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Influence & ethics - Handicap International's analyses, alerts, debates and recommendations on policy and ethics.

HANDICAP INTERNATIONAL
2015

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Influence & Ethics is operated jointly for Handicap International by the Advocacy Team of the Federation and by Handicap International Foundation.

Its aim is to provide information on our advocacy messages and activities, and to promote a dialogue and share analyses and ideas on policies and ethical issues related to Handicap International three main fields of intervention: reduction of armed violence, inclusive development, effective and inclusive humanitarian response

Studies and research at Handicap International : promoting ethical data management

BRUS, Aude
September 2015

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This guide explains the importance of ethical data collection and management. Using Handicap International’s decades experience implementing projects and programmes globally, the report highlights the impact of data collection and the importance of implementing ethical approaches in a variety of situations where data is being collected. It aims to raise the awareness of Handicap International’s operational and technical staff and their partners to the ethical questions to be considered when managing data (preparation, collection, processing, analysis and sharing of information). It reaffirms the ethical principles underpinning the organisation’s actions and concludes with eight ethical recommendations that are applicable to studies and/or research in our intervention settings

Human rights indicators : a guide to measurement and implementation

OFFICE OF THE UNITED NATIONS HIGH COMMISSIONER FOR HUMAN RIGHTS (OHCHR)
2012

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This guide is "a reference resource with operational tools, including an approach to identifying quantitative and qualitative indicators, and the corresponding methodology, to promote objective and comprehensive human rights assessments...The objective of this Guide is to bring together materials covering the conceptual, the methodological and the empirical aspects of the approach underlying the identification of context-sensitive indicators to promote and monitor the implementation of human rights. The Guide provides elements of a framework for building the capacity of human rights monitoring systems and facilitating the use of appropriate tools in policymaking, its implementation and monitoring (fig. I). The Guide aims to reach all those who share a commitment to the promotion of human rights and those who are mandated, directly or indirectly, to address human rights issues in the course of their day-to-day work"
HR/PUB/12/5

Medicines : corruption and pharmaceuticals

WORLD HEALTH ORGANIZATION (WHO)
December 2009

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This fact sheet gives a brief overview of the key facts regarding corruption in the pharmaceutical supply chain. It focuses on unethical practices in the medicines supply chain, factors contributing to pharmaceutical corruption, the impact of corruption, and the response of the WHO

International compilation of human research protections

OFFICE FOR HUMAN RESEARCH PROTECTIONS, US DEPARTMENT OF HEALTH AND HUMAN SERVICES
2009

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This compilation lists the approximately 1,100 laws, regulations, and guidelines that govern human subjects research in 92 countries, as well as standards from a number of international and regional organisations. Its purpose is to help these groups familiarise themselves with the laws, regulations and guidelines where the research will be conducted and to assure those standards are followed appropriately. This edition includes numerous additions and updates to the 2008 Edition, and features the laws, regulations and/or guidelines for seven new countries: Burma (also known as Myanmar), Egypt, the Gambia, San Marino, South Korea, the Sudan and Vietnam. This compilation was developed for institutional research bodies/ethics committees, researchers, sponsors, and others who are involved in international research

Social enterprise as market regulation : non-governmental interventions in essential medicines wholesaling to low income countries

MACKINTOSH, Maureen
2008

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"This paper explores the under-studied role of social enterprise as traders and regulatory actors in the international wholesale markets for essential medicines and their impact on accessibility, quality and prices in these perverse markets, drawing on an interview survey of European-based socially oriented wholesalers supplying the medicines market for sub-Saharan Africa. The paper argues that these enterprises play an important role in regulating price and quality and hence in improving access to medicines by the poor. However they face challenging market and political conditions. The paper analyses the motivations and organisational structures that sustain social and ethical commitment in this market, drawing on theories of social enterprise and non-profit business, and surveys the challenges and constraints. It then examines the formal international and national regulatory interventions in the international markets and their effects on social enterprise, in the context of a substantial institutional divide between the medicines-related campaigning of the large international NGOs and the activities of these market-oriented social enterprises"

The medical peace work textbook

ROWSON, M
MELF, K
Eds
2008

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This textbook provides an introduction to medical peace work and includes chapters relating to human rights; the causes and health effects of war and violent conflict; how health workers can promote peace-building and reconstruction; and the health and well-being needs of refugees and immigrants. The book is aimed at doctors, nurses, public health workers and other health professionals, and students. This e-textbook is part of an online course on Medical Peace Work. The book can be consulted, downloaded, or printed for free without registering for the course

Genocide by denial : how profiteering from HIV/AIDS killed millions

MUGYENYI, Peter
2008

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This open access book charts the spread of AIDS and its impact on people in villages in Uganda, sub-Saharan Africa and the rest of the world and the unnecessary numbers of deaths, particularly among poor people that it has caused. It also looks at the campaign to gain universal access to anti-retroviral therapy and the limited level of response from the rich world. The author challenges pharmaceutical companies to develop more ethical and humanitarian ways to trade, involving crucial life-saving drugs, and calls for a new world order to ensure entitlement of the poor to rapid humanitarian relief

