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Memory work [whole issue]

June 2005

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This issue of Medicus Mundi Schweiz Bulletin is devoted to memory work. Articles describe the evolution of memory books and memory work; NACWOLA’s experiences in Uganda; scaling up memory work; and related projects and tools such as hero books and the Ten Million Memories Project

The memory work trainer's manual : supporting families affected by HIV and AIDS

HEALTHLINK WORLDWIDE
NATIONAL COMMUNITY OF WOMEN LIVING WITH HIV/AIDS IN UGANDA (NACWOLA)
2005

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This manual guides trainers through a course to support parents, guardians and carers affected by HIV and AIDS, by helping them to share information, hopes and fears with their children; strengthen each child's sense of identity and belonging; plan for the future care of their children. The course is designed to be delivered to: parents and other family members living with HIV and AIDS; future guardians of children affected by HIV and AIDS; community workers and volunteers working with children and families affected by HIV and AIDS. The manual draws significantly on the experiences and ideas of NACWOLA trainers and trainees, as well as those of Healthlink Worldwide and others. The course consists of 12 modules, covering child development, parenting, communication between parents, carers, guardians and children, HIV status disclosure, coping with separation, loss and grief, planning for children's future, involving children in planning, preparation for new care arrangements, making a memory book, and related legal aspects

Memory work : preparation for death? Legacies for orphans? Fighting for life? One size fits all, or time for product differentiation

MORGAN, Jonathan
June 2004

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Attempts to explore whether, following the introduction of antiretroviral treatment and the consequent significant reduction of AIDS mortality, memory work is still relevant to people living with HIV/AIDS. Traditional memory work focused on legacy for orphans, succession planning and preparation for death and bereavement. In ARV contexts the emphasis has shifted to assisting people with HIV/AIDS to live positively and plan for the future. The paper presents four scenarios, which differ for illness severity and ART availability, and discusses how memory work can adapt to suit changing needs

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