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The validation of an educational database for children with profound intellectual disabilities

SPANGENBERG, Karlien
CORTEN, Lieselotte
VAN RENSBURG, Winnie
KILIAN, Elizma
MCKENZIE, Judith
VORSTER, Hein
JELSMA, Jennifer
2016

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Background: The Western Cape Forum for Intellectual Disability took the South African Government to court in 2010 on its failure to implement the right to education for Children with Severe and Profound Intellectual Disability. Subsequently, multidisciplinary teams were appointed by the Western Cape Education Department to deliver services to the Special Care Centres (SCCs). Initially, minimal information was available on this population.


Objectives: The purpose is to document the process of developing and validating a database for the collection of routine data.


Method: A descriptive analytical study design was used. A sample of convenience was drawn from individuals under the age of 18 years, enrolled in SCCs in the Western Cape. The team who entered and analysed the data reached consensus regarding the utility and feasibility of each item.


Results: Data were collected on 134 children. The omission of certain items from the database was identified. Some information was not reliable or readily available. Of the instruments identified to assess function, the classification systems were found to be reliable and useful, as were the performance scales. The WeeFIM, on the other hand, was lengthy and expensive, and was therefore discarded.
Discussion and conclusions: A list of items to be included was identified. Apart from an individual profile, it can be useful for service planning and monitoring, if incorporated into the central information system used to monitor the performance of all children. Without such inclusion, this most vulnerable population, despite court ruling, will not have their right to education adequately addressed.

Impact area overview: the right to inclusive quality education

PLAN INTERNATIONAL
July 2016

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A review by Plan International of their work in the area of inclusive education is presented. Rights associated with inclusive education, education targets in SDGs and global education intitatives and trends are outlined. Issues associated with inclusive education implementation and what needs to be done are discussed. The experience, standards, priorities and strategies and advocacy of Plan International are reported.

Towards Inclusive Education - The impact of disability on school attendance in developing countries

Suguru Mizunoya
Sophie Mitra
IzumiYamasaki
May 2016

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The paper aims to reduce the global knowledge gap pertaining to the impact of disability on school attendance, using cross-nationally comparable and nationally representative data from 18 surveys in 15 countries that are selected among 2,500 surveys and censuses. These selected surveys administered the Washington Group Short Set (WGSS) of disability-screening questions, covering five functional domains of seeing, hearing, mobility, self-care, and remembering, and collected information on educational status. The paper finds that (i) the average disability gap in school attendance stands at 30% in primary and secondary schools in 15 countries; (ii) more than 85% of disabled primary-age children who are out of school have never attended school; (iii) the average marginal effect of disability on primary and secondary school attendance is negative and significant (-30%), and (iv) countries that have reached close to universal primary education report high ratios of disabled to non-disabled out-of-school children and (v) disabled children confront the same difficulties in participating in education, regardless of their individual and socio-economic characteristics.

Inclusive education : what, why, and how : a handbook for programm implementers

HEIJNEN-MAATHUIS, Els
March 2016

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This handbook has been developed specifically for Save the Children programme staff, implementing partners, and practitioners supporting education programmes in any context – development, emergency, or protracted crisis. The Inclusive Education Working Group​ (IEWG) recognized that inclusive education begins with the work being done by education staff in the field, and designed this handbook specifically with them in mind. Guidance has also been structured along the project cycle, so that it may be useful to programmes regardless of their current stage of implementation. This handbook is designed to provide guidance through the different attitudes and barriers that could be causing educational exclusion, as well as to identify key strategies to address them. The project steps are situational analysis, programme design, implementation design, implementation and monitoring, and evaluation and lessons learnt. Case studies presented include: community-based EMIS in Tajikistan; designing for gender equality in Sierra Leone; probing questions lead to deeper analysis and improved programmes (in Uganda); education in emergencies (in Syria); school self-evaluation in Lao PDR. Quick reference charts and further resources are offered for each step

Best Practice Guides for professional supporting autistic students in Higher education. Guide 1: Best practice for HEI managers and senior academics

FABRI, Marc
ANDREWS, Penny
PUKKI, Heta
March 2016

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This guide is for managers and senior academics at universities and higher education institutions, to provide with information and evidence to help develop policies and practices that will benefit autistic students and improve the student experience. It was developed from work in five European countries. It is one of three guides to help higher education professionals support autistic students.

