Some psychology tips, advice and links to articles that you might find helpful in dealing with the effects of the coronavirus pandemic. Resources both for the public and for professionals are listed.
Research articles are:
- Stereotypes about Adults with Learning Disabilities: Are Professionals a Cut Above the Rest?
- Perceptions of Primary Caregivers about Causes and Risk Factors of Cerebral Palsy in Ashanti Region, Ghana
- Changes in Social Participation of Persons Affected by Leprosy, Before and After Multidrug Therapy, in an Endemic State in Eastern India
- Users’ Satisfaction with Assistive Devices in Afghanistan
- Perceived Benefits and Barriers to Exercise among Physically Active and Non-Active Elderly People
Brief reports are:
- The GRID Network: A Community of Practice for Disability Inclusive Development
- A Preliminary Report of the Audiological Profile of Hearing Impaired Pupils in Inclusive Schools in Lagos State, Nigeria
An experiential report is given:
- MAANASI - A Sustained, Innovative, Integrated Mental Healthcare Model in South India
In early March 2019, heavy rains and floods affected the majority of the districts in southern Malawi. At least 115,000 were affected, with scores of fatalities, injured and missing persons. The situation intensified when Cyclone Idai reached Malawi, increasing the devastation caused by heavy rain weeks earlier. When Cyclone Idai caused the Shire river to reach capacity and flood, the districts of Chikwawa and Nsanje were among the worst affected. The aim of this rapid needs assessment was to inform the design of HelpAge International’s own humanitarian response to the devastating impact of Cyclone Idai on older people in Malawi. The Malawi Network of Older Persons’ Organisations (MANEPO) and HelpAge International jointly conducted the assessment in Chikwawa and Nsanje districts in March 2019. The report also aims to support organisations operating in the affected areas to develop inclusive programmes and support advocacy for the rights of older people to be upheld in the response. The report contains key findings of the assessment, together with observations and analysis.
The aim of this study was to explore the experiences of older people with disabilities across a range of humanitarian settings, considering:
- whether older people with disabilities have additional needs and challenges accessing humanitarian assistance and protection
- what factors facilitate or limit access by older people with disabilities to humanitarian assistance and protection
- to what extent is humanitarian response inclusive of older people with disabilities
A systematic literature review of published studies was conducted. Key online humanitarian guidelines were explored to review how far they explicitly address older people with disabilities. Data from six population-based disability surveys comparing the living situation of older people with and without disabilities were analysed. These included databases from two crises-affected populations in Haiti (post-earthquake) and Palestine. Data from four non-humanitarian settings was also reviewed to explore more broadly the situation for older people with disabilities – India, Guatemala, Cameroon and Nepal. Interviews were held with older people with disabilities, members of their families and local key informants in two conflict-affected populations in Ndutu and Mtendeli refugee camps in Western Tanzania, and Donetsk and Luhansk regions of Eastern Ukraine to find out about their experiences. Staff of five international agencies working in humanitarian response were also interviewed.
Findings highlight particular issues facing older people with disabilities in humanitarian crises: more risk escaping from danger; barriers to accessing social protection and work; barriers to accessing health and rehabilitation services; barriers to accessing food and other essentials; unsuitable housing and poor living conditions; insecurity and discrimination; threats to dignity and independence; social isolation and loneliness; risks to mental health; and missing from humanitarian response.
