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Intellectual property rights and access to ARV medicines : civil society resistance in the global south|Brazil, Colombia, China, India, Thailand

REIS, Renata
TERTO, Veriano Jr
PIMENTA, Maria Cristina Pimenta
Eds
2009

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This book looks at "...the recent history and the many struggles related to advocacy for access to [antiretroviral] medicines of engaged civil society. Through the experiences of five middle-income countries - Brazil, China, Colombia, India, and Thailand." It presents "...the perspective of local civil society organisations about the national impact of intellectual property protection and access to medications. "These five countries were chosen due to their accumulated experience in this field, their capacity to produce generic medication, their activist efforts, and the exchange of ideas and information that already exists between them"

The essentials of antiretroviral therapy for health care and program managers

HOPE, Ruth
ISRAEL, Ellen
April 2007

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This book provides health care workers and mangers with information and practical guidance relating to antiretroviral therapies (ART). It also considers wider care and treatment issues such as; opportunistic infections, the integration of ART with antenatal and midwifery services, the particular needs of children and young people, support relating to nutrition, spiritual needs, psycho-social and economic issues. In addition, the need for community level support to help with adherence to treatment and address stigma and discrimination are also considered, as is end-of-life care for people whose disease does not respond to treatment

UNAIDS practical guidelines for intensifying HIV prevention : towards universal access

JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
2007

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These practical guidelines are designed to help policy makers and planners to create an effective national response to HIV prevention, by ensuring that their response matches the epidemic dynamics and social context within their country and the populations who remain most vulnerable to and at risk of HIV infection. The guidelines encourage countries to know the national and local epidemiological scenarios and their current response; to match and prioritise their response; to set ambitious, realistic and measurable prevention targets; to tailor prevention plans to local epidemic scenarios and to use and analyse strategic information

Treatment literacy : empowering communities to access AIDS treatment

DUNN, Alison
October 2006

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This paper explores the contribution of information and communication strategies to universal access to anti-retroviral treatment. It suggests that people taking antiretroviral drugs and their supporters need to understand new and complex ideas around drugs, side effects, nutrition and positive living. Treatment literacy aims to help individuals and communities understand why ARV treatment is needed, and what it can and cannot do. Effective treatment literacy, developed by or with people living with HIV and AIDS and those taking ART, can lead to improved health outcomes, better adherence to drug regimes and higher uptake of voluntary counselling and testing. Current resources and community capacity to understand and support antiretroviral therapy are not sufficient

Africa's orphaned and vulnerable generations : children affected by AIDS

UNITED NATIONS CHILDREN'S FUND (UNICEF)
August 2006

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This is an update of an earlier report 'Africa's orphaned generations' (2003) which incorporates new and refined estimates of the number of children orphaned in sub-Saharan Africa and the impact of AIDS and orphaning. While the situation is complex, this report provides information on the circumstances of children affected by the AIDS epidemic with an aim to encouraging action

Evaluating Stepping Stones : a review of existing evaluations and ideas for future M&E work

WALLACE, Tina
June 2006

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This publication aims to review monitoring and evaluation activities, methodologies and findings around the Stepping Stones (SS) approach. Over the last ten years, Stepping Stones has been used by many NGOs as an effective tool for HIV prevention, gender empowerment, community mobilisation and promotion of PLWHA rights. However, monitoring and evaluation documentation on SS is sparse and does not reflect the wealth of learning about the methodology. Key findings show that SS helps improve communication about health issues and supports behaviour changes, although evidence that it has led to a decline in HIV or AIDS incidence is less clear. The report calls for well-designed and systematic monitoring and evaluation activities, and for a strategic dissemination of findings and monitoring and evaluation data

Starting to do memory work : a guide to the stages of implementation

WARD, Nicola
HEALTHLINK WORLDWIDE
2006

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This brief guide is based on the experience of the National Community of Women Living with HIV/AIDS (NACWOLA) and initial experiences of the International Memory Project. It will be useful for non-governmental organisations and community-based organisations interested in starting memory work

Living on the outside : key findings and recommendations on the nature and impact of HIV/AIDS-related stigma

