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At risk of exclusion from CRPD and SDGs implementation: Inequality and persons with deafblindness. Initial global report on situation and rights of persons with deafblindness

JENSEN, Rune
et al
September 2018

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Representing between 0.2% to 2% of the population, persons with deafblindness are a very diverse yet hidden group and are, overall, more likely to be poor and unemployed, and with lower educational outcomes. Because deafblindness is less well-known and often misunderstood, people struggle to obtain the right support, and are often excluded from both development and disability programmes. This initial global report on the situation of persons with deafblindness seeks to start a dialogue between international disability rights and development stakeholders, and is based on research undertaken by the World Federation of the Deafblind (WFDB) combining the largest population-based analysis of persons with deafblindness conducted to date (disaggregation of 22 population-based surveys from low, middle and high-income countries), an academic literature review, two surveys conducted among members and partners of WFDB and Sense International. Women and men with deafblindness from across the world took part in the Helen Keller World Conference in June 2018, and were consulted to confirm the findings and elaborate on the recommendations for this report.

 

Data and discussion are presented on people with deafblindess and: inequality; poverty; work; education; health; participation on political and public life; and social life. Datasets are included. 

 

Education and disability: Analysis of data from 49 countries

UNESCO
March 2018

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Persons with a disability are among the population groups most likely to suffer from exclusion from education but data that permit an analysis of the links between disability and education remain scarce. This paper examines educational disparities linked to disability based on data from 49 countries and territories for five education indicators:

● Proportion of 15- to 29-year-olds who ever attended school

● Out-of-school rate (primary school age, lower secondary school age)

● Completion rate (primary education, lower secondary education)

● Mean years of schooling of the population 25 years and older

● Adult literacy rate (population 15 years and older)

 

The education indicators were calculated with data from three sources, collected between 2005 and 2015: Demographic and Health Surveys (DHS) sponsored by USAID, School-to-Work Transition Surveys (SWTS) by ILO, and population census data compiled by IPUMS-International. Comparability of the data across countries is limited because only some of the surveys and censuses used questions developed by the Washington Group on Disability Statistics to identify persons with a disability. The accuracy of the indicator estimates is also affected by sampling and non-sampling errors in the data, the small sample size of many of the surveys that were analysed, and the relatively small proportion of persons with disabilities in each country’s population. Moreover, because of the scarcity of national data, it is currently not possible to generate statistics on the status of persons with disabilities with regard to education that are regionally or globally representative.

Information Paper No.49

 

The Telengana disability study : India

INTERNATIONAL CENTRE FOR EVIDENCE IN DISABILITY (ICED)
December 2014

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This report presents the findings of a study that developed and tested a best-practice population-based survey methodology to estimate the prevalence of disability in children and adults in India, and compared the extent to which people with and without disabilities access key mainstream services and opportunities including health, education and livelihoods in Telengana State, India

The Telengana disability study : summary report

INTERNATIONAL CENTRE FOR EVIDENCE IN DISABILITY (ICED)
December 2014

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This report presents a summary of the findings of a study that developed and tested a best-practice population-based survey methodology to estimate the prevalence of disability in children and adults in India, and compared the extent to which people with and without disabilities access key mainstream services and opportunities including health, education and livelihoods in Telengana State, India

The north west Cameroon disability study

INTERNATIONAL CENTRE FOR EVIDENCE IN DISABILITY (ICED)
December 2014

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This report presents the findings of a study that developed and tested a best-practice population-based survey methodology to estimate the prevalence of disability in children and adults in Cameroon, and compared the extent to which people with and without disabilities access key mainstream services and opportunities including health, education and livelihoods in north west Cameroon

The north west Cameroon disability study : summary report

INTERNATIONAL CENTRE FOR EVIDENCE IN DISABILITY (ICED)
December 2014

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This report presents a summary of the findings of a study that developed and tested a best-practice population-based survey methodology to estimate the prevalence of disability in children and adults in Cameroon, and compared the extent to which people with and without disabilities access key mainstream services and opportunities including health, education and livelihoods in north west Cameroon

