, Emily
February 2008

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This report maps out the various activities in school-based HIV treatment, care and support that are being undertaken in Southern Africa, as a response to the changing needs of teachers, students and local communities. It highlights successful factors and common challenges and suggests five broad principles that help provide a comprehensive response to treatment, care and support,and reinforce prevention messages

Early infant diagnosis of HIV through dried blood spot testing

PATHFINDER INTERNATIONAL / KENYA
October 2007

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Until recently the test used to diagnose HIV in babies under one-year has required sophisticated and expensive equipment. A new test has now been developed - dried blood spot testing which can be used to diagnose HIV as early as six weeks after a baby is born and has the advantage of being easy to prepare in a resource-limited setting and shipped to testing facilities without refrigeration. If a baby is given prophylactic antibiotics, such as cotrimoxazole, soon after birth and Antiretroviral Therapy (ART) as soon as is medically indicated, it has a good chance of surviving childhood and living a long, healthy life

Supporting HIV-positive teachers in East and Southern Africa

MALLOURIS, Chrstoforos
BOLER, Tania
September 2007

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This report provides an overview of the impact of HIV on teachers and the specific issues HIV-positive teachers face. It also summarises support mechanisms for teachers with HIV and presents key conclusions and recommendations from the consultation regarding how the education sector can support HIV-positive teachers. The report is the result of a consultation involving a range of different stakeholders including representatives of Ministries of Education, teachers' unions and HIV-positive teachers' networks from six countries in East and Southern Africa

Joining hands: integrating gender and HIV/AIDS: report of an ACORD project using Stepping Stones in Angola, Tanzania and Uganda

HADJIPATERAS, Angela
et al
July 2007

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This is the report of a two-year project to reduce the vulnerability of women and girls in Africa to HIV and AIDS, using Stepping Stones - a gender-focused participatory process that involves working closely with peer groups. The project's other objectives were to: build the capacity of local structures to respond; promote community responses through effective partnerships and advocacy actions; and find out whether Stepping Stones could be used effectively in unconventional settings with a range of population groups such as the nomadic Mucubai tribe in Southern Angola, internally displaced people living in camps in Northern Uganda, and the 21st Battalion of the Angolan armed forces. Key findings include: improvements in the level of knowledge and understanding of HIV/AIDS and increased communication around sexual issues and between couples and within communities, across all three countries, as well as an increased sense of community responsibility for HIV and AIDS. In addition there was patchy evidence of stigma reduction and some reduction in risky cultural and sexual practices. Although increased respect for women, including self respect and a reduction in gender violence was also noted, female subordination in decision making and control over resources remains. Stepping Stones was on the whole considered to be adaptable for use in a wide range of contexts although more thought was needed to develop effective strategies to combat obstacles when using this process in some circumstances

Helping a forgotten minority : disability and HIV/AIDS in Zambia

DEPARTMENT FOR INTERNATIONAL DEVELOPMENT (DFID)
June 2007

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This article and case study demonstrate work being done in Zambia to ensure that the needs of people with disabilities are met by HIV and AIDS services, so that they have full access to the treatment, care and support available. Provisions include sign language training for HIV and AIDS counsellors, making mobility aids and hearing aids available to those who need them, as well as improving food security and encouraging a sustainable livelihoods approach. This would be of interest to anyone looking at mainstreaming disability in the provision of HIV and AIDS services

Pain relieving drugs in 12 African PEPFAR countries : mapping current providers, identifying current challenges, and enabling expansion of pain control provision in the management of HIV/AIDS

HARDING, Richard
et al
January 2007

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This study aims to identify current opioid prescribing services and regulatory bodies within 12 African PEPFAR (Presidents Emergency Plan for AIDS Relief ) countries, and to examine the barriers to, and appraise the potential for, expansion in the number of opioid providers, for people with HIV and AIDS according to the World Health Organization pain ladder. It concludes that while there are common issues raised by services and International Narcotics Control Board competent authorities, it is clear that these key stakeholders have concerns regarding the potential roll-out of opioids

Changing children's lives : experiences from memory work in Africa

HEALTHLINK WORLDWIDE
2007

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This publication aims to share learning from the memory work that Healthlink Worldwide and six other NGOs across sub-Saharan Africa have developed in response to the HIV epidemic. The focus is on learning and analysis in the theory and practice of memory work as well as demonstrating its effectiveness as an HIV response. It is aimed at international and national level policy makers who design and support HIV initiatives, as well as practitioners, who implement responses to the HIV epidemic directly at a local and national level

Living with 'X': a body mapping journey in the time of HIV and AIDS|Facilitator's guide

SOLOMAN, Jane
2007

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This is a manual for implementing coping strategies for people living with HIV and AIDS, through creating a relationship between art and the patient's body, leading to greater understand of the effects of the disease and stimulating creative responses to it. The methods detailed allow participants a means of expressing themselves non-verbally at first with an aim of building their confidence and sense of self-worth enough to allow them to vocalise their hopes and fears. The approach is implemented through group-work, it helps to build local psychosocial support networks

Africa's orphaned and vulnerable generations : children affected by AIDS

UNITED NATIONS CHILDREN'S FUND (UNICEF)
August 2006

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This is an update of an earlier report 'Africa's orphaned generations' (2003) which incorporates new and refined estimates of the number of children orphaned in sub-Saharan Africa and the impact of AIDS and orphaning. While the situation is complex, this report provides information on the circumstances of children affected by the AIDS epidemic with an aim to encouraging action

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