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Measuring quality of life, safety, and social and family participation of project beneficiaries : the ScoPeO tool

BRUS, Aude
et al
July 2014

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"This guide presents ScoPeO, a tool for measuring changes in living conditions as perceived by beneficiaries once a project is implemented. More specifically, the method serves to evaluate quality of life, perception of safety and participation in society and family life in two phases: before or at the start of the project (baseline survey) and at the end of the project (endline survey). Thus, this guide presents concepts related to quality of life and similar notions, the key phases in the process and provides the tools needed to conduct a study on quality of life. This guide is designed for all Handicap International professionals, and in particular the project managers, operational coordinators and technical coordinators in charge of developing, implementing, monitoring and evaluating projects. Handicap International partners may also find this guide useful"

Risk factors for participation restriction in leprosy and development of a screening tool to identify individuals at risk

NICHOLLS, PG
et al
December 2005

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This paper explores risk factors for participation restrictions experienced by people affected by leprosy. The objective was to develop a screening tool to identify individuals at risk. An initial round of qualitative fieldwork in eight centres in Nepal, India and Brazil identified 35 potential risk factors for participation restriction. This was further assessed through quantitative fieldwork in six centres in India and Brazil. In all, 264 individuals receiving leprosy treatment or rehabilitation services made a retrospective assessment of their status at time of diagnosis. Their level of participation restriction was assessed using the Participation Scale, and regression analysis identified risk factors for participation restriction. Four consolidated items were identified as the basis for a simple screening tool to identify individuals at risk: physical impact of leprosy, an emotional response to the diagnosis, female gender and having little or no education. Such a tool may form the basis for a screening and referral procedure to identify newly diagnosed individuals at risk of participation restrictions and the need of actions that may prevent such restrictions
Leprosy Review, Vol 76, Issue 4

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