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Forgotten in a crisis: Addressing dementia in humanitarian response

GLOBAL ALZHEIMER'S & DEMENTIA ACTION ALLIANCE
ALZHEIMER'S DISEASE INTERNATIONAL
ALZHEIMER'S PAKISTAN
May 2019

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Every 3 seconds someone develops dementia and it’s one of the leading causes of death worldwide. Despite being some of the most at-risk in times of natural disaster, conflict and forced migration, there is a lack of awareness that dementia is a medical condition, meaning people with dementia are being neglected when they’re most in need of support.

This report investigates ways humanitarian emergency responses can protect and support people living with dementia. It draws on the experiences of people affected by dementia, Alzheimer’s specialists in affected countries, humanitarian organisations and inter-governmental organisations including the World Health Organisation and UNHCR.

Our findings reflect a wider issue of a lack of support for older people and those with disabilities in humanitarian response. We have found that people with dementia are systemically overlooked, due to a lack of global awareness of the condition and associated stigma.

The report is a collaboration between the Global Alzheimer’s & Dementia Action Alliance, Alzheimer’s Disease International and Alzheimer’s Pakistan.

World report on ageing and health

WORLD HEALTH ORGANIZATION (WHO)
2015

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This report lays out framework for the development of new strategies to bring the right programmes, information, and services to an ageing international community. The report focuses on policy development, healthy ageing and health in old age, health systems and long – term care systems.  The report concludes by presenting a series of recommended next steps to realising the vision of a world that is more friendly to an ageing population

An evidence review of research on health interventions in humanitarian crises

BLANCHET, Karl
et al
November 2013

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This report presents a review of the evidence base of public health interventions in humanitarian crises by assessing the quantity and quality of intervention studies, rather than measuring the actual effectiveness of the intervention itself.  It notes an increase in quality and volume of evidence on health interventions in humanitarian crises and recognises that evidence remains too limited, particularly for gender-based violence (GBV) and water, sanitation and hygiene (WASH). This report identifies a number of common needs across all areas, namely more evidence for the effectiveness of systems and delivery, better developed research methods, and more evidence on dispersed, urban and rural populations, on ensuring continuity of care and measuring and addressing health care needs in middle-income settings (particularly NCDs)

Note: Use links on the left hand side of the webpage to access either the full report, the executive summary, or the individual chapters arranged by health topic

Sustaining human development : addressing NCDs and disability across the lifecourse

THE NCD ALLIANCE
et al
2013

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This report explores three interconnected global trends — a growing burden of non-communicable diseases (NCDs), the rising prevalence of disability, and changing global population demographics (including rapidly ageing populations). The report highlights that there issues were collectively neglected as policy priorities during the era of the Millennium Development Goals (MDGs). It stresses that the unique opportunity to ensure a future framework that fully integrates NCDs, that goals and targets drive progress for all people including persons with disabilities, and that a lifecourse and rights-based approach underpins all goals and targets to ensure no one is left behind

Diabetes and cardiovascular disease policy brief

OLCHINI, Davide
PASQUIER, Estelle
GUIMET, Pauline
September 2012

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"This policy brief is an introduction to Handicap International’s 2012 policy paper on diabetes and other cardiovascular risk factors. It provides an overview of Handicap International's activities in this sector"
Policy brief 6

Diabetes and other cardiovascular risk factors

GUIMET, Pauline
PASQUIER, Estelle
OLCHINI, Davide
July 2012

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"This document is an operational guideline produced specifically for Handicap International’s programmes. It is intended to provide them with guidance and a framework for each stage of the project cycle (project development, implementation, monitoring and evaluation) for projects tackling the theme of diabetes and other cardiovascular risk factors (CVRF)"
Policy paper 6

Tackling NCDs : a different approach is needed

DE MAESENEER, Jan
et al
May 2012

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"The NCD Alliance aims to put non-communicable diseases (NCDs) on the global agenda to address the NCD-crisis. Improving outcomes in morbidity and mortality by 2015 will clearly depend to a large extent on tackling the burden of NCDs, especially in developing countries"
To access this article, users need to register (free) online
The Lancet, Vol 379, Issue 9829

World Health Statistics 2012

WORLD HEALTH ORGANISATION (WHO)
2012

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"World Health Statistics 2012 contains WHO’s annual compilation of health-related data for its 194 Member States, and includes a summary of the progress made towards achieving the health-related Millennium Development Goals (MDGs) and associated targets. This year, it also includes highlight summaries on the topics of noncommunicable diseases, universal health coverage and civil registration coverage"
Note: The summary brochure, full report, report in English by section, the indicator compendium and printed copy order forms are available from the link above

United Nations High Level Meeting on non-communicable diseases

DUTTINE, Antony
PASQUIER, Estelle
December 2011

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"During the 66th UN General Assembly in New York a High Level Meeting on Non-Communicable Diseases (NCDs) was convened. This was only the second time that a health issue had been discussed at such an international forum. The resulting political declaration recognised this global health challenge, which has reached pandemic proportions, and took steps to recommend action on prevention, treatment and coordination for the management of NCDs. Many NCDs can be potentially disabling for individuals who live with them and persons with disabilities can be also susceptible to developing NCDs. Handicap International, with the approval of several other disability focussed organisations, attended the meeting and advocated for the inclusion of disability within the NCD agenda. This document describes the outcomes of the High Level Meeting and collaborations engaged in before, during and afterwards. It recommends future action to continue to push for the inclusion of disability into the NCD agenda though a collaborative approach"

Non-Communicable diseases in an ageing world : a report from the International Longevity Centre UK, HelpAge International and Alzheimer’s Disease International lunch debate

