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Guidelines on best practice for persons living with deafblindness

ZWANENBURG, Aline
TESNI, Sian
June 2019

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These guidelines were developed to advance understanding of the needs and challenges of persons living with deafblindness and to promote their inclusion in society. The target audience are members of the CBM Federation with particular interest to, among others staff at Regional and Country Offices, Member Associations, co-workers, partners (including governments, education agencies, public and private service providers, and professionals), as well as persons living with deafblindness and their families.

 

Part One gives an overview of the impact deafblindness can have on an individual’s development and learning. It emphasises the need for a continuum of services and programmes, including early detection, referral, educational input, and family support.

 

Part Two outlines components of education and rehabilitation programmes. It provides guidelines on communication, holistic assessment procedures, assistive devices, advocacy and self-determination, transition planning, and discusses the importance of on-going regular access to health and therapeutic services.

 

Part Three considers how to improve and expand existing services through the provision of on-going personnel capacity building, and through networking with key stakeholders, to consider intersecting issues and service expansion. Each section includes an overview of the topic explored, some case studies and considerations for service implementation.

India inclusion summit 2018

March 2019

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India Inclusion Summit is a community driven initiative that aspires to build an Inclusive India by 2030. It is an annual event that began in 2012 to create awareness about disabilities and the need for Inclusion. The event brings together thought leaders and unsung heroes from the field of disability and inclusion to deliberate, discuss and drive change in our society.

 

Videos of some of the presentations are available including:

My Journey and ‘Deaf gain’ing an accessible India:  Vaibhav Kothari (18 mins), signed

You’re not just special. You’re Special Edition:  SwarnaLatha (11 mins)

Don’t let disability come in the way of things you love: Zoyeb Zia (10 mins), signed

The Adventure of Autism and quest to serve each other: Rupert Isaacson (20 mins), signed

Making a billion people read despite their disabilities: Brij Kothari (21 mins), signed

The ability needed to be whoever you want to be: Devika Malik (13 mins), signed

Everyone has something to give: Suchitra Shenoy (11 mins), signed

From being inclusive to doing acts of inclusion: Yetnebersh Niguissie (12 mins), signed

Finding your missing piece: Jerry White (18 mins), signed

Listening to the voice within that opens infinite possibilities: Rajni Bakshi (15 mins), signed

Being a mother is the most satisfying role: Suhasini Maniratnam (21 mins) signed

 

 

Towards independent living: Collecting examples from Europe

ANGELOVA-MLADENOVA, Lilia
March 2019

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This Collection is a joint initiative of the European Network on Independent Living (ENIL) and the European Disability Forum (EDF). It features examples from different EU Member States, which to a different extent facilitate the right to live independently in the community.

The examples are divided into four areas, presented in different chapters:

  • Legislation and funding: State Funded Peer-Counselling – Estonia; Direct Payments – Ireland.
  • Community-based support: Peer-Counselling for women with disabilities – Austria; Supported living for adults with intellectual disabilities – Croatia; Supported Decision-Making – The Czech Republic; Mobile Mental Health Units – Greece; Personal Assistance for People with Complex Disabilities – Sweden .
  • Involvement of disabled people: Co-Production in Social Care – United Kingdom; Participation of Organisations of People with Disabilities – Italy
  • Self-advocacy: Self-Advocacy of Disabled People – Romania

 

Individualised funding interventions to improve health and social care outcomes for people with a disability: a mixed-methods systematic review. Campbell Systematic Reviews 2019:3

FLEMING, Padraig
et al
January 2019

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This Campbell systematic review examines the effects of individualised funding on a range of health and social care outcomes. It also presents evidence on the experiences of people with a disability, their paid and unpaid supports and implementation successes and challenges from the perspective of both funding and support organisations.