Best Practice Guides for professionals supporting autistic students in Higher Education. Guide 3: For professionals supporting autistic students within or outside HE Institutions

FABRI, Marc
ANDREWS, Penny
PUKI, Heta
March 2016

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This guide is for specialists directly supporting autistic students. This may be as part of a disability support team within a Higher Education Institution (HEI), or for an independent organisation that provides services to HE. Insights from research and from good practice across Europe are shared to help improve student experiences and engagement with information and services, and to develop expertise.

Community-based rehabilitation for people with disabilities - Systematic review summary

Valentina Iemmi
Hannah Kuper
Karl Blanchett
March 2016

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There are an estimated one billion people with disabilities globally, corresponding to about 15 per cent of the world’s population (WHO 2011). Among them, 80 per cent of people with disabilities live in low- and middle-income countries. People with disabilities include those who have long-term physical, mental, intellectual or sensory impairments, which in interaction with various barriers may hinder their full and effective participation in society on an equal basis with others (UN 2008; WHO 2011). People with disabilities are often excluded from education, health, employment and other aspects of daily life, and are generally poorer. It is therefore widely argued that the Millennium Development Goals and the post-2015 targets cannot be achieved without integrating disability issues into the agenda. We conducted a systematic search for evidence on the effects of community-based rehabilitation (CBR) on health, education, livelihoods, social and empowerment outcomes. 

Community-based rehabilitation for people with disabilities, 3ie Systematic Review Summary 4, is a summary of the full review, Community-based rehabilitation for people with disabilities in low- and middle-income countries: a systematic review, which is available with all of its appendixes on the 3ie website. 

 

Who is being left behind in sub-Saharan Africa, Asia and Latin America? 3 reports from ODI

LYNCH, Alainna
BERLINER, Tom
MAROTTI, Chiara
BHAKTAL Tanvi
RODRIGUEZ TAKEUCHI Laura
et al
February 2016

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The commitment to ‘leave no one behind’ has been a key feature of all the discussions on the Sustainable Development Goals (SDGs). Here are three papers setting out the first step to implementing this agenda - the step of identifying marginalised communities. The focus is on two case study countries for each of the three regions, sub-Saharan Africa, Asia, and Latin America and the papers identify gaps in achieving a number of outcomes relating to key SDGs targets for marginalised groups. The paper on Asia highlights people with disabilities in Bangladesh.

Roads to inclusion, a tool for identifying progress in community-based rehabilitation projects

February 2016

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The roads to inclusion tool has been developed by ENABLEMENT (the Netherlands) and LIGHT FOR THE WORLD on the basis of an action research programme carried out in Burkina Faso, Ethiopia and North East India. Communities in two sites of each country were asked to define what inclusion meant to them and those definitions were used as a basis for developing this tool. LIGHT FOR THE WORLD and ENABLEMENT hope this tool will support CBR teams in assessing communities’ progress in becoming more inclusive of persons with disabilities and planning activities to further the inclusion process. It promotes reflection on changes related to inclusion rather than judging projects on the impact of their work, and is thus not a tool for impact evaluation or comparing inclusion between different countries and cultures. The tool can be used in a variety of contexts. We recommend adjusting it to fit your organisation’s needs and seeing it as an inspiration on how it could be done, not as a prescription on how it should be done

Towards a disability inclusive education.

