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Moral distress and ethical decision-making of eldercare professionals involved in digital service transformation

FRENNERT, Susanne
2020

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Aim

Technology affects almost all aspects of modern eldercare. Ensuring ethical decision-making is essential as eldercare becomes more digital; each decision affects a patient’s life, self-esteem, health and wellness.

 

Methods

We conducted a survey and interviews with eldercare professionals to better understand the behavioural ethics and decision making involved in the digital transition of eldercare.

 

Conclusion

Our qualitative analysis showed three recurrent roles among eldercare professionals in regard to digital service transformation; makers, implementers and maintainers. All three encountered challenging and stressful ethical dilemmas due to uncertainty and a lack of control. The matter of power relations, the attempts to standardize digital solutions and the conflict between cost efficiency and if digital care solutions add value for patients, all caused moral dilemmas for eldercare professionals. The findings suggest a need for organizational infrastructure that promotes ethical conduct and behaviour, ethics training and access to related resources.

Contingent Electric Shock as a Treatment for Challenging Behavior for People With Intellectual and Developmental Disabilities: Support for the IASSIDD Policy Statement Opposing Its Use

ZARCONE, Jennifer R
MULLANE, Michael P
LANGDON, Peter E
BROWN, Ivan
2020

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Issues: The International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) is an international group of researchers, clinicians, students, parents, and self-advocates that promotes worldwide research and exchange of information on intellectual and developmental disabilities. IASSIDD recently developed a policy statement regarding their opposition to the use of contingent electric skin shock (CESS) with individuals with challenging behavior and intellectual and developmental disabilities. To support the policy, the available literature was reviewed to evaluate the efficacy, side effects, generalization, and long-term effectiveness of the procedure as an intervention for challenging behavior.


Findings: The review provides a history that demonstrates that, although CESS can decrease the frequency of challenging behavior, it comes at a cost in terms of physical and emotional side effects, and questions remain regarding the long-term effectiveness of the procedure. In addition, we raise several ethical and methodological issues that make the research on the use of CESS even more concerning.


Conclusions: Although research continues in some countries, these studies are now rare. In fact, in the United States, the Food and Drug Administration has just banned the use of such devices with individuals with self-injury and aggression. It is hoped that, because there are many other forms of treatment that have shown to be effective for severe challenging behavior, we can completely avoid the use of CESS.

Paediatric blast injury field manual

THE PAEDIATRIC BLAST INJURY PARTNERSHIP
2019

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The Field Manual has been created to provide technical guidance for those with medical training.  It enables the user to adapt their knowledge to the treatment of severely injured children.  It has paediatric-specific sections on:

  • Pre-hospital care and transport
  • Damage control resuscitation, surgery and intensive care
  • Surgery (thoraco-abdominal, limb, burns)
  • Neurological injury
  • Ward care
  • Rehabilitation
  • Psychosocial support
  • Ethics and safeguarding

The Manual is also intended for use by anyone who is required to plan for the treatment of severely injured children, so they can see the resources, training and equipment that is required in a medical facility likely to receive blast injured children.

Confessions of an inadequate researcher: space and supervision in research with learning disabled children

BENZON, Nadia von
2016

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Location is often at the fore of decision-making regarding fieldwork and choice of methods. However, little research has directly discussed the importance of the choice of site in the production of research data, particularly concerning the way that different relationships will manifest between researcher and participant in different spaces. Site may be particularly important in research with (learning disabled) children, as research location is intertwined with the level of caregiving required from the researcher, and the sorts of surveillance the research engagement may be subject to. This paper draws on research with learning disabled 6–16-year olds that took place in homes, schools and the outdoors, in a variety of microgeographical locations from bedrooms to nature reserves. This paper reflects on the challenges, including the very ‘worst’ research moments, occurring in the different research environments. Whilst the research was carried out with learning disabled children and young people, the discussion has implications for research with non-disabled children and ‘vulnerable’ participants more broadly.

Influence & ethics - Handicap International's analyses, alerts, debates and recommendations on policy and ethics.

HANDICAP INTERNATIONAL
2015

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Influence & Ethics is operated jointly for Handicap International by the Advocacy Team of the Federation and by Handicap International Foundation.

Its aim is to provide information on our advocacy messages and activities, and to promote a dialogue and share analyses and ideas on policies and ethical issues related to Handicap International three main fields of intervention: reduction of armed violence, inclusive development, effective and inclusive humanitarian response

Risks to Client Confidentiality when Communicating Health Information to Blind and Partially Sighted Persons

THURSTON, M
THURSTON, A
2013

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Purpose: This research was carried out to give a more accurate picture of the particular needs of the blind and partially sighted people living in Scotland. It explores the risks to client confidentiality if information is not provided in accessible formats.

 

Method: Data were gathered from a survey of 228 blind and partially sighted persons in 15 Health Authorities across Scotland. The survey reported NHS clients’ experiences of receiving health information in accessible reading formats.

