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The need for a rehabilitation model to address the disparities of public healthcare for people living with HIV in South Africa

CHETTY, Verusia
HANASS-HANCOCK, Jill
June 2015

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This article advocates for the development and implementation of a model of care to guide rehabilitation of people living with HIV in South Africa. The paper begins by presenting the emerging evidence of rehabilitation in the context of HIV, and goes on to identify appropriate steps to develop a model of care based on this that would be applicable to South Africa

African Journal of Disability 4(1), Art. #137

A home-based rehabilitation intervention for people living with HIV and disability in a resource-poor community, KwaZulu-Natal : study protocol for a randomized controlled trial

COBBING, Saul
HANASS-HANCOCK, Jill
MYEZWA, Hellen
2015

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In this paper, the researchers develop a needs-based home-based rehabilitation programme for people living with HIV in order to improve their quality of life and functional ability. The study aims to  provide rehabilitation professionals and researchers with evidence that can be utilised to improve existing rehabilitation interventions for people living with HIV.

The paper outlines a randomised control trial to test the programme, to be conducted at a public hospital in KwaZulu-Natal, South Africa. The trial will assess the participants’ quality of life, perceived level of disability, functional ability and endurance

Trials 16:491

The challenge of HIV : social stigma or disability?

MCTIGUE, Peter
November 2010

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"The nature of discrimination against people living with HIV and with AIDS ('PLHA') is rooted in deeper stigmatisation than discrimination against other groups. Reasons for this include the association of HIV/AIDS with behaviours that may be considered socially unacceptable by many people. To combat such discrimination, HIV is deemed to be a 'disability' under the Equality Act 2010. Whilst this protection has been welcomed by various activists and policy groups within the field, it will be argued that the decision to classify HIV as a disability is an inadequate response to the unique and multi-faceted discrimination faced by PLHA. To achieve this this article will examine the history of the virus; current epidemiology within the UK; the extent to which HIV accords with traditional models of disability and the definition employed by the Equality Act 2010; and finally, the manner in which HIV is socially constructed and how this has compounded discrimination against PLHA"
5 Web JCLI

Data availability on men's involvement in families in sub-Saharan Africa to inform family-centred programmes for children affected by HIV and AIDS

HOSEGOOD, Victoria
MADHAVAN, Sangeetha
June 2010

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This article describes the availability of data about men and families, in particular fathers, in sub-Saharan African surveys and longitudinal population cohorts. To date, there has been limited research to examine men's role in providing emotional and material support and protection for children and families affected by HIV and AIDS, however increasing interest in family-oriented interventions around HIV and AIDS mean that such information needs to be collected

Family-based HIV prevention and intervention services for youth living in poverty-affected contexts : the CHAMP model of collaborative, evidence-informed programme development

BHANA, Arvin
et al
June 2010

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The Collaborative HIV Prevention and Adolescent Mental Health Program (CHAMP) is a family-focused, evidence-based intervention that has been tested in low-income contexts in the US, Caribbean and South Africa. This paper gives a description of the theoretical and empirical bases of the development and implementation of CHAMP in the US and South Africa

HIV, disability and rehabilitation : considerations for policy and practise

HEALTH ECONOMICS AND HIV/AIDS RESEARCH DIVISION (HEARD)
January 2010

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This issue brief considers the links between HIV and disability - that people with disabilities are among the key populations at high risk to exposure to HIV, and that people living with HIV may develop impairments and disabilities as a result of the disease. It anticipates an increased demand for rehabilitation services in Eastern and Southern Africa, given the improved access to HIV treatments and high prevalence of people living with HIV in the region, and warns that many in areas services are already stretched and resource-poor, so may struggle to cope with greater demand. The brief focuses on: issues regarding the definition of disability; implications for rehabilitation services; and considerations for disability grants

HIV, disability and discrimination : making the links in international and domestic human rights law

ELLIOTT, Richard
UTYASHEVA, Leah
ZACK, Elisse
November 2009

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This article looks at the links between HIV and AIDS and disability; gives a brief overview of how both are treated in international human rights law; and looks at some of the ways in which national anti-discrimination laws reflect the links between HIV and AIDS and disability, with representative examples from various countries. The conclusions and recommendations suggest how future collaborations between HIV and disability rights activists might advance human rights at the international level, for example by making use of the UN Convention on the Rights of Persons with Disabilities

Putting episodic disability into context : a qualitative study exploring factors that influence disability experienced by adults living with HIV/AIDS

O'BRIEN, Kelly K
et al
November 2009

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"An increasing number of individuals may be living with the health-related consequences of HIV and its associated treatments, a concept we term disability. However, the context in which disability is experienced from the HIV perspective is not well understood. The purpose of this paper is to describe the contextual factors that influence the experiences of disability from the perspective of adults living with HIV"

Special theme on HIV and disability : time for closer bonds

HEIDARI, Shirin
KIPPAX, Susan
November 2009

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This is the editorial to a thematic secion of JIAS on HIV and disability. "With the success of antiretrovirals and increased access to this lifesaving treatment, the life expectancy of people living with HIV has been substantially increased and, in many instances, is comparable to that of the general population. However, HIV infection, as well as its treatment, can cause physical, psychological or social disabilities that prevent people living with HIV from full and equal participation in society. At the same time, there is evidence that people with disabilities are at greater risk of contracting HIV. Although more attention is being paid to these overlapping fields, the field of HIV and disability remains largely overlooked"

"I washed and fed my mother before going to school" : understanding the psychosocial well-being of children providing chronic care for adults affected by HIV/AIDS in Western Kenya

SKOVDAL, Morten
OGUTU, Vincent O
August 2009

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This paper presents three case studies of young people each of whom is a primary caregiver for a relative living with HIV. They are drawn from a study in Western Kenya of how well children cope with the challenges of chronic care and the psycho-social impact it has on them

Disability and HIV policy brief

JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
WORLD HEALTH ORGANIZATION (WHO)
OFFICE OF THE HIGH COMMISSIONER FOR HUMAN RIGHTS (OHCHR)
April 2009

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This policy brief discusses the actions needed to increase the participation of persons with disabilities in the response to HIV and to ensure that they have access to HIV services which are both tailored to their diverse needs and equal to the services available to others in the community. Recommendations of actions for governments, civil society and aid agencies are provided, having been defined in consultation with a broad range of stakeholders including people living with HIV and persons with disabilities. An example from South Africa is highlighted. This document is beneficial for anyone working in disability and development with HIV and AIDS

Inspiring futures : learning from memory work in Africa

DUNN, Alison
HAMMOND WARD, Sarah
2009

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This learning paper looks at the experiences of applying memory work as part of broader strategies to mitigate the impact of HIV and AIDS in five African countries. It explores how six NGOs in sub-Saharan Africa established memory work as a key component of their community-based HIV programmes and draws on the experience of people living with HIV and AIDS, children and young people who participated in the initiative, partner organisations' own learning and analysis and the end of project evaluation report

Teachers living with HIV

UNAIDS Inter-Agency Task Team (IATT) for Education
2008

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This briefing note considers teachers living with HIV and their role in HIV education and in countering stigma and discrimination, as well as the need for governments to introduce measures to support them and thus mitigate the impact of HIV on the education system

Memory work : which way now?

HEALTHLINK WORLDWIDE
2008

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This learning paper considers how memory work makes a difference in people’s lives, how issues around sustaining and scaling up the approach are important to its continuation, and why, even with increased access to antiretroviral treatment, memory work still remains vital

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