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Participation scale

VAN BRAKEL, W. H
April 2010

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This resource provides a manual and related scale to measure (social) participation for use in rehabilitation, stigma reduction and social integration programmes
Note: Contact the author or ILEP for further information

Backbone principles of the CBR Guidelines and their application in the field of leprosy

VELEMA, Johan P
CORNIELJE, Huib
January 2010

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This paper summarises the draft CBR guidelines of WHO/ILO/Unicef into 3 principles: inclusion, empowerment, sustainability. Existing work with people affected by leprosy is reviewed in light of these CBR principles to formulate new strategies and make changes if necessary. The paper also presents experiences from the field with inclusion of leprosy-affected persons in multi-disability self-help groups and disabled people’s organisations
Asia Pacific Disability Rehabilitation Journal, Vol 21, No 1

World alzheimer report 2010 : the global economic impact of dementia

WIMO, Anders
PRINCE, Martin
2010

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This report provides a global picture of the economic impact of Alzheimer's disease and dementia. "The report includes an estimate of the worldwide cost of dementia, including direct medical costs, direct non-medical costs and costs of informal (family) care. The estimates are broken down by world region and include analysis of the differences between low and high income countries. The report also contains important policy recommendations and makes clear to key decision-makers that doing nothing is not an option"

The role of partnerships in health equity

TUTU, Desmond
November 2008

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This commentary sees working in partnership as key to tackling the disparity in access to health care throughout the world. It cites the Medical Knowledge Institute's programmes for addressing HIV in Africa as an example of successful partnerships.

Numbers of women circumcised in Africa : the production of a total

YODER, P Stanley
KHAN, Shane
March 2008

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This paper gives the results of a study to find an estimated figure for the number of women in Africa who have undergone circumcision or female genital cutting (FGC). The study is based on women over the age of 15, although an appendix provides information about girls aged 10-14. A reliable figure helps in assessing the number of women at risk for female genital cutting and its complications in order to raise public awareness of the size and scope of the practice in some countries in Africa. Accurate information about the size and scope of this practice makes it possible to better estimate the need for specialised health care for women and to mobilise resources for advocacy against FGC

Evidence for the effectiveness of rehabilitation-in-the-community programmes

VELEMA, Johan P
EBENSO, Bassey
FUZIKAWA, Priscila L
March 2008

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"The present literature review identified 29 reports from 22 countries in Asia, Africa and Central America reporting on the outcomes of rehabilitation-in-the-community programmes in low and middle income countries published between 1987 and 2007. Interventions included home visits by trained community workers who taught disabled persons skills to carry out activities of daily living, encouraged disabled children to go to school, helped find employment or an income generating activity, often involving vocational training and/or micro-credit. Many programmes had a component of influencing community attitudes towards disabled persons. The information collected shows that such programmes were effective in that they increased independence, mobility and communication skills of disabled persons, helped parents of disabled children to cope better and increased the number of disabled children attending schools. Economic interventions effectively increased the income of disabled persons although they rarely made them financially independent. CBR activities result in social processes that change the way community members view persons with disabilities, increase their level of acceptance and social inclusion and mobilise resources to meet their needs"
Leprosy Review, Vol 79, Issue 1

School-centred HIV and AIDS care and support in Southern Africa : technical consulation report

BOLER, Tania
JOHNSSON, Emily
February 2008

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This report maps out the various activities in school-based HIV treatment, care and support that are being undertaken in Southern Africa, as a response to the changing needs of teachers, students and local communities. It highlights successful factors and common challenges and suggests five broad principles that help provide a comprehensive response to treatment, care and support,and reinforce prevention messages

Manual for the health care of children in humanitarian emergencies

WORLD HEALTH ORGANIZATION (WHO)
2008

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These guidelines are to assist in the care of children in emergencies. They are designed to serve as a reference manual for the evaluation and management of children in emergencies, and as the basis for the training of health care workers. The target audience is first level health workers who provide care to children under the age of 5 years. Physicians and health care workers with more advanced training are referred to the WHO Pocket Book of Hospital Care for Children: Guidelines for the Management of Common Illnesses with Limited Resources (2005)

Habilitation, rehabilitation and general health care : facing challenges ahead to realize the goals of the CRPD

