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Capacity building in network organisations : experiences from and practical guidelines for HIV and other networks

SLUIJS-DOYLE, José
November 2009

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This report assesses seven capacities of organisations of people living with HIV and other HIV network organisations to see what makes a well-functioning network. These capacities are: involvement and accountability; partnership alliances; leadership; knowledge and skills; internal communication; impact, outputs and external communication; and management and finance. The report looks at four network organisations in Eastern and Southern Africa, with secondary research drawn from networks in Bangladesh, Nepal and India. The findings and recommendations cannot be applied universally to capacity strengthening in all network organisations, but need to be adapted to the context of each particular group

UNESCO guidelines on language and content in HIV- and AIDS-related materials

UNITED NATIONS EDUCATIONAL, SCIENTIFIC AND CULTURAL ORGANIZATION (UNESCO)
January 2006

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This document contains guidelines on the use of language and content in HIV- and AIDS-related documents and contexts. As stigma and discrimination are often attached to the disease, the use of culturally-sensitive and appropriate terminology and ethical considerations in the production of materials are vital. Contains seven tables addressing commonly used terminology; stigmatising terms and expressions; culturally sensitive language; precision and differentiation of certain terms; cultural issues and practices; audio and visual content. Table 5 presents some specific examples. Each problematic term or approach is briefly discussed and provided with an alternative/preferred substitute. These guidelines are an essential tool for anyone working in the field of HIV and AIDS

Getting the message across : the mass media and the response to AIDS

JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
December 2005

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The mass media have the potential to provide a platform for discussion, communication and education on HIV and AIDS, giving a voice to people living with HIV and AIDS (PLWHA), challenging stigma and discrimination, lobbying policy makers and building partnerships and capacity through sharing and transferring skills and expertise. However, mass media can also disseminate misleading messages, while HIV/AIDS communication competes with other topics for broadcasting time and audiences. This report presents three case studies of effective and creative use of the media in South Africa: Soul City and Soul Buddyz adopt an 'edutainment' approach, aiming both to educate and entertain; the Community Health Media Trust produces a series of programmes addressing issues concerning people with HIV/AIDS; Takalani makes television and radio programmes, to encourage small children to develop self-esteem, offer positive models and destigmatise PLWHA. Detailing the lessons learned from these experiences, the report looks at how target audiences are chosen, how partnerships are formed, how topics and ideas are developed and what ethical issues arise

Disentangling HIV and AIDS stigma in Ethiopia, Tanzania and Zambia

NYBLADE, Laura
et al
2003

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This report explores the causes, manifestations and consequences of HIV and AIDS related stigma in sub-Saharan Africa. Based on a study in Ethiopia, Tanzania and Zambia, it acknowledges stigma as complex, caused by incomplete knowledge, fears of death and disease and sexual transmission. Stigma is also influenced by socio-economic status, age and gender. The report also discusses in detail how people living with HIV react to stigma, and also how they and their families/ friends develop strategies to cope with stigma. Recommendations include the need to provide safe spaces to discuss the values and beliefs about sex, morality and death, find a common language to talk about stigma and ensure a contextually appropriate and ethically responsible role for people living with HIV

VIH/sida en la sociedad de la información

CABRERA, Marcelino
2003

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The communities of people living with HIV/AIDS are particularly active in the Network. The activity of these communities has not only served to support themselves, but has also made a contribution to immunologists. After exposing some elements of the relation of these communities and Internet throughout the last years, this case study observes how the use of the Internet contributes to improve the quality of life of patients. There is an emphasis on the influence of the use of the Internet in the management of side effects caused by treatments, subsequent use in doctor-patient relations and, concretely, in the process of therapeutic co-decision

Making a hero book : a guide for facilitators

MORGAN, Jonathan
2003

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This manual describes one of the tools used in "memory work", an approach to helping families and communities cope with HIV and AIDS. Through a series of art exercises and storytelling, children are encouraged to identify their heroes or role models. This process should help children affected by HIV/AIDS to cope with emotions (sadness, fear, anger), and to develop resilience and a positive approach to life. Through the process of developing a book, children are also encouraged to see themselves as heroes, to rely on their strengths and maximise their potential to overcome the problems they might encounter

HIV/AIDS : a resource for journalists

SOUL CITY INSTITUTE FOR HEALTH AND DEVELOPMENT COMMUNICATION
et al
2002

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A consice handbook to help journalists cover HIV/AIDS in an effective and responsible manner. Provides South African-based contacts, websites and basic information on a wide range of HIV-related issues

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