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The need for a rehabilitation model to address the disparities of public healthcare for people living with HIV in South Africa

CHETTY, Verusia
HANASS-HANCOCK, Jill
June 2015

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This article advocates for the development and implementation of a model of care to guide rehabilitation of people living with HIV in South Africa. The paper begins by presenting the emerging evidence of rehabilitation in the context of HIV, and goes on to identify appropriate steps to develop a model of care based on this that would be applicable to South Africa

African Journal of Disability 4(1), Art. #137

A home-based rehabilitation intervention for people living with HIV and disability in a resource-poor community, KwaZulu-Natal : study protocol for a randomized controlled trial

COBBING, Saul
HANASS-HANCOCK, Jill
MYEZWA, Hellen
2015

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In this paper, the researchers develop a needs-based home-based rehabilitation programme for people living with HIV in order to improve their quality of life and functional ability. The study aims to  provide rehabilitation professionals and researchers with evidence that can be utilised to improve existing rehabilitation interventions for people living with HIV.

The paper outlines a randomised control trial to test the programme, to be conducted at a public hospital in KwaZulu-Natal, South Africa. The trial will assess the participants’ quality of life, perceived level of disability, functional ability and endurance

Trials 16:491

The challenge of HIV : social stigma or disability?

MCTIGUE, Peter
November 2010

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"The nature of discrimination against people living with HIV and with AIDS ('PLHA') is rooted in deeper stigmatisation than discrimination against other groups. Reasons for this include the association of HIV/AIDS with behaviours that may be considered socially unacceptable by many people. To combat such discrimination, HIV is deemed to be a 'disability' under the Equality Act 2010. Whilst this protection has been welcomed by various activists and policy groups within the field, it will be argued that the decision to classify HIV as a disability is an inadequate response to the unique and multi-faceted discrimination faced by PLHA. To achieve this this article will examine the history of the virus; current epidemiology within the UK; the extent to which HIV accords with traditional models of disability and the definition employed by the Equality Act 2010; and finally, the manner in which HIV is socially constructed and how this has compounded discrimination against PLHA"
5 Web JCLI

Greater involvement of people living with HIV

MCCLELLAND, Alex
DE PAUW, Lia
June 2010

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This guide provides practical information for programme level staff in organisations responding to HIV, helping them to define good practice for the meaningful involvement of people living with HIV in programmes and organisations and strategies for developing their capacity

HEARD’s disability and HIV library

HEALTH ECONOMICS AND HIV/AIDS RESEARCH DIVISION (HEARD)
June 2010

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This bibliography contains papers, reports and articles relating to the issue of HIV and AIDS and disability. "These papers reveal findings in relation to the impact of HIV/AIDS on people with disabilities, the disabling effects of HIV/AIDS, sexuality and disability, the attitude and stigma towards disability and interventions in different countries"

Data availability on men's involvement in families in sub-Saharan Africa to inform family-centred programmes for children affected by HIV and AIDS

HOSEGOOD, Victoria
MADHAVAN, Sangeetha
June 2010

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This article describes the availability of data about men and families, in particular fathers, in sub-Saharan African surveys and longitudinal population cohorts. To date, there has been limited research to examine men's role in providing emotional and material support and protection for children and families affected by HIV and AIDS, however increasing interest in family-oriented interventions around HIV and AIDS mean that such information needs to be collected

Family-based HIV prevention and intervention services for youth living in poverty-affected contexts : the CHAMP model of collaborative, evidence-informed programme development

BHANA, Arvin
et al
June 2010

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The Collaborative HIV Prevention and Adolescent Mental Health Program (CHAMP) is a family-focused, evidence-based intervention that has been tested in low-income contexts in the US, Caribbean and South Africa. This paper gives a description of the theoretical and empirical bases of the development and implementation of CHAMP in the US and South Africa

HEARD disability and HIV/AIDS issue and policy brief released

HEALTH ECONOMICS AND HIV/AIDS RESEARCH DIVISION (HEARD)
March 2010

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This article gives an update of HEARD's Disability and HIV/AIDS Project, which has produced an issue brief and a policy brief, for which links to PDFs are provided. The issue brief is entitled: 'HIV, Disability and Rehabilitation'. It looks at the links between HIV and disability and the implications for rehabilitation services and disability support grants in resource poor settings. The policy brief, 'National Response to Disability and HIV in eastern and southern Africa', gives an analysis of the national strategic plans on HIV and AIDS within the region and the largely limited recognition of the need to include people with disabilities

