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Measuring quality of life, safety, and social and family participation of project beneficiaries : the ScoPeO tool

BRUS, Aude
et al
July 2014

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"This guide presents ScoPeO, a tool for measuring changes in living conditions as perceived by beneficiaries once a project is implemented. More specifically, the method serves to evaluate quality of life, perception of safety and participation in society and family life in two phases: before or at the start of the project (baseline survey) and at the end of the project (endline survey). Thus, this guide presents concepts related to quality of life and similar notions, the key phases in the process and provides the tools needed to conduct a study on quality of life. This guide is designed for all Handicap International professionals, and in particular the project managers, operational coordinators and technical coordinators in charge of developing, implementing, monitoring and evaluating projects. Handicap International partners may also find this guide useful"

Report on the implementation of the UN convention on the rights of persons with disabilities (CRPD) by the European Union

THE EUROPEAN UNION
June 2014

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This report covers the period of the entry into force of the Convention on the Rights of Persons with Disabilities (CRPD) for the European Union (EU)  in January 2011 to December 2013. It begins with a brief introduction to the institutions of the EU, and some key legal and structural information. The report then focuses on the key articles of the CRPD (articles 1 to 33) and provides details on the EU's strategy towards implementation, including discussion of the measures taken, and information on the relevant EU legislation. This report would be particularly useful to anyone interested in understanding how the EU has implemented the CRPD so far

Commission Staff Working Document

Brussels, 5.6.2014 , SWD(2014) 182 final

Independent by not alone. Global report on the right to decide

LAURIN-BOWIE, Connie
Ed
June 2014

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Article 12 of the Convention on the Rights of Persons with Disabilities (CRPD) reflects a fundamental shift in thinking: it asserts that with support all people with intellectual disabilities are able to make decisions and have control in their lives. This Global Report presents the perspective of people with intellectual disabilities and our families on the right to decide. Over two years, over 600 self-advocates, family members, disability advocates, and professionals participated in discussions motivated by Inclusion International's Global Campaign on the Right to Decide. Additionally, more than 80 organizations from more than 40 countries worldwide contributed.

Equal access : how to include persons with disabilities in elections and political processes

ATKINSON, Virginia
AZELTON, Aaron
FOGG, Ken
April 2014

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This publication provides governments, civil society and the donor community the requisite tools and knowledge to promote the participation of persons with disabilities in elections and political processes.

It draws on international standards, such as the United Nations Convention on the Rights of Persons with Disabilities, and presents four mutually reinforcing strategies to increase the political participation of persons with disabilities: Empower persons with disabilities and disabled persons' organizations (DPOs) through trainings on technical elections issues as well as organizational and advocacy skills; Support government institutions such as election management bodies and legislatures to create inclusive and accessible legal and regulatory frameworks; Include DPOs in broad-based civil society coalitions, such as election monitoring groups; Assist political parties to conduct meaningful outreach and encourage inclusion of persons with disabilities in leadership positions and as candidates. Good practices from around the world are highlighted throughout the manual.

The executive summary is presented in easy to read format, and the publication is available in plain text for those who use screen readers

Nairobi declaration : inclusive post-2015 development agenda for persons with disabilities in Africa

INTERNATIONAL DISABILITY ALLIANCE (IDA)
et al
March 2014

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The Nairobi declaration calls for a more inclusive post-2015 agenda with a specific demand that development agenda targets and indicators explicitly include persons with disabilities. This document succinctly summarises the issues faced by persons with disabilities in Africa and their specific demands to enable greater inclusion in the post-2015 development agenda. It was adopted by persons with disabilities from Africa, representatives of national, sub-regional and Pan-African disabled people’s organisations, on the 8th of March during the Nairobi conference “Inclusive post 2015 development agenda and UN CRPD in Africa”, organised by the International Disability Alliance in partnership with the International Disability and Development Consortium, UNICEF and the UN Partnership to promote the Rights of Persons with Disabilities

“Inclusive post 2015 development agenda and UN CRPD in Africa”

