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Listen Include Respect: International Guidelines for Inclusive Participation

Inclusion International
June 2022

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The Listen Include Respect guidelines help organisations understand what they need to do to make sure people with intellectual disabilities are included in their work.

​They were written by Inclusion International and Down Syndrome International.

Over 1,500 people with intellectual disabilities and their families from almost 100 countries helped write them.

The Convention on the Rights of Persons with Disabilities (CRPD) tells us that all people with disabilities have the right to “meaningful participation.”

“Meaningful participation” is what happens when people with intellectual disabilities get everything they need to be fully included, participate equally, and feel valued.

These guidelines will help organisations to make this happen.

Mainstreaming inclusive education: Sharing good practices

KABANI, Maliha
HEIJNEN-MAATHUIS, Els
LIGNELL, Mats
et al
May 2019

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The primary aim of this documentation is to provide a deeper understanding of how Save the Children projects have applied more inclusive concepts in not only changing the lives of children with disabilities, those living in poverty or children from ethnic minority populations, their families and communities, but in catalysing changes in policies and practices to the education system to benefit all learners. The stories follow a common structure describing the background of the project, a description of an approach that has worked especially well in the project, followed by stakeholder and partner engagement, participation of children, key milestones and significant challenges, scalability and sustainability, recommendations for replication and contact links for project tools and materials. A selection of practical tools and models have been attached as annexes.

Disability-inclusive employment promotion: Lessons learned from five GIZ projects

CHUDEL-LINDEN, Victor
CZIKL, Rudolf
SCHMIDT, Bettina
January 2019

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This publication shares the experiences of five disability-inclusive employment promotion projects commissioned by the BMZ. They use different strategic approaches and measures, depending on the national context, culture, environment, societal characteristics etc.

The projects were:

BANGLADESH: PROMOTION OF SOCIAL AND ENVIRONMENTAL STANDARDS IN THE INDUSTRY PSES (2010-2020)

TOGO: PROMOTING VOCATIONAL TRAINING AND YOUTH EMPLOYMENT (2012 TO 2018)

INDONESIA: SOCIAL PROTECTION PROGRAMME SPP (2016 – 2018) 

RWANDA: PROMOTION OF ECONOMY AND EMPLOYMENT ECO-EMPLOI (2016 – 2019)

NAMIBIA: PROMOTION OF VOCATIONAL EDUCATION AND TRAINING (2012 – 2017)

An integrated approach to victim assistance in Cambodia & the role of Australia as supporting state

De BEAUPUIS, Gaetan
HOTTENOT, Elke
November 2018

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The objective of this case study was to review how Cambodia, as an affected state, and Australia as a donor, promote the provision of victim assistance in sectors including health, rehabilitation, disability, socio-economic development and poverty reduction. It documents promising practices and proposes next steps to ensure the sustainability of victim assistance provision in the near and long-term future. This study aims to inspire the mine action community in both affected and donor states to increase its contribution to victim assistance. This case study focuses on both prongs of the integrated approach to victim assistance by describing: i) Broader multi-sector efforts that reach casualties, survivors and indirect victims; and ii) Specific victim assistance efforts to improve victims’ quality of life deployed by mine action stakeholders, other actors in charge of coordinating victim assistance in Cambodia, and Australia as a donor state. An analysis of these specific efforts revealed that they fall into one of two of the following categories: a) Bridging gaps in data collection and service provision, or b) Advocating for, and facilitating, a multisector response.

 

Humanity & Inclusion (HI) and the Cambodian Mine Action and Victim Assistance Authority (CMAA) conducted the study in November 2017 in seven provinces. The methodology comprised three steps: a desk review of project documents, national plans and policies from a range of sectors with a focus on programmes funded by Australia; interviews with key personnel from the mine action and the disability sectors; and a field survey comprising 31 individual indepth interviews with 19 survivors and 12 other persons with disabilities (23 male and 8 female), 12 focus group discussions as well as field visits to observe the initiatives described in this publication. 

 

 

Good practices for the implementation of the CRPD in Indonesia (2015-2017) - Making it Work

HANDICAP INTERNATIONAL
WIDJAYA, Hartaning
2018

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In Indonesia, the Advocacy for Change project aimed to increase the effective participation of people with disabilities in inclusive development efforts at the local level, and promote their participation in development at the national level. Specifically, the Advocacy for Change project sought to improve and monitor the people with disabilities' access to local government processes and existing social services.

