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COVID-19: Older people's stories

HELPAGE INTERNATIONAL
April 2020

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HelpAge International is working with older people and network members around the world to respond to the threat of the coronavirus (COVID-19) pandemic.

The experiences of older people and how they are responding to the spread of the virus are available.

 

Guidance available includes: COVID-19 in general; for care homes; administering pensions; collecting pensions; for communities and older persons associations.

 

Briefing notes include: older people and COVID-19 in low- and middle-income countries and humanitarian settings; and key messages for decision makers. 

 

Many resources are available with some also available in Arabic, Russian and Spanish. 

Rapid needs assessment of older people Cyclone Idai, Malawi

HELPAGE INTERNATIONAL
MALAWI NETWORK OF OLDER PEOPLES ORGANISATIONS (MANEPO)
March 2019

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In early March 2019, heavy rains and floods affected the majority of the districts in southern Malawi. At least 115,000 were affected, with scores of fatalities, injured and missing persons. The situation intensified when Cyclone Idai reached Malawi, increasing the devastation caused by heavy rain weeks earlier. When Cyclone Idai caused the Shire river to reach capacity and flood, the districts of Chikwawa and Nsanje were among the worst affected. The aim of this rapid needs assessment was to inform the design of  HelpAge International’s own humanitarian response to the devastating impact of Cyclone Idai on older people in Malawi. The Malawi Network of Older Persons’ Organisations (MANEPO) and HelpAge International jointly conducted the assessment in Chikwawa and Nsanje districts in March 2019. The report also aims to support organisations operating in the affected areas to develop inclusive programmes and support advocacy for the rights of older people to be upheld in the response. The report contains key findings of the assessment, together with observations and analysis. 

HelpAge training portal

HELPAGE INTERNATIONAL
2019

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This digital learning platform was established for the purpose of remote humanitarian response for hard to reach areas. HelpAge International is utilizing expertise to train international and national organizations, government agencies, and the private sector on Age Inclusive Interventions.

These series of trainings on 'Helping Older People in Emergencies (HOPE)' is designed to strengthen the capacity of humanitarian actors to ensure that their humanitarian action is evidence-based and responds to the distinct needs and priorities of crisis-affected to older men, women, and other vulnerable groups.

 

Modules available are:

1. Age & its interaction with vulnerabilities in humanitarian crises

2. Inclusion of older people in emergency needs assessments & SADDD

3. Health, home-based & community-based care in humanitarian crises

4. Protection of older people in humanitarian crises

5. Food security & livelihoods interventions for older people in humanitarian crises

Older people’s perceptions of health and wellbeing in rapidly ageing low- and middle-income countries

ALBONE, Rachel
2019

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This report presents the findings of an analysis of data collected by HelpAge International and its network members using HelpAge’s Health Outcomes Tool. The tool is designed to collect data to better understand health and care in older age, and to measure the impact of HelpAge’s health and care programmes. It was developed in response to the challenges posed by the lack of data on older people’s health and care, particularly in low- and middle-income countries, and the resulting lack of understanding about how best to provide age, gender and disability sensitive services for older women and men. The tool was used between 2014 and 2017 in nine low- and middle-income countries across Africa, Asia and Latin America,1 and gathered data from over 3,000 older people. The findings are presented here in the context of the current debate and evidence on older people’s right to health.

This report explores three different areas in relation to ageing and health: older people’s access to health services; availability of care and support; and the impact both health, and care and support services have on older people’s health status, functional ability and wellbeing.

 

 

 

Missing millions: How older people with disabilities are excluded from humanitarian response

SHEPPARD, Phillip
POLACK, Sarah
McGIVERN, Madeleine
July 2018

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The aim of this study was to explore the experiences of older people with disabilities across a range of humanitarian settings, considering:

  • whether older people with disabilities have additional needs and challenges accessing humanitarian assistance and protection
  • what factors facilitate or limit access by older people with disabilities to humanitarian assistance and protection
  • to what extent is humanitarian response inclusive of older people with disabilities

A systematic literature review of published studies was conducted. Key online humanitarian guidelines were explored to review how far they explicitly address older people with disabilities. Data from six population-based disability surveys comparing the living situation of older people with and without disabilities were analysed. These included databases from two crises-affected populations in Haiti (post-earthquake) and Palestine. Data from four non-humanitarian settings was also reviewed to explore more broadly the situation for older people with disabilities – India, Guatemala, Cameroon and Nepal. Interviews were held with older people with disabilities, members of their families and local key informants in two conflict-affected populations in Ndutu and Mtendeli refugee camps in Western Tanzania, and Donetsk and Luhansk regions of Eastern Ukraine to find out about their experiences. Staff of five international agencies working in humanitarian response were also interviewed. 