HIV, disability and rehabilitation : considerations for policy and practise

HEALTH ECONOMICS AND HIV/AIDS RESEARCH DIVISION (HEARD)
January 2010

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This issue brief considers the links between HIV and disability - that people with disabilities are among the key populations at high risk to exposure to HIV, and that people living with HIV may develop impairments and disabilities as a result of the disease. It anticipates an increased demand for rehabilitation services in Eastern and Southern Africa, given the improved access to HIV treatments and high prevalence of people living with HIV in the region, and warns that many in areas services are already stretched and resource-poor, so may struggle to cope with greater demand. The brief focuses on: issues regarding the definition of disability; implications for rehabilitation services; and considerations for disability grants

Barriers to sustainable access of children and families to ART centres in rural India : a report on operations research conducted in Maharashtra and Manipur

INDIA HIV/AIDS ALLIANCE
December 2009

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This report identifies barriers that children and families face in accessing anti-retroviral therapy (ART) centres in rural India. The report also seeks to find solutions to these barriers based on an operations research conducted in Maharashtra Pradesh and Manipur. Operations research objectives: * To build an understanding among policy makers of the barriers faced by children and caregivers accessing ART services in rural communities. * To assess and highlight a basic minimum level of standards for ART centres in terms of adequacy, quality and timeliness of support needed. * To explore opportunities for linkages with state and district level departments and/or local self-governing institutions

HIV, disability and discrimination : making the links in international and domestic human rights law

ELLIOTT, Richard
UTYASHEVA, Leah
ZACK, Elisse
November 2009

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This article looks at the links between HIV and AIDS and disability; gives a brief overview of how both are treated in international human rights law; and looks at some of the ways in which national anti-discrimination laws reflect the links between HIV and AIDS and disability, with representative examples from various countries. The conclusions and recommendations suggest how future collaborations between HIV and disability rights activists might advance human rights at the international level, for example by making use of the UN Convention on the Rights of Persons with Disabilities

Putting episodic disability into context : a qualitative study exploring factors that influence disability experienced by adults living with HIV/AIDS

O'BRIEN, Kelly K
et al
November 2009

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"An increasing number of individuals may be living with the health-related consequences of HIV and its associated treatments, a concept we term disability. However, the context in which disability is experienced from the HIV perspective is not well understood. The purpose of this paper is to describe the contextual factors that influence the experiences of disability from the perspective of adults living with HIV"

Special theme on HIV and disability : time for closer bonds

HEIDARI, Shirin
KIPPAX, Susan
November 2009

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This is the editorial to a thematic secion of JIAS on HIV and disability. "With the success of antiretrovirals and increased access to this lifesaving treatment, the life expectancy of people living with HIV has been substantially increased and, in many instances, is comparable to that of the general population. However, HIV infection, as well as its treatment, can cause physical, psychological or social disabilities that prevent people living with HIV from full and equal participation in society. At the same time, there is evidence that people with disabilities are at greater risk of contracting HIV. Although more attention is being paid to these overlapping fields, the field of HIV and disability remains largely overlooked"

Capacity building in network organisations : experiences from and practical guidelines for HIV and other networks

SLUIJS-DOYLE, José
November 2009

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This report assesses seven capacities of organisations of people living with HIV and other HIV network organisations to see what makes a well-functioning network. These capacities are: involvement and accountability; partnership alliances; leadership; knowledge and skills; internal communication; impact, outputs and external communication; and management and finance. The report looks at four network organisations in Eastern and Southern Africa, with secondary research drawn from networks in Bangladesh, Nepal and India. The findings and recommendations cannot be applied universally to capacity strengthening in all network organisations, but need to be adapted to the context of each particular group

Memory work training manual

DENIS, Philippe
et al
September 2009

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This manual is designed to assist in training memory facilitators who will be working with orphans and vulnerable children to support them and strengthen their resillince

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