Building the evidence base in disability : research summary

INTERNATIONAL CENTRE FOR EVIDENCE IN DISABILITY (ICED)
December 2014

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This research summary of presents the aims, methods and key findings from two disability studies in Cameroon and India. The studies developed a comprehensive population-based survey methodology that is compatible with the International Classification of Functioning (ICF), and explored the inter-relationship between the components of this framework

The state of the world's children 2014 in numbers : every child counts

UNITED NATIONS CHILDREN’S FUND (UNICEF)
January 2014

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This report highlights the critical role data and monitoring play in realising children’s rights. It presents an updated compendium of statistics and data (which has been produced thirty years after the initial report) relating to the position of children throughout the world but particularly within the Global South. The data indicators cover a vast range: from demography, health and education, to rate of progression, child mortality, and disparities by household wealth. It emphasises that credible data, disseminated effectively and used correctly, make change possible to target interventions that help right the wrong of exclusion by identifying needs, supporting advocacy, gauging progress and holding duty bearers to account

A national survey of public attitudes towards disability

NATIONAL DISABILITY AUTHORITY
October 2011

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This report presents the results from surveys carried out in 2001, 2006 and 2011 on public attitudes towards disability in Ireland. Public attitudes to people with disabilities can be a key facilitator or a serious barrier to their inclusion and participation in society, highlighting the importance of promoting and enabling active participation of people with disabilities in the mainstream community and access to mainstream services. The 2011 survey results indicate the importance of ensuring that Irish society and all its stakeholders recognise the need to address the negative attitudes that exist to achieve inclusion of people with disabilities
Disability Research Series 14

Availability, collection and use of data on disability in the Caribbean sub region

ECONOMIC COMMISSION FOR LATIN AMERICA AND THE CARIBBEAN (ECLAC)
January 2011

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"This paper addresses the issue of the availability of data on persons with disabilities in the Caribbean subregion....It presents the findings of a survey conducted by ECLAC aimed at gaining insight on current practices of national statistical offices and other data collecting agencies with respect to the collection of national data on persons with disabilities. Using data from the 2000 year census for eight countries, the study also examines the impact of disability on education and employment"

Increasing inclusion of persons with disabilities : reflections from disability research using the ICF in Afghanistan and Cambodia

TRANI, Jean-François
VANLEIT, Betsy
February 2010

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This paper discusses the participation of children in school based on disability surveys completed in Afghanistan and Cambodia. Using the model of the International Classification of Functioning, Disability and Health (ICF), the results of the surveys are analysed and general findings are highlighted. The paper concludes that the ICF can be used as a framework for disability research and acknowledges that cultural differences may impact results
Working Paper Series No 11

Disability in and around urban areas of Sierra Leone

TRANI, Jean-Francois
et al
2010

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This report provides an overview of the situation for people with disabilities in and around urban areas of Sierra Leone. The report presents results from a pilot survey in five locations across the country focusing upon education, employment, health and social participation. The findings of this report are further illustrated through practical graphs, charts, tables and figures. This report is useful for policy makers, advocates, development actors and service providers when planning and implementing programs in Sierra Leone

Counting the invisible : understanding the lives of people with disabilities in Pakistan

SINGAL, Nidhi
BHATTI, Feyza
MAILK, Rabea
2009

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This paper discusses "the conceptual underpinnings and findings of a household survey conducted in two regions of Pakistan which attempted to address some of these gaps in existing knowledge....The findings of this survey emphasize the continued marginalization of young people with disabilities in the areas of education, employment and marriage prospects. Additionally, reflections on the research process highlight the many challenges entailed in undertaking research on disability issues"
RECOUP Working Paper No 23

South African national HIV prevalence, incidence, behavior and communication survey 2008 : turning a tide among teenagers ?

