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About CHARGE

SENSE INTERNATIONAL
2008

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This factsheet describes the common effects of the condition CHARGE. It outlines some of the most common conditions associated with CHARGE, the number of people who suffer, and it outlines early years, development and education for children with CHARGE, their families and professionals

CHARGE and multi-sensory impairment

SENSE
2008

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This factsheet describes multi-sensory impairment and what it means for individuals with CHARGE. It provides details about functional deafblindness and early intervention, developmental delays, the need for monitoring and support available. This factsheet is useful for people interested in CHARGE and multisensory impairment

Screening and assessments

THAWANI, Vimal
2006

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This factsheet describes how to identify and diagnose deafblindness with specific reference to the Indian context. Information is provided on how to develop an appropriate programme for children in rural settings and how to create awareness among the community about deafblindness. This resource would be helpful for professionals who are working with people with sensory impairments and those working towards including deafblindness issues in mainstream development action

Communicating

SHEVDE, Sampada
2006

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In this factsheet, communication is defined and verbal and non-verbal methods are explored. Communication strategies for working with children who are deafblind are highlighted including teaching methods, expressive communication, receptive communication and communication interaction. This practical resource would be useful for anyone wishing to improve their communication with people with sensory impairments

Helping my child

KASHYAP, Sunanda
2006

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This factsheet provides practical advice for parents and carers about how to help deafblind children to learn everyday activities, such as eating, grooming, dressing, bathing, mobility, positioning and play

Playing with my child

SHEVDE, Sampada
2006

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This factsheet explores the importance of play for children with deafblindness, covering various types of play, such as sensorimotor, physical, symbolic and games. Information is provided regarding suggested timing of play activities, positioning for play activities, properties of toys and details of activities that can be used as play. This resource is particularly useful for parents and carers of deafblind children

Schemes and concessions

SENSE INTERNATIONAL INDIA
2006

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This factsheet provides useful information about schemes and concessions for people with disabilities in India. It includes details about various disability policies and rights in India, as well as emphasising the importance of establishing networks for people with deafblindness. This information is particularly helpful to people with disabilities, their family members, their carers and professionals in India

Holistic and interactive communication methods

LAHTINEN, Riitta
2005

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This research article examines the strategies and theoretical models of the function of language for improving communication for acquired deafblind people, their family members and interpreters. Different methods and techniques are examined to improve the quality of communication. This resource would be useful for professionals working with people with sensory impairments at community level

Roles and functions of the deafblind interpreter - an overview

HASSINEN, Leena
2005

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This article describes the roles and functions of the deafblind interpreter, as divided into three core elements including language transmission, guiding, and transmitting visual information. This is a useful training tool for deafblind interpreters and for people wishing to improve their communication skills for working with people with sensory impairments

The importance of hearing and eye tests

SENSE
November 2003

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This factsheet describes sight and hearing tests. It highlights some of the problems that a deafblind or sensory impaired person might have in getting tested, and advice is provided on how these testing difficulties can be overcome. This resource would be of interest to anyone working in the field of deafblindness. It is also available as a downloadable pdf

Presenter's guide : preparing a user-friendly presentation

NATIONAL TECHNICAL ASSISTANCE CONSORTIUM FOR CHILDREN AND YOUNG ADULTS WHO ARE DEAF-BLIND
2003

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This concise guide gives tips and advice on the production of user-friendly and easy to understand presentations, dealing with issues such as appropriate language to use, working with interpreters, using alternative formats, Braille, and using suitable equipment such as computer software and overhead projectors

Children with hydrocephalus and spina bifida in East Africa : can family and community resources improve the odds?

MILES, M
2002

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Hydrocephalus and spina bifida are life threatening conditions that often result in severe dsabilities. Risks are much reduced by immediate surgery and careful managment, but neither has been available for most of the sub-Saharan African population. This paper traces the growth of solutions and some socio-cultural resources that historically have supported family and community care for children with severe disabilities, mainly in Tanzania, and nearby countries. Some community-based rehabilitation (CBR) work with children with spina bifida and hydrocephalus is described, and challenges to the CBR approach are noted from the increased survival of people with disabilities requiring complex care. More appropriate information, recognition of indigenous knowledge, enlistment of community resources and financial assistance are needed to enhance the lives of East Africans with hydrocephalus, spina bifida and other severely disabling conditions

Multiple disability initiative review : at Dehradun Cheshire Home Northern India

RAJENDRA, K R
2001

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The management of children with multiple disabilities demands very special training and the Multiple Disability Initiative aimed to do this by running a series of training sessions over a 2 year period. At the end of the 2 years a special workshop was organised to share the experiences of the Dehradun Cheshire Home (DDCH) and also provide some training for staff. It helped DDCH to plan for its future growth and for the continuation of the programme at other homes

A deafblindness web resource

May 2000

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This website, owned by an individual, hosts a wealth of information on deafblindness and explains terminology and syndromes. It refers to journals and periodicals, videos about deafblindness and equipment. Internet resources are also listed

Starting to think about education

SENSE INTERNATIONAL

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This article outlines the timing and means by which parents of children with multiple sensory impairments should plan their education. The article briefly discusses UK education laws and recommends the code of practice as a useful guide for families and service providers

Vision - using it better

SENSE INTERNATIONAL (INDIA)

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This booklet aims to increase understanding about vision, visual impairment and residual or useful vision, and how vision is assessed. It has been compiled for all who live or work with deafblind children and young adults or those who have visual impairment along with one or more additional disabilities

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