BAMFORD, Sally-Marie
SERRA, Valentina
July 2011

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This report, based on the discussion and recommendations from the expert meeting, presents information about the need for a life-course focus on prevention, treatment, management and related care issues on NCDs and for dementia to be addressed as a global priority for action. "The first part of the report highlights salient policy and political issues on the NCD question and summarises some of the key international developments in this regard. The latter section of the report provides a summary of the presentation by Professor Martin Prince, and identifies some of the key themes which emerged from the meeting"
Expert stakeholder lunch meeting
London, UK
4 May 2011

CVD project evaluation : baseline diabetes study, Davao, Philippines 2010

PILLERON, Sophie
June 2011

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This study gathered baseline data for the CVD Project evaluation. "This study also concerned gathering information on the nature of diabetes and common practices in diabetes management and care, to improve project implementation strategy and data on promoting health care services in the community...This study was the first part of a quasi-experimental before-after here-there study conducted in 10 intervention barangays and 5 control barangays of Davao City. The study population consisted of people with diabetes aged 20 years and above who had visited the Barangay Health Centre and had proof of a doctor’s diagnosis for diabetes mellitus or proof of a relative-to-diabetes medicine prescription...Despite its limitations, this study provides a first insight on the people living with diabetes in Davao City. With 72% of diabetics having uncontrolled glycaemia, this study shows the relevance of the CVD project. As a baseline, this study provides comparison elements for the 2013 survey in order to test effectiveness of the CVD project with the percentage of diabetics with HbA1c<6.5% as effectiveness criterion"
DS/RD 01

Losing sight : eye health and NCDS

PATEL, Archana
IRELAND, Elaine
2011

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This position paper presents information to support that "chronic eye conditions which can lead to visual impairment and blindness should be included within prevention, treatment and control strategies for non-communicable, chronic diseases. These include diabetic retinopathy, cataract, glaucoma and age related macular degeneration (AMD). The prevalence and impact of these conditions are rising with changing lifestyles, an ageing population and increased exposure to risk factors such as obesity and hypertension. Governments should act now to include eye health within non-communicable disease (NCD) control and ensure the development of systems which can realistically address these challenges"

Disability and non communicable disease

HANDICAP INTERNATIONAL (HI)
et al
2011

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"This brief discusses the actions urgently needed to ensure that people with impairments due to NCDs have access to treatment and appropriate, timely, affordable, and high quality rehabilitation interventions for all those who need them. These actions are in line with the Proposed Outcomes Document for the Prevention and Control of NCDs, recommendations of the World Report on Disability and the principles and standards of international human rights law, in particular the Convention on the Rights of Persons with Disabilities"

Nutrition, physical activity and NCD prevention : a briefing document

THE NCD ALLIANCE
2011

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"The NCD Alliance Proposed Outcomes Document calls on governments around the world to commit to actions in a number of key areas to tackle the global burden of Non-Communicable Diseases (NCDs). This briefing document works in synergy with the Proposed Outcomes Document and provides evidence-based actions for nutrition and physical activity related aspects of NCD prevention...(This) briefing document is divided into two sections. Part A provides Key Messages and Guiding Principles together with clear Calls for Action to improve nutrition and increase physical activity. Part B presents an overview of the available evidence of nutrition, physical activity and NCDs, and of effective policies and interventions to reduce the common risk factors"

Global status report on noncommunicable diseases 2010

WORLD HEALTH ORGANIZATION (WHO)
2011

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"This report sets out the statistics, evidence and experiences needed to launch a more forceful response to the growing threat posed by noncommunicable diseases. While advice and recommendations are universally relevant, the report gives particular attention to conditions in low- and middle-income countries, which now bear nearly 80% of the burden from diseases like cardiovascular disease, diabetes, cancer and chronic respiratory diseases. The health consequences of the worldwide epidemic of obesity are also addressed"

Call for the recognition of ageing, Alzheimer’s disease and other dementias in the 2011 UN Summit on NCDs

ALZHEIMER’S DISEASE INTERNATIONAL
et al
2011

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This joint position paper highlights that ageing and the associated risk of Alzheimer’s disease and other dementias is a key factor for the 21st century’s social and economic sustainability and should therefore be an essential component of the UN’s NCD considerations. This paper outlines seven related considerations for the UN Summit on NCDs and highlights eight recommendations. This paper is useful to anyone interested in NCDs and ageing

Ageing and the challenge of non-communicable diseases in low and middle-income countries : a position paper

HELPAGE INTERNATIONAL
2011

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This position paper presents detailed information to advocate for a "whole life course approach to NCDs, which is inclusive of all ages, should be adopted for any recommendations on detection and diagnosis, and strategies for prevention, management and treatment as well as more effective care." It concludes with key messages and recommendations, and is useful for anyone interested in ageing and non-communicable disease in low and middle-income countries

Obesity in disabled children and adolescents : an overlooked group of patients

REINEHR , Thomas
et al
April 2010

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This article presents the results of a literature review about the relationship between disability and obesity in childhood and adolescence. "A total of 38 relevant articles were identified. All studies agreed that the prevalence of overweight and obesity in children with disabilities was almost twice that in their non-disabled peers. No effective, long-lasting interventions for obesity in disabled children and adolescents have been published. Conclusion: Since a high proportion of disabled children and adolescents are overweight or obese, effective strategies for preventing and managing excess weight need to be developed so as not to further endanger their social participation. Moreover, risk factors for overweight in disabled children and adolescents should be identified and their weight status carefully monitored"
Deutsche Arzteblatt International Journal, Vol 107, Issue 15

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