 

Findings highlight particular issues facing older people with disabilities in humanitarian crises: more risk escaping from danger;  barriers to accessing social protection and work; barriers to accessing health and rehabilitation services; barriers to accessing food and other essentials; unsuitable housing and poor living conditions;  insecurity and discrimination; threats to dignity and independence; social isolation and loneliness; risks to mental health; and missing from humanitarian response.

 

A table brings together the findings from the different components of the research to show the needs, risks, barriers and enablers for older people with disabilities identified in the research. Recommendations are provided to humanitarian donors, policy makers and practitioners

Humanitarian inclusion standards for older people and people with disabilities

ADCAP
TILL, Celia
et al
February 2018

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The Humanitarian inclusion standards for older people and people with disabilities provide guidance across all areas and at all stages of emergency response to ensure older people and people with disabilities are not left out.

The standards consist of nine key inclusion standards, including identification, safe and equitable access, knowledge and participation, and learning. Alongside these, there are seven sector-specific inclusion standards, which include protection, shelter, health, and water, sanitation and hygiene.

Each standard comes with key actions, guidance, tools and resources, and case studies illustrating how older people and people with disabilities have been included in humanitarian responses.

The sector-specific standards provide guidance in three key areas: data and information management, addressing barriers to inclusion, and participation of older people and people with disabilities.

By implementing the key action points provided, organisations will build up a greater evidence base, deliver more inclusive programmes, and be able to better demonstrate impact on the lives of those most at risk during humanitarian crises.

The standards can be used as guidance during programme development, implementation and monitoring, and as a resource for training and advocacy.

A situational analysis of disability and aging in Myanmar

ZEITZER, Ilene
2018

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The interaction of aging and disability is explored in the context of Myanmar. Blindness and deafness data are taken from the census. Carer givers and the family are discussed. Goverment and civil society responses are also discussed.

A briefing paper is also available.

Global AgeWatch Insights. The right to health for older people, the right to be counted

ALBONE, Rachel
et al
2018

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This report considers the progress being made to achieve older people's right to health amid the global drive towards universal health coverage. It explores how older people are currently accessing health services and what changes need to be made to improve on this. It considers the role of data in driving and informing changes to health systems and the services they deliver. Data must be collected with and about older people to ensure adequate evidence for service design and delivery that is targeted and appropriate. This report explores the adequacy of current data systems and collection mechanisms and how, alongside health systems, they must be adapted in an ageing world. 

 

This report is supported by 12 country profiles (for Argentina, Colombia, El Salvador, Kenya, Lebanon, Moldova, Myanmar, Pakistan, Serbia, Tanzania, Vietnam and Zimbabwe; see Appendix 1). These provide national information on trends in the physical and mental health status of older people, and population-level information on access to UHC. The profiles are supplemented by data mapping, showing the national data available on older people’s health in the 12 profile countries, and revealing the data gaps. The data mapping results are available at www.GlobalAgeWatch.org.

“We can also change” Piloting participatory research with persons with disabilities and older people in Bangladesh

BURNS, Danny
OSWALD, Katy
November 2014

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Sightsavers, HelpAge International, ADD International and Alzheimer’s Disease International worked together with the Institute of Development Studies (IDS) to bring the perspectives of those who live in poverty or who are highly marginalised into post-2015 policy making. The aim of the research was to understand better the experiences of social, political and economic exclusion of persons with disabilities and older people in Bangladesh from their own perspectives. Two groups (community and NGO) of peer researchers collected 70 stories from poor and/or excluded persons with disabilities and older people from each of the two sites: Bhashantek, an urban slum in Dhaka; and Cox’s Bazar, a rural area in southeast Bangladesh. From the stories collected and analysed in workshops, the peer researchers identified 13 priority areas that affect persons with disabilities and older people: accidents and disasters; livelihoods; access to education; medical treatment; family support; exclusion and mistreatment; superstition; access to services; mobility; marriage; land; rape and sexual abuse; the role of grassroots community-based organisations. Recommendations from the researchers are made in each area. The peer research programme was evaluated and guidelines for its use are provided.