Six case studies are presented:

  • Community Based Forum as Community Public Space (The culture is the key)
  • Building the Foundation of Inclusion with Sendangadi Village Government
  • WKCP (Cerebral Palsy Family Association) Health Initiative for Health Budgeting Advocacy
  • Citizen Based Forum as a Common Space to Encourage the Government to Build a Disability-Friendly Village in Mata Air Village, Kupang Tengah Sub- district, Kupang District
  • Inclusion of Disabled Persons in Noelbaki Village Women's Forum 
  • The role of disabled people organization in participation of development with Bappeda Kupang Municipality

 

Disabilities, human rights and international cooperation : human rights-based approach and lived experiences of Ugandan women with disabilities

KATSUI, Hisayo
2012

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"This study investigated human rights--based approaches of international and development cooperation towards the equality of persons with disabilities in Uganda...A case study method as well as a participatory research approach among others was applied to create evidence-based and in-depth knowledge on the theme, particularly from the viewpoint of women with disabilities and deaf women on the grassroots"
Publication series number 8

On the right track : good practices in realising the rights to water and sanitation

DE ALBUQUERQUE, Catarina
ROAF, Virginia
2012

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This book presents the discussion and analysis of existing practices in how rights to water and sanitation should be implemented to inspire policy- and decision makers, practitioners, activists and civil society in general to engage with the rights to water and sanitation to assist in the process of ensuring that everyone has access to safe drinking water and sanitation services for all daily personal and domestic purposes.

 

The practices were taken from submissions, consultations and meetings with a range of actors and have been organised into four main types: State actions and the legal and institutional frameworks that promote the realisation of the rights to water and sanitation; financing for the sector; non-State stakeholder practices to promote and protect the rights to water and sanitation; and practices that demonstrate how States and other actors can be held accountable through the monitoring of  water and sanitation services

Empowering practice

WEETMAN, Robert
October 2010

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"(T)his book was originally written to accompany a training course for people involved in support work. It's directed at people with the imagination and creativity to recognise that 'how we've always done things around here' isn't a good guide to good practice...The book looks in detail about what can go wrong...about how support can be disempowering...The book goes on to discuss alternative ways of working. It takes a look at what overall aims may be appropriate in support work; how different service design might help; what capacity thinking is; and it presents some ideas on how to work in an empowering way"
Version 2b

Including disabled children in learning : challenges in developing countries

CROFT, Alison
June 2010

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This is an exploratory study suggesting ways to analyse the challenges of the inclusion of disabled children and young people in learning in developing countries. This paper examines aspects of teaching and learning and ideas about the social purposes of education. It is based on a broad review of relevant literature drawing together insights from developing and developed economies. It argues that the pedagogy needed to include disabled children in learning can be developed by 1)working with disabled children and adults, 2)allowing and encouraging teachers to experiment and learn from their own and each others' experiences, and 3) sharing ideas about inclusive pedagogy between countries. All of these have implications for curriculum design and teacher education and support
CREATE PATHWAYS TO ACCESS Research monograph No 38

Quest for quality : interventions to improve human resources for health among faith-based organisations

ADJEI, George A
et al
February 2009

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"Traditionally, faith-based health organisations have been important health care providers in many remote and other under-serviced areas. Currently, these facilities bear the brunt of the competition for scarce human resources. It is important for faith-based organisations to learn from recent experiences and from the creative ways in which colleagues seek to retain their health workers and improve quality of human resource management. [As part of a]"...linking and learning programme, some faith-based umbrella organisations in Tanzania, Ghana, Uganda, and Malawi have joined forces to share their experiences in confronting the human resources crisis: by developing retention schemes, offering in-service training, task shifting, developing the planning and management skills of their staff, better coordination of salary and incentive structures with the public systems, and the development of lobbying instruments for national and international use"

CBR policy development and implementation

HARTLEY, Sally
OKUNE, Joan
Eds
2009

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This book provides an overview of current community-based rehabilitation (CBR) knowledge and shows how this information has been interpreted and implemented in the African context. It has been developed from conference presentations and discussions that took place in South Africa in 2007. It is useful for people interested in general CBR information and CBR in Africa

The medical peace work textbook

ROWSON, M
MELF, K
Eds
2008

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This textbook provides an introduction to medical peace work and includes chapters relating to human rights; the causes and health effects of war and violent conflict; how health workers can promote peace-building and reconstruction; and the health and well-being needs of refugees and immigrants. The book is aimed at doctors, nurses, public health workers and other health professionals, and students. This e-textbook is part of an online course on Medical Peace Work. The book can be consulted, downloaded, or printed for free without registering for the course