HEALTH AND DEVELOPMENT NETWORKS (HDNET)
AIDS-CARE-WATCH CAMPAIGN
2006

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This publication presents an overview of discussions, evidence and proposals contributed to the Stigma-AIDS eForurm by both experts and people living with HIV and AIDS, and moderated by Health and Development Networks (HDNet). Three major areas are covered: HIV stigma and place, including the work place, health care services and religious settings; HIV stigma and people living with HIV/AIDS, addressing self-stigma and injection drug users; HIV stigma and society, with a focus on the role of the media. Each topic includes a brief commentary and sets out specific recommendations. It is aimed at individuals, organisations and policy makers willing to learn about practical approaches to reduce HIV/AIDS-related stigma

2006 report on the global AIDS epidemic

JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
2006

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This annual report takes an overall look at the global AIDS epidemic. Provides an impact analysis of AIDS on populations at risk and civil society. Looks at effective ways to prevent, control and treat the disease. Indicates how to improve allocation and use of financial resources, design and implement effective national policies and approach the response from a strategic perspective rather than in terms of crisis management. Annexes include country profiles, essential statistics and country progress indicators

Getting the message across : the mass media and the response to AIDS

JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
December 2005

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The mass media have the potential to provide a platform for discussion, communication and education on HIV and AIDS, giving a voice to people living with HIV and AIDS (PLWHA), challenging stigma and discrimination, lobbying policy makers and building partnerships and capacity through sharing and transferring skills and expertise. However, mass media can also disseminate misleading messages, while HIV/AIDS communication competes with other topics for broadcasting time and audiences. This report presents three case studies of effective and creative use of the media in South Africa: Soul City and Soul Buddyz adopt an 'edutainment' approach, aiming both to educate and entertain; the Community Health Media Trust produces a series of programmes addressing issues concerning people with HIV/AIDS; Takalani makes television and radio programmes, to encourage small children to develop self-esteem, offer positive models and destigmatise PLWHA. Detailing the lessons learned from these experiences, the report looks at how target audiences are chosen, how partnerships are formed, how topics and ideas are developed and what ethical issues arise

Civil society involvement in rapid assessment, analysis and action planning (RAAAP) for orphans and vulnerable children : an independent review

GOSLING, Louisa
July 2005

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This review explores civil society organisations' experiences of the Rapid Assessement, Analysis and Action Planning (RAAAP) process - an initiative launched by USAID, UNICEF, UNAIDS, and the World Food Program - for orphans and other vulnerable children in November 2003. It comprises of a review of where civil society organisations were involved and where they were not and an overview of the process of their invovlement. It also offers recommendations for existing and future RAAAPs to ensure greater invovlement of civil society organisations, and includes individual reports on the 16 sub-Saharan African countries invovled in the first round of RAAAP in 2004

Building bridges with SIPAA : lessons from an African response to HIV and AIDS

DUNN, Alison
HEALTHLINK WORLDWIDE
2005

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This document examines the key lessons from the Support to the International Partnership against AIDS in Africa (SIPAA) programme implemented between 2001 and 2005 in nine African countries. The programme's main focus was on African leadership and ownership, involvement and participation of people living with or affected by HIV and AIDS and mobilisation of national and regional partners. Lessons learned include: meaningful involvement of people living with HIV and AIDS; supporting associations according to potential rather than proven track record; networks support; support for local leaders; making connections through National AIDS Councils; building strong partnerships; sharing information and knowledge across Africa; making the most of African skills and resources

HIV-related stigma, discrimination and human rights violations: case studies of successful programmes

JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
2005

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This report is a collection of case studies of projects, programmes and activities around the world that have used innovative methods to challenge HIV-related stigma, discrimination and human rights violations. The case studies are grouped under stigma-reduction approaches; anti-discrimination measures; and human rights and legal approaches. They are followed by some cross-project/activity analysis that identifies common elements and a number of key principles of success, each of which offers an entry point for innovative and potentially effective work

More than words? action for orphans and vulnerable children in Africa : Monitoring progress towards the UN Declaration of Commitment on HIV/AIDS