8 March 2014

Nairobi, Kenya

Accessibility guide to the Human Rights Council for persons with disabilities

OFFICE OF THE UNITED NATIONS HIGH COMMISSIONER FOR HUMAN RIGHTS (UN OHCHR)
February 2014

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This accessibility guide details the different provisions made by the UN Human Rights Council to provide people with disabilities the necessary scope to participate fully and equally in the Council sessions. The guide has two sections: preparing to attend a Council session and accessibility in the Palais de Nations

Perceived needs related to social participation of people with leprosy-related disabilities and other people with disabilities in Cambodia : a qualitative study

HEEREN, Marie-Julie J
KY, Lai
VAN BRAKEL, Wim H
January 2014

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The objective of this study was to describe the similarities and differences in perceived needs related to social participation of persons with leprosy-related disabilities and other persons with disabilities in Cambodia, and to suggest key interventions to promote participation in the community. A cross-sectional study was completed by conducting a pilot-tested, face-to-face semi-structured interviews, with open and closed questions, and focus group discussions to investigate the perceived needs related to social and economic participation in the community. The study found that both groups of people with disabilities have similar needs to improve participation in social and economic life, and the authors suggest that it is best to form multi-disability self-help groups to empower all the affected people and help fight poverty

Disability, CBR & Inclusive Development Journal, Vol 25, No 3

Including orphans and vulnerable children with disabilities in early childhood development programs : technical brief

LEVY, Marcy
MESSNER, Lyn
WERTLIEB, Donald
January 2014

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“This technical brief presents information and guidance on implementing early childhood development (ECD) programmes for young orphans and vulnerable children (OVC) with disabilities and their families. It provides a basic overview of the fundamental elements a program manager should consider to integrate disability positively into ECD programmes and address specific disabilities individually, as needed. This technical brief describes “twin-track” and “triple-track” approaches that promote participation, attention to specific needs, and equal access for OVC with disabilities and their families. It also lists six critical elements for HIV programmes seeking to address the needs of children with disabilities”

Climate change and disaster risk reduction : mainstreaming disability

CHRISTOFFEL BLINDENMISSION (CBM)
2014

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This thematic brief on the sustainable development goals provides key recommendations for the post 2015 goals to mainstream disability in climate change and disaster risk reduction.  It summarises key principles of inclusive climate change and disaster reduction policies and presents a case study of inclusive emergency response in the Philippines after typhoon Hayian

CBM thematic brief : sustainable development goals

A guide for community health workers supporting children with disabilities

ADAMS, Mel
et al
2014

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"This resource is to be used as a guide for Community Health Workers (CHWs) to support parents in promoting the development and independence of their child with neurodevelopmental disabilities...In line with current thinking, this resource places the emphasis on promoting activity and participation in a child’s daily life activities rather than therapies that try to fix ‘the problem’ (Skelton and Rosenbaum, 2010). As such, this manual provides ideas on how to support the child during activities of daily living – taking particular account of their physical and communication abilities and needs – and does not include hands-on rehabilitation techniques that focus on specific impairments. It does however provide guidance on overall management and prevention of further disability. The materials in this manual can be used as the basis for a programme of intervention that progresses through two stages"

Note: As indicated when clicking on the resource link below, the manual is available once contact details are entered or alternatively user can contact mel@maits.org.uk to receive a free pdf copy of this resource

Empowerment and participation : good practices from South & South-East Asia in disability inclusive disaster risk management

BOLTE, Patrick
MARR, Samadhi
SITOMPU, Dewi
et al
2014

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This report presents good practices showing examples of inclusion and active participation of persons with disabilities in disaster risk management. The paper is structured in three sections that illustrate general recommendations towards greater participation of persons with disabilities.

Section A provides the background on disability inclusive disaster risk management and reviews existing guidelines as to how the participation of people with disabilities in disaster risk management can be facilitated. 

