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Right to health: Reality of persons with spina bifida and hydrocephalus

MCPHERSON. Amy
January 2017

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"This report maps the situation of persons with SBH in relation to healthcare access and is a follow up of the CRPD Concluding Observations Art.25. Through a comprehensive survey, IF collected valuable data on the experiences, satisfaction, and perceptions of healthcare coverage of individuals with SBH across Europe. Based on its findings, the financial coverage of treatment and assistive products for patients with SBH is grossly insufficient across the EU. Europe as a whole lacks multidisciplinary care and specialised SBH teams, which translates into long waiting times and insufficient knowledge of the SBH specificities. 

Considering these findings, IF urges the EU Member States to adequately support the healthcare needs of persons with SBH, and to invest more substantially into creating multidisciplinary clinics that can help avoid preventable complications 11 and may reduce the overall burden 12 on the patient and the system. In addition, the Member States should actively support creation of the European Reference Networks as a way of improving care for persons with SBH. IF also calls on the European institutions for support in training medical professionals on rights of persons with disabilities."

Equal basis 2014 : access and rights in 33 countries

BURKE, Megan
PERSI VICENTIC, Loren
December 2014

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This report presents research about efforts to meet the needs and uphold the rights of persons with disabilities in four thematic areas: health care, rehabilitation, work and employment, and accessibility and enabling environments. Research findings are drawn from the experiences of landmine and cluster munition survivors and other persons with similar needs in 33 countries experiencing armed conflict or emerging from armed conflict or political or economic transition. Findings are placed within the context of relevant articles of the Convention on the Rights of Persons with Disabilities and the World Report on Disability

Missing the target #5 : improving AIDS drug access and advancing health care for all

INTERNATIONAL TREATMENT PREPAREDNESS COALITION (ITPC)
December 2007

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This report documents how the mobilisation around AIDS is driving health systems advancement in China, Dominican Republic, Zimbabwe, Russia, Kenya, India, Cameroon, Zambia and Cambodia, and it highlights the need for improvements in broader systems of care and services to meet the needs of people living with HIV & AIDS and the communities in which they live. It also considers ARV procurement, registration and stock-outs in Argentina, Belize, Cambodia, China, Dominican Republic, India, Malawi, Morocco, Nigeria, Philippines, Russia, Uganda, Zambia, Zimbabwe

Qualitative survey on disability and living standards in Georgia

INSTITUTE FOR POLICY STUDIES (IPS)
PA CONSULTING GROUP
2007

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This report presents the disability situation in Georgia as of September 2006. The qualitative research identifies the most significant issues, challenges and barriers faced by members of the disabled population in order to contribute to a better understanding of the relationship between disability and poverty in a given country and globally, and provides recommendations aimed at designing/improving policies regarding employment, education, health care, and social protection

Children and disability in transition in CEE/CIS and the Baltic States

UNICEF INNOCENTI RESEARCH CENTRE
2005

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This report presents the status of children with disabilities in the former Soviet Union and Baltic States (i.e. CEE/CIS). It explains existing rights and education, healthcare and recreation facilities that are provided for children with disabilities. The concerns of children with disabilities and their parents are highlighted on various issues. This report would be useful for people interested in the status of children with disabilities in the former Soviet Union and Baltic States

STAKES : knowledge for welfare and health

NATIONAL INSTITUTE FOR HEALTH AND WELFARE

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STAKES is an expert Finnish agency in the field of social welfare and health care that produces information and expertise for policymakers and other stakeholders. STAKES main functions are research, development and statistics. This website contains information about the agency as well as topic specific information about health services, social services, welfare policy, living conditions, childhood and family, older people, disability, mental health, and alcohol and drugs. Links are provided to related publications and updates

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