YOUNG, Helen
Ed
2005

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This qualitative research looks at how far the rights and needs of orphans and vulnerable children are being met in four of the worst-affected countries in sub-Saharan Africa. Based on surveys and focus group discussions with children, parents, caregivers and officials in Ethiopia, Mozambique, Uganda and Zambia, this report offers an insight into how far commitments are being met and provides practical recommendations for action at both a national and an international level

UNESCO's strategy for HIV/AIDS prevention education

UNITED NATIONS EDUCATIONAL, SCIENTIFIC AND CULTURAL ORGANIZATION (UNESCO). International Institute for Educational Planning (IIEP)
2004

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Describes the guiding principles and core tasks which will be the focus of UNESCO's HIV/AIDS prevention education work for 2004-2008 (to be revised as appropriate). Sets out the context for these efforts in terms of the nature and extent of the pandemic, and the role of education in combatting ignorance and stigma

Breaking the silence : memory books and succession planning. The experience of NACWOLA and Save the Children UK in Uganda

WITTER, Sophie
2004

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This report highlights the work of National Community of Women Living with HIV/AIDS (NACWOLA) in Uganda and Save the Children UK in supporting parents and children to develop memory work. Memory books are a unique strategy in supporting the development of children's ability to cope when one or more of their parents is living with HIV, through improving communication within the family and supporting greater planning for the future of children within the family and community. The report outlines the successes and challenges of memory books and succession planning in Uganda, looking at the impact of the project on families, and NACWOLA's organisational development

Stepping back from the edge : the pursuit of antiretroviral therapy in Botswana, South Africa and Uganda

JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
2004

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This report looks at what is being done to challenge the pace of progress on access to antiretroviral medicines in three very different African countries - Botswana, South Africa and Uganda. It describes who is driving these initiatives at grass-roots level and how. It offers insights and draws on lessons from firsthand experiences that can help those already working towards better access to antiretrovirals, and encourages others to embark on similar initiatives. It is intended for all those with an interest in this issue, from policy- and decision-makers with the power to create a favourable environment for antiretroviral treatment, to those working on the front line in health services, NGOs and AIDS service organizations, as well as those living with HIV, whose role in the battle for wider access is vital

Involvement of people living with HIV/AIDS in treatment preparedness in Thailand : case study

KUMPHITAK, Aree
KASI-SEDAPAN, Siriras
WILSON, David
et al
2004

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People living with HIV/AIDS (PLHA) in Thailand are increasingly encouraged to work in partnership with NGOs to improve access to disease prevention and treatment provision. This case study outlines the impact of this collaboration over a period of four years. PLHA have been directly involved in lobbying and advocacy, helping make ART more widely available, but also promoting prevention and treatment of opportunistic infections, focusing on the use of co-trimoxazole. Their involvement as co-providers in care has positively changed the attitude of health care staff towards HIV/AIDS patients. The study concludes that a coordinated collaboration between the public health system, NGOs and PLHA would have important spin-offs for both health care providers and PLHA themselves

2004 report on the global AIDS epidemic

WOODS, Sandra
Ed
2004

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This annual report takes an overall look at the global AIDS epidemic. It considers the impact of HIV and AIDS on people and societies and includes a particular focus on the orphans and vulnerable children. It takes a further look at scaling up HIV prevention initiatives, with considerations about the threat of HIV to young people. There is a look at treatment, care and support for people living with HIV. It also takes into account the notion of human rights and protection. There are finally some considerations of the financing of responses to the crisis, and the need to coordinate national responses to HIV and AIDS. There is a table fo useful information on country specific estimates and data relating to HIV and AIDS

Palliative care in Sub-Saharan Africa : an appraisal

HARDING, Richard
HIGGINSON, Irene J.
2004

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This review identifies and appraises activities, opportunities and evidence of the status of palliative care in Africa. It reviews the context of palliative care in Sub-Saharan Africa, the role of palliative care in HIV management, including antiretroviral therapy, current models of care and issues of quality assurance and offers recommendations for practitioners, funders, policy makers and researchers

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