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HIV & AIDS and rehabilitation. Factsheet.

HANDICAP INTERNATIONAL
March 2017

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The Human Immunodeficiency Virus (HIV) is a virus that makes the immune system collapse, making a person totally defenceless to infections. A person living with HIV may experience episodic and/or chronic impairments. These may result from illness and/or from treatment side effects, in particular: general fatigue and weight loss; neurological disorders; mental and cognitive disorders such as dementia; and joint and muscle problems. Different examples of rehabilitation across the care cycle are given. A case study in India is provided.
 

Access to HIV and AIDS care: persons with disabilities still left behind

MAC-SEING, Muriel
October 2015

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This article presents disability-inclusive good practices, policy and program related opportunities. It highlights a series of facts and figures related to people with disabilities and HIV infection and the interaction between HIV and disability.  The article goes on to outline Handicap International’s proposal to “remove HIV-related barriers for persons with disabilities” in a two-track approach that includes decision makers, service providers, and service users. Finally, the article shares discussions of successful inclusive practices involving HIV and persons with disabilities in various communities around the world and the key challenges and opportunities to include disability into HIV and AIDS

Knowledge and perceptions of HIV-infected patients regarding HIV transmission and treatment in Ho Chi Minh City, Vietnam

Hoang, Dong
Dinh, An T
Groce, Nora
Sullivan, Lynn
March 2015

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Patient education concerning HIV and antiretroviral (ARV) medications is important for optimal outcomes. The authors assessed the knowledge and perceptions of HIV-infected patients in an ARV education program in Ho Chi Minh City, Vietnam. The study population’s knowledge of HIV/AIDS and ARV medications, perceived stigmatization, and areas of knowledge deficits underscore the need for effective patient education programs addressing poorly understood issues around HIV/AIDS.

The gap report

THE JOINT UNITED NATIONS PROGRAMME ON HIV AND AIDS (UNAIDS)
July 2014

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The goal of this report is to provide the best possible data on the global AIDS epidemic, with a particular focus on information and analysis on the people left behind. The report highlights these gaps firstly in regional terms, providing “Regional Snapshots” and then explores issues faced by the following 12 populations that have been left behind by the AIDS response: people living with HIV, adolescent girls and young women, prisoners, migrants, people who inject drugs, sex workers, gay men and other men who have sex with men, transgender people, children and pregnant women living with HIV, displaced persons, people with disabilities and people aged 50 years and older

Differences in HIV knowledge and sexual practices of learners with intellectual disabilities and non-disabled learners in Nigeria

ADEEMI, Toyin
PILLAY, Basil
ESTERRHUIZEN, Tonya
February 2013

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"This study sought to compare the HIV knowledge and sexual practices of learners with mild/moderate intellectual disabilities and non-disabled learners (NDL) in Nigeria. Findings could help in the development of HIV interventions that are accessible to Nigerian learners with intellectual impairments"
Journal of the International AIDS Society, Vol 16

Training of trainers manual on disability-inclusive HIV services and disability-inclusive sexual and reproductive health for health workers

ADEREMI, Toyin Janet
September 2011

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This training of trainers manual has been designed as a guide for providers of HIV prevention, treatment, care and support and sexual and reproductive health (SRH) services to ensure services are disability-inclusive. This training is divided in 5 parts: Part 1 - Introduction; Part 2 - Disability awareness and disability inclusion; Part 3 - Disability-inclusive HIV prevention, treatment, care and support services; Part 4 - Disability-inclusive sexual and reproductive health services; Part 5 - Disability-inclusive HIV prevention integrated into sexual and reproductive health services. This manual is useful for anyone interested in trainings on disability-inclusive HIV services and disability-inclusive sexual and reproductive health for health workers
Note: the manual is available to download in three parts using the links provided

Access to HIV/AIDS and sexual violence protection services among women and men with hearing, visual and physical impairments in Battambang and Kampong Cham provinces of Cambodia

MAC-SEING, Muriel
August 2010

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"This article presents the findings of a study on access to HIV prevention and sexual violence protection services among persons with disabilities in Cambodia, based on a gender and cross-impairment analysis. The results show obvious discrepancies between women and men of different impairments in regards to their level of HIV knowledge and risks to sexual violence, in particular among women with disabilities. Furthermore, local services providers revealed their lack of awareness on disability issues and capacity in providing accessible services to them. Ways forward in addressing the rights of women and men with disabilities, as well as gaps in services delivery will have to be addressed in concerted manners at political, societal and community levels"

Youth to youth|Disability-sensitive youth to youth : methodologies in HIV and AIDS

HANDICAP INTERNATIONAL KENYA
2010

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This video features HIV and AIDS prevention and education initiatives in Kenya. It particularly targets the youth population due to a lack of available information and risk behaviours, such as sexuality, drug use and alcohol use. In order to prevent risks and present treatment options for the youth who are AIDS-carriers, several youth groups organized the following activities to prevent and fight the disease: street theatre for awareness-raising, group education sessions, and promotion of VCT services for communication and information. This video contains several testimonies and one features Mercy, a young girl who has AIDS after working as prostitute to feed her two children and is now involved in a support group

Disability in national strategic plans on HIV and AIDS : a review on the national response to the interrelations of disability and HIV in eastern and southern Africa|Final report

GRANT, Kitty
STRODE, Ann
HANNASS-HANCOCK, Jill
December 2009

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This report examines national AIDS and HIV strategic plans (NSPs) in eastern and southern Africa and includes findings, discussions and best practice examples on the integration of disability throughout the countries. "Generally, the findings of the report show that less than 50% of the countries in Eastern and Southern Africa recognise disability as an issue of concern, or specifically recognise the vulnerability of people with disabilities to HIV and AIDS within their NSPs. Furthermore, it found that even where countries have recognised disability as an issue, there is limited specific guidance within the NSP on HIV-related service provision to meet the needs of people with disabilities. Only one country, South Africa, showed extensive integration of disability into the various focus areas of its NSP." The report concludes with recommendations and provides detailed appendices of national reports for each country surveyed

