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Do experiences and perceptions about quality of care differ among social groups in Nepal? A study of maternal healthcare experiences of women with and without disabilities, and Dalit and non-Dalit women

DEVKOTA, Hridaya Raj
MURRAY, Emily
CLARKE, Andrew
GROCE, Nora
December 2017

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Background
Suboptimal quality of care and disparities in services by healthcare providers are often reported in Nepal. Experience and perceptions about quality of care may differ according to women’s socio-cultural background, individual characteristics, their exposure and expectations. This study aimed to compare perceptions of the quality of maternal healthcare services between two groups that are consistently considered vulnerable, women with disabilities from both the non-Dalit population and Dalit population and their peers without disabilities from both non-Dalit and Dalit communities.

Methods
A cross-sectional survey was conducted among 343 total women that included women with disabilities, Dalits and non-Dalits. Women were recruited for interview, who were aged 15–49 years, had been pregnant within the last five years and who had used maternal care services in one of the public health facilities of Rupandehi district. A 20-item, Likert-type scale with four sub-scales or dimensions: ‘Health Facility’, ‘Healthcare Delivery’, ‘Inter-personal’ and ‘Access to Care’ was used to measure women’s perceptions of quality of care. Chi-square test and t test were used to compare groups and to assess differences in perceptions; and linear regression was applied to assess confounding effects of socio-demographic factors. The mean score was compared for each item and separately for each dimension.

PLoS ONE 12(12): e0188554
https://doi.org/10.1371/journal.pone.0188554

Global report on the participation of organisations of persons with disabilities (DPOs) in VNR (voluntary national review) processes

INTERNATIONAL DISABILITY ALLIANCE (IDA)
STAKEHOLDER GROUP OF PERSONS WITH DISABILITIES
2017

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"This global report raises awareness for DPOs and how to engage with their governments in the national consultation processes on SDG implementation. This case study features the volunteering countries of Argentina, Bangladesh, Denmark, El Salvador, Ethiopia, India, Indonesia, Italy, Kenya, Nigeria, Peru, Sweden and Togo.

The information summarised in the country chapters was derived from DPOs and partners working at the national level on SDG implementation and information may be subjective. The country chapters are structured to include; status of persons with disabilities, engagement in the voluntary national review process, thematic issues--poverty alleviation, healthcare, women with disabilities and accessibility—and analysis of the submitted VNR report

Reproductive health justice for women with disabilities

ALVARES, Lisa
et al
April 2011

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"This paper highlights the added discrimination that women with disabilities often face in the context of their disparate access to health care, especially in the areas of reproductive health services and sexual health education, and offers recommendations for a twenty-first century response to the vast health care gaps that impact this population"
Barbara Faye Waxman Fiduccia Papers on Women and Girls with Disabilities

Handbook for coordinating gender-based violence interventions in humanitarian settings

WARD, Jeanne
LAFRENIERE, Julie
July 2010

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This Handbook has been produced by the global Gender-based Violence (GBV) Area of Responsibility Working Group as a quick reference tool for all individuals and agencies involved in GBV programming and coordination in humanitarian/emergency settings. The handbook contains practical guidance on leadership roles, key responsibilities and specific actions to be taken when establishing and maintaining a GBV coordination mechanisms in a humanitarian setting. The focus is primarily on work that should be done to scale up coordination from the onset of an emergency (both conflict and natural disasters) but is also relevant to contingency planning and post-emergency stabilization phases
The goal of the handbook is to improve coordination capacity at the field level in order to facilitate accessible, prompt, confidential and appropriate services for survivors according to a basic set of principles and to put in place mechanisms to prevent GBV
The handbook can also be used as an advocacy tool to educate non-GBV programmers--including UN personnel, government officials, NGO staff and donors--about basic protection responsibilities related to GBV coordination, prevention and response

A health handbook for women with disabilities

MAXWELL, Jane
WATTS BELSER, Julia
DAVID, Darlena
February 2007

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This book deals with practical advice on health care for women with disabilities. It has been developed in partnership with health care professionals and disabled women in over 42 countries. It covers the key issues of disability in the community; accessible health care; mental health; sexual health; family planning; and child birth. The book is written in a practical and accessible style, suitable for anyone with an interest in disability, social development and women's health issues. In particular, the book offers a valuable insight into 'real-life' personal experiences of disabled women

Scaling up access to HIV prevention, treatment, care and support: the next steps

Joint United Nations Programme on HIV/AIDS (UNAIDS)
2006

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This is a review of country and regional consultations undertaken by UNAIDS, following the United Nations' Political Declaration on HIV and AIDS in June 2006. It explores barriers to UNAIDS' commitment to ensure universal access to comprehensive HIV prevention programmes, treatment, care and support by 2010; and it identifies the next steps that need to be taken for this to become a reality. The key messages are the need for: supportive and protective legislation and programmes to ensure the rights of people living with HIV, women and most-at-risk populations; predictable and sustainable funding for all credible AIDS plans; more trained health care professionals and improved health care systems; and affordable medication, testing and prevention programmes. The review also examines the role of civil society and of faith-based organisations in supporting people with HIV through treatment compliance, prevention, support, care and reducing stigma. It recommends that the high level of response should continue, that targets need to be set and accountability mechanisms improved

Strong proud sisters : girls and young women with disabilities

ROUSSO, Harilyn
2001

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This report presents disabled girls and their needs and resilience, looking at a range of issues such as definitions and demographics, access to health care, substance abuse, exercise and sports, depression, self-esteem, eating disorders and body image, disability identity, role models and media images, social and sexual development, violence, educational equity, and employment
Barbara Waxman Fiduccia Papers on Women and Girls with Disabilities

Where women have no doctor : a health guide for women

BURNS, A. August
et al
1997

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Using simple language and hundreds of pictures, this book provides information on how a woman's body changes, and on monthly bleeding, and has chapters among others on health concerns of girls, mental health and violence against women

Disabled women : disability awareness in action resource kit

DISABILITY AWARENESS IN ACTION (DAA)
1997

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Disabled women are excluded from society and restricted from participating in many activities. This book describes and addresses the obstacles that disabled women face, in order to facilitate equal opportunities. It is targeted at disabled women, activists and organisations working on gender and disability

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