 

Results: The data indicated that about 90% of blind and partially sighted persons did not receive communications from various NHS health departments in a format that they could read by themselves.

 

Conclusions: The implications for client privacy, confidentiality and the wider impact on life and healthcare have been highlighted. The implications for professional ethical medical practice and for public policy are discussed, and recommendations for improved practice are made.

Human rights indicators : a guide to measurement and implementation

OFFICE OF THE UNITED NATIONS HIGH COMMISSIONER FOR HUMAN RIGHTS (OHCHR)
2012

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This guide is "a reference resource with operational tools, including an approach to identifying quantitative and qualitative indicators, and the corresponding methodology, to promote objective and comprehensive human rights assessments...The objective of this Guide is to bring together materials covering the conceptual, the methodological and the empirical aspects of the approach underlying the identification of context-sensitive indicators to promote and monitor the implementation of human rights. The Guide provides elements of a framework for building the capacity of human rights monitoring systems and facilitating the use of appropriate tools in policymaking, its implementation and monitoring (fig. I). The Guide aims to reach all those who share a commitment to the promotion of human rights and those who are mandated, directly or indirectly, to address human rights issues in the course of their day-to-day work"
HR/PUB/12/5

The medical peace work textbook

ROWSON, M
MELF, K
Eds
2008

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This textbook provides an introduction to medical peace work and includes chapters relating to human rights; the causes and health effects of war and violent conflict; how health workers can promote peace-building and reconstruction; and the health and well-being needs of refugees and immigrants. The book is aimed at doctors, nurses, public health workers and other health professionals, and students. This e-textbook is part of an online course on Medical Peace Work. The book can be consulted, downloaded, or printed for free without registering for the course

Prehospital trauma care systems

SASSER, Scott
et al
2005

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This manual provides guidance for policymakers on the issue of prehospital trauma care systems. The main areas covered include the organisation of the prehospital trauma care system, capacity development, data collection, transportation and communication, as well as ethical and legal considerations

VCT toolkit : HIV voluntary counselling and testing. A reference guide for counsellors and trainers

SANGIWA, Gloria
et al
January 2004

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This reference guide was developed for trainers, counselors in training, and working counselors, to highlight the links between VCT and HIV/AIDS prevention, care, and support. It provides teaching methodologies, including demonstrations, role-playing, supervised practice, desensitization, and negotiating skills. It also contains worksheets and checklists for practical sessions, and texts for demonstrations and exercises to be conducted during the training courses. Chapters focus on counselling strategies, physical and psychological care, counselling for specific groups, grief and bereavement, counsellor stress and burnout, monitoring and quality assurance, and ethics. The guide outlines key activities related to training in (and provision of) VCT services

Working positively : a guide for NGOs managing HIV/AIDS in the workplace

UK CONSORTIUM ON AIDS AND INTERNATIONAL DEVELOPMENT
December 2003

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With HIV prevalence rates of over 20% in many sub-Saharan African countries, and with infection rates rising rapidly in other parts of the world, NGOs are funding that HIV/AIDS is affecting not only programme work but also staff. If NGOs are to be credible in these communities, they need to be seen to be addressing HIV/AIDS internally in a way that is consistent with their external messages. However, developing a workable comprehensive solution that covers policy, education and prevention, and treatment and care is not easy. This guide looks at the key issues involved in developing a workplace strategy and how different NGOs and commercial organisations are approaching these issues through a series of case studies. It also provides a guide to the key components of a successful strategy and a list of useful reference documents

Working positively : a guide for NGOs managing HIV/AIDS in the workplace

UK CONSORTIUM ON AIDS AND INTERNATIONAL DEVELOPMENT
December 2003

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With HIV prevalence rates of over 20% in many sub-Saharan African countries, and with infection rates rising rapidly in other parts of the world, NGOs are funding that HIV/AIDS is affecting not only programme work but also staff. If NGOs are to be credible in these communities, they need to be seen to be addressing HIV/AIDS internally in a way that is consistent with their external messages. However, developing a workable comprehensive solution that covers policy, education and prevention, and treatment and care is not easy. In a series of documents in both PDF and MSWord formats, this guide looks at the key issues involved in developing a workplace strategy and how different NGOs and commercial organisations are approaching these issues through a series of case studies. It also provides a guide to the key components of a successful strategy

HIV/AIDS : a resource for journalists

SOUL CITY INSTITUTE FOR HEALTH AND DEVELOPMENT COMMUNICATION
et al
2002

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A consice handbook to help journalists cover HIV/AIDS in an effective and responsible manner. Provides South African-based contacts, websites and basic information on a wide range of HIV-related issues

A visible form of charity

KALE, Rajendra
1994

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This article is in response to a BBC documentary and the author suggests that health camps, which is one way of searching India' s rural patients, perhaps have different motives. The author suggests that most are done for charity and good will but they are only temporary and have inadequate follow-up

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