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Inspiring futures : learning from memory work in Africa

DUNN, Alison
HAMMOND WARD, Sarah
2009

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This learning paper looks at the experiences of applying memory work as part of broader strategies to mitigate the impact of HIV and AIDS in five African countries. It explores how six NGOs in sub-Saharan Africa established memory work as a key component of their community-based HIV programmes and draws on the experience of people living with HIV and AIDS, children and young people who participated in the initiative, partner organisations' own learning and analysis and the end of project evaluation report

Training manual of IICCHAA project

INDIAN INITIATIVE OF CHILD CENTRED HIV & AIDS APPROACH (IICCHAA)
February 2008

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This manual offers an approach to memory work that has been adapted to fit the local context in India and is based on memory work pioneered by the National Community of Women living with HIV/AIDS (NACWOLA) in Uganda. It provides trainers with guidance to support parents, guardians and care givers affected by HIV and AIDS by helping them to share information, hopes and fears with their children; strengthen each child's sense of identity and belonging; and plan for the future care of their children

Minimum standards for civil society participation in the universal access initiative

THE COALITION OF ASIA PACIFIC REGIONAL NETWORKS ON HIV/AIDS (SEVEN SISTERS)
August 2007

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This document, developed with input from civil society participants and organisations from the Asia-Pacific region, proposes a process and framework to encourage minimum standards for civil society participation in universal access processes. It is for use by both civil society representatives as a tool to assess and promote their greater involvement in national universal access processes, and by national government representatives as a guide for ensuring civil society participation in national scaling up to reach universal access targets. The main body of the document is divided into three parts: a description of the preparation needed to implement a set of minimum standards for participation; a proposed matrix that uses a scoring system based on definitions of levels of participation and sets of indicators which are used to examine the different aspects and stages of universal access; and monitoring and evaluation methods for assessing civil society participation. It also considers how the proposal can be developed and disseminated

Joining hands: integrating gender and HIV/AIDS: report of an ACORD project using Stepping Stones in Angola, Tanzania and Uganda

HADJIPATERAS, Angela
et al
July 2007

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This is the report of a two-year project to reduce the vulnerability of women and girls in Africa to HIV and AIDS, using Stepping Stones - a gender-focused participatory process that involves working closely with peer groups. The project's other objectives were to: build the capacity of local structures to respond; promote community responses through effective partnerships and advocacy actions; and find out whether Stepping Stones could be used effectively in unconventional settings with a range of population groups such as the nomadic Mucubai tribe in Southern Angola, internally displaced people living in camps in Northern Uganda, and the 21st Battalion of the Angolan armed forces. Key findings include: improvements in the level of knowledge and understanding of HIV/AIDS and increased communication around sexual issues and between couples and within communities, across all three countries, as well as an increased sense of community responsibility for HIV and AIDS. In addition there was patchy evidence of stigma reduction and some reduction in risky cultural and sexual practices. Although increased respect for women, including self respect and a reduction in gender violence was also noted, female subordination in decision making and control over resources remains. Stepping Stones was on the whole considered to be adaptable for use in a wide range of contexts although more thought was needed to develop effective strategies to combat obstacles when using this process in some circumstances

Building bridges with SIPAA : lessons from an African response to HIV and AIDS

DUNN, Alison
HEALTHLINK WORLDWIDE
2005

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This document examines the key lessons from the Support to the International Partnership against AIDS in Africa (SIPAA) programme implemented between 2001 and 2005 in nine African countries. The programme's main focus was on African leadership and ownership, involvement and participation of people living with or affected by HIV and AIDS and mobilisation of national and regional partners. Lessons learned include: meaningful involvement of people living with HIV and AIDS; supporting associations according to potential rather than proven track record; networks support; support for local leaders; making connections through National AIDS Councils; building strong partnerships; sharing information and knowledge across Africa; making the most of African skills and resources

Breaking the silence : memory books and succession planning. The experience of NACWOLA and Save the Children UK in Uganda

WITTER, Sophie
2004

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This report highlights the work of National Community of Women Living with HIV/AIDS (NACWOLA) in Uganda and Save the Children UK in supporting parents and children to develop memory work. Memory books are a unique strategy in supporting the development of children's ability to cope when one or more of their parents is living with HIV, through improving communication within the family and supporting greater planning for the future of children within the family and community. The report outlines the successes and challenges of memory books and succession planning in Uganda, looking at the impact of the project on families, and NACWOLA's organisational development

Orphans and vulnerable children in India : understanding the context and the response

GOLDMAN, Judith
ANASTASI, Marie-Christine
June 2003

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A report from a meeting for exchange and learning between organisations working with orphans and vulnerable children in India, looking community responses to working with this group. The experience of Plan International, Palmyrah Workers Development Society and the International HIV/AIDS Alliance was presented to the meeting. Specific responses to working with orphans and vulnerable children discussed in the report include lessons from a child participatory approach, prevention of mother-to-child transmission and the development of community action

Disentangling HIV and AIDS stigma in Ethiopia, Tanzania and Zambia

NYBLADE, Laura
et al
2003

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This report explores the causes, manifestations and consequences of HIV and AIDS related stigma in sub-Saharan Africa. Based on a study in Ethiopia, Tanzania and Zambia, it acknowledges stigma as complex, caused by incomplete knowledge, fears of death and disease and sexual transmission. Stigma is also influenced by socio-economic status, age and gender. The report also discusses in detail how people living with HIV react to stigma, and also how they and their families/ friends develop strategies to cope with stigma. Recommendations include the need to provide safe spaces to discuss the values and beliefs about sex, morality and death, find a common language to talk about stigma and ensure a contextually appropriate and ethically responsible role for people living with HIV

Enhancing the greater involvement of people living with or affected by HIV/AIDS (GIPA) in sub-Saharan Africa. A UN response : how far have we gone?

JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
2000

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This is a report on the UNV pilot project to support people living with HIV and AIDS. The inclusion of PLWHA in prevention, sensitisation and support activities is vital to the success of programmes and policies. The project aimed to ensure that the expertise of PLWHA contributed to decision-making, to strengthen the strategic planning and management of their organisations, to recognise the role of volunteers in the national response to HIV and AIDS. The report looks at all the phases of the project, from country selection, capacity building, training and monitoring and evaluation. The document also assesses the UN support to GIPA in South Africa

Telling our stories : children deal with loss, grief and transition

SIMMONDS, Felly Nkweto

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This book is the product of a psychosocial project in Zambia with a group of orphaned and vulnerable children. It contains the children's own stories of how they have coped with bereavement and loss, and caring for dying or ill parents. As well as stories and artwork by the children, it includes practical tips and information about the grieving process and how to help children through emotionally difficult times

The European coalition of positive people (ECPP)

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This is the website of a self-help organisation of, by and for people living with HIV and AIDS and hepatitis C, working in Europe, Malawi, Mozambique and Uganda to promote patient involvement in the development of public policy, delivery and monitoring of services

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