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Shaping health systems to include people with disabilities. K4D emerging issues report

DEAN, Laura
et al
November 2018

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People with disabilities are at a heightened risk of communicable and non-communicable diseases and these diseases can cause debility and disability. Health needs of these people often extend beyond requiring continual longterm medical support to addressing broader social inequities. Key areas that are likely to be critical in re-orientating health systems from a biomedical approach towards inclusive health systems that are more responsive to the needs of people with debility and disability in low and middle-income countries (LMICs) are offered in this report and cover the following:

 

  • 1. Nothing about us without us: prioritising person-centred health systems
  • 2. Responding to issues of access in mainstreaming disability within health systems
  • 3. Ensuring the provision of specialised services
  • 4. Community based rehabilitation 
  • 5. Improving the collection and use of disability related data against modified legal and policy frameworks
  • 6. Partnerships are paramount
  • 7. Financing and social protection 

Case studies are provided from Sudan, India, Liberia, Uganda and Nigeria

Progress Report on the implementation of the European Disability Strategy (2010-2020)

EUROPEAN COMMISSION
February 2017

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The Strategy is the main instrument to support the EU's implementation of the UN Convention on the Rights of Persons with Disabilities (UNCRPD). Progress in all eight areas of the strategy is reported: accessibility, participation, equality, employment, education and training, social protection, health and external action. Initiatives such as the Directive on Web Accessibility, the proposal for a European Accessibility Act, the EU Disability Card project (being piloted in 8 Member States) and provisions in the Erasmus+ programme (allowing better mobility for students with disabilities) are highlighted. 

 

This report presents progress achieved in the first five years of the Strategy and assesses implementation. Many stakeholders have contributed to this work. The United Nations reviewed how the EU has been implementing its obligations under the UNCRPD3, and issued Concluding Observations with concrete recommendations for follow-up. These contain guidance on priority issues while also highlighting the steps already taken (see Annex 3). The European Parliament and the European Economic and Social Committee subsequently prepared their own reports on the implementation of the UNCRPD, while civil society organisations provided analysis and proposals (see Annex 4). The Commission also launched a public consultation to collect views from a broad range of stakeholders on the current situation of persons with disabilities and the impact of the Strategy so far, gathering more than 1,500 contributions (see Annex 1). This report also looks at the role of the supporting instruments and at the implementation of the UNCRPD within the EU institutions. Finally, it looks ahead at how the Strategy will continue to deliver on its objectives. In addition, the report includes a comprehensive and up-to-date overview of EU legal acts with an impact on disability matters (Annex 5)

 

SWD(2017) 29 final

Disabled children : a legal handbook

BROACH, Steve
CLEMENTS, Luke
READ, Janet
2010

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This handbook aims to empower disabled children and their families through a greater understanding of their rights and entitlements in England and Wales. It is useful reading for the families of disabled children, their advocates and lawyers, voluntary and statutory sector advisers, commissioners, managers and lawyers working for public authorities, education, social and health care professionals, students and academics

Girls count : a global investment & action agenda

LEVINE, Ruth
et al
2008

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"This report is about why and how to put girls at the center of development - to invest in adolescent girls in developing countries. It is about how the health of economies and families depends on protecting the rights of and fostering opportunities for today's girls. It is about how far girls in many developing countries have come over the past two decades - but how far we remain from a world in which girls’ human rights are acknowledged, respected, and protected and in which young women are able to realize their potential to contribute to sustained economic and social progress. "This report calls for a long overdue dialogue among high-level decisionmakers about actions that governments, civil society organizations, development agencies, and the private sector can and should take now"

Beyond de-institutionalisation : the unsteady transition towards an enabling system in South East Europe

AXELSSON, Charlotte
GRANIER, Pascal
ADAMS, Lisa
2004

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This report from the Disability Monitor Initiative for South East Europe addresses the unsteady transition within the Balkan countries toward a system that enables and empowers disabled people at all levels. For this region this transition means moving forward with the process of de-institutionalisation and promoting community based services and independent living facilities.
Only through the sharing of information and a mutual learning process between all stakeholders and countries, can the goal of an inclusive society be achieved. This report gives an overview about all the affected fields and gives stakeholders as well as NGOs from other countries a good insight into how these processes can work

Integrating intellectual property rights and development policy : report of the commission on intellectual property rights

COMMISSION ON INTELLECTUAL PROPERTY RIGHTS (CIPR)
September 2002

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This detailed and thorough report considers whether and how intellectual property rights (IPRs) can play a role in achieving the Millenium Development Goals. It explores the potential benefits of IPRs in stimulating economic growth, and the associated benefits in terms of productivity and reduced poverty. It considers also the barriers that IPRs may present to developing economies, including discouraging invention, research, technology transfer, domestic production and driving up the costs of medicines and agricultural inputs. Key issues covered in successive chapters include: current evidence about the impact of IPRs in developing countries; development of and access to medicines; protection of plants and genetic resources; the Convention on Biological Diversity, traditional knowledge, cultural expressions and geographic indicators; copyright and patents; IPR legislation for developing countries; international and national institutional framework for IPRs

WHO MiNDBank : more inclusiveness needed in disability and development

WORLD HEALTH ORGANIZATION (WHO)

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“WHO MiNDbank is an online platform which brings together a range of country and international resources, covering mental health, substance abuse, disability, general health, human rights and development.  These include policies, strategies, laws, and service standards.  MiNDbank aims to facilitate debate, dialogue, advocacy and research in order to promote national reform in these areas, in line with international human rights standards and best practice.  MiNDbank has been made possible thanks to the collective efforts of WHO Member States in sharing their national resources, with a view to achieving better health and human rights outcomes for all”

International disability rights monitor (IDRM) regional reports

CENTER FOR INTERNATIONAL REHABILITATION

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These regional reports are the primary focus of the International Disability Rights Monitor (IDRM) project and have been compiled by local IDRM researchers. Each report focuses upon several key areas such as legal protections, education, employment, accessibility, and health and housing services for people with disabilities. The reports include a detailed report on each country and a report card that compares the progress made by countries across the region. Reports are available on the Americas, Asia and Europe, as well as two thematic reports, in downloadable pdf format. They are useful for people interested in research on disability and development

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