Building the knowledge base on the social determinants of health : review of seven countries in the Eastern Mediterranean Region

WATTS, Susan
SIDDIQI, Sameen
Eds
2008

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"The WHO Global Commission on Social Determinants of Health was launched in 2005 with the aim of identifying and tackling the persistent and growing inequalities in health, both within and between countries. These inequalities are caused by what we now term social determinants, defined as the way people live, work and age in a society. In the Eastern Mediterranean Region the knowledge base on social determinants and how these influence health is sparse. "This publication reviews the social determinants of health in seven countries of the Region and represents a first step towards building a knowledge base that can inform policy and strategies related to social determinants and the health inequities arising from them. The publication also discusses some of the strategies that could be adopted to forward the agenda on social determinants of health and health equity in individual countries"

Early childhood development : a powerful equalizer

IRWIN, Lori G.
SIDDIQI, Arjumand
HERTZMAN, Clyde
June 2007

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This report sees an indivisible link between early childhood development and improved rates of child survival and child health, and considers that this lays the basis for adults who can make a positive contribution to the community - both socially and economically. While it acknowledges that early childhood development is of global importance it stresses its value in resource-poor countries. It gathers evidence which shows priority associations between social determinants for health and health inequalities across different country contexts. This report is for governments, international agencies and civil society partnerships and is intended to stimulate societal debate on action around social determinants for health within the context of early childhood development

The essentials of antiretroviral therapy for health care and program managers

HOPE, Ruth
ISRAEL, Ellen
April 2007

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This book provides health care workers and mangers with information and practical guidance relating to antiretroviral therapies (ART). It also considers wider care and treatment issues such as; opportunistic infections, the integration of ART with antenatal and midwifery services, the particular needs of children and young people, support relating to nutrition, spiritual needs, psycho-social and economic issues. In addition, the need for community level support to help with adherence to treatment and address stigma and discrimination are also considered, as is end-of-life care for people whose disease does not respond to treatment

International best practices in universal design : a global review

CANADIAN HUMAN RIGHTS COMMISSION
Eds
March 2007

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This comprehensive research document is a global review comparing accessibility standards for the built environment. In addition to providing 31 essential design elements, it features photographic examples highlighting best practices. This extensive resource, with accompanying CD-ROM, compares building codes and standards throughout the world, including those experiencing extensive rebuilding following war torn or internal conflict. Intended for technical experts, this resource would be useful for anyone interested in accessibility, inclusion and disability and development

Behind the pandemic : uncovering the links between social inequity and HIV/AIDS

DE PAUW, Lia
2007

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This is an education toolkit which takes an exploratory and participatory approach to helping improve people's understanding about international HIV and AIDS issues and the links between HIV and AIDS and social inequity and poverty. There are three modules: Background and Basics, a Global HIV Pandemic Simulation, and Moving Into Action: Stopping the Pandemic. It also contains an extensive information section and instructions for leading the sessions

Universal design and visitability : from accessibility to zoning

NASAR, Jack L., EVANS-COWLEY, Jennifer
Eds
2007

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This book is a collection of best practices gathered from an international conference on universal design. It features guiding principles, statistics and examples of universal design. This comprehensive book offers detailed chapters on the following key issues: principles of universal design; inclusive housing and neighbourhoods; architecture and spatial cognition without sight; and research and teaching of accessibility. It features case studies in Brazil, Thailand, Norway and Maryland, USA. This book would be useful for those interested in universal design, accessibility, and disability and development

Ruined lives : segregation from society in Argentina's psychiatric asylums|A report on human rights and mental health in Argentina

MENTAL DISABILITY RIGHTS INTERNATIONAL (MDRI)
CENTER FOR LEGAL AND SOCIAL STUDIES (CELS)
2007

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This resource documents human rights abuses against almost 25,000 people detained in Argentina's psychiatric institutions. It argues that large-scale institutionalisation and the accompanying abuses are due, to decades of investment in segregated institutions rather than developing necessary community-based mental health care services and support

Neglected diseases : a human rights analysis

HUNT, Paul
et al
2007

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This report introduces and explores some of the connections between neglected tropical diseases (those affecting people living in developing countries, particularly in rural areas) and human rights with a view to urging all parties concerned to work collaboratively in identifying the practical implications of applying human rights to the design, implementation, monitoring and evaluation of policies, programmes and projects for neglected diseases

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