Hidden victims of the Syria crisis : disabled, injured and older refugees

HELPAGE INTERNATIONAL
HANDICAP INTERNATIONAL
April 2014

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This report presents research undertaken to highlight the number and needs of Syrian refugees in Jordan and Lebanon living with impairment, injury and chronic disease – for the purposes of this study these groups are referred to as “people with specific needs”. Throughout the report specific consideration is given to the position of older people with specific needs. Due to access and security constraints it was not possible to collect data in Syria itself, however it is recognised that the needs of refugees identified in the following report will be reflected within Syria, and that in this more extreme humanitarian situation the issues outlined below demand further consideration and response

Ageing in the twenty-first century : a celebration and a challenge

UNITED NATIONS POPULATION FUND (UNPF)
HELP AGE INTERNATIONAL
2012

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"This report, a collaborative effort of the United Nations and other major international organizations working in the area of population ageing, sheds light on progress towards implementing this Plan. It aims to raise awareness about the speed of population ageing and, more generally, about the experience of being old in our changing world. It recommends moving urgently to incorporate ageing issues into national development plans and poverty reduction strategies. It also shows that abuse, neglect and violence against older persons are much more prevalent than currently acknowledged, and points the way towards more effective prevention strategies and stronger legislation that can protect their human rights"

HIV and AIDS strategy for older people

HELPAGE INTERNATIONAL
2011

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This resource presents an HIV and AIDS strategy for older people. The impact of HIV and AIDS on older people and the challenges for older carers are described. Recommendations are provided for HIV and AIDS prevention, care and support, and treatment strategies for older people

Insights on ageing : a survey report

WILLIAMS, Jennifer
2011

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This report presents the results of a survey administered in 32 countries which highlight the situation of older people around the world today. The information presented in the survey report provides insights into what older people around the world think about ageing and what they would like to see their governments do to make living in older age better. This resource is useful for people interested in the global situation of older people

What do older people need in emergencies?|The experience in the Philippines after typhoon Ketsana

FORMILLEZA, Sammie P
2011

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This report presents a study on the experiences of older people in 5 rural and urban communities of the Philippines following Typhoon Ketsana. The research methods included key informant interviews (KII), focus group discussions (FGD) and a review of secondary materials. The results provide a summary of older people’s needs and problems on the following issues: basic food needs, shelter (including evacuation), water supply, health, clothing, household articles, bedding and livelihood activities. It is recommended that it is critical to work with the older people and their community organisations in identifying ways and means to address their concerns during disaster and recovery situations

Psychosocial care and support for older carers of orphaned and vulnerable children : policy guidelines

MLILO, Ncazelo
MEINTJES, Berenice
2011

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This policy guideline is "intended to offer a concise description of the concept of psychosocial support and how it relates to older carers of orphaned and vulnerable children in a time of HIV and AIDS. It offers recommended strategic focus areas which may be used to influence policies which provide support for older carers. Policy makers may find the guidelines helpful in providing ideas to effect changes that will improve the wellbeing of older carers"

Psychosocial care and support for older carers of orphaned and vulnerable children : programming guidelines

REGIONAL PSYCHOSOCIAL SUPPORT INITIATIVE (REPSSI)
HELPAGE INTERNATIONAL
2011

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"These guidelines were especially developed with the aim of impacting on the wellbeing of older carers living in situations of poverty and in a time of HIV and AIDS. The aim of this set of resource materials is to enable home based caregivers, development facilitators and peer counsellors to have relevant information and guidance on strengthening psychosocial care and support to older carers. The ideas proposed can be used individually or in groups as resource materials...The guideline comes in eight units...Each unit begins with an introductory section which gives community caregivers important background information about the topic being discussed. Each section is accompanied by four types of activities: reflection exercises, case studies, practical application and finally planning exercises and general tips...A range of annexes is appended to this guideline for more detailed reference to issues raised in the unit discussions"

Call for the recognition of ageing, Alzheimer’s disease and other dementias in the 2011 UN Summit on NCDs

ALZHEIMER’S DISEASE INTERNATIONAL
et al
2011

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This joint position paper highlights that ageing and the associated risk of Alzheimer’s disease and other dementias is a key factor for the 21st century’s social and economic sustainability and should therefore be an essential component of the UN’s NCD considerations. This paper outlines seven related considerations for the UN Summit on NCDs and highlights eight recommendations. This paper is useful to anyone interested in NCDs and ageing

Ageing and the challenge of non-communicable diseases in low and middle-income countries : a position paper

HELPAGE INTERNATIONAL
2011

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This position paper presents detailed information to advocate for a "whole life course approach to NCDs, which is inclusive of all ages, should be adopted for any recommendations on detection and diagnosis, and strategies for prevention, management and treatment as well as more effective care." It concludes with key messages and recommendations, and is useful for anyone interested in ageing and non-communicable disease in low and middle-income countries

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