SHISANA, O
et al
2009

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"South Africa has the largest burden of HIV/AIDS and is currently implementing the largest antiretroviral treatment (ART) programme in the world. It is therefore fitting that South Africa is the first in the world to conduct three repeated national HIV population-based surveys to help monitor our response as a nation to the HIV/AIDS epidemic. This report is the third in a time series of population-based HIV seroprevalence surveys which started in 2002 and were repeated in 2005 and again in 2008"

HIV/AIDS and disability : an exploration of organizations' responses to HIV/AIDS as it affects people with disabilities

ROHLEDER, Poul Andrew
2008

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This dissertation in clinical psychology explores the extent to which South African schools and organisations that work with persons with disabilities deal with issues of HIV and AIDS. The study indicates that although HIV education takes place, issues relating to HIV and AIDS are handled with much anxiety. The results reveal that in some cases HIV education is used to control and oppress disabled people’s sexual expression, instead of empowering them to have fulfilling sexual lives. Issues regarding sexual abuse and rape are also discussed. The dissertation ends with recommendations regarding further research on disabled people’s experiences and the need to address the silence around issues such as rape and abuse. This resource would be useful for people looking for in-depth information on disability and HIV in general (chapters 2 and 3), and with a focus on South Africa in particular (chapters 5 to 7). Moreover, it would be useful to people interested in the psychological aspects of working in the field of HIV (chapter 4)

Monitoring child disability in developing countries : results from the multiple indicator cluster surveys

UNITED NATIONS CHILDRENS FUND (UNICEF)
UNIVERSITY OF WISCONSIN
2008

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Using the ten question screen for children with disability in the multiple indicator cluster survey (MICS) in 20 countries, this report aims "to raise awareness and thereby both prevent new cases of child disability when that is possible and ensure protection and inclusion for children with disabilities. The findings presented in this publication provide decision-makers with basic information from a number of diverse countries that can be used to determine priorities related to child disability, including the prevention of childhood disabilities, the early detection of disorders leading to disability, and the timely provision of medical-rehabilitation services and comprehensive support to families with children with disabilities"

NI 54 : services for disabled children

SOLUTIONS4INCLUSION
May 2007

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This factsheet describes how an indicator for services for disabled children will be developed in the UK. The indicator will be based on an achieved sample of a minimum of 200 parents of disabled children in each local area using surveys. The survey will be used to calculate a national baseline indicator and produce a report. Details are provided for the associated toolkit, reports and related project links

The forgotten tribe : people with disabilities in Zimbabwe

CHORUMA, Tsitsi
January 2007

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This report discusses prevalence and causes of disability in Zimbabwe, and explores issues such as poverty, gender, health and HIV, education, employment and sports. It is based on a 2006 survey by Progressio Zimbabwe. The report concludes with a chapter on lessons learned and policy recommendations. This resource provides useful information for people interested in the situation and life of people with disabilities in Zimbabwe

Towards inclusion and equality in education? From assumptions to facts

BAKHSHI, Parul
TRANI, Jean-Francois
2006

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This report, part of the National Disability Survey, presents findings on education for people with disability in Afghanistan. It provides a general profile on the situation of children with disabilities and to a lesser degree, adults. This work also provides insights into the differences in educational opportunities according to the gender and age at which the person became disabled, in addition to urban and rural breakdowns. This resource would be useful for anyone with an interest in Afghanistan, inclusive education and disability and development

Practices in special education for children with intellectual disabilities

RAO, L Govinda
PANDA, KC
2005

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[Author's abstract]: Special educational practices followed by special educators of intellectually disabled children in 284 organisations were studied using a questionnaire with the domains of academic activity, behaviour problem management, therapeutics, students' performance, co-curricular activities and organisational activities. The 132 item based questionnaire with a five point response category was content validated and results were analysed using Means, SDs, and F test. Organisational variables such as rural-urban location did not produce any differential practice whereas number of services and human resource development activities of the organisations showed differences in non-academic domains of practice. Characteristics of special educators such as gender, experience, general education background and age showed some impact on special education practices in core areas such as academic activity, behaviour management and student performance. The findings have implications for planning for expansion of services

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