SAEBONES, Ann-Marit
BERMAN BIELER Rosangela
BABOO Nafisa
BANHAM Louise
SINGA Nidhi
HOWGEGO Catherine
VUYISWA MACCLAIN-NHLAP Charlotte
RI Trine Cecilie
et al
January 2016

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Background paper for the Oslo Summit on Education for Development July 7th, 2015. This paper covers the four topics of the Oslo Summit: investment in education, quality of learning, education in emergencies and girls’ education. The inclusion of children with disabilities is a moral issue as well as an economic and social issue: the costs of exclusion are significant for both for the individual and for society. Disability inclusion should be mainstreamed in all policies and plans. Accessibility standards should be implemented and supported by international development cooperation. Currently, 1/3 of the 58 million out of school children are children with disabilities. Planning and budgeting by national governments and development partners needs to include children with disabilities. There is an immediate need for inclusive reporting and monitoring, for applying disability specific education indicators as well as a need for systematic collection of disaggregated data on disability, age and gender. Keys to achieving quality disability inclusive education include: requiring minimum standards of accessibility for all schools, including in emergency settings; investment in teacher training; ensuring that learning materials/resources are available in accessible formats and are easily adaptable; investment in assistive technology and devices; ensuring participation of Disabled People’s Organisations in education planning and monitoring.

Digital Inclusion: a white paper

HOOGERWERF, Evert-Jan
MAVROU, Katerina
et al
2016

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This white paper will provide the reader with insight into the role technology plays for the full participation of persons with disabilities and older people in the digital society. The authors consider equal opportunities to participate in all realms of life a human right. The paper will help the reader to understand what the barriers to full digital inclusion for these groups are, how changing scenarios in society should lead to the definition of new goals and how these goals could be reached. 

This white paper looks forward and challenges the reader to identify strategies to tackle the digital divide. In the first section, it analyses trends and policy objectives as defined by the international community in 6 different areas relevant to the digital divide:

Disability and participation

Education

Employment

Health and social care

Technology

(Social) Media 

The writing of this white paper is the result of a three-year long project funded by the European Commission under the Lifelong Learning Programme. The ENTELIS project has brought together various organisations from different European countries and beyond and has resulted in the establishment of a sustainable network, supported by three European umbrella organisations: EASPD (European Association of Service Providers to Persons with Disabilities), AAATE (Association for the Advancement of Assistive Technology in Europe) and EVBB (European Association of Vocational Training Institutes). For them supporting the network means creating an opportunity for their member organisations and other interested stakeholders to actively engage with technology and technology users with disabilities in education, vocational training and person centred support services. Their common understanding is that ICT and AT can empower people with disabilities, lead to more fulfilled lives and a more inclusive society but that this can only be reached if there is effective collaboration between sectors. Their expectation is that the network will empower their member organisations in making this become reality and this document and in particular the roadmap contained in there might provide good guidance for that. 

 

Making schools accessible to children with disabilities

2016

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Barrier-free access refers to universal access for all children to inclusive schools. While there are many barriers that need to be addressed — the curriculum, and teaching-learning practices and materials, among others — to make a school inclusive, this guidebook speci fi cally focuses on infrastructural barriers and provides practical, cost-effective and technical solutions for making the physical environment of a school safe, accessible and friendly for children with disabilities.

 

During accessibility audits conducted in 500 schools across 16 states in India in 2012-2014, it was found that due to lack of expertise and understanding of access standards amongst construction personnel and school administration, school infrastructure was often barrier- fi lled and unsafe for children with disabilities. This hampered their access to and use of classrooms, playgrounds, libraries, drinking water units, toilets, mid-day meal areas, and other areas.3 This guidebook has been prepared to:

 

i. Provide guidance on making the school infrastructure accessible for children with disabilities.

ii. Assess school facilities and infrastructure and provide design solutions based on national accessibility standards.

Tangible First Steps: Inclusion Committees as a Strategy to Create Inclusive Schools in Western Kenya

DAMIANI, Michelle L
ELDER, Brent C
OKONGO, Theophilus O
2016

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This paper provides one example of forming an inclusion committee in Kenya toward the vision of creating inclusive primary school campuses. We suggest the development of inclusion committees as a potential innovative strategy and a critical element of community reform toward disability awareness, and to increase access to primary school education for students with disabilities. The formation of the inclusion committee followed a member-driven process for identifying barriers to educational access for students with disabilities, prioritizing the needs within their local context, determining a plan of action to address these needs within existing community resources, and gaining access to new resources. Recognizing access to equitable education as a universal human right supported by local and international legislation, this paper works within the tensions that exist between Western constructs of education and how they are applied in post-colonial countries in the global South. Our findings suggest that establishing diverse participation among stakeholders led to even more inclusive representation; that inclusion committee actions led to local and national level involvement with the initiative; and that community-driven progress toward inclusive education presented both strengths and challenges in terms of sustainability. Finally, we discuss implications for under-resourced schools, including those in the global North.