Cross border HIV project in Ethiopia-Somaliland : issuing from an learning-from-experience process on the project|Improvement of HIV/AIDS prevention and treatment in the cross-border regions of Djibouti, in Ethiopia and in Somaliland

DE LAMARZELLE, Julie
October 2009

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This report analyses community awareness activities in reducing denial and stigmatisation of HIV/AIDS and informing them on prevention methods. This analysis is based on a project that aimed to increase prevention and care of the disease in the trans-border region of Djibiouti, Ethiopia and Somaliland between 2006 and 2009

The global economic crisis and HIV prevention and treatment programmes : vulnerabilities and impact

BONNEL, Rene
DE BEYER, Joy
BENNETT, Dianne
2009

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This report summarises responses gathered, in late March 2009, from respondents in 71 countries. It asked whether antiretroviral treatment had been affected, or might be affected in future, by the global economic crisis. It identifies regions that appear to be more vulnerable than others and highlights the causes and negative effects of disruption to antiretroviral treatment programmes or services. The report suggests ways to maintain and expand access to HIV treatment in a difficult economic climate

South African national HIV prevalence, incidence, behavior and communication survey 2008 : turning a tide among teenagers ?

SHISANA, O
et al
2009

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"South Africa has the largest burden of HIV/AIDS and is currently implementing the largest antiretroviral treatment (ART) programme in the world. It is therefore fitting that South Africa is the first in the world to conduct three repeated national HIV population-based surveys to help monitor our response as a nation to the HIV/AIDS epidemic. This report is the third in a time series of population-based HIV seroprevalence surveys which started in 2002 and were repeated in 2005 and again in 2008"

Keeping the promise : interventions by persons with disabilities against HIV/AIDS

HANDICAP INTERNATIONAL KENYA
2009

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People with disabilities, including people with disabilities who are living with HIV, are often excluded from their community and their family. This video presents testimonies of people with disabilities who are living with HIV and proposes actions in Kenya to fight against their exclusion. For example, it highlights support groups that have been created to educate people with disabilities, living with HIV or not, on sexuality, HIV/AIDS, and how to live positively with disabilities and reduce the stress caused by them. Another section of the video presents a support group for parents of children with disabilities where it is encouraged to talk about sexual abuse and violence on children and prevention of sexually transmitted diseases. Support groups for hearing and visually impaired people are also presented in the video. In addition to support groups, education and prevention are also promoted by through sport and street shows which contribute to the social inclusion of people with disabilities living with HIV

HIV, AIDS and disability : programming initiatives in Africa and Asia

INTERAGENCY COALITION ON AIDS AND DEVELOPMENT
June 2008

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This document provides initial information on initiatives which address the issues of disability and HIV and AIDS in Africa and Asia. It also provides a list of sources on disability and HIV. It would be useful for people looking for information on existing disability and HIV programmes in Africa and Asia

School-centred HIV and AIDS care and support in Southern Africa : technical consulation report

BOLER, Tania
JOHNSSON, Emily
February 2008

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This report maps out the various activities in school-based HIV treatment, care and support that are being undertaken in Southern Africa, as a response to the changing needs of teachers, students and local communities. It highlights successful factors and common challenges and suggests five broad principles that help provide a comprehensive response to treatment, care and support,and reinforce prevention messages

HIV/AIDS and disability : an exploration of organizations' responses to HIV/AIDS as it affects people with disabilities

ROHLEDER, Poul Andrew
2008

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This dissertation in clinical psychology explores the extent to which South African schools and organisations that work with persons with disabilities deal with issues of HIV and AIDS. The study indicates that although HIV education takes place, issues relating to HIV and AIDS are handled with much anxiety. The results reveal that in some cases HIV education is used to control and oppress disabled people’s sexual expression, instead of empowering them to have fulfilling sexual lives. Issues regarding sexual abuse and rape are also discussed. The dissertation ends with recommendations regarding further research on disabled people’s experiences and the need to address the silence around issues such as rape and abuse. This resource would be useful for people looking for in-depth information on disability and HIV in general (chapters 2 and 3), and with a focus on South Africa in particular (chapters 5 to 7). Moreover, it would be useful to people interested in the psychological aspects of working in the field of HIV (chapter 4)

HIV, AIDS and disability

INTERAGENCY COALITION ON AIDS AND DEVELOPMENT
2008

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This paper briefly outlines the need for collaboration between those advocating the rights of people with disabilities, and those active in the field of HIV and AIDS prevention. It gives an overview of recent studies in the field, and provides information on initiatives which address the issues of disability and HIV and AIDS in Africa and Asia. This document would be useful for people looking for an initial introduction to the cross-cutting issue of HIV and disability with examples from existing programmes in the field

As it is|Research findings on the knowledge, attitude, practice and access to HIV and AIDS information and services amongst persons with disability

HANDICAP INTERNATIONAL KENYA
2007

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This report presents a research study that scientifically gathered information concerning the knowledge, attitude and practice among people with disabilities in areas surrounding HIV and AIDS. The study used primary and secondary data, collecting the primary data through both qualitative and quantitative methods. The research was conducted in Nairobi, Mombasa, Kisumu and Thika. The study confirms that persons with disabilities need special focus in the fight against HIV and AIDS pandemic in Kenya, and recommends mainstreaming disability issues at the national level. The findings of this study are useful to guide the planning and implementation of HIV prevention and management programmes for people with disabilities in Kenya

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