A table brings together the findings from the different components of the research to show the needs, risks, barriers and enablers for older people with disabilities identified in the research. Recommendations are provided to humanitarian donors, policy makers and practitioners
Published in 2011, the Grand Challenges in Global Mental Health initiative provided a framework to guide the research needed to improve treatment and prevention of mental health disorders and expand access to mental health services. At the Academy’s workshop on global mental health participants reflected on progress since 2011, focusing on specific life-course stages, and identified priorities for research in treatment and prevention, as well as enduring challenges and emerging opportunities
"This Background Note focuses on inequalities associated with old age, disability and mental health. It argues that these should be considered salient sources of group-based difference, given the numbers of people affected, their marginalisation and vulnerability, and their relative neglect in international agreements to date. This note identifies a lack of data as a particular concern, but one that can be addressed through revisions to standard household surveys. To this end, the paper discusses the available data and their limitations, constraints to better data collection and efforts needed to adjust key international survey instruments -the World Bank’s Core Welfare Indicator Questionnaire (CWIQ) and Living Standards and Measurement Survey (LSMS), Macro International’s Demographic and Health Survey (DHS) and the UNICEF Multiple Indicator Cluster Survey (MICS)- to collect reliable data on these issues. It sets out technical adjustments that would enable these surveys to broaden their coverage, collect richer information and improve their identification of these three groups. It concludes by commenting on how measures to address the inequalities that affect these groups could be incorporated within a new post-2015 framework agreement"
ODI Background note
This resource presents the selected survey questions on disability and mental health used for the Background Note on inequalities associated with old age, disability and mental health
"Issues related to early childhood feature prominently in the MDG framework (as do malnutrition, HIV status and malaria), and data collection in these areas is fairly advanced. Other sources of inequality are notable by their virtual absence - among these, older age, disability and mental illness, although these issues each appear to affect sizeable numbers of particularly vulnerable people throughout the world. A clear obstacle to ‘mainstreaming’ these sources of inequality in a new post-2015 agreement is the widespread lack of nationally representative internationally comparable data. This could arise from definitional or technical issues (what to measure and/or how), operational issues (e.g., resource or capacity constraints), attitudinal issues (relating to stigma) and/or lack of demand from data users. Greater attention is needed to explore these constraints and how they might be overcome. To this end, this paper discusses currently available data and its limitations, constraints to better data collection and efforts needed to adjust key international survey instruments- the World Bank’s Core Welfare Indicator Questionnaire (CWIQ) and Living Standards and Measurement Survey (LSMS), Macro International’s Demographic and Health Survey (DHS) and the UNICEF Multiple Indicator Cluster Survey (MICS) - to collect reliable data on these sources of inequality, alongside other household indicators"
Note: Accepted under the "Addressing Inequalities" Global Thematic Consultation - Call for Proposals for Background Papers, Oct 2012
These guidelines "provide practical advice about how to make a sustained transition from institutional care to family-based and community based alternatives for individuals currently living in institutions and those living in the community, often without adequate support. The Guidelines are aimed primarily at policy and decision makers in the European Union and the neighbouring countries with responsibility for the provision of care and support services for children, people with disabilities and their families, people with mental health problems and older people"
This toolkit "aims to explain how European Union funds can support national, regional and local authorities in designing and implementing structural reforms aimed at facilitating the development of quality family-based and community-based alternatives to institutional care. It addresses primarily the desk officers of the European Commission, managing authorities, intermediate bodies, monitoring committees and project promoters in the EU Member States and in acceding, candidate and potential candidate countries; and any other donors investing in services for children, people with disabilities, people with mental health problems or older people"
"Drawing on the experience of four organizations (ADD International, Sightsavers, HelpAge International, Alzheimer’s Disease International), this paper argues the case for a greater focus on horizontal inequalities which relate to social factors of ‘difference’, and which contribute to marginalization. By focusing on the experience of persons with disabilities, older people and people with mental health issues, the paper explores the dynamics and mechanisms which marginalize individuals, and calls for a greater focus on these issues in current and future development frameworks. The paper highlights the importance of bringing the ‘lived experience’ in to the analysis and policymaking process through initiatives such as the ‘Voices of the Marginalized’ research project which promotes the voice and participation of persons with disabilities, older people and people with mental health issues"
