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Participatory Monitoring of Community-Based Rehabilitation and other Disability- Inclusive Development Programmes: the Development of a Manual and Menu

Madden, Rosamond H
et al
2016

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Purpose: This paper describes a three-year research project leading to the development of the CBR Monitoring Manual and Menu (MM&M). The MM&M is a practical toolkit that meets the needs of CBR managers and stakeholders, and is consistent with the philosophy of CBR and community- based disability-inclusive development. It is designed to produce meaningful and locally useful information and data, based on international data standards where possible, to enable aggregation at regional, national and international levels.

 

Methods: Five complementary workstreams of research were carried out from 2011 to 2014: 1) literature review and analysis; 2) participatory action research with CBR stakeholders; 3) analysis and refinement of validity of concepts andstructures; 4) consultation and review; and 5) synthesis of results. This article documents the method and key results of each of the five workstreams, and the lessons learned along the way.

 

Results: The MM&M is now freely available on-line at thttp://sydney.edu. au/health-sciences/cdrp/projects/cbr-monitoring.shtml. Collaboration among members of the development team continues, chiefly via an on-line group to which new members have been welcomed.

 

Conclusion and Implications: At the time of writing, the MM&M is the only international monitoring product, known to the authors, that consciously sets out to reflect both a ‘bottom- up’ and ‘top-down’ perspective of monitoring information and data.To achieve this for a complex programme such as CBR, and to align with its principles, it was essential to use a multi-component and multi-stage strategy for tool development, involving a diverse multidisciplinary team including collaboration with CBR stakeholders.

Disability inclusion : translating policy into practice in humanitarian action

PEARCE, Emma
March 2014

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This report “documents positive practices and ongoing challenges to promote disability inclusion across UNHCR’s and its partners’ work in multiple countries and multiple displacement contexts. The report provides lessons and recommendations for other organizations and the wider humanitarian community on engaging persons with disabilities at all levels of humanitarian work. It draws on consultations with over 700 displaced persons, including persons with disabilities, their families, and humanitarian staff, in eight countries”

Note: This report is also offered in plain text format

Minimum standards for civil society participation in the universal access initiative

THE COALITION OF ASIA PACIFIC REGIONAL NETWORKS ON HIV/AIDS (SEVEN SISTERS)
August 2007

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This document, developed with input from civil society participants and organisations from the Asia-Pacific region, proposes a process and framework to encourage minimum standards for civil society participation in universal access processes. It is for use by both civil society representatives as a tool to assess and promote their greater involvement in national universal access processes, and by national government representatives as a guide for ensuring civil society participation in national scaling up to reach universal access targets. The main body of the document is divided into three parts: a description of the preparation needed to implement a set of minimum standards for participation; a proposed matrix that uses a scoring system based on definitions of levels of participation and sets of indicators which are used to examine the different aspects and stages of universal access; and monitoring and evaluation methods for assessing civil society participation. It also considers how the proposal can be developed and disseminated

Missing the target #4 : time is running out to end AIDS - treatment and prevention for all!

INTERNATIONAL TREATMENT PREPAREDNESS COALITION (ITPC)
July 2007

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This report provides research from 17 countries to support the case that efforts to ensure universal access to treatment for HIV and AIDS are maintained and accelerated; that supplementary services are also provided free at the point of access; that there is increased investment in health care workers; and co-ordinated policy reforms. It also recommends that donors ensure sustainable funding for treatment programmes and identifies areas of weaknesses in global programmes. In addition, it provides focus reports for Cambodia, China, Malawi, Uganda, Zimbabwe and Zambia; brief updates on countries previously reported on: Dominican Republic, Kenya, Nigeria, India, Russia and South Africa; and short summaries on Argentina, Belize, Cameroon, Malaysia and Morocco

National institutional frameworks and human rights of persons with disabilities

DEPARTMENT FOR ECONOMIC AND SOCIAL AFFAIRS (DESA), UNITED NATIONS
August 2006

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This resource compares national disability institutions and frameworks in Australia, Sweden, India, Guatemala and the UK. It aims to: identify the core institutions concerned with disability rights and describe how they were established; review the legislative framework; and examine the organisational structure, mandates and activities of the states’ monitoring institution/s

IDRM : Regional report of Asia

CENTRE FOR INTERNATIONAL REHABILITATION
2005

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This International disability rights monitor takes a snapshot of the situation in Asia for disabled people and the extent to which they are included in society. The report examines education, employment, legislation and other areas. It gives non-governmental organisations, policy makers and individuals an opportunity to research the living conditions of disabled people in this part of the world

Promoting rights-based approaches : experiences and ideas from Asia and the Pacific

THEIS, Joachim
2004

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This book is a collection of experiences with rights-based approaches from Asia and the Pacific. Part One looks at rights-based programming, and provides a general overview of rights-based approaches and their history. This is followed by a review of experiences of different rights-based organisations. Part Two translates human rights principles and standards into practical ideas for education and HIV/AIDS programming and for organisational development and management. Part Three presents four examples of rights-based programmes: promoting children’s participation in Vietnam, the Child Friendly District initiative in Ho Chi Minh City, confronting discrimination in South Asia and strengthening accountability for children’s rights through mass media. Part Four presents experiences and experiments with tools for rights-based analysis, planning, monitoring and evaluation. There is also a section on web resources on rights-based approaches, which lists some of the major organisations that are promoting rights-based approaches to development and relief work

Biwako millennium framework for action towards an inclusive, barrier-free and rights-based society for persons with disabilities in Asia and the Pacific

UNITED NATIONS ECONOMIC AND SOCIAL COMMISSION FOR ASIA AND THE PACIFIC (UNESCAP)
January 2003

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Provides information on the Biwako Framework that was adopted in 2002. The document sets out a draft regional framework for action that provides regional policy recommendations for action by governments in the region and concerned stakeholders to achieve an inclusive, barrier-free and rights-based society for disabled people. The regional framework for action explicitly incorporates the millennium development goals and their relevant targets to ensure that concerns relating to disabled people become an integral part of efforts to achieve the goals

Placement of job-seekers with disabilities : elements of an effective service. Asian and Pacific edition

MURRAY, Barbara
HERON, Robert
2003

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Job placement services for disabled people have been the focus of increasing global attention as awareness about the difficulty disabled people have in seeking jobs has grown. This book gives background to job placement services and describes the necessary policy and legislative framework for these services to be effective. The four key components of a job placement service (preparation for jobs, job placement, self-employment and publicity and promotion) are described, and monitoring and evaluation of the service are explained.

Lessons from the South : making a difference

EENET
1998

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This is a report on an international seminar on Inclusive Education which brought together practitioners from Asia, Africa, Central America, the Middle East and Europe. The aim of the seminar was to share experience between programmes. The semiar discussed five main topics: policy; attitudes; school issues; practice; and monitoring and evaluation

Programme report 1996

WORLD HEALTH ORGANIZATION (WHO). Global Programme for Vaccines and Immunization
1997

International disability rights monitor (IDRM) regional reports

CENTER FOR INTERNATIONAL REHABILITATION

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These regional reports are the primary focus of the International Disability Rights Monitor (IDRM) project and have been compiled by local IDRM researchers. Each report focuses upon several key areas such as legal protections, education, employment, accessibility, and health and housing services for people with disabilities. The reports include a detailed report on each country and a report card that compares the progress made by countries across the region. Reports are available on the Americas, Asia and Europe, as well as two thematic reports, in downloadable pdf format. They are useful for people interested in research on disability and development

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