 

This study is a review of 73 studies of individualised funding for people with disabilities. These include four quantitative studies, 66 qualitative and three based on a mixed-methods design. The data refer to a 24-year period from 1992 to 2016, with data for 14,000 people. Studies were carried out in Europe, the US, Canada and Australia.

 

DOI 10.4073/csr.2019.3

WHO consolidated guideline on self-care interventions for health: sexual and reproductive health and rights

WORLD HEALTH ORGANISATION (WHO)
2019

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SELF-CARE is the ability of individuals, families and communities to promote health, prevent disease, maintain health, and to cope with illness and disability with or without the support of a health-care provider. 

The purpose of this guidance is to develop a peoplecentred, evidence-based normative guideline that will support individuals, communities and countries with quality health services and self-care interventions, based on PHC (Primary Health Care) strategies, comprehensive essential service packages and people-centredness. The specific objectives of this guideline are to provide:

• evidence-based recommendations on key public health self-care interventions, including for advancing sexual and reproductive health and rights (SRHR), with a focus on vulnerable populations and settings with limited capacity and resources in the health system

• good practice statements on key programmatic, operational and service-delivery issues that need to be addressed to promote and increase safe and equitable access, uptake and use of self-care interventions, including for advancing SRHR.

Assistive technology and people: a position paper from the first global research, innovation and education on assistive technology (GREAT) summit

DESMOND, Deirdre
et al
May 2018

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"Assistive technology (AT) is a powerful enabler of participation. The World Health Organization’s Global Collaboration on Assistive Technology (GATE) programme is actively working towards access to assistive technology for all. Developed through collaborative work as a part of the Global Research, Innovation and Education on Assistive Technology (GREAT) Summit, this position paper provides a “state of the science” view of AT users, conceptualized as “People” within the set of GATE strategic “P”s. 

Disability and Rehabilitation: Assistive Technology 
Volume 13, 2018 - Issue 5: Position Papers from the First Global Research, Innovation, and Education on Assistive Technology (GREAT) Summit

This issue has 7 papers from the GREAT summit

https://doi.org/10.1080/17483107.2018.1471169

Disability Equality: In Theory and Practice. Social Inclusion, volume 6, issue 1 (2018)

PRIESTLEY, Mark
WADDINGTON, Lisa
Eds
March 2018

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This special issue of this journal includes the following papers:

  • Achieving Disability Equality: Empowering Disabled People to Take the Lead
  • Dis-Equality: Exploring the Juxtaposition of Disability and Equality
  • Leveraging Employer Practices in Global Regulatory Frameworks to Improve Employment Outcomes for People with Disabilities
  • Equality of What? The Capability Approach and the Right to Education for Persons with Disabilities
  • Reasonable Accommodation as a Gateway to the Equal Enjoyment of Human Rights: From New York to Strasbourg
  • Disability, Access to Food and the UN CRPD: Navigating Discourses of Human Rights in the Netherlands
  • Rehabilitation as a Disability Equality Issue: A Conceptual Shift for Disability Studies?
  • Inclusions and Exclusions in Rural Tanzanian Primary Schools: Material Barriers, Teacher Agency and Disability Equality
  • Education, Work, and Motherhood in Low and Middle Income Countries: A Review of Equality Challenges and Opportunities for Women with Disabilities
  • Social Inclusion through Community Living: Current Situation, Advances and Gaps in Policy, Practice and Research


 

Livret de formation sur l'approche personnalise - Centree sur la personne a destination de professionel-le-s de services sociaux

CHANTRY, Nadine
RELANDEAU, Audrey
January 2018

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Ce Livret de Formation sur « l’approche personnalisée - centrée sur la personne » à destination des professionnel-le-s des services sociaux est le produit d’une formation réalisée par Humanité & Inclusion (nouveau nom de Handicap International - HI) en Algérie, dans le cadre du projet « L’éducation des enfants en situation de handicap au cœur des dynamiques de développement territorial au Maghreb ». Cette formation avait pour objectif de renforcer les capacités du personnel de la Direction de l’Action Sociale de la Solidarité de la ville d’Oran à accueillir et accompagner les personnes handicapées. Ce livret propose de questionner les postures et la qualité de la relation entre un professionnel de service social et un usager, et ce dans un objectif d’autonomisation de la personne accompagnée. Elle permet aussi une introduction au processus d’accompagnement social personnalisé. Il se compose d’une fiche pédagogique, d’un agenda détaillé et son contenu qualitatif, avec des propositions d’animations et des outils nécessaires à l’animation de cette formation.