 

Disability & the Global South (DGS), 2016, Vol. 3 No. 1

Disability & the Global South (DGS), 2016, Vol. 3 No. 1

2016

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Articles include:

  • Disability and armed conflict: A quest for Africanising disability in Uganda
  • Disadvantage and disability: Experiences of people from refugee backgrounds with disability living in Australia
  • Tangible First Steps: Inclusion Committees as a Strategy to Create Inclusive Schools in Western Kenya
  • The Re-covering Self: a critique of the recovery-based approach in India’s mental health care
  • To what extent is Universal Design for Learning “universal”? A case study in township special needs schools in South Africa
  • Una Vida Sin Palabras?: Disability, Subalternity and the Sandinista Revolution

Education for all? This is still not a reality for most children with disabilities

HANDICAP INTERNATIONAL
2015

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This advocacy briefing paper presents key information about the inclusion of children with disabilities in the education system. It highlights key facts, gaps in the provision of an equitable education system, the benefits of inclusive education and legal policy and frameworks. It outlines practical steps can be taken by education actors at different levels and suggests ways to measure progress

 

Advocacy briefing paper

Post school transition : the experiences of students with disability

CHILDREN WITH DISABILITY AUSTRALIA (CDA)
December 2015

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The transition from school is an important period. All young people should be supported throughout this time to access options which allow them to meaningfully participate and contribute to our society as adults. Many young people with disability however have extremely poor post school transition experiences.

This report is based on the direct experience of young people with disability. The paper highlights key issues from current research, legislation and consultations with key stakeholders. It explores present and past school transition practices, barriers faced by students with disability and presents recommendations for improving outcomes and options for post school transition of students with disability

Disability-inclusive education handbook for teachers

SPRUNT, Beth
McALEER, Jennifer
STEELE, Megan
DAVETA, Mereoni
QELENI, Merelesita
NALIVA, Litea
2015

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The Disability-Inclusive Education Handbook for Teachers is a resource that was developed in Fiji to enable teachers to improve the inclusiveness of their schools and classrooms so that children with specific educational needs benefit from a quality education alongside other children.

It contains general information about creating an inclusive school, information about a range of different types of disabilities, case studies and a selection of reproducible resources in the appendices. It is hoped this provides a balance between general information to make the school a place of quality education and participation for all children, along with a degree of specific information on common impairments and approaches that may help in working with students with these impairments.

For every child, a fair chance : the promise of equity

UNITED NATIONS CHILDREN’S FUND (UNICEF)
November 2015

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“UNICEF’s commitment to equity – giving a fair chance in life to every child, everywhere, especially the most disadvantaged – is built on the conviction that it is right in principle and evidence that it is right in practice. This report makes the case for closing persistent gaps in equity…” The report identifies a number of persistent gaps in equity for children, ranging from health to nutrition, to social inclusion. The report concludes by making recommendations to close gaps in equity worldwide as well as projecting progress in achieving equity by 2030

The revised UNESCO charter of physical education, physical activity and sport

UNITED NATIONS EDUCATIONAL, SCIENTIFIC AND CULTURAL ORGANIZATION (UNESCO)
November 2015

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"The International Charter of Physical Education, Physical Activity and Sport  is a rights-based reference that orients and supports policy- and decision-making in sport. Based on the universal spirit of the original Charter, and integrating the significant evolutions in the field of sport since 1978, the revised Charter introduces universal principles such as gender equality, non-discrimination and social inclusion in and through sport. It also highlights the benefits of physical activity, the sustainability of sport, the inclusion of persons with disabilities and the protection of children"

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