GROCE, Nora
MONTERO, Federico
2008

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Children with disabilities need improved access to good clinical care and public health services in order to achieve and maintain the best health possible. As increasing numbers of children with disabilities are living longer and fuller lives, child advocates must improve the access to both general health care and to needed habilitation or rehabilitation services and assistive devices, if these children are to reach their full potential. Such services should become increasingly available as countries adopt and then implement the Convention on the Rights of Persons with Disabilities

Local voices : a community perspective on HIV and hunger in Zambia

DUCK, Natalie
HAUENSTEIN SWAN, Samuel
2008

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This report documents the findings of a six month qualitative research project that provided HIV orphans, vulnerable children and their carers, living in the Kitwe district in Zambia, with the opportunity to discuss and document the difficulties they face providing food, water and healthcare for their families. The report shows the direct impact of HIV & AIDS on the economic and social well being of both household and communities

Missing the target #5 : improving AIDS drug access and advancing health care for all

INTERNATIONAL TREATMENT PREPAREDNESS COALITION (ITPC)
December 2007

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This report documents how the mobilisation around AIDS is driving health systems advancement in China, Dominican Republic, Zimbabwe, Russia, Kenya, India, Cameroon, Zambia and Cambodia, and it highlights the need for improvements in broader systems of care and services to meet the needs of people living with HIV & AIDS and the communities in which they live. It also considers ARV procurement, registration and stock-outs in Argentina, Belize, Cambodia, China, Dominican Republic, India, Malawi, Morocco, Nigeria, Philippines, Russia, Uganda, Zambia, Zimbabwe

The health journey : understanding the dimensions of care and treatment for people with HIV. A community-centred methodology

GREEN, Carolyn
August 2007

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The health journey is a tool that puts the a person with a health problem at the centre of the picture and maps their real-life experiences, highlighting what actually happens, as a starting point for community engagement and community-centred health service planning. This manual is divided into three sections, explaining what a health journey is and why it might be useful for understanding the experiences of people with HIV, how to set up and use the methodology and five examples of health journey workshops together with the impacts that resulted from them

The essentials of antiretroviral therapy for health care and program managers

HOPE, Ruth
ISRAEL, Ellen
April 2007

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This book provides health care workers and mangers with information and practical guidance relating to antiretroviral therapies (ART). It also considers wider care and treatment issues such as; opportunistic infections, the integration of ART with antenatal and midwifery services, the particular needs of children and young people, support relating to nutrition, spiritual needs, psycho-social and economic issues. In addition, the need for community level support to help with adherence to treatment and address stigma and discrimination are also considered, as is end-of-life care for people whose disease does not respond to treatment

A health handbook for women with disabilities

MAXWELL, Jane
WATTS BELSER, Julia
DAVID, Darlena
February 2007

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This book deals with practical advice on health care for women with disabilities. It has been developed in partnership with health care professionals and disabled women in over 42 countries. It covers the key issues of disability in the community; accessible health care; mental health; sexual health; family planning; and child birth. The book is written in a practical and accessible style, suitable for anyone with an interest in disability, social development and women's health issues. In particular, the book offers a valuable insight into 'real-life' personal experiences of disabled women

Services for care, treatment and support of people living with HIV

HOPE, Ruth
2007

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This paper considers why the services offered to people with HIV are different to other health services because of the need continuity of care and to encompass aspects of peoples lives beyond clinical care, including: social and spiritual needs, economic needs, food and nutrition needs, legal needs. It looks at the role of health care workers and the need for a care plan that encompasses the family

Qualitative survey on disability and living standards in Georgia

INSTITUTE FOR POLICY STUDIES (IPS)
PA CONSULTING GROUP
2007

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This report presents the disability situation in Georgia as of September 2006. The qualitative research identifies the most significant issues, challenges and barriers faced by members of the disabled population in order to contribute to a better understanding of the relationship between disability and poverty in a given country and globally, and provides recommendations aimed at designing/improving policies regarding employment, education, health care, and social protection

Enhanced protection for children affected by AIDS

GREENBERG, Aaron
et al
2007

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This paper articulates the vulnerabilities and protection risks of children affected by AIDS and proposes practical actions to address them. It is a companion paper to "The Framework for the Protection, Care and Support of Orphans and Vulnerable Children Living in a World with HIV and AIDS". It aims to help translate government commitment into practice, building on the strategies laid out in the Framework

Using social transfers to improve human development

DEPARTMENT FOR INTERNATIONAL DEVELOPMENT (DFID)
February 2006

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This note provides an introduction to how social transfers - particularly cash transfers and vouchers - can improve human development, particularly for the extreme poor and socially excluded

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