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Missing millions: How older people with disabilities are excluded from humanitarian response

SHEPPARD, Phillip
POLACK, Sarah
McGIVERN, Madeleine
July 2018

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The aim of this study was to explore the experiences of older people with disabilities across a range of humanitarian settings, considering:

  • whether older people with disabilities have additional needs and challenges accessing humanitarian assistance and protection
  • what factors facilitate or limit access by older people with disabilities to humanitarian assistance and protection
  • to what extent is humanitarian response inclusive of older people with disabilities

A systematic literature review of published studies was conducted. Key online humanitarian guidelines were explored to review how far they explicitly address older people with disabilities. Data from six population-based disability surveys comparing the living situation of older people with and without disabilities were analysed. These included databases from two crises-affected populations in Haiti (post-earthquake) and Palestine. Data from four non-humanitarian settings was also reviewed to explore more broadly the situation for older people with disabilities – India, Guatemala, Cameroon and Nepal. Interviews were held with older people with disabilities, members of their families and local key informants in two conflict-affected populations in Ndutu and Mtendeli refugee camps in Western Tanzania, and Donetsk and Luhansk regions of Eastern Ukraine to find out about their experiences. Staff of five international agencies working in humanitarian response were also interviewed. 

 

Findings highlight particular issues facing older people with disabilities in humanitarian crises: more risk escaping from danger;  barriers to accessing social protection and work; barriers to accessing health and rehabilitation services; barriers to accessing food and other essentials; unsuitable housing and poor living conditions;  insecurity and discrimination; threats to dignity and independence; social isolation and loneliness; risks to mental health; and missing from humanitarian response.

 

A table brings together the findings from the different components of the research to show the needs, risks, barriers and enablers for older people with disabilities identified in the research. Recommendations are provided to humanitarian donors, policy makers and practitioners

Learning from experience: Guidelines for locally sourced and cost-effective strategies to modify existing household toilets and water access

WORLD VISION
CBM Australia
2018

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This learning resource is the result of a partnership between World Vision Australia and CBM Australia that aims to improve inclusion of people with disabilities in World Vision’s Water, Hygiene and Sanitation (WASH) initiatives, including in Sri Lanka. The guidelines are based on experiences and observations from World Vision’s implementation of the Rural Integrated WASH 3 (RIWASH 3) project in Jaffna District, Northern Province, funded by the Australian Government’s Civil Society WASH Fund 2. The four year project commenced in 2014. It aimed to improve the ability of WASH actors to sustain services, increase adoption of improved hygiene practices, and increase equitable use of water and sanitation facilities of target communities within 11 Grama Niladari Divisions (GNDs) in Jaffna District.

To support disability inclusion within the project, World Vision partnered with CBM Australia. CBM Australia has focused on building capacities of partners for disability
inclusion, fostering connections with local Disabled People’s Organisations, and providing technical guidance on disability inclusion within planned activities. World Vision also partnered with the Northern Province Consortium of the Organizations for the Differently Abled (NPCODA) for disability assessment, technical support and capacity building on inclusion of people with disabilities in the project.

HOME MODIFICATIONS FOR WASH ACCESS
This document is one of two developed in the Jaffna District and describes the strategies which were used to assist people with disabilities to access toilet and water facilities at their own home. The strategies were designed to be low cost and were developed using locally available materials and skills in the Jaffna District of Sri Lanka. Houses and toilet structures in the region were made of brick and concrete. No new toilets were built and modifications involved only minor work to existing household structures, water points and toilets.

NOTE:
The development of this learning resource was funded by the Australian Government's Civil Society WASH Fund 2.

Hear my voice: old age and disability are not a curse. A community-based participatory study gathering the lived experiences of persons with disabilities and older people in Tanzania

MRISHO, Mwifadhi
FAKIH, Bakar
GREENWOOD, Margo
STEFF, Marion
2016

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Community based participatory research (CBPR) was used to provide evidence on the specific nature and experiences of persons with disabilities and older people from their own perspectives in Tanzania, through the lens of social, political, economic and cultural inclusion. The aim was to strengthen efforts to provide services for and improve the lives of people living in the rural and urban settings of Nachingwea and Kibaha Urban Municipal Council. Twenty-nine peer researchers (nine persons with disabilities, 10 older people and 10 Tanzanian Non-Governmental Organisation (NGO) members working in these communities) were involved in the study. A total of 106 stories were collected. Eight priority areas emerged and were chosen by peer researchers for further discussion in groups: access to education and quality learning; access to health services; issues fed back from NGOs; poverty relating to income and dependence; attitudes towards witchcraft and albinism; relationship difficulties and marriage breakdowns; sexual violence and gender issues; poor treatment from family
 

