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Memory work [whole issue]

June 2005

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This issue of Medicus Mundi Schweiz Bulletin is devoted to memory work. Articles describe the evolution of memory books and memory work; NACWOLA’s experiences in Uganda; scaling up memory work; and related projects and tools such as hero books and the Ten Million Memories Project

HIV and young children : an annotated bibliography on psychosocial perspectives

SHERR, Lorraine
February 2005

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This annotated bibliography offers a practical guide to the content of the references which informed the literature review presented in BVLF Working Paper 33 (Young Children and HIV/AIDS: Mapping the Field). It is intended to help readers who want to go deeper into the issues and explore the original source material. The bibliography presents the references - mostly to peer-reviewed medical or psychology journals - under subject headings such as "disclosure", "interventions", "parentless children", "social development", and more

Psychosocial support training manual

WALKER, Lynn
2005

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This document recognises that psychosocial support for children affected by HIV and AIDS is as important as responding to their material needs. It explores children's experience of loss and grief, and suggests ways to deal with aggressive behaviour and to overcome stigma and discrimination. Some of the topics discussed are accompanied by useful handouts. It is designed as a training tool for professionals working directly with children or in community building projects

The memory work trainer's manual : supporting families affected by HIV and AIDS

HEALTHLINK WORLDWIDE
NATIONAL COMMUNITY OF WOMEN LIVING WITH HIV/AIDS IN UGANDA (NACWOLA)
2005

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This manual guides trainers through a course to support parents, guardians and carers affected by HIV and AIDS, by helping them to share information, hopes and fears with their children; strengthen each child's sense of identity and belonging; plan for the future care of their children. The course is designed to be delivered to: parents and other family members living with HIV and AIDS; future guardians of children affected by HIV and AIDS; community workers and volunteers working with children and families affected by HIV and AIDS. The manual draws significantly on the experiences and ideas of NACWOLA trainers and trainees, as well as those of Healthlink Worldwide and others. The course consists of 12 modules, covering child development, parenting, communication between parents, carers, guardians and children, HIV status disclosure, coping with separation, loss and grief, planning for children's future, involving children in planning, preparation for new care arrangements, making a memory book, and related legal aspects

The journey of life : a community workshop to support children

REGIONAL PSYCHOSOCIAL SUPPORT INITIATIVE (REPSSI)
June 2004

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'The Journey of Life' is a community workshop curriculum to support children. This workshop seeks to address the increasing psychological and social needs of children affected by HIV/AIDS, war, and displacement. Its objective is to raise community awareness of the problems that children face growing up in a time of HIV/AIDS, war, and family disintegration. 'The Journey of Life' assists the community to identify children in need of social, emotional, intellectual, spiritual, and physical support. Through dialogue and reflection the community better understands how to use available resources in solving the problems that children encounter and to strengthen the resilience of their children. The workshop covers the areas of meeting children's needs; understanding children's problems; identifying children who need help; building children's strengths; and community mobilisation. The workshop manual can be used without additional training, though further training has been found to be helpful. A Facilitator's Guide accompanies the workshop

Memory work : preparation for death? Legacies for orphans? Fighting for life? One size fits all, or time for product differentiation

MORGAN, Jonathan
June 2004

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Attempts to explore whether, following the introduction of antiretroviral treatment and the consequent significant reduction of AIDS mortality, memory work is still relevant to people living with HIV/AIDS. Traditional memory work focused on legacy for orphans, succession planning and preparation for death and bereavement. In ARV contexts the emphasis has shifted to assisting people with HIV/AIDS to live positively and plan for the future. The paper presents four scenarios, which differ for illness severity and ART availability, and discusses how memory work can adapt to suit changing needs

Africa : memory boxes help to say goodbye

INTEGRATED REGIONAL INFORMATION NETWORKS (IRIN)
October 2003

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The article emphasises the principal use of memory boxes as a means for parents living with HIV to leave personal mementos, advice and small tokens for their children as a means of helping them overcome their loss and foster a sense of resilience, so they may approach the future more confidently. Memory boxes are shown to be a generic, replicable, low cost tool for community participation which help to create family/community psychosocial networks, effectively providing counselling on a large scale. This community approach gives participants a sense of ownership of the project and allows it to be adapted to local needs, which is important to its overall success

Young people we care! : a book of ideas for young people supporting each other in their communities

SHERMAN, Judith
September 2003

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This book is designed to help groups of young people support either younger children or their peers who are living in communities and households affected by AIDS. It can also be used by home-based care organisations that want to involve young people in their home-based care activities. Written for a facilitator or young person with a good knowledge of HIV/AIDS and facilitation experience, it aims to prepare a group of young people to implement the community activities. It includes participatory activities to help young people think through a number of topics. The community activities section is written for young people and suggests ways to help support other young people and children in the community

Memory boxes and the psycho-social needs of children : trainer's manual

SINOMLANDO
2003

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This manual describes a training curriculum designed to give community workers and volunteers a basic understanding of the psychosocial needs of vulnerable children, and basic skills in 'memory box' methodology. It is based on a four-day, twelve-session workshop and covers child development, bereavement, loss, stigma, counselling skills and making memory boxes

Making a hero book : a guide for facilitators

MORGAN, Jonathan
2003

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This manual describes one of the tools used in "memory work", an approach to helping families and communities cope with HIV and AIDS. Through a series of art exercises and storytelling, children are encouraged to identify their heroes or role models. This process should help children affected by HIV/AIDS to cope with emotions (sadness, fear, anger), and to develop resilience and a positive approach to life. Through the process of developing a book, children are also encouraged to see themselves as heroes, to rely on their strengths and maximise their potential to overcome the problems they might encounter

Building resilience in children affected by HIV/AIDS

MALLMAN, Sr Silke-Andrea
2003

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This is a practical guide for caregivers and teachers consisting of a collection of ideas, theories, tasks and exercises that help understand the behaviour and feelings of children affected by HIV/AIDS. The handbook provides practical advice on how to support children who have experienced loss and death in order to help them to cope

Children, HIV/AIDS and communication in South Africa : a literature review

FOX Susan
OYOSI Salome
PARKER Warren
May 2002

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This literature review covers key issues relating to children aged 3-12 and HIV/AIDS, including discrimination, grief, children's rights, and knowledge and understanding of HIV/AIDS. The impact on the child, family and community is discussed in detail, particularly in terms of the psycho-social impact of bereavement and how this impacts on the child at different stages in its development. Various community programmes within southern Africa are highlighted, which support children to develop life skills. The influence, role and practice of the media in working with and reaching children is addressed, and case studies of South African media projects such as Soul Buddyz and Takalani Sesame are provided

Manual : psycho-social support of orphans

MADÖRIN, Kurt
1999

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This manual is a tool for trainers to train concerned community members to assist distressed children, and to facilitate their interventions on the level of awareness, knowledge, skills and behaviour in relation to orphans. Its stated objective is to enhance the capacity of adults to listen and talk to orphans and children of terminally ill parents, and to understand their situation and their needs. In this way the community improves its capacity to cope with some of the consequences of AIDS. In the manual there are 16 modules that rely on participatory methods, each with detailed instructions for the facilitator and a handout for participants. The manual was produced by the Humuliza (Community Based Mental Health for Orphans) project team

Telling our stories : children deal with loss, grief and transition

SIMMONDS, Felly Nkweto

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This book is the product of a psychosocial project in Zambia with a group of orphaned and vulnerable children. It contains the children's own stories of how they have coped with bereavement and loss, and caring for dying or ill parents. As well as stories and artwork by the children, it includes practical tips and information about the grieving process and how to help children through emotionally difficult times

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