Section B contains the actual good practices, structured in three separate chapters that illustrate general recommendations towards greater participation of persons with disabilities. Each practice highlights the involvement of individual persons as well as groups, describes the initial setting, the achievements, and the lessons learned from the practice. Each practice concludes with a box with key insights.

The final section C presents the key recommendations that can be drawn from the good practices and that are geared to inform future programming

Disability Sport in Sub-Saharan Africa: From Economic Underdevelopment to Uneven Empowerment

NOVAK, Andrew
2014

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Although athletes with disabilities have integrated into mainstream sport at a rapid rate across the world, Sub-Saharan Africa remains on the periphery of disability sport participation. Disability sport, like most modern regulated sports, has diffused from the Global North to the Global South, and continues to reproduce that process of diffusion though increasingly expensive sport prostheses, adapted equipment, and coaching techniques. The colonial underdevelopment of disability services and coexisting racial inequalities has led to the uneven diffusion of disability sport across the continent, which is reflected by South Africa’s domination of African participation in the Paralympic Games. The result is a ‘disability divide’ in international sport, where the increasing access to technology and sport assistance from the Global North largely benefits a few privileged elite disability athletes, most famously South African sprinter Oscar Pistorius. Presented from a historical perspective, the article traces the origins of the ‘disability divide,’ concluding that integration between disabled and non-disabled athletes around the world may reinforce the continent of Africa’s subordinate status in global capitalism through dependence on international sport aid and athletic migration.

 

Disability and the Global South (DGS), 2014, Vol. 1 No. 1

Include us! : a study of disability among Plan International's sponsored children

PLAN INTERNATIONAL
MONTEAT-VAN DOCK, Adrienne
December 2013

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This study report reveals that children with disabilities in developing countries are being held back from an education. Based upon Plan’s dataset of 1.4 million sponsored children, the report compares sponsored children with a disability to those without, from 30 countries worldwide
Key findings include: children with disabilities are 10 times more likely not to attend school when they do attend school; their level of schooling is below that of their peers; and children with disabilities are much more likely to have had a serious illness in the last 12 months, including malaria and malnutrition. The findings will help Plan and other researchers and organisations to improve responses to the needs of children with disabilities, particularly their health and education

Accessibility and development : mainstreaming disability in the post-2015 development agenda

UN DEPARTMENT OF ECONOMIC AND SOCIAL AFFAIRS (DESA)
December 2013

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The publication reviews the concept of accessibility and its role in achieving inclusive and sustainable development. It propositions that accessibility be, not only a means and a goal of inclusive development, but also an enabler of an improved, participative economic and social environment for all members of society, including persons with disabilities.

Three key issues are addressed in the publication: (1) Accessibility in the context of human rights and development; (2) accessibility in policy and practice; and (3) accessibility and a disability-inclusive post-2015 development agenda.

The publication reviews good practices and lessons learned from both top-down and bottom-up approaches in promoting accessibility in practices and provides a response to the question: “How does accessibility relate to inclusive, sustainable and equitable development?” The publication argues that accessibility must be re-conceptualized as an enabler: a precondition for any progress toward development for all members of society.  It concludes that the full and effective participation of persons with disabilities in decision-making processes would contribute directly to the successful adoption of an inclusive post-2015 development agenda

ST/ESA/350

Inclusion in education : towards equality for students with disability

COLOGON, Kathy
2013

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All children in Australia have the right to an inclusive education. However, there are many barriers to the realisation of this right in the lived experience of children and families. Current efforts towards upholding the rights of all children are impeded by a lack of understanding of inclusive education and misappropriation of the term. Additional barriers include negative and discriminatory attitudes and practices, lack of support to facilitate inclusive education, and inadequate education and professional development for teachers and other professionals. Critical to addressing all of these barriers is recognising and disestablishing ableism in Australia.

This paper draws from recent research in addressing gaps in current understanding to provide a firm basis from which to inform research based policy development. Taking a rights-based approach, the paper focuses on developing a clear understanding of inclusive education and identifying strategies to enhance the education of all children in Australia

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