Common European guidelines on the transition from institutional to community based care|Guidance on implementing and supporting a sustained transition from institutional care to family-based and community-based alternatives for children, persons with dis

THE EUROPEAN EXPERT GROUP ON THE TRANSITION FROM INSTITUTIONAL TO COMMUNITY BASED CARE (EEG)
November 2012

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These guidelines "provide practical advice about how to make a sustained transition from institutional care to family-based and community based alternatives for individuals currently living in institutions and those living in the community, often without adequate support. The Guidelines are aimed primarily at policy and decision makers in the European Union and the neighbouring countries with responsibility for the provision of care and support services for children, people with disabilities and their families, people with mental health problems and older people"

The vulnerability and living conditions of older people in Addis Ababa

HELPAGE INTERNATIONAL ETHIOPIA
INTERNATIONAL ORGANIZATION FOR MIGRATION (IOM)
September 2010

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This report presents the findings of a city-wide survey that aimed to provide comprehensive information on the vulnerabilities and coping mechanisms of poor urban older people in Addis Ababa and to explore options for linkages to existing service and assistance programmes. The report presents a range of issues including food and income security, shelter, water and sanitation, health, HIV and AIDS, training, and family and community care. It concludes by making recommendations for improving older people’s food and income security, access to healthcare, and living environment. It calls for older women to be given special emphasis. This study is intended as a background and guide to government agencies, donors, international agencies and international and national NGOs in order to better target programmes and projects for older people

Older citizens monitoring in Ethiopia : a handbook

HUMPHREYS, Andrew
2009

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"The primary aim of this manual is to provide a guide for woreda governments, NGOs and communities to replicate an older citizens monitoring approach to development in the Ethiopian context. The guidance is developed from the experiences of a pilot project on older citizens monitoring which was implemented in several woredas of Ethiopia. The guide outlines 3 main sections: Establish the structure, Develop skills and capacity, and implement monitoring systems. Each section details the steps needed to plan and implement an older citizens monitoring project in the Ethiopian context in an approximate chronological order"

Weak promise on HIV/AIDS [whole issue]

August 2006

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This issue focuses on HIV and AIDS and ageing and considers the effects of the epidemic on the elderly. Articles look at how parents provide care during illness to their children with little formal support in Cambodia, explore the experience of older people affected by HIV in dealing with grief in Tanzania, and report on the work of 'Empathy clubs' for older women caring for children with HIV in Vietnam

Children on the brink 2004 : a joint report of new orphan estimates and a framework for action

UNITED NATIONS CHILDREN'S FUND (UNICEF)
JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
USAID
July 2004

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Millions of children are growing up without parents. Millions more are in households with family members sick or dying from AIDS; children in sub-Saharan Africa have been hardest hit. This report presents the latest statistics on historical, current and projected numbers of children under 18 who have been orphaned by AIDS and other causes. This edition of the biennial report underscores the changing needs of this vulnerable group as they progress through adolescence and calls for the urgent development and expansion of family and community support

The ageing and development report : a summary. Poverty, independence and the world's older people

RANDEL, Judith
GERMAN, Tony
EWING, Deborah
Eds
1999

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This is a summary of a report on the circumstances of older people in developing countries and countries in transition. It has chapters on economic security, health, family and community life, poverty, gender, and emergencies. It also includes information on demographic trends and ageing in specific countries and regions. It is suitable for planners, managers, trainers and students

Resource kit for independent living : tools for power

RATZKA, Adolf D
Ed
1992

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Produced for the Disabled Peoples' International Independent Living Committee, this document is intended to empower disabled individuals and organisations of disabled persons by providing them with easily accessible information on Independent Living philosophy and approach, model projects, and sources of technical assistance in organising grass-roots initiatives. It also serves as a handbook for professionals working in such areas as community planning, social policy and services, rehabilitation, and vocational training. Finally it wants to aid NGO's in their disability work and to inform potential sponsors about the innovative approach that Independent Living entails for the equalisation of opportunities for persons with disabilities

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