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Forgotten in a crisis: Addressing dementia in humanitarian response

GLOBAL ALZHEIMER'S & DEMENTIA ACTION ALLIANCE
ALZHEIMER'S DISEASE INTERNATIONAL
ALZHEIMER'S PAKISTAN
May 2019

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Every 3 seconds someone develops dementia and it’s one of the leading causes of death worldwide. Despite being some of the most at-risk in times of natural disaster, conflict and forced migration, there is a lack of awareness that dementia is a medical condition, meaning people with dementia are being neglected when they’re most in need of support.

This report investigates ways humanitarian emergency responses can protect and support people living with dementia. It draws on the experiences of people affected by dementia, Alzheimer’s specialists in affected countries, humanitarian organisations and inter-governmental organisations including the World Health Organisation and UNHCR.

Our findings reflect a wider issue of a lack of support for older people and those with disabilities in humanitarian response. We have found that people with dementia are systemically overlooked, due to a lack of global awareness of the condition and associated stigma.

The report is a collaboration between the Global Alzheimer’s & Dementia Action Alliance, Alzheimer’s Disease International and Alzheimer’s Pakistan.

United Nations High Level Meeting on non-communicable diseases

DUTTINE, Antony
PASQUIER, Estelle
December 2011

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"During the 66th UN General Assembly in New York a High Level Meeting on Non-Communicable Diseases (NCDs) was convened. This was only the second time that a health issue had been discussed at such an international forum. The resulting political declaration recognised this global health challenge, which has reached pandemic proportions, and took steps to recommend action on prevention, treatment and coordination for the management of NCDs. Many NCDs can be potentially disabling for individuals who live with them and persons with disabilities can be also susceptible to developing NCDs. Handicap International, with the approval of several other disability focussed organisations, attended the meeting and advocated for the inclusion of disability within the NCD agenda. This document describes the outcomes of the High Level Meeting and collaborations engaged in before, during and afterwards. It recommends future action to continue to push for the inclusion of disability into the NCD agenda though a collaborative approach"

Disability and non communicable disease

HANDICAP INTERNATIONAL (HI)
et al
2011

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"This brief discusses the actions urgently needed to ensure that people with impairments due to NCDs have access to treatment and appropriate, timely, affordable, and high quality rehabilitation interventions for all those who need them. These actions are in line with the Proposed Outcomes Document for the Prevention and Control of NCDs, recommendations of the World Report on Disability and the principles and standards of international human rights law, in particular the Convention on the Rights of Persons with Disabilities"

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