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Forgotten in a crisis: Addressing dementia in humanitarian response

GLOBAL ALZHEIMER'S & DEMENTIA ACTION ALLIANCE
ALZHEIMER'S DISEASE INTERNATIONAL
ALZHEIMER'S PAKISTAN
May 2019

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Every 3 seconds someone develops dementia and it’s one of the leading causes of death worldwide. Despite being some of the most at-risk in times of natural disaster, conflict and forced migration, there is a lack of awareness that dementia is a medical condition, meaning people with dementia are being neglected when they’re most in need of support.

This report investigates ways humanitarian emergency responses can protect and support people living with dementia. It draws on the experiences of people affected by dementia, Alzheimer’s specialists in affected countries, humanitarian organisations and inter-governmental organisations including the World Health Organisation and UNHCR.

Our findings reflect a wider issue of a lack of support for older people and those with disabilities in humanitarian response. We have found that people with dementia are systemically overlooked, due to a lack of global awareness of the condition and associated stigma.

The report is a collaboration between the Global Alzheimer’s & Dementia Action Alliance, Alzheimer’s Disease International and Alzheimer’s Pakistan.

Good practice in the development of management information systems for social protection

CHIRCHIR, Richard
KIDD, Stephen
2011

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This paper "aims to fill a gap in the literature by examining good practice in the design of MISs for social protection. Section 2 will describe MISs, pointing out that they are more than systems of computer hardware and application software. Section 3 will discuss the type of information required by social protection MISs, and the challenges in capturing, transferring and processing this information. Section 4 will assess the potential for introducing new technologies into social protection MISs in developing countries. Section 5 will conclude by examining issues around the integration of MISs in countries with multiple social protection schemes, and the extent to which a national Single Registry is an appropriate model"
Pension watch : briefings on social protection in older age, Briefing no 5

The role of partnerships in health equity

TUTU, Desmond
November 2008

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This commentary sees working in partnership as key to tackling the disparity in access to health care throughout the world. It cites the Medical Knowledge Institute's programmes for addressing HIV in Africa as an example of successful partnerships.

Toolkits : a practical guide to monitoring, evaluation and impact assessment

GOSLING, Louisa
EDWARDS, Mike
2003

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This field-tested toolkit has been designed to measure the extent to which programmes make a difference. The 2003 edition of Toolkits has been extended with contributions from SCF and beyond. It describes participatory methodologies, such as mapping and focus groups. It is divided into three sections: underlying principles, practical questions and tools. This new edition brings these up to date and discusses the implications of adopting a human rights approach to development and the increased emphasis on partnership. There are new chapters on impact assessment, monitoring and evaluating advocacy, as well as two new tools - one for improving planning, evaluation, and impact assessment and one for stakeholder analysis

Alliance for human research protection

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This is the website of a national US network of lay people and professionals dedicated to advancing responsible and ethical medical research practices, to minimising the risks associated with such endeavours and to ensuring that the human rights, dignity and welfare of human subjects are protected. It contains updated news, relevant topic sections and a research database. Links to related resources are provided. This website is useful for people who are interested in ethical medical research issues in the United States

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