Disability, family and identity

SCHNEIDER, Cort
October 2016

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Many people with disabilities struggle with issues that relate to identity development.  Many people with disabilities find it difficult to develop a positive sense of self. There is also no question that familial relationships play a significant part in the process of identity construction for people with disabilities. Thus, it is important to examine how family relationships influence the process of identitydevelopment for people with disabilities. Conversely, it relevant to explore how a person’s identity development can impact his or her relationship with family members. This article employs an autoethnographic approach to research in order to examine issues that relate to disability, identity and family. It elucidates the complex nature of family scripts and identity. In addition this paper contends that the process that an individual goes through in order to “come to terms” with a disabled identity, can transform the relationships that an individual has with various family members.

 

Considering Disability, Vol.1, Issue 3&4

DOI: 10.17774/CDJ1.32016.2.20575874

The functions of Disabled People’s Organisations (DPOs) in low and middle-income countries: A literature review

YOUNG, Rebekah
REEVE, Matthew
GRILLS, Nathan
October 2016

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"The aim of this study was to review peer-reviewed literature on the roles and functions of Disabled Peoples’ Organisations (DPOs) in low and middle-income countries, and their outputs and outcomes for people with disabilities. Online databases were searched without date or language limiters (Medline, CINAHL, Scopus, Embase and Cochrane), using a combination of two key word search strategies. Eleven studies were selected for inclusion in this review on the basis of predetermined inclusion and exclusion criteria. Included studies underwent quality assessment using the Critical Appraisal Skills Programme (CASP) and Downs and Black’s criteria for quality assessment. Data for thematic analysis was then grouped under the broad themes of: participation and factors that facilitate participation; development of partnerships and connections; and self-development and self-help"

Disability, CBR & Inclusive Development, Vol 27, No 3 (2016)

 

 

Google & Motivation collaboration

MOTIVATION
April 2016

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A 24 month collaboration between Google.org and Motivation to develop and test a model for using 3D printing to create customised postural support devices to enable wheelchairs to be adapted and fitted to the unique needs of the wheelchair user is announced. An integral part of the project is the piloting of a ‘Print Pod’ overseas, which will act as a temporary wheelchair clinic, kitted out with a 3D printer and raw material.

The 2030 agenda : the inclusion of people with disabilities : introductory toolkit

INTERNATIONAL DISABILITY ALLIANCE (IDA)
INTERNATIONAL DISABILITY AND DEVELOPMENT CONSORTIUM (IDDC)
2016

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This toolkit provides a general overview of the 2030 Agenda and focuses on practical examples on how to participate in the national implementation of the SDGs

 

​Note: this resource is available in MS PowerPoint, Adobe PDF and text only in MS Word from the link above

The 2030 agenda : the inclusion of people with disabilities : comprehensive guide

INTERNATIONAL DISABILITY ALLIANCE (IDA)
INTERNATIONAL DISABILITY AND DEVELOPMENT CONSORTIUM (IDDC)
2016

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This resource is an in-depth document that provides a comprehensive guide on all of the sections of the 2030 Agenda and how they relate to disability and people with disabilities. The guide begins by presenting the references in the Sustainable Development Goals (SDGs) to disability and inclusion, and analysing the background of the SDGs and links to teh UNCRPD.and other international movements involving people with disabilities. This further reinforces that inclusion of people with disabilities is not only an international obligation, but also a necessity if the SDG targets are to be met. Once this is established, the guide outlines a number of suggestions to ensure that people with disabilities are included in the SDG processes, including the high level political forum

 

Note: this resource is available in MS PowerPoint, Adobe PDF and text only in MS Word from the link above

 

Ensuring that no one is left behind. High-level political forum (HLPF) 2016 position paper by Persons with Disabilities.