Measuring transparency in medicines registration, selection and procurement : four country assessment studies

BAGHDADI-SABETI, Guitelle
WONDEMAGEGNEHU, Eshetu
2006

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This report summarises the findings of the transparency assessments carried out in the first four countries participating in the WHO-initiated Good Governance for Medicines Project, which offers a technical support package for tackling unethical issues in the public pharmaceutical sector. It provides a comprehensive picture of the level of transparency and potential vulnerability to corruption in three essential functions of the public pharmaceutical sector - registration, selection and procurement of medicines. The methodology provides both qualitative and quantitative information. In each country two national investigators collected data, conducting a series of interviews with carefully selected key informants

Part 46 : protection of human subjects

OFFICE FOR HUMAN RESEARCH PROTECTIONS (OHRP)
June 2005

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This policy regulations outline the basic US Health and Human Services Policy for Protection of Human Research Subjects. It also provides additional policy information about protection for pregnant women, human foetuses, neonates and children involved as subjects in research. This is an important document for anyone who is completing research with human research subjects in the United States

Undergraduate medical and pharmacy education : the need for change and the way forward

2005

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This is a report of the Second International Consultation on Undergraduate Medical and Pharmacy Education, convened by Health Action International Asia Pacific (HAIAP) in collaboration with the South East Asia Regional Office (SEARO) and the Eastern Mediterranean Regional Office (EMRO) of the World Health Organization (WHO). It attempts to identify the shortfalls of medical and pharmacy education in the context of developing countries, indigenous cultures and changing expectations and demands on the profession. The consultation produced a series of recommendations, including introducing social, economic and ethical concepts in medical education and making access to information resources more available to pharmacy students and pharmacists

Prehospital trauma care systems

SASSER, Scott
et al
2005

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This manual provides guidance for policymakers on the issue of prehospital trauma care systems. The main areas covered include the organisation of the prehospital trauma care system, capacity development, data collection, transportation and communication, as well as ethical and legal considerations

Ethical approaches to gathering information from children and adolescents in international settings : guidelines and resources

SCHENK, Katie
WILLIAMSON, Jan
2005

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This publication was developed in response to the need for guidance in research activities involving children and adolescent with HIV/AIDS. It is aimed at project managers and researchers gathering information from and about children, and provides recommendations on how to avoid unintentional harm and how to safeguard the rights of vulnerable children during the process of data collection. Part 1 of this document presents some key principles and considerations that must be considered from the earliest stages of planning and throughout the information-gathering activity. Part 2 contains practical ethical guidelines, which are presented using a question-and-answer format. Part 3 summarizes the main recommendations and suggests roles for various staff members involved in information gathering activities with children and adolescents

Human subject regulations decision charts

OFFICE FOR HUMAN RESEARCH PROTECTIONS (OHRP)
September 2004

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These graphic aids are a guide to help decide if a research activity involving human subjects needs to be reviewed by an institutional review board (IRB) under the requirements of the US Department of Health and Human Services. The charts specify the following: whether an activity is research that must be reviewed by an IRB, whether the review may be performed by expedited procedures, and whether informed consent or its documentation may be waived. This document is useful for institutional review boards (IRBs), investigators, and others who are conducting research with human subjects

Forced migration and public health

ROBERTS, Bayard
July 2004

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This research guide provides a broad view of some of the key themes, issues and debates that encompass public health and forced migration, along with a number of references and web links to sources for further study in this field

Human rights and humanitarian action : a review of the issues

DARCY, James
HUMANITARIAN POLICY GROUP
April 2004

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This paper considers both analytical and operational approaches to human rights and humanitarian action. It considers whether the demands of human rights doctrine are consistent with the demands of humanitarian principles, arguing that the resolution of questions raised by these considerations is fundamental to the success of operational progress

Information imperialism : moral problems in information flows from south to north | Information ethics in the electronic age : current issues in Africa and the world

LOR, Peter
BRITZ, Johannes
2004

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This paper explores aspects of the relations between African libraries and their counterparts in the developed world. It analyses three forms of South-North information flow with particular reference to Africa: contributions by African scientists and scholars to the international scientific and scholarly literature; the purchase of books, journals, government documents and other material published in African countries by libraries in developed countries to add to their research collections; and the recording and subsequent commercial exploitation in developed countries of indigenous knowledge obtained from traditional communities and practitioners in African countries. The paper considers the economic, legal and ethical aspects of these forms of South-North information flow

VCT toolkit : HIV voluntary counselling and testing. A reference guide for counsellors and trainers

SANGIWA, Gloria
et al
January 2004

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This reference guide was developed for trainers, counselors in training, and working counselors, to highlight the links between VCT and HIV/AIDS prevention, care, and support. It provides teaching methodologies, including demonstrations, role-playing, supervised practice, desensitization, and negotiating skills. It also contains worksheets and checklists for practical sessions, and texts for demonstrations and exercises to be conducted during the training courses. Chapters focus on counselling strategies, physical and psychological care, counselling for specific groups, grief and bereavement, counsellor stress and burnout, monitoring and quality assurance, and ethics. The guide outlines key activities related to training in (and provision of) VCT services

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