Note: Accepted under the "Addressing Inequalities" Global Thematic Consultation - Call for Proposals for Background Papers, Oct 2012
This policy guideline is "intended to offer a concise description of the concept of psychosocial support and how it relates to older carers of orphaned and vulnerable children in a time of HIV and AIDS. It offers recommended strategic focus areas which may be used to influence policies which provide support for older carers. Policy makers may find the guidelines helpful in providing ideas to effect changes that will improve the wellbeing of older carers"
"These guidelines were especially developed with the aim of impacting on the wellbeing of older carers living in situations of poverty and in a time of HIV and AIDS. The aim of this set of resource materials is to enable home based caregivers, development facilitators and peer counsellors to have relevant information and guidance on strengthening psychosocial care and support to older carers. The ideas proposed can be used individually or in groups as resource materials...The guideline comes in eight units...Each unit begins with an introductory section which gives community caregivers important background information about the topic being discussed. Each section is accompanied by four types of activities: reflection exercises, case studies, practical application and finally planning exercises and general tips...A range of annexes is appended to this guideline for more detailed reference to issues raised in the unit discussions"
This summary guideline describes a model for supporting older home-based carers developed by HelpAge International in Tanzania, which is being implemented in several districts. The model has four elements: collecting baseline data, training older carers in home-based care and counselling, setting up support groups and linking older carers to services. This resource is useful to people interested in home-based care for supporting older carers of people living with HIV
This report presents the results of phone call survey led by HelpAge International with older people affected by the conflict situation in Osh in 2010. "The interviews revealed that two thirds of the respondents were coping badly with the situation, about 60 per cent stated that they found it difficult to get food. While 70 per cent said that they had to take medicine regularly, only about one third had some medication left. It came out that older people in humanitarian crisis often face life-threatening problems. However, there were also positive examples of how older people cope with these threats. They often are, against all odds, still caring for other people and help out each other, regardless of ethnics or religion"
This project briefing presents key findings and policy recommendations from a study conducted in the East and Southern African region that aimed to improve understanding on how these households cope during emergencies. A literature review was followed by country case studies in Northern Uganda and Zimbabwe in which members of self-help group households, both older people and children, and organisations involved in the emergency response were interviewed. Recommendations are provided on how emergency preparedness and response can better meet the needs of such households in the region
Project briefing, No 33
This is a report on women and health - both women’s health needs and their contribution to the health of societies. Women’s health has long been a concern for the World Health Organization but today it has become an urgent priority. This report explains why. Using current data, it takes stock of what is known about the health of women throughout their lives and across the different regions of the world
This picture story shows the involvement of grandparents in memory work in Uganda - either in writing memory books for their grandchildren or in reading and updating memory books created by their children, for their grandchildren
This report presents the findings of a study in 15 rural villages to obtain information on the roles of older people in HIV/AIDS affected households and to identify potential interventions to meet their financial, psychosocial and other support needs. Research methods included case studies, in-depth interviews and focus groups with older carers of children in Cambodia to understand their problems and to explore their support needs. The findings demonstrated that the HIV/AIDS epidemic has led to significant changes in the responsibilities and needs of older people and that older people in HIV/AIDS affected households are vulnerable to extreme poverty, and at times, destitution. The report concludes with recommendations for possible local response interventions to address the needs of older people impacted by HIV/AIDS
"This revised, retitled and updated bibliography now lists c. 1750 items. It aims to record the cumulative formal knowledge base in the disability field in countries of the Middle East, especially Egypt, Iran, Iraq, Israel, Jordan, Lebanon, Saudi Arabia, Syria, Turkey, and some smaller neighbours. Around 45% of the items in the bibliography, listed in the last two sections with a brief introduction, comprise historical materials of the Middle East from 1751 to 1970 and from Antiquity to 1750, as an essential and fascinating part of the cultural background. This earlier material has more annotation (and so takes about 60% of the total word-count), to enable potential readers to find the disability-related parts that are sometimes hidden in odd corners or footnotes, and also to indicate some cultural features that might be less easily understood nowadays. Greater coverage has also been given to disability and deafness in Egyptology, Assyriology, and the Hittite Kingdom in Anatolia"
Source e-bulletin on Disability and Inclusion