INTERNATIONAL DISABILITY ALLIANCE (IDA)
2016

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This position paper states that "only by utilising the UN Convention on the Rights of Persons with Disabilities (CRPD) as a guiding framework in implementing the SDGs, will it be ensured that exclusion and inequality are not created or perpetuated". Proposals are made and background presented on the topics of: the unfinished work of the MDGs; realising, through an enabling environment, the full potential of persons with disabilities; working together to protect our planet; and reaching the farthest behind first

Training social facilitators in personalised social support: Trainers’ booklet

LAFRENIERE, Annie
RELANDEAU, Audrey
KIANI, Shirin
December 2015

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This booklet is the gateway for a training kit on personalised social support (PSS). The aim of this training course is to train social facilitators either in the personalised approach only, or in how to carry out a complete PSS process. The aim of this booklet is therefore to impart the methodological and educational components required to use the content of this training course to Handicap International’s (now Humanity and Inclusion) future PSS trainers. It therefore takes another look at the entire content of the PSS training course, explains the educational choices, presents the modules and other teaching tools created, and above all, provides advice/recommendations for future designers and trainers/facilitators on this theme. Throughout this booklet, internet links provide the reader with quick access to the content of training courses and other relevant resources

Reflecting on education for sustainable development through two lenses : ability studies and disability studies

WOLBRING, Gregor
BURKE, Brigid
May 2013

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This paper presents a critical eye on the practice and purpose of sustainability focused education, and its successes and failures, thus far through two lenses. "One is the lens of disability studies which is the inquiry around the lived reality of disabled people; the other is the lens of ability studies which among others investigates (a) which abilities are seen as essential in a given context; (b) the dynamic of how an ability expectation consensus is reached, if it is reached and (c) the impact of ability expectations. The authors conclude that (a) no consensus has been reached within ESD discourses as to the process of how to identify essential abilities and as to a list of abilities seen as important and (b) that disabled people are invisible in the formal and informal ESD discourse." This paper would be of interest to disabled people, ESD scholars, teachers of ESD in different educational settings, students of ESD training, NGOs involved in ESD as well as policy makers involved in ESD
Sustainability, 5(6)

Study on the situation of indigenous persons with disabilities, with a particular focus on challenges faced with regard to the full enjoyment of human rights and inclusion in development

UNITED NATIONS
February 2013

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"The study reviews the situation of indigenous persons with disabilities in the enjoyment of their human rights. It looks at the main relevant legal standards - the Convention on the Rights of Persons with Disabilities and the United Nations Declaration on the Rights of Indigenous Peoples - and how those standards interact to protect relevant rights. The study examines some areas in which, according to indigenous persons with disabilities, there is discrimination in the enjoyment of rights, such as political participation, access to justice, education, language and culture, and issues specific to indigenous women and children with disabilities. It is concluded that more attention should be paid to the rights of indigenous persons with disabilities"
E/C.19/2013/6

Creating a world as it should be : the power of disabled women activists

MOBILITY INTERNATIONAL USA (MIUSA)
December 2012

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Through interviews with women with disabilities, this video highlights the vision, determination, challenges and recommendations for including women and girls in international development programs. The video documents the power of women leaders with disabilities in their aim to be included in international development programs

Mainstreaming ageing into the post-2015 process

BEALES, Sylvia
March 2012

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This policy brief presents information supporting an accountable, rights-based and age-inclusive post-2015 policy framework that supports people across their life course, and across social, economic and environmental domains. It oulines